MYRTO: From Real-World Needs to European Scientific Engagement

MYRTO, the digital Social Rights Navigator developed by Kapa3, is taking an important step from real-world experience to the European scientific community, with two studies accepted for presentation at EONS and ESMO events in 2026.

The first study, “MYRTO as an AI-Supported Navigation Model for Equitable Access to Cancer Care: Real-World Needs from 1,083 Beneficiaries”, will be presented as a poster at EONS19 at ESMO 2026 in Madrid, 24–26 October 2026.

The study draws on the real-world needs of 1,083 Kapa3 beneficiaries, identifying eight key navigation areas: rights and benefits, disability certification and administrative procedures, access to health and social services, transportation and geographical barriers, employment and social protection, health and digital literacy, caregiver support, and referral to human professionals when needed.

The findings highlight that equitable access to cancer care is not only about clinical information. It also depends on people’s ability to find, understand and use reliable information during an exceptionally demanding period of their lives.

From real-world needs to technology evaluation

The second study, “Source-Based Artificial Intelligence (AI) Navigation for Fragmented Nonclinical Cancer-Support Information: Pilot Evaluation of a Human-Supervised System”, has been accepted as an e-Poster at the ESMO AI & Digital Oncology Congress 2026, taking place on 16–18 November 2026.

This study focuses on the operation and evaluation of MYRTO as a source-grounded, human-supervised AI system.

The pilot evaluation drew on 448 authoritative documents and 29,148 indexed excerpts and assessed 100 predefined questions. For all 84 answerable questions, source-supported and actionable responses were generated without modifications following Kapa3 expert review. The system also applied clarification, abstention or redirection mechanisms when evidence was insufficient or when questions involved medical advice or fell outside its intended scope.

Two studies, one shared philosophy

The two studies reflect complementary dimensions of MYRTO: the real-world needs that led to its development and the way technology is being designed to respond to those needs through evidence, clear boundaries and human supervision.

For Kapa3, Artificial Intelligence is not intended to replace human support. Its role is to contribute to more accessible, understandable and trustworthy navigation, while keeping people at the centre.

MYRTO’s presence at two major European scientific events represents another step in bringing Kapa3’s field experience into the European dialogue on equitable access, digital health and the responsible use of Artificial Intelligence.

The MYRTO project is funded by the TIMA Charitable Foundation.

Find more about MYRTO https://kapa3-cag-rag-hybrid-deploy.onrender.com

Kapa3 at HDHC: Bringing the Patient Perspective to Digital Health

Networking, knowledge exchange and new opportunities for collaboration

The monthly meeting of the Hellenic Digital Health Cluster (HDHC) provided another valuable opportunity for networking, knowledge exchange and the exploration of new collaborations within the rapidly evolving digital health ecosystem.

During the meeting, representatives of three new members — Kapa3 – Cancer Guidance Center, Reformer Business Optimization, and ERGOBYTE — introduced their work, expertise and capabilities to the wider HDHC community.

Kapa3: From real patient needs to the design of solutions

Kapa3 was represented by Aristea Archontidou, who presented the organisation’s work and the experience gained through its daily support of people affected by cancer and their caregivers.

A central focus of the presentation was one of the most significant challenges people face following a cancer diagnosis: fragmented information.

Alongside their treatment journey, patients and their families are often required to navigate a complex range of social, insurance, employment and administrative issues. Finding the right information across multiple systems and public sources can become an additional burden during an already demanding period.

This challenge is particularly important for people diagnosed with cancer while still of working age. Support therefore extends beyond treatment itself and includes helping people understand and exercise their rights, maintain their social and professional lives, and access the services and benefits available to them.

The numbers reflect a real need

Kapa3’s daily experience demonstrates the scale and diversity of these needs.

Between January and July 2026, Kapa3:

  • handled 1,251 telephone contacts,
  • sent 497 emails to beneficiaries,
  • managed 306 requests from 241 individuals,
  • covering 52 different categories of need, including disability certification, social benefits and employment rights.

Behind every number is a person seeking timely, understandable and reliable guidance.

These data reinforce the need for services and tools that do not simply provide more information, but help people find, understand and use the information that is relevant to their individual situation.

MYRTO AI: Technology supporting social navigation

A key part of the presentation was dedicated to MYRTO AI, the digital Social Rights Navigator being developed by Kapa3 for people affected by cancer and their caregivers.

MYRTO is designed to provide access to information and guidance 24 hours a day, seven days a week, in Greek and English, while also supporting voice interaction.

Developed with the support of the TIMA Charitable Foundation, MYRTO builds on Kapa3’s field experience and on the real questions and needs identified through the organisation’s direct work with patients and caregivers.

Its purpose is not to replace human support. Instead, technology is being developed as an additional tool for timely, reliable and more accessible navigation, helping people understand available options and identify the appropriate pathways for further support.

From field experience to digital innovation

This is where Kapa3’s participation in HDHC becomes particularly relevant.

Digital health is not only about developing new technologies. It is also about ensuring that these technologies respond to the real needs of the people who are expected to use them.

Through its daily interaction with patients and caregivers, Kapa3 can bring the end-user perspective into the digital health ecosystem and contribute to assessing the usability, accessibility, comprehensibility and real-world value of emerging digital tools.

In this way, experience from the field can become an integral part of the innovation and design process.

European engagement and new synergies

The presentation also highlighted Kapa3’s growing European activity through its participation in projects and initiatives such as e.Health4Cancer, MELODIC, MOVE-ON and PERIFORMANCE, alongside its continued efforts to develop new partnerships through European programmes and networks.

Participation in HDHC creates another meeting point between civil society, research, technology and entrepreneurship, opening new possibilities for collaboration focused on digital health and people-centred innovation.

HDHC: Building bridges for digital health collaboration

The monthly meeting once again demonstrated the value of connecting organisations, research bodies and companies that bring different areas of expertise to a shared digital health ecosystem.

For Kapa3, participation in such a network is not only an opportunity for networking and knowledge exchange. It also provides a platform for advancing a principle that lies at the heart of our work:

digital innovation creates real value when it starts with people’s needs and returns to them in the form of meaningful, accessible and trustworthy support.

From access to continuity of care: when navigation becomes part of the solution

Why health systems need pathways, not just pilots

A test is not treatment. A referral does not necessarily mean that a person will reach the care they need. And a successful pilot does not, by itself, mean that a health system works for everyone.

This is the central message of a recent article by Gaurav Ghewade for the World Economic Forum, “Why healthcare systems need pathways, not just pilots.” The key question is no longer simply whether people can enter a health system, but whether the system can support them throughout the journey that follows.

In 2023, around 4.6 billion people worldwide were still not fully covered by essential health services. At the same time, chronic conditions, including cancer, require much more than a single intervention. They demand continuity, repeated contact with services, follow-up and coordinated support.

The critical question therefore becomes:

What happens after the first step?

Does a person know where to go next? Do they understand the procedures they need to follow? Are they aware of the rights and benefits available to them? Can they identify the appropriate services? Is there a clear pathway, or are they left to navigate a complex system on their own?

For people affected by cancer, the journey extends far beyond diagnosis and treatment. It can also involve administrative procedures, social and employment rights, financial and insurance benefits, access to social services, psychosocial support, caregiver needs and the return to everyday life.

This is why navigation is becoming an essential part of person-centred support.

From information to action: MYRTO

This is also the space in which MYRTO – Kapa3’s Digital Social Rights Navigator is being developed.

MYRTO does not replace doctors or healthcare professionals and does not provide treatment decisions. Its purpose is to help people affected by cancer and their caregivers access reliable and understandable information, better understand their social rights and available benefits, identify relevant services and move towards the next practical step in their journey. Kapa3 has positioned MYRTO within a broader approach to digital navigation, social accessibility and patient empowerment.

Because access is only the beginning.

What truly matters is ensuring that no one gets lost between the steps of their journey.

The development of MYRTO is supported by the TIMA Charitable Foundation, Founding Sponsor of MYRTO.

Source

Gaurav Ghewade, Why healthcare systems need pathways, not just pilots, World Economic Forum, 21 August 2026.

Κapa3 at IEEE CBMS 2026 | AI for Equitable Oncology Information

Kapa3 at IEEE CBMS 2026: Artificial Intelligence in Support of Equitable Patient Information in Oncology Care

New scientific publication in the Proceedings of the 39th IEEE International Symposium on Computer-Based Medical Systems

The voice and lived experience of patients must remain at the centre of the emerging era of Artificial Intelligence in healthcare.

Kapa3 – Cancer Guidance Centre contributes to a new scientific publication presented in the Proceedings of the 2026 IEEE 39th International Symposium on Computer-Based Medical Systems (CBMS), focusing on how Artificial Intelligence and Retrieval-Augmented Generation can support more equitable, reliable and patient-centred access to information in oncology.

The paper, entitled:

“Informed, Empowered, and Heard: AI and Retrieval-Augmented Generation as Tools for Equitable Patient Information in Oncology”

is authored by Lars Münter, Evangeli Bista, Maria Lavdaniti and Christos Frantzidis, with Evangeli Bista representing Kapa3 as Co-founder.

From access to information to meaningful patient empowerment

A cancer diagnosis creates an immediate need for information that is reliable, understandable and relevant to the individual patient.

At the same time, patients and their families are often expected to understand complex medical terminology, treatment options, prognosis discussions and administrative procedures at a moment of intense psychological and emotional pressure.

The paper highlights that acute stress associated with a serious diagnosis can affect working memory, attention and the ability to process new information. This means that patient information cannot be designed for an ideal, fully attentive reader; it must respond to the real cognitive and emotional conditions experienced by people facing cancer.

The key question is therefore not simply:

“How much information do we provide?”

but rather:

“Are we providing the right information, at the right time, in a form that people can understand and act upon?”

AI and Retrieval-Augmented Generation: towards trustworthy and evidence-grounded information

The publication places particular emphasis on Retrieval-Augmented Generation (RAG).

RAG architectures combine the generative capabilities of large language models with the retrieval of information from curated and verified knowledge sources. In a healthcare setting, this can include clinical guidelines, validated patient information resources, regulatory documents and peer-reviewed literature.

This approach offers an important advantage over purely generative AI systems: responses can be grounded in identifiable sources, supporting greater transparency and enabling patients and healthcare professionals to verify where information comes from.

In oncology, this is especially important.

A patient does not simply need a quick answer. They need information that is:

accurate, current, understandable, accessible and appropriate to their individual situation.

Artificial Intelligence as a tool for equity

One of the central themes of the paper is inequality in access to high-quality oncology information.

Geography, language, socioeconomic circumstances, health literacy, digital literacy and access to specialised healthcare services can significantly influence a person’s ability to understand their diagnosis, treatment options and rights.

The publication pays particular attention to the Greek context, where patients living in large urban centres may experience a very different information environment from those living in rural, remote or island communities.

When equity is treated as a core design principle, AI-RAG systems can potentially support:

  • multilingual access to health information,
  • different levels of language and information complexity,
  • voice-based interfaces,
  • shorter and more manageable units of information,
  • low-bandwidth or offline-capable solutions,
  • and opportunities for patients to return to information when they are ready to process it.

Technology alone, however, does not create equity.

The way technology is designed determines whether it reduces existing inequalities or reproduces them.

Designed with patients, for patient needs

The paper calls for an important shift in the way digital health systems are developed.

Many traditional health information systems are designed primarily around institutional or clinical workflows, with patient-facing communication added later.

For patient-centred AI, this logic must be reversed.

Systems should be designed with patients and around patient needs, with patients and informal carers actively involved in shaping the knowledge base, the questions the system is expected to answer and the ways information is presented.

This also means moving beyond systems that simply respond to individual questions.

A meaningful AI-supported information environment could help patients prepare for clinical consultations, organise their questions, understand the next steps in their care and become more aware of their rights.

The paper highlights applications such as consultation preparation guides, question prompts before appointments and post-consultation summaries as examples of how technology can support patients before, during and after important healthcare interactions.

AI should strengthen, not replace, human relationships

Perhaps the most important message of the publication is that the transformative potential of AI in oncology is not primarily technical. It is relational.

Artificial Intelligence should not create distance between patients and healthcare professionals.

It should help strengthen their communication.

A better-informed patient can arrive at a clinical consultation more prepared, identify questions and concerns more clearly, participate more actively in shared decision-making and communicate more effectively with the healthcare team.

The same applies to informal carers, who often carry a significant part of the informational and emotional burden of cancer care.

For this reason, the paper argues that AI-RAG systems should be designed to strengthen the relationship between patients, carers and healthcare professionals, rather than to replace any part of this human network of care.

For healthcare professionals, trustworthy information systems may also reduce the time required for basic information provision, allowing more of the clinical encounter to focus on nuanced discussions, decision-making and the human aspects of care that technology cannot replicate.

From information to trust

This scientific contribution adds to an increasingly important discussion about the future of healthcare:

How can Artificial Intelligence be developed and used in ways that genuinely respond to human needs?

The answer does not lie only in more powerful AI models or larger volumes of data.

It also lies in evidence, transparency, accessibility, co-design, equity and respect for patient rights.

As the paper concludes, people affected by cancer in Greece and across Europe deserve access to information that is accurate, personalised, accessible and respectful of their rights, regardless of where they live, the language they speak or the socioeconomic resources available to them.

For Kapa3, participating in this scientific discussion also reflects a broader commitment: ensuring that real patient needs, lived experience and equitable access are represented in the design and evaluation of the next generation of digital health and AI-supported tools.

Publication details

Title: Informed, Empowered, and Heard: AI and Retrieval-Augmented Generation as Tools for Equitable Patient Information in Oncology

Authors: Lars Münter, Evangeli Bista, Maria Lavdaniti, Christos Frantzidis

Published in: 2026 IEEE 39th International Symposium on Computer-Based Medical Systems (CBMS)

DOI: 10.1109/CBMS69103.2026.00302

find more 499901b523

New Scientific Publication with the Participation of Kapa3: Cancer Survivorship in the Post-COVID-19 Era

New scientific publication involving the Cancer Patient Guidance Center – Kapa3 highlights the significant psychological, social, and functional challenges that people living with and beyond cancer continue to face following the COVID-19 pandemic.

The article, entitled “Cancer Survivorship After COVID-19: Psychological Burden, Symptom Experience, and Social Support,” was published in the international peer-reviewed journal Medicina. It examines psychological distress, symptom experience, quality of life, and the protective role of social support among people affected by cancer.

What Did the Study Examine?

The research involved 162 adults diagnosed with cancer in Greece during the post-COVID-19 period. Participants completed validated questionnaires assessing depression, anxiety, stress, health-related quality of life, and perceived social support.

The results revealed a substantial and persistent psychological burden:

  • 32.1% of participants reported severe or extremely severe depression.
  • 40.1% reported severe or extremely severe anxiety.
  • 29% reported severe or extremely severe stress.

The overall quality of life of participants was found to be moderate. Emotional and social functioning were among the most affected areas, while fatigue, insomnia, breathlessness, and financial difficulties emerged as some of the most significant challenges in everyday life.

The Close Relationship Between Mental Health and Quality of Life

One of the study’s key findings was the strong relationship between psychological distress and poorer quality of life.

Higher levels of depression, anxiety, and stress were associated with:

  • poorer daily and functional performance;
  • lower perceived overall health;
  • greater symptom severity;
  • increased difficulty in emotional and social functioning.

The results demonstrate that psychological well-being cannot be separated from the physical, social, and practical experience of cancer.

Social Support as a Protective Factor

At the same time, the study underlines the important protective role of social support.

Support from family members, friends, and other significant people was associated with better overall health and functioning, lower levels of depression, anxiety, and stress, and reduced symptom burden.

The findings show that social connection is not simply an additional element of care. It is a meaningful component of recovery, adaptation, and quality of life throughout the cancer journey.

Cancer Survivorship Does Not End When Treatment Is Completed

The findings reinforce the need to move beyond a model of oncology care focused exclusively on treating the disease.

Cancer survivorship requires a comprehensive, person-centred approach that addresses the physical, psychological, social, functional, and financial dimensions of life with and after cancer.

Routine psychological assessment, early identification of emotional distress, timely referral to psycho-oncology services, rehabilitation, social support, and the meaningful involvement of families and caregivers should become integral parts of standard oncology care.

The study also points to the potential value of telehealth and digital support services in improving access to supportive care. At the same time, it highlights inequalities related to digital literacy, healthcare accessibility, and the ability of all patients to benefit equally from digital services.

The experience of the COVID-19 pandemic demonstrated that effective cancer care must be resilient, accessible, multidisciplinary, and capable of maintaining continuity even during periods of crisis.

Read more medicina-4429149

A Calm Summer Begins with Proper Preparation Proactive Care Planning, Mental Decompression and Digital Support

Proactive Care Planning, Mental Decompression and Digital Support

Summer is a valuable opportunity for rest, renewal and quality time with the people we love. For people living with or after a cancer diagnosis, as well as for their caregivers, the possibility of enjoying a few days away from everyday life can contribute meaningfully to physical and mental well-being.

When a person’s health condition allows it, and with the agreement of the treating physician, even a short break can have a beneficial effect, enhancing quality of life and supporting the sense of returning to everyday life (Lim et al., 2022).

The quality of life of people living with or after a cancer diagnosis does not depend solely on medical treatment. Mental well-being, social support, optimism and resilience are equally important factors that facilitate adaptation to the disease and contribute to patients’ overall well-being (Ruiz-Rodríguez et al., 2022). At the same time, current guidelines underline the importance of integrated and personalised care, as well as continuous support for people living with or after cancer at every stage of their journey (Hart et al., 2024).

However, the peace of mind associated with holidays does not begin on the day of departure. It begins much earlier, through proper preparation. Practical pending issues, administrative procedures or concerns about unexpected events during the holidays can increase stress and reduce the feeling of safety. By contrast, proactive care planning allows patients to organise what is needed in advance, so that they can devote their time to rest rather than obligations.

Timely renewal of medical certificates, ensuring an adequate supply of medication for the entire period of absence, communicating with the treating physician when necessary, and keeping essential medical documents in an easily accessible format are simple but important steps of preparation. In this way, continuity of care is safeguarded, while the uncertainty that often accompanies travel is reduced.

Reliable information and timely support are key pillars of modern oncology care. When people know where they can turn and have easy access to trustworthy information, they feel safer, their autonomy is strengthened and the management of daily life becomes easier (Ruiz-Rodríguez et al., 2022; Hart et al., 2024).

In today’s world, digital tools can complement support services by facilitating access to reliable information wherever the patient may be. In this direction, Kapa3 is moving forward with the development of Myrto, the digital social navigator, designed to provide direct access to information on social rights, available services and useful guidance. In this way, it facilitates access to the organisation’s services and reliable information, contributing to better preparation before and during holidays.

For all of us at Kapa3, technology does not replace human care; it complements it. It is another means of facilitating access to trustworthy information and available services, while the Social Service and Psychological Support Service of Kapa3 remain the core pillar of holistic support for people living with cancer and their families.

Let us remember that care does not stop when holidays begin. It continues through small but meaningful acts of preparation, proper information and timely planning. Because, many times, the greatest luxury of a holiday is not the destination itself, but the feeling that we can enjoy our moments with calmness, safety and trust.

The Social Service and Psychological Support Service of Kapa3 wish everyone a safe, peaceful and refreshing summer, with health, strength and beautiful moments.

Before Leaving for Your Holidays…

✔️ Make sure you have an adequate supply of your medication for the entire period of your absence.

✔️ Check whether there are any medical certificates, prescriptions or other administrative pending issues that need to be settled in time.

✔️ Discuss with your treating physician any special instructions related to travel or movement.

✔️ Keep with you the necessary medical documents and important contact details.

✔️ Find out about available support services and make use of the Kapa3 App, so that you have easy access to useful information wherever you are.


References

Hart, N. H., Nekhlyudov, L., Smith, T. J., Yee, J., Fitch, M. I., Crawford, G. B., et al. (2024). Survivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations. JCO Oncology Practice, 20(9), 1160–1172. https://doi.org/10.1200/OP.23.00716

Lim, J. H. C., Keenan, C., & Flaherty, G. T. (2022). All My Life to Live: Travel Health Benefits and Risks for Cancer Survivors. Journal of Travel Medicine, 29(5), taac069. https://doi.org/10.1093/jtm/taac069

National Comprehensive Cancer Network. (2024). NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®): Survivorship. Version 2.2024. Plymouth Meeting, PA: National Comprehensive Cancer Network.

Ruiz-Rodríguez, I., Hombrados-Mendieta, I., Melguizo-Garín, A., & Martos-Méndez, M. J. (2022). The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients. Frontiers in Psychology, 13, 833176. https://doi.org/10.3389/fpsyg.2022.833176

World Health Organization. (2022). World Mental Health Report: Transforming Mental Health for All. Geneva: World Health Organization.


Official Access Links

Hart et al., 2024 — MASCC-ASCO Standards:
https://ascopubs.org/doi/10.1200/OP.23.00716

Lim et al., 2022:
https://doi.org/10.1093/jtm/taac069

NCCN Clinical Practice Guidelines in Oncology: Survivorship:
https://www.nccn.org/professionals/physician_gls/pdf/survivorship.pdf

Ruiz-Rodríguez et al., 2022:
https://doi.org/10.3389/fpsyg.2022.833176

WHO World Mental Health Report:
https://www.who.int/publications/i/item/9789240049338


Marilia Barka
Psychology Student
Kapa3 Volunteer

www.linkedin.com/in/maria-garyfalia-marilia-barka-03825a409

Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

On Tuesday, June 9, a meeting was held to sign a Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

The meeting was attended by the Rector of the University of West Attica, Panagiotis Kaldis Penelope Vlotinou, Assistant Professor in the Department of Occupational Therapy Evangelia Bista, co-founder of the organization, as well as representatives from both organizations, including the interdisciplinary team of KAPA3: Despoina Chrysostomou, Psychologist Katerina Georgiopoulou, Social Worker Yiannis Kontogiorgis, Psychologist, and Eleftheria-Irini Polyzoti, an intern from the Department of Social and Educational Policy, as well as students from the Occupational Therapy Department.

During the meeting, a constructive discussion took place regarding the prospects for cooperation between the two organizations, with the aim of developing joint actions and initiatives that will contribute to strengthening education, research, social contribution, and the connection between the academic community and society.

In this context,  it was decided in April to jointly organize a major scientific conference, which will focus on an interdisciplinary and holistic approach to health, on combating social inequalities in healthcare, as well as on the management of chronic disease. The aim of this initiative is to raise community awareness, facilitate the exchange of expertise among professionals and scientific bodies, and disseminate scientific knowledge and information to the general public.

Special mention was made of the innovative work of KAPA3, the digital Health Navigator “Myrto,” a modern artificial intelligence tool currently under development and designed to support cancer patients, their families, and their caregivers. “Myrto” will function as a digital assistant (Chatbot) and Health and Rights Navigator, providing immediate, reliable, and personalized information on health, social welfare, rights, benefits, and available support services. The project aims to empower patients, improve their access to information, and reduce inequalities in health and social care through the use of digital technologies and artificial intelligence applications. The development of “Myrtos” represents a pioneering application of social artificial intelligence in the field of oncology care in Greece and is part of KAPA3’s strategy to promote innovation, accessibility, and the active participation of patients in managing their own health.

The meeting concluded in a particularly positive atmosphere of mutual appreciation and recognition. In this context, the Department of Occupational Therapy at the University of West Attica made a symbolic gesture toward the representative of KAPA3, Evangelia Bista, presenting her with a commemorative gift as a token of appreciation for her many years of valuable social contribution in the field of support for cancer patients. At the same time, as a gesture of hospitality and appreciation, the team was offered a specially produced wine, which is an original creation of the University of West Attica.

 

 

There is an urgent need for psychological support for cancer patients. The KAPA3 team explains and advocates for this

There is an urgent need for psychological support for cancer patients. The KAPA3 team explains and advocates for this

Every day, healthcare professionals are called upon to communicate with, assess, and, above all, support people who are going through cancer.

Does cancer affect only physical health, or does it also have a profound impact on a person’s psychological, social, and emotional life? The needs that arise during the course of the illness are many and are often accompanied by the question: “What does the disease really bring to a person’s life?” A cancer diagnosis brings about significant changes in daily life, relationships, social roles, and the way a person perceives themselves and their future.

A cancer diagnosis is an extremely stressful event, often accompanied by feelings of fear, uncertainty, anxiety, and grief. At the same time, patients are called upon to cope with the effects of treatments such as chemotherapy, radiation therapy, and surgery. Changes in physical appearance, fatigue, pain, and limitations in daily functioning can significantly affect their self-esteem and quality of life (Pitman et al., 2018).

Uncertainty regarding the course of the disease and the likelihood of relapse are significant sources of psychological distress. The extent of this phenomenon is reflected in the meta-analysis by Mitchell et al. (2011), which included 94 studies and more than 14,000 cancer patients. According to the results, 16.3% of patients met the diagnostic criteria for major depressive disorder, 10.3% for anxiety disorder, and 19.2% for adjustment disorder.

These data highlight that a significant proportion of cancer patients experience severe psychological distress, a fact that underscores the need for specialized psychological support.

Furthermore, cancer often affects an individual’s family and social relationships. The patient may be forced to limit or abandon professional and social roles, while the family is called upon to adapt to new demands and responsibilities, experiencing significant psychological strain of their own (Northouse et al., 2010).

Cancer patients have an increased need for psychological support, as the disease significantly affects their psychological, social, and emotional functioning. Fear of the disease’s progression, uncertainty about the future, the side effects of treatments, and the possibility of recurrence are major sources of psychological distress. At the same time, the experience of cancer is often accompanied by feelings of loss of control, fear, and emotional distress. The contemporary psycho-oncology literature recognizes that the early identification of psychosocial needs and the provision of appropriate interventions are an integral part of holistic oncology care (Caruso & Breitbart, 2020; Mehnert-Theuerkauf et al., 2023).

Within this context, psychological support is a key component of holistic care for cancer patients. Holistic care refers to a comprehensive approach that takes into account not only the patient’s physical needs but also the psychological, social, and spiritual dimensions of their health. Counseling, psychotherapy, and support groups provide a safe space for expressing emotions and building psychological resilience (National Comprehensive Cancer Network [NCCN], 2024).

At the same time, they help improve adherence to treatment, strengthen cooperation with healthcare professionals, and maintain quality of life. As Holland and Weiss (2008) argue, psychosocial care is an integral part of high-quality oncology care, from diagnosis through the survival phase.

In conclusion, the experience of cancer is a complex and multidimensional process that affects every aspect of a person’s life. Managing the disease is not limited solely to physical treatment but requires the recognition and addressing of the psychological and social needs that arise at every stage. Providing timely and systematic psychological support can empower the patient, improve their ability to adapt to the demands of treatment, and contribute significantly to maintaining their dignity, hope, and quality of life. Psychological care should be regarded as a fundamental right of every cancer patient and as an integral part of modern oncology practice.

Coordination of Psychological and Social Services within the Framework of Psychosocial Care

The care of cancer patients is not limited to treating the disease and its physical effects. The needs that arise during treatment are often multifaceted and concern both the individual’s psychological well-being and practical, social, or financial issues that affect their daily life.

For this reason, effective support requires close collaboration among different healthcare professionals within a shared framework of psychosocial care. Within this framework, the Social Services and Psychological Services operate in a complementary manner, with the shared goal of enhancing the individual’s quality of life and overall adjustment to the experience of illness.

A client’s contact with the service can begin either through the Social Services Department or the Psychological Services Department. During the initial contact, an assessment of the client’s needs is conducted, and information is provided about all available support services.

Regardless of the initial request, the beneficiary is informed about the option of receiving psychological support, as the experience of cancer is often accompanied by heightened psycho-emotional needs that are not always apparent from the first contact. With their consent, an internal referral can be made to the Psychological Services Department for further evaluation and support.

The Psychological Services Department is responsible for the initial assessment, obtaining informed consent, and creating an individual support file. A structured series of sessions is then provided, tailored to the beneficiary’s needs. During this process, issues may arise related to social benefits, employment challenges, financial burdens, disability certification procedures, or other practical needs that significantly impact the daily functioning of the individual and their family. In such cases, and always with the beneficiary’s consent, cooperation with Social Services is initiated, and Social Services assumes responsibility for managing the relevant social and administrative matters.

The collaboration between the two services enables the timely identification of new needs and ensures continuity of care. Social Services focuses on the practical, social, and administrative aspects of support, while Psychological Services focuses on psychological resilience, emotional processing of the experience of the disease, and adaptation to the changes it brings about. The collaboration between the two services allows for a more comprehensive response to the needs of the cancer patient. In this way, a unified framework of psychosocial care is established that provides substantial support to the patient and their support network at all stages of their journey with the disease.

At the same time, regular communication and coordination between the two services allow for the timely identification of new needs and ensure continuity of care. The Social Services Department focuses on the practical, social, and administrative aspects of support, while the Psychological Services Department focuses on psychological resilience, emotional processing of the experience of the disease, and adaptation to the changes it brings about. The collaboration between the two services enables a more comprehensive response to the needs of cancer patients. In this way, a unified framework of psychosocial care is established that provides substantial support to the patient and their support network at all stages of their journey with the disease.

 

Kapa3 – Cancer Patient Guidance Center

Together, with knowledge, care, and a human touch.

Contact us:

https://www.kapa3.gr/epikoinonia/ by typing “Psychological Support” in the Message box

OR CALL

2105221424 – info@kapa3.gr

Athens: 13 Kostis Palamas Street, 3rd floor, (9:00 AM – 5:00 PM) 6982003282

Confirmation of AMKA for Child and Parent

A major institutional development is set to simplify the lives of cancer patients and their families by eliminating unnecessary bureaucratic hurdles. The new ministerial decision introduces digital proof of kinship for the dispensing of High-Cost Medications (FCM). The Kapa3 team presents a detailed overview of all the changes affecting insured individuals’ daily access to their essential treatments.

A Digital Leap Toward Equal Access to Care

The new decision provides for the launch of the specialized online service “AMKA Verification for Child-Parent.” This service is directly integrated into the “PLATFORM FOR THE DISTRIBUTION OF PHARMACY-ISSUE MEDICATIONS BY PRIVATE PHARMACIES/EOPYY PHARMACIES” information system.

For the people Kapa3 serves every day, this development translates into an immediate reduction in bureaucracy and hassle. From now on, the verification of family relationships will be performed automatically, ensuring that vulnerable groups and their caregivers do not waste valuable time waiting for approval of their necessary treatment regimens.

 This upgrade is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we gain is precious.

What’s Changing in Patients’ Daily Lives

Until now, in order to obtain approval for the dispensing or delivery of an expensive medication for a child or dependent, it was often necessary to submit additional documents (such as family status certificates) or in-person verification of the parent-child relationship. 

What sets Decision 3 of this Government Gazette apart is the following:

Automatic Data Matching: It digitally connects information systems in real time. The EOPYY platform now automatically “reads” the relationship between a parent’s and child’s AMKA numbers through the Interoperability Center.

Immediate Approval of Requests: The parent or close relative logs into the digital “FYK DISPENSATION PLATFORM” using their own credentials and can submit the request immediately, without the process being held up due to a lack of the child’s identification.

Flexibility in Pickup: It facilitates faster scheduling of appointments at EOPYY pharmacies or pickup from private pharmacies, dramatically reducing wait times for vulnerable patients

 

Reducing bureaucracy is not merely a digital upgrade; it is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we save is

 

June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.