Category: CANCER

Kapa3 and Karkinaki join forces to support children, adolescents, and families living with cancer

The Cancer Guidance Center – Kapa3 announces its new collaboration with the non-profit organization “Karkinaki”, aiming to strengthen information, psychosocial support, and awareness around childhood and adolescent cancer, as well as to support families experiencing the disease.

Karkinaki is a specialized organization working in the field of childhood and adolescent cancer, focusing on reliable information, empowering parents and caregivers, and fostering a supportive environment around children and teenagers affected by cancer. Through community-based actions and awareness initiatives, it seeks to reduce the sense of isolation that often accompanies diagnosis, while also enhancing understanding, social awareness, and access to available support resources for families.

Within the framework of this collaboration, the two organizations will develop joint initiatives focused on information and awareness-raising, with an emphasis on actions addressing both families and healthcare and support professionals. The partnership will also include the co-organization of informational events, the exchange of good practices, and the exploration of participation in national and European programs that promote a holistic approach to patient care, with an emphasis on continuity of support across all stages of the disease experience.

The Cancer Guidance Center – Kapa3 is dedicated to informing, guiding, and empowering people affected by cancer, providing practical support and access to reliable information and services. At the same time, it develops initiatives that strengthen patients’ active participation in managing their health and promotes a more accessible and human-centered model of care.

In this context, Kapa3 is also involved in European collaborations focusing on the psychosocial dimension of cancer across different stages of life, such as the MELODIC project, which addresses the mental health of young adults with lived experience of cancer. This work further enhances the organization’s ability to recognize needs that emerge throughout the cancer journey, from childhood to adulthood.

This collaboration with Karkinaki reflects the shared vision of both organizations to strengthen a support network that goes beyond medical treatment, extending into families’ daily lives, information access, and psychosocial empowerment, with the aim of providing a more stable and meaningful presence for those who need it most.

Our Press Release here: KARKINAKI PRESS RELEASE

Text: Ifiyenia Anastasiou for Kapa3

Digital Access to Test Results: An Important Right for Patients

Digital access to medical test results has become an important right for patients in Greece, following new regulations that strengthen the use of the Digital Repository of Diagnostic Laboratory Results. According to the relevant decision published in the Government Gazette (March 2026), public and private healthcare units collaborating with EOPYY are required to record diagnostic test results in digital form within a specified timeframe.

This change is not just a technical procedure or an administrative obligation for healthcare providers. In practice, it represents a meaningful enhancement of patients’ rights, ensuring that every citizen can have immediate and organized access to their medical data.

Digital access to test results now reduces the need for physical documents, printed copies, or trips to diagnostic centers. Instead, results are stored in a unified digital environment connected to the Individual Electronic Health Record. This allows patients to have their test history consolidated, reducing the risk of losing important information.

For people living with cancer, this development is especially significant. Disease monitoring often involves repeated tests, visits to different doctors, and continuous evaluation of results. Immediate access to all data facilitates collaboration among healthcare professionals and contributes to more coordinated and effective care.

Moreover, the obligation to record results is linked to reimbursement procedures through EOPYY, enhancing transparency in the healthcare system. This ensures that only tests that have actually been performed are reimbursed, limiting abuse and strengthening the reliability of services.

It is also worth noting that data management is carried out under the current personal data protection framework, safeguarding patients’ privacy and information security.

Transitioning to a more digital healthcare system is not just a technological advancement. It is a step toward a more human, transparent, and accessible system of care, where the patient has an active role and meaningful control over their own data.

Ultimately, strengthening digital access to test results represents an important step forward in empowering patients and improving the quality of healthcare provided.

Source: Government Gazette, FEK B’ 1503/17.03.2026

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 at the Scientific Meeting “Cancer in 2026: Challenges and Disruptions” – Focusing on Supportive Care and Its Limits

At the scientific meeting “Cancer in 2026: Challenges and Disruptions”, held on March 13–14, 2026 at the Divani Caravel, Kapa3 actively contributed to discussions on supportive care for oncology patients, a critical area for improving quality of life and holistic patient support.

The meeting was organized by the Hellenic Oncology Patient Support Institute, under the chairmanship of Christos Panopoulos, and was held under the auspices of the Hellenic Cancer Society and the Hellenic Society of Medical Oncologists. It has become a recognized annual event for the oncology community, highlighting each year the latest challenges and rapid developments in the field.

Progress in oncology is continuous and impressive, with scientific advances steadily enhancing the possibilities for personalized treatment, while simultaneously improving patients’ quality of life and turning some forms of cancer into manageable chronic conditions.

During the two-day meeting, key developments were presented in critical areas such as precision medicine, immunotherapy, and novel therapeutic strategies, with particular emphasis on the role of artificial intelligence and molecular analysis in modern clinical practice.

Kapa3 participated in the roundtable on supportive care for oncology patients, held on Friday, March 13, represented by Ms. Evangeli Bista. She noted that attending the conference gave her the opportunity to engage with people leading initiatives in patient support and advocacy. The roundtable addressed critical topics such as the role of healthcare professionals, pain management in Greece, and the adequacy of existing care structures.

In the discussion on psychosocial support, Ms. Bista, representing Kapa3 and drawing from her daily experience with oncology patients, emphasized that addressing the challenges arising from the patient journey is particularly demanding, as the high volume of cases and the fragmentation of the healthcare and social support system create exponentially more issues to manage.

When asked whether voluntary work alone is sufficient to meet the growing needs of patients, her response was clear:

…voluntary action is a valuable and essential pillar of social support. The improvement of patients’ quality of life relies heavily on voluntary efforts that take place across the country under challenging conditions. However, it is not sufficient on its own to meet the complex and increasing needs of patients.

As highlighted during the discussion, voluntary contributions are crucial for filling gaps in the system and strengthening social protection. At the same time, a more comprehensive and institutionally supported approach is necessary. This includes:

• adequate and stable funding
• continuous training and empowerment of all stakeholders
• clear and functional legal frameworks
• a shift in mindset among healthcare professionals, patients, and administrators
• and the development of integrated policies in the field of supportive care

Kapa3’s intervention underscored the importance of psychosocial support as an integral part of oncology supportive care, promoting a more holistic, humane, and sustainable approach to patient management. As Ms. Bista noted, participating in the two-day meeting serves as a reminder that the fight to support patients requires all of us on the same side.

March – Multiple Myeloma Awareness Month

March – Multiple Myeloma Awareness Month

March is internationally recognized as Multiple Myeloma Awareness Month, a type of blood cancer that affects plasma cells – immune system cells responsible for producing antibodies and defending the body against infections.

This period provides an important opportunity to raise public awareness, highlight the challenges faced by patients, and enhance understanding of the disease, early diagnosis, and the importance of access to modern treatments.

What is Multiple Myeloma

Multiple myeloma develops in the bone marrow, when plasma cells grow uncontrollably and produce abnormal proteins. The presence of these cells can affect the production of healthy blood cells, cause bone damage, and impair the function of vital organs such as the kidneys. Although relatively rare, it is the second most common blood cancer worldwide.

The disease’s symptoms may be initially nonspecific and develop gradually. Fatigue, bone pain – especially in the spine or ribs – frequent infections, anemia, or kidney problems are some of the signs that may prompt further investigation. Early awareness and timely medical evaluation are therefore crucial for diagnosis and disease management.

Multiple Myeloma by the Numbers

Globally, the disease affects a significant number of people. According to international epidemiological data:

  • 188,000 new cases were reported worldwide in 2022

  • Approximately 121,000 people died from the disease the same year

  • It is estimated that more than 540,000 people are currently living with multiple myeloma worldwide

The disease occurs more often in older adults. Most diagnoses occur in people over 60–65 years old, and around 80% of cases are reported in individuals over 65. Experts predict that the disease’s incidence may rise in the coming decades, largely due to the aging population in many countries.

The Situation in Greece

In Greece, the exact epidemiological picture of multiple myeloma is not fully clear, as there is no comprehensive national cancer registry recording all cases systematically.

However, according to available international estimates for 2022:

  • About 763 new multiple myeloma cases were reported in the country

  • Approximately 579 deaths were attributed to the disease

  • It is estimated that around 2,154 people in Greece are living with the disease over a five-year period

These figures highlight the importance of improving health data collection and continuously supporting patients living with the disease.

Advances in Treatments

In recent years, scientific progress has significantly changed the course of the disease.

Modern therapies include:

  • Immunotherapies

  • Monoclonal antibodies

  • Proteasome inhibitors

  • Immunomodulatory drugs

  • CAR‑T cell therapies (for advanced stages of the disease)

New therapeutic combinations and ongoing clinical studies are providing more treatment options, reinforcing hope for even more effective therapies in the future.

The Importance of Awareness and Support

Despite these advancements, public awareness and support for people living with the disease remain crucial. Early diagnosis, access to specialized medical care, and equitable access to modern therapies are key factors in improving disease outcomes and patients’ quality of life.

Multiple Myeloma Awareness Month serves as a reminder that knowledge, research, and collective effort can make a difference. Through education, support for scientific research, and assistance to patients and their families, we can help create an environment where no one faces cancer alone.

Sources:

https://gco.iarc.fr
(Global Cancer Observatory – International Agency for Research on Cancer)

https://pubmed.ncbi.nlm.nih.gov/39658225/
(Global burden and projections of multiple myeloma)

https://www.oecd.org/health/cancer-profiles/greece.html
(EU Country Cancer Profile – Greece)

https://ehoonline.biomedcentral.com/articles/10.1186/s40164-025-00684-x
(Global epidemiology of multiple myeloma)

https://pmc.ncbi.nlm.nih.gov/articles/PMC3627436/
(Multiple myeloma epidemiology study)

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 at Athens Digital Health Week 2026 – The Role of Patient Digital Navigators in Healthcare Digital Transformation

As part of Athens Digital Health Week 2026, Kapa3, as a new member of the Hellenic Digital Health Cluster (HDHC), participated in the closed members and partners meeting as well as the panel discussion titled “Synergies to Bridge the Needs of Healthcare Services in Digital Transformation,” presenting the role of patient digital navigators and exploring how digital technologies can strengthen a patient-centered healthcare system.

The discussion focused on a key question: how can available digital solutions effectively address the real needs of the healthcare and social care system?

Special emphasis was placed on the importance of interoperability, evidence-based decision-making, transparency, and comparability, as well as connecting research and governance, promoting equality, and considering the impact of artificial intelligence in the modern healthcare ecosystem.

Kapa3 was represented by Evangeli Bista, who highlighted the critical role of patient organizations in successfully integrating digital technologies into the care journey.

As she noted:

“Digital health is not only about developing technological solutions, but about their meaningful integration into the patient’s care journey. Civil society organizations (patients, caregivers, friends, professionals) can play a crucial role as adoption partners, contributing to design, implementation, and evaluation. Through collaboration within the Cluster, an ecosystem is strengthened where innovation translates into real accessibility and continuity of care with maximum social impact. For the Cancer Patients Guidance Center – Kapa3, developing its role as patient digital navigators can only happen through such synergies.”

The panel also included representatives from Affidea Greece, Gnomon Informatics SA, and REA Maternity & Gynecology Clinic, who contributed their expertise to a productive dialogue on aligning technology, clinical practice, and data governance.

During the closed meeting, the need to strengthen joint research initiatives, interoperability, and systematic collaboration among ecosystem members was emphasized, ensuring that innovation translates into measurable value for both patients and the healthcare system.

For Kapa3, developing its role in the digital health ecosystem as patient digital navigators is a strategic priority. Through such collaborations, patient organizations are empowered to actively contribute to a more transparent, equitable, and truly patient-centered healthcare system, where technology serves as a tool for empowerment rather than an end in itself.

Download our Press Release in pdf or word

Kapa3 Collaboration with the Municipality of Meteora to Establish a Cancer Patient Support Office

Kapa3 launches collaboration with the Municipality of Meteora to establish a support office for cancer patients and their families, strengthening local social services and providing practical assistance to patients and families affected by cancer.

The initiative for this establishment was taken by the Municipality of Meteora and approved by the Municipal Council, aiming to improve access to services and information for patients. The office will operate within the Kalampaka Community Center and will be staffed by a social worker and a psychologist, in collaboration with the “Help at Home” program.

The Cancer Guidance Center – Kapa3 will provide scientific guidance and prepare the tools and methodologies for the office’s operation, including collecting social histories, recording requests, and guiding patients and their families.

This office, as a support office for cancer patients, will offer free services such as:

  • Guidance on rights and benefits (KEPA, social tariffs, work schedule adjustments, allowances).

  • Patient file management to reduce bureaucratic burden.

  • Social and psychosocial support for patients and families.

  • Collaboration with local social and health services.

In addition, the support office will act as an information hub for the local community, providing interested individuals with information on prevention, awareness programs, and solidarity initiatives. In this way, it enhances not only the direct support for patients but also the wider community’s awareness and engagement with the needs of their fellow citizens.

In a statement, Mayor Lefteris Avramopoulos emphasizes:

“The establishment of the Patient Service Office for Neoplastic Diseases is a policy choice focused on people. The Municipality of Meteora takes responsibility to stand truly beside our fellow citizens, ensuring support, dignity, and effective access to their rights.”

The goal of the collaboration is to ensure timely and equitable access for cancer patients and their caregivers to reliable information and supportive services, reducing the stress and psychosocial burden often accompanying the disease.

Kapa3, with experience in patient guidance across Greece and an already functioning similar structure in the Municipality of Megara, continues to expand its network of collaborations with local authorities, strengthening the connection between social services and patients.

The collaboration with the Municipality of Meteora represents another step toward creating a stable framework for supporting cancer patients at a regional level, focusing on people and their real needs.

Download our press release in pdf or word

Launch of Free MELODIC Training Programme – Greece

We are pleased to announce the launch of the free eight-week online training programme implemented in Greece within the framework of the European project MELODIC, in which Kapa3 participates as one of 13 partner organisations from 6 European countries.

The programme is addressed to doctors, nurses, other health professionals, and social care professionals working in oncology.

MELODIC is an international collaboration aimed at strengthening mental health support for young adults with cancer and their families, promoting high-quality, holistic oncology care.

Through the programme, participants will have the opportunity to develop skills in:

  • Assessing mental health needs using validated and evidence-based tools

  • Supporting families and caregivers

  • Delivering high-quality psychosocial care

  • Interprofessional collaboration

  • Sustaining personal and professional wellbeing

The programme is divided into an asynchronous part (on the Moodle platform), which participants can complete at their own pace, and four contact lessons, constituting the synchronous part via Zoom. Upon completion, participants will receive 5 ECTS credits and a certificate of completion.

Sessions will take place from March to April 2026.

The contribution of health professionals is crucial for the accurate assessment of mental health needs of young adults with cancer and their families, as well as for delivering high-quality, person-centred care. The MELODIC programme strengthens their skills, promoting collaboration, responsibility, and sustainable professional practice in oncology.

For further information, please contact:
Ifiyenia Anastasiou
email: ifi.k3team@gmail.com | phone: 690.62.65.170

The “Myrto” Health Navigator : A New Era of Digital Support for Oncology Patients

The “Myrto” Health Navigator brings digital and AI-powered care closer to oncology patients, supporting personalization and equitable access to services.

On the occasion of the recent initiatives implemented by Kapa3 in the context of World Cancer Day, our organization once again highlighted the importance of access, empowerment, and meaningful support for oncology patients. Through awareness actions and public engagement, we reaffirmed our commitment to strengthening patients’ voices and improving their everyday reality.

Throughout its journey, Kapa3 has consistently demonstrated its dedication to supporting oncology patients by bridging gaps in information, accessibility, and social care. Building on this experience, we are now taking the next step forward.

After five years of continuous presence in empowering oncology patients through digital guidance, Kapa3 is expanding its footprint in the field of social accessibility by creating an innovative digital assistant: “Myrto.”
“Myrto” addresses the phenomenon of second-level digital exclusion, transforming digital information into a human, accessible, and meaningful experience. It represents the first Social Artificial Intelligence application in the field of social welfare for oncology patients in Greece.

It goes beyond providing information: it converses, guides, and evolves according to users’ real needs, with an emphasis on both accessibility and psychosocial support.

Our aim is to develop a fully functional chatbot integrated into the Kapa3 website, to train social workers and healthcare professionals in its use, and to substantially reduce the digital divide for vulnerable groups.

“Myrto” will offer holistic and personalized guidance to oncology patients as a true Patient Empowerment e-Navigator, through two main pillars:

  • Patient Advocate: Support with legal and administrative procedures (benefits, patient rights), facilitation of access to social welfare services, and guidance within the local healthcare system.

  • Health Navigator: Provision of essential information for health self-management.

At the same time, the platform will enhance communication, highlight available community resources, and incorporate an innovative health literacy assessment tool, enabling full personalization of the services provided.

The project will be developed, tested, and validated by oncology patients as well as by social workers, legal and financial experts, and consultants in health communication and psychology, both in person and online across Greece.

Your participation could substantially contribute to co-creating a personalized Navigator for every oncology patient, as a multidisciplinary perspective is a key factor in the project’s success.

Upon completion, we expect significant social, health, and scientific impact: improved patient quality of life, strengthened self-management, reduced resource requirements, and the creation of a network of experts and informed patients and professionals.

The Founding Sponsor of the “Myrto”Health Navigator is the TIMA Foundation.

We invite organizations, professionals, and stakeholders to become partners in this new chapter of the “Myrto” Health Navigator  by Kapa3 and contribute to building a more accessible, inclusive, and patient-centered healthcare environment.

Evangeli Bista, 

Co-founder Kapa3 – Head of Strategic Partnerships
PhD(c), MBA, MSc, BSc

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Holistic Cancer Care: Successful Webinar on Cancer, Patient Navigation & Health Management

The webinar “Cancer, Patient Navigation & Health Management: From Prevention to Life Coordination” was successfully completed, presenting contemporary challenges and practices in holistic oncology care, patient navigation, and patients’ digital literacy.

The online educational initiative, organized by René Descartes College in collaboration with the Kapa3 Cancer Patient Guidance Center, highlighted the importance of a human-centered approach to cancer, patient navigation, digital innovation, and the enhancement of patients’ digital literacy, combining scientific knowledge with practical support at every stage of the disease.

Holistic cancer care integrates scientific knowledge with practical support at all stages of the disease, enhancing patient engagement and quality of life.

During the webinar, the speakers shared valuable insights and experiences:

Maria Gazouli, PhD – Professor of Biology-Genetics-Nanomedicine:
She emphasized that cancer is a chronic, multifactorial disease where quality of life is as important as survival. The holistic approach treats the person as a whole—physically, psychologically, socially, and environmentally—and requires an interdisciplinary team with active patient participation in every decision. She highlighted the importance of personalized medicine and the role of family support.

Dr. Christos A. Frantzidis – Assistant Professor, University of Lincoln:
He presented CREATE, a comprehensive digital system that transforms patients’ daily experiences into valuable knowledge for clinicians, supporting timely interventions and personalized care. He stressed that artificial intelligence does not replace humans but assists clinicians in safe decision-making, reduces workload, and improves patients’ quality of life.

Dr. Maria Lavdaniti, PhD – Professor of Clinical Nursing, International Hellenic University (IHU):
She underscored the critical role of the oncology nurse in administering therapies, managing symptoms, and providing psychosocial support to patients and their families. She emphasized the importance of continuous patient education, managing long-term side effects, and interdisciplinary collaboration to improve quality of life.

Dr. Vasiliki Kapaki – Professor of Health Economics, René Descartes College:
She highlighted the role of technology in oncology, from prevention and screening to treatment and post-therapy care. She stressed that digital literacy is a prerequisite for health equity, enabling patients to understand risks, participate in decision-making, and safely follow their therapeutic pathways.

Evangelia Bista, PhD, Co-Founder of Kapa3:
She presented the work and mission of Kapa3, which supports over 7,000 families and 1,500 patients in Greece, offering guidance, information on patients’ rights, psychological support, and personalized digital tools. Her presentation included the main pillars of Kapa3’s work—website, request management, educational programs—as well as the organization’s 2026 action plans, such as Wellness in Motion, Cancer Wellness Open House Day, and digital innovations with AI and personalized service systems.

Ms. Bista highlighted that upgraded digital services with AI tools, such as Myrto, the first digital assistant/chatbot in Greece, part of Kapa3’s 2026 projects, will enable personalized services based on patient profiles, streamline processes, and reduce bureaucracy. It is clear that, combined with human guidance, the development of digital literacy is a key tool for equitable access, quality of life, and active patient engagement throughout the disease.

The webinar concluded with an open discussion and Q&A, giving participants the opportunity to interact with the speakers and exchange experiences. The initiative emphasized that technology and digital literacy do not replace humans but enhance guidance, safety, and equity in care, while holistic care remains at the center of every initiative.

We sincerely thank René Descartes College for hosting and flawlessly organizing the event, as well as all the outstanding speakers for sharing their knowledge and inspiration with the audience.

You can find some screenshots from the webinar below:

You can find the Press Release file here