oncology care Archives

June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Mapping the efficiency of cancer care in Greece: findings from the All.Can Greece report

Cancer care efficiency in Greece remains one of the most complex and pressing challenges for the Greek health system — not only in terms of its clinical burden, but also in how care is organized around the patient.

With approximately 63,000 new cancer cases diagnosed annually and more than 32,000 cancer-related deaths each year, Greece faces a steadily increasing oncological burden. Projections suggest that cancer incidence will rise by around 23% by 2040, further intensifying pressure on health services.

Against this backdrop, All.Can Greece has published a landmark report titled “Mapping the Efficiency of Cancer Care in Greece”, based on the pilot implementation of the All.Can Action Guide for Efficient Cancer Care.

Rather than simply describing the current situation, the report aims to measure it — identifying where efficiency is lost across the cancer care pathway and where targeted reforms could make the greatest impact.

Cancer care efficiency in Greece: delays in care delivery

One of the most critical findings of the report relates to delays in the patient journey.

Despite the existence of modern infrastructure and highly specialized oncology centres, significant delays persist between initial suspicion, diagnosis, and the start of treatment.

These delays are not the result of a single bottleneck, but of systemic fragmentation:

fragmented referral pathways,
limited coordination between levels of care,
and the absence of standardized clinical protocols.

A key structural weakness is the lack of systematic monitoring of waiting times and time-to-treatment indicators. As a result, inefficiencies remain partially invisible to the system itself, limiting the ability to implement targeted improvements.

Fragmentation across the care continuum

The report highlights a broader issue of fragmentation in cancer care delivery.

The patient journey from primary care to specialist oncology services is often not clearly structured or consistently coordinated. Referral pathways depend heavily on individual practice rather than standardized national protocols.

A major gap is the absence of structured patient navigation services. In practice, this means that patients and families are often left to navigate a complex system on their own, increasing delays and adding unnecessary psychological burden.

At the same time, multidisciplinary tumor boards represent a positive development, supporting collaborative clinical decision-making across specialties. However, systematic monitoring of their performance remains limited.

The development of Comprehensive Cancer Centers is identified as a promising step forward, although further regulatory strengthening and clearer governance structures are still needed to maximize their impact.

Patient-centered care: progress with remaining gaps

Greece has made notable progress in collecting Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs), reflecting a growing commitment to integrating patient perspectives into care delivery.

However, patients’ access to their own clinical data remains limited, restricting their ability to actively participate in decision-making processes.

In addition, patient education and shared decision-making are not yet systematically embedded across the health system.

Another important gap concerns survivorship care. As cancer survival rates improve, the lack of structured long-term follow-up pathways leaves many patients without continuous support after active treatment ends.

Key policy directions

The report outlines several strategic priorities for improving cancer care efficiency in Greece:

Development of a comprehensive national cancer strategy with clear targets and governance mechanisms
Strengthening coordination across all levels of care
Implementation of standardized clinical pathways with defined time-to-treatment and quality indicators
Investment in oncology workforce capacity, particularly in shortage specialties
Establishment of structured patient navigation programmes
Acceleration of Comprehensive Cancer Center development
Systematic use of health data for monitoring performance and accountability
Greater patient engagement through PROMs, PREMs, and shared decision-making

Conclusion: a system with strong foundations but limited integration

Greece has many of the essential building blocks for a high-performing cancer care system — including infrastructure, clinical expertise, and emerging digital health capabilities.

However, the key challenge lies not in the existence of these components, but in their integration.

The All.Can Greece report highlights a system that is still operating in silos: strong individual elements that do not yet function as a fully connected care pathway.

In oncology, this lack of integration is not merely an organizational issue. It directly affects timeliness, patient experience, and ultimately outcomes.

The opportunity now lies in moving from fragmented capacity to coordinated care — where patients no longer have to bridge the gaps between system components themselves.

Source: Mapping-the-Efficiency-of-Cancer-Care-in-Greece-FINAL

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 and Karkinaki join forces to support children, adolescents, and families living with cancer

The Cancer Guidance Center – Kapa3 announces its new collaboration with the non-profit organization “Karkinaki”, aiming to strengthen information, psychosocial support, and awareness around childhood and adolescent cancer, as well as to support families experiencing the disease.

Karkinaki is a specialized organization working in the field of childhood and adolescent cancer, focusing on reliable information, empowering parents and caregivers, and fostering a supportive environment around children and teenagers affected by cancer. Through community-based actions and awareness initiatives, it seeks to reduce the sense of isolation that often accompanies diagnosis, while also enhancing understanding, social awareness, and access to available support resources for families.

Within the framework of this collaboration, the two organizations will develop joint initiatives focused on information and awareness-raising, with an emphasis on actions addressing both families and healthcare and support professionals. The partnership will also include the co-organization of informational events, the exchange of good practices, and the exploration of participation in national and European programs that promote a holistic approach to patient care, with an emphasis on continuity of support across all stages of the disease experience.

The Cancer Guidance Center – Kapa3 is dedicated to informing, guiding, and empowering people affected by cancer, providing practical support and access to reliable information and services. At the same time, it develops initiatives that strengthen patients’ active participation in managing their health and promotes a more accessible and human-centered model of care.

In this context, Kapa3 is also involved in European collaborations focusing on the psychosocial dimension of cancer across different stages of life, such as the MELODIC project, which addresses the mental health of young adults with lived experience of cancer. This work further enhances the organization’s ability to recognize needs that emerge throughout the cancer journey, from childhood to adulthood.

This collaboration with Karkinaki reflects the shared vision of both organizations to strengthen a support network that goes beyond medical treatment, extending into families’ daily lives, information access, and psychosocial empowerment, with the aim of providing a more stable and meaningful presence for those who need it most.

Our Press Release here: KARKINAKI PRESS RELEASE

Text: Ifiyenia Anastasiou for Kapa3

International Social Work Day: The Critical Role of Social Workers in Health and Society

International Social Work Day, observed annually on March 27, is an important occasion to highlight the multifaceted work of social workers and their contribution to promoting social justice, equality, and human dignity.

Social workers are on the front lines supporting vulnerable groups, playing a crucial role in areas such as healthcare, mental health, social welfare, and the care of individuals with chronic conditions, including cancer. In oncology in particular, their contribution is invaluable, as they provide practical, emotional, and social support to patients and their families, significantly improving their quality of life.

Global Context

Globally, the importance of social work is widely recognized, with social services forming a fundamental pillar of health and welfare systems. In the European Union, social service professionals exceed 10 million, representing about 5% of the total workforce, underlining the critical role of the sector in maintaining social cohesion.

In Northern and Western European countries, social workers are systematically integrated into multidisciplinary care teams and are an essential part of primary healthcare and social support services. International guidelines emphasize that adequate staffing of social services is a key requirement for the effective functioning of health systems and meaningful citizen support.

Despite these standards, gaps and inequalities persist:

There is a global need to increase social care personnel, especially in regions with high social needs.
Inequalities in access remain a challenge even in advanced countries, highlighting the importance of planning and coordination.

Social Services in Greece

Greece’s social care framework is based on the National Social Care System (Law 2646/1998). Services are structured across three levels:

Primary: Prevention, support, and local services, mainly provided by municipalities (Community Centers, social offices).
Secondary: Care and rehabilitation facilities for more complex needs.
Tertiary: Specialized services for severe or rare cases, typically in hospitals or research centers.

However, despite the legal framework, services in Greece are fragmented and understaffed:

Social workers number around 7,000, with fewer than half employed in public social services.
Many work on fixed-term contracts or subsidized programs, creating instability in service provision.
In local government, the ratio can reach one social worker per 40,000 citizens, highlighting severe understaffing.

As Evangeli Bista noted in a recent interview, 92 municipalities in Greece have no social work staff at all. Strengthening social services is therefore not only about meeting patient needs but also about empowering communities and fostering environments of solidarity and support.

At the same time, local initiatives demonstrate the potential for reinforcing social services. For example, Kapa3’s recent collaboration with the Municipality of Meteora to establish a Counseling Office for Cancer Patients and their Families represents a significant step toward strengthening social care locally.

Staffing the office with a social worker and a psychologist, along with providing free guidance, psychosocial support, and connection to other services, illustrates in practice the critical role social workers play in supporting patients and improving their quality of life.

On the occasion of International Social Work Day, it is important to recognize the invaluable work of social workers, address existing gaps, and showcase positive examples, such as the Municipality of Meteora, supporting the collective effort for a system that leaves no one behind.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

February 15 – International Childhood and Adolescent Cancer Day

February 15 is dedicated to International Childhood and Adolescent Cancer Day, a day to raise awareness for children and adolescents facing cancer and for the families who stand by them through this particularly challenging journey.

Globally, over 400,000 children and adolescents aged 0–19 are diagnosed with cancer each year. In high-income countries, more than 80% of children survive thanks to medical advancements and improved treatment protocols. However, inequalities in access to timely diagnosis and appropriate care remain significant. The World Health Organization has set a goal to improve survival rates worldwide by 2030 by strengthening healthcare systems and access to treatment.

In Greece, approximately 300–350 children are diagnosed with cancer each year, with leukemia and central nervous system tumors being the most common types. Survival rates have improved significantly in recent decades, highlighting the importance of specialized medical and psychosocial care.

The experience of cancer at such a young age does not end with the completion of treatment. It often leaves an imprint that accompanies children into adulthood — a stage where challenges change form but the need for support remains.

FROM ADOLESCENCE TO YOUNG ADULTHOOD: THE NEED FOR CONTINUOUS CARE

Young adults aged 18–35 who have experienced cancer form a particularly vulnerable and often “invisible” group, situated between pediatric and adult oncology care. A diagnosis or long-term effects of the disease during this life stage can deeply impact independence, education, work, relationships, and future plans.

References
World Health Organization (WHO). Childhood cancer – Key facts. https://www.who.int/news-room/fact-sheets/detail/cancer-in-children
World Health Organization (WHO). Global Initiative for Childhood Cancer. https://www.who.int/initiatives/global-initiative-for-childhood-cancer
International Agency for Research on Cancer (IARC). Global Cancer Observatory – Childhood Cancer Data. https://gco.iarc.fr
Hellenic Society of Pediatric Hematology and Oncology (EEPAO). https://www.eepao.gr

Text/adaptation: Ifiyenia Anastasiou for Kapa3