Category: Patients’ Rights

A Calm Summer Begins with Proper Preparation Proactive Care Planning, Mental Decompression and Digital Support

Proactive Care Planning, Mental Decompression and Digital Support

Summer is a valuable opportunity for rest, renewal and quality time with the people we love. For people living with or after a cancer diagnosis, as well as for their caregivers, the possibility of enjoying a few days away from everyday life can contribute meaningfully to physical and mental well-being.

When a person’s health condition allows it, and with the agreement of the treating physician, even a short break can have a beneficial effect, enhancing quality of life and supporting the sense of returning to everyday life (Lim et al., 2022).

The quality of life of people living with or after a cancer diagnosis does not depend solely on medical treatment. Mental well-being, social support, optimism and resilience are equally important factors that facilitate adaptation to the disease and contribute to patients’ overall well-being (Ruiz-Rodríguez et al., 2022). At the same time, current guidelines underline the importance of integrated and personalised care, as well as continuous support for people living with or after cancer at every stage of their journey (Hart et al., 2024).

However, the peace of mind associated with holidays does not begin on the day of departure. It begins much earlier, through proper preparation. Practical pending issues, administrative procedures or concerns about unexpected events during the holidays can increase stress and reduce the feeling of safety. By contrast, proactive care planning allows patients to organise what is needed in advance, so that they can devote their time to rest rather than obligations.

Timely renewal of medical certificates, ensuring an adequate supply of medication for the entire period of absence, communicating with the treating physician when necessary, and keeping essential medical documents in an easily accessible format are simple but important steps of preparation. In this way, continuity of care is safeguarded, while the uncertainty that often accompanies travel is reduced.

Reliable information and timely support are key pillars of modern oncology care. When people know where they can turn and have easy access to trustworthy information, they feel safer, their autonomy is strengthened and the management of daily life becomes easier (Ruiz-Rodríguez et al., 2022; Hart et al., 2024).

In today’s world, digital tools can complement support services by facilitating access to reliable information wherever the patient may be. In this direction, Kapa3 is moving forward with the development of Myrto, the digital social navigator, designed to provide direct access to information on social rights, available services and useful guidance. In this way, it facilitates access to the organisation’s services and reliable information, contributing to better preparation before and during holidays.

For all of us at Kapa3, technology does not replace human care; it complements it. It is another means of facilitating access to trustworthy information and available services, while the Social Service and Psychological Support Service of Kapa3 remain the core pillar of holistic support for people living with cancer and their families.

Let us remember that care does not stop when holidays begin. It continues through small but meaningful acts of preparation, proper information and timely planning. Because, many times, the greatest luxury of a holiday is not the destination itself, but the feeling that we can enjoy our moments with calmness, safety and trust.

The Social Service and Psychological Support Service of Kapa3 wish everyone a safe, peaceful and refreshing summer, with health, strength and beautiful moments.

Before Leaving for Your Holidays…

✔️ Make sure you have an adequate supply of your medication for the entire period of your absence.

✔️ Check whether there are any medical certificates, prescriptions or other administrative pending issues that need to be settled in time.

✔️ Discuss with your treating physician any special instructions related to travel or movement.

✔️ Keep with you the necessary medical documents and important contact details.

✔️ Find out about available support services and make use of the Kapa3 App, so that you have easy access to useful information wherever you are.

References

Hart, N. H., Nekhlyudov, L., Smith, T. J., Yee, J., Fitch, M. I., Crawford, G. B., et al. (2024). Survivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations. JCO Oncology Practice, 20(9), 1160–1172. https://doi.org/10.1200/OP.23.00716

Lim, J. H. C., Keenan, C., & Flaherty, G. T. (2022). All My Life to Live: Travel Health Benefits and Risks for Cancer Survivors. Journal of Travel Medicine, 29(5), taac069. https://doi.org/10.1093/jtm/taac069

National Comprehensive Cancer Network. (2024). NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®): Survivorship. Version 2.2024. Plymouth Meeting, PA: National Comprehensive Cancer Network.

Ruiz-Rodríguez, I., Hombrados-Mendieta, I., Melguizo-Garín, A., & Martos-Méndez, M. J. (2022). The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients. Frontiers in Psychology, 13, 833176. https://doi.org/10.3389/fpsyg.2022.833176

World Health Organization. (2022). World Mental Health Report: Transforming Mental Health for All. Geneva: World Health Organization.

Official Access Links

Hart et al., 2024 — MASCC-ASCO Standards:
https://ascopubs.org/doi/10.1200/OP.23.00716

Lim et al., 2022:
https://doi.org/10.1093/jtm/taac069

NCCN Clinical Practice Guidelines in Oncology: Survivorship:
https://www.nccn.org/professionals/physician_gls/pdf/survivorship.pdf

Ruiz-Rodríguez et al., 2022:
https://doi.org/10.3389/fpsyg.2022.833176

WHO World Mental Health Report:
https://www.who.int/publications/i/item/9789240049338

Marilia Barka
Psychology Student
Kapa3 Volunteer

www.linkedin.com/in/maria-garyfalia-marilia-barka-03825a409

The Active Role of Patient Organizations in Shaping Public Policy: How Our Health Advocacy Ef orts Are Put into Action

At the Cancer Patient Guidance Center, we believe that the voices of patients, their families, and the organizations that represent them must be heard loud and clear where decisions are made.

Improving the quality of life for cancer patients, ensuring access to new treatments, and meeting the needs of caregivers are not just requests but rights that are asserted through organized advocacy. To make this a reality, the right tools are needed.

The new “Guide to Mapping Public Consultation Tools”

As part of the “ENERGO – Toward an Open State” project, HIGGS has created a practical guide that maps the available mechanisms for participation at the local, national, and European levels.

This guide serves as a roadmap for Civil Society Organizations (CSOs), providing a detailed overview of:
• How institutional consultation tools function
• The opportunities for organizations to actively participate in policy-making
• The requirements for accessing these mechanisms
• The challenges and limitations, so that our interventions are well-informed and effective

Why might this be of interest to the beneficiaries of our Center?

Participation in shaping public policy is not an abstract concept. In cancer care, it translates into very specific changes:
1. Equal access to care: advocating for better infrastructure, shorter wait times, and free access to innovative medications.
2. Support for caregivers: establishing leave policies, benefits, and support systems for the people who stand by their side
3. Rights in the workplace: protecting cancer patients from discrimination in the workplace during and after treatment.

Summary & Structure of the Public Consultation Tools Guide

The “Public Consultation Tools Guide” was developed as part of the project “ENERGO – Toward an Open State” (implemented by HIGGS and co-funded by the European Union, the Bodossaki Foundation, and the NGO Support Centre). It is a practical reference tool designed to empower civil society organizations (CSOs) by strengthening their capacity for meaningful, evidence-based participation in public policy-making and strategic advocacy.

The guide is organized into the following sections:

1. Introduction & Institutional Landscape: This section presents the framework for the guide’s development, which was based on research and experiential tools involving dozens of civil society organizations. It analyzes the challenges of the institutional landscape, noting that the main obstacle for organizations is not the absence of tools, but rather the fragmentation, lack of visibility, and complexity of existing mechanisms,

2. National Tools for Public Consultation & Participation: maps and presents in detail the tools available in Greece, such as OpenGov, the KEDE & LocalWatch consultation platform, Vouliwatch, the YPEN Participation Platform, the National Register of Procedures (“Mitos”), Open Council & Crowd Participation, as well as Diafania & POTHEN.

3. European Public Consultation & Participation Tools: presents mechanisms for engagement at the European Union level, such as Have Your Say, the European Citizens’ Initiative (ECI), Consul Democracy, Loomio & Decidim, and others.

4. Tool Selection Guide & Conclusions: Provides consistent evaluation criteria (purpose, implementing body, prerequisites, limitations) so that each organization can select the most appropriate tool based on the objective of its engagement.

About the “ENERGO” Project & the PLATO Program

The “ENERGO: Toward an Open State – Participation, Advocacy, and Empowerment of Civil
Society Organizations” project is being implemented as part of the PLATO program, with HIGGS serving as the implementing partner. The PLATO program (“Protecting democracy, human rights, and the rule of law through an open civic space”) aims to strengthen the fundamental rights and values of the EU in both Greece and Cyprus. It is co-funded by the European Union through the Citizens, Equality, Rights and Values (CERV) program, the Bodossaki Foundation, and the NGO Support Center. The Bodossaki
Foundation serves as the coordinator in partnership with the NGO Support Center.

View and download the guiderZT9sW-Οδηγός Εργαλείων Δημόσιας Διαβούλευσης.

 

Confirmation of AMKA for Child and Parent

A major institutional development is set to simplify the lives of cancer patients and their families by eliminating unnecessary bureaucratic hurdles. The new ministerial decision introduces digital proof of kinship for the dispensing of High-Cost Medications (FCM). The Kapa3 team presents a detailed overview of all the changes affecting insured individuals’ daily access to their essential treatments.

A Digital Leap Toward Equal Access to Care

The new decision provides for the launch of the specialized online service “AMKA Verification for Child-Parent.” This service is directly integrated into the “PLATFORM FOR THE DISTRIBUTION OF PHARMACY-ISSUE MEDICATIONS BY PRIVATE PHARMACIES/EOPYY PHARMACIES” information system.

For the people Kapa3 serves every day, this development translates into an immediate reduction in bureaucracy and hassle. From now on, the verification of family relationships will be performed automatically, ensuring that vulnerable groups and their caregivers do not waste valuable time waiting for approval of their necessary treatment regimens.

 This upgrade is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we gain is precious.

What’s Changing in Patients’ Daily Lives

Until now, in order to obtain approval for the dispensing or delivery of an expensive medication for a child or dependent, it was often necessary to submit additional documents (such as family status certificates) or in-person verification of the parent-child relationship. 

What sets Decision 3 of this Government Gazette apart is the following:

Automatic Data Matching: It digitally connects information systems in real time. The EOPYY platform now automatically “reads” the relationship between a parent’s and child’s AMKA numbers through the Interoperability Center.

Immediate Approval of Requests: The parent or close relative logs into the digital “FYK DISPENSATION PLATFORM” using their own credentials and can submit the request immediately, without the process being held up due to a lack of the child’s identification.

Flexibility in Pickup: It facilitates faster scheduling of appointments at EOPYY pharmacies or pickup from private pharmacies, dramatically reducing wait times for vulnerable patients

 

Reducing bureaucracy is not merely a digital upgrade; it is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we save is

 

Kapa3 in the second half of April: Information, collaborations and strengthening patient care

Kapa3 in April

Throughout April, Kapa3 continued to develop actions and initiatives aimed at improving access to care for oncology patients and their families, with a strong focus on information, prevention, and the development of innovative collaborations.

This period’s activities focused on raising awareness about key cancer types, improving patients’ daily lives through policy and systemic developments, and expanding partnerships that enhance the quality of care and services provided.

In an ever-evolving healthcare environment, the connection between reliable information, human support, and technology remains a key pillar for a more accessible and effective care system.

Below are the main initiatives and developments that marked the second half of the month.

Awareness

April is an awareness month for head and neck cancer as well as testicular cancer, highlighting the importance of prevention and early diagnosis. Although these types of cancer are often underrepresented in public discourse, awareness plays a crucial role in reducing late diagnoses and improving patients’ quality of life.

Patients’ rights

Important developments took place in the field of patients’ rights, including the establishment of the National Registry for Hospital-at-Home Care (NOSPI), aiming to better organise and ensure the safety of home-based care.

At the same time, the new framework for Public Administration introduces changes that directly affect citizens’ daily lives, enhancing transparency, reducing bureaucracy, and improving access to public services.

Collaborations

During April, Kapa3 further strengthened its network of collaborations through significant partnerships.

The collaboration with the PRAXI Network/FORTH, within the European smartHEALTH hub, enhances participation in innovation and health policy initiatives, opening new opportunities at European level.

In addition, the partnership with Karkinaki focuses on supporting children, adolescents, and families living with cancer, promoting a holistic approach to care.

Furthermore, the collaboration with SimasiaAI for the development of “Myrto”, an AI-powered digital assistant, highlights the importance of technology in empowering patients and improving access to reliable information and services.

Research & knowledge

A new international report on person-centred cancer care highlights the need for a holistic model that places the patient at the centre. This approach recognises not only clinical needs but also psychosocial dimensions, reinforcing the importance of patient involvement in decision-making.

Patients & society

On the occasion of European Patients’ Rights Day (18 April), Kapa3 highlighted the importance of equal access to quality care. Despite progress, challenges such as inequalities and delays remain, making the continued strengthening of support structures essential.

Supporting our work

Kapa3’s collection of handmade scarves continues to serve as a creative way of supporting the organisation’s mission, combining aesthetics with meaningful contribution to people living with cancer.

We continue to monitor developments and work towards improving patients’ daily lives — more news coming soon.

Text/adaptation: Ifigenia Anastasiou for Kapa3

Kapa3 announces collaboration with SimasiaAI for the development of the Health Navigator “Myrto” (Myrto AI Assistant)

The Kapa3 – Cancer Guidance Center announces its collaboration with SimasiaAI, for the co-development of the Health Navigator “Myrto” (Myrto AI Assistant), an artificial intelligence (AI chatbot) designed to enhance digital cancer support for patients with cancer and their families through immediate, reliable, and personalized information.

This initiative is part of Kapa3’s strategic focus on leveraging innovative digital tools to improve access to information, strengthen guidance, and reduce the digital gap often faced by vulnerable groups in the healthcare sector.

The Health Navigator “Myrto” is not just an information tool, but a new form of social artificial intelligence in cancer care support in Greece. It is designed to transform digital information into a more human, accessible, and meaningful experience, allowing users to interact, receive guidance, and access support tailored to their needs.

Through its dual role as a “Patient Empowerment e-Navigator”, the system will function both as a Patient Advocate—providing guidance on patient rights, benefits, and access to healthcare and social services—and as a Health Navigator, offering reliable information to support better understanding and self-management of health-related issues.

At the same time, the Health Navigator “Myrto” aims to enhance health literacy, support the psychosocial dimension of the disease, and highlight available community resources, contributing to the reduction of inequalities in access to information.

Kapa3, with its long-standing experience in guiding and supporting cancer patients, continues to invest in initiatives that promote equal access to information and digital empowerment, utilizing technology with a strong social and human-centered approach.

The collaboration between Kapa3 and SimasiaAI leads to the development and integration of the Health Navigator “Myrto” into Kapa3’s platform, highlighting the importance of cooperation between social organizations and technology providers in creating innovative digital support tools for cancer patients. Through this initiative, the goal is to meaningfully empower patients, support healthcare professionals, and advance more human-centered digital services.

The development of the Health Navigator “Myrto” marks an important step toward a new model of digital care, where artificial intelligence complements human support, enhancing the quality of life of patients and their families.

The Founding Sponsor of the “Myrto”Health Navigator is the TIMA Foundation.

Our Press Release text here: PRESS RELEASE SIMASIA AI

Text: Ifiyenia Anastasiou for Kapa3

Update on Constant Attendance Allowance – March 2026

Based on the latest available data for March 2026, the Constant Attendance Allowance, provided through e-EFKA, has been increased and now reaches up to €845–846 per month, depending on the category and insurance status. This allowance applies to pensioners with severe disabilities or serious mobility impairments who require continuous assistance and supervision from another person, following disability certification by the KEPAs.

The year 2026 features increases and retroactive payments in EFKA allowances, including disability benefits, aiming to strengthen support for vulnerable pensioners and reduce financial difficulties in daily life. This adjustment reflects the ongoing commitment to support pensioners with increased care needs.

Eligible Pensioners

  • Pensioners with a disability rate above 67%, for whom continuous care by another person is certified.

  • Blind elderly pensioners.

  • Survivors’ pensioners, provided the deceased had their first insurance before 1/1/1993.

Amounts and Supplements

  • For those insured before 1/1/1993, the supplement reaches 50% of the pension, up to €671.40.

  • For those insured from 1/1/1993 onwards, the amount is €173.34.

  • Employees may also receive an extra-institutional allowance, with a total maximum of €846.

  • At a social assistance level, the amount can reach up to €380 per month.

For public sector pensioners, the corresponding supplement is calculated at 2.5% to 4.5% of the basic lieutenant salary, depending on the degree of incapacity, and in cases of 80% or higher incapacity, the amount increases by 50%. The allowance is tax-free and protected from garnishment.

Important Note: The official decision on the adjustment is expected to be published in the Government Gazette in the coming days. Once available, the article will be updated with full details and the official Gazette reference.

This increase on the Constant Attendance Allowance, forms part of the broader adjustment of social welfare allowances for 2026, confirming the commitment to support pensioners with higher self-care needs and ensure a dignified standard of living.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

International Day of Persons with Disabilities — 3 December

A day of awareness, commitment, and action

The International Disability Day, also known as the International Day of Persons with Disabilities (3 December), established by the United Nations in 1992, serves as an annual reminder of the need for full inclusion, equality, and respect for the rights of persons with disabilities across all aspects of social life. Moreover, today, more than ever, promoting accessibility and inclusion is not optional — it is an obligation.

According to the World Health Organization (2024), approximately 1.3 billion people — 16% of the global population — live with some form of disability. Disability is part of human diversity, and the lived experience of it highlights the systemic inequalities that continue to exist in many countries, including Greece. As a result, the need for stronger inclusion policies becomes increasingly evident.

These global figures highlight why International Disability Day remains a vital call to action worldwide.

Challenges and inequalities in Greece

In Greece, persons with disabilities still face significant barriers in their daily lives: inadequate accessibility in public spaces and services, difficulties in mobility, limited access to employment, and persistent social stigma that deeply affects their quality of life. National data confirm that these inequalities have direct consequences on health, education, and participation in social and economic life.

At the same time, improving accessibility is not only about removing barriers — it is about shaping a society that recognizes the real needs of its people. Therefore, from training professionals and changing attitudes, to ensuring universal access to healthcare and psychosocial support, inclusion requires sustained commitment. Only then can we guarantee that every citizen has equal opportunities, dignity, and participation.

Kapa3’s perspective: A world where every voice is heard

At the Cancer Patient Guidance Centre – Kapa3, we support individuals facing serious health challenges every day. We understand how essential the following are:

  • clear and accessible information
  •  timely support
  •  respect
  •  care without exclusions

Learn more about the rights of Persons with Disabilities in the following publications on our website here.

Find information about issuing a disability card here, and about free or reduced public transportation fares here.

The International Day of Persons with Disabilities reminds us that every action and every policy must be built on the principle of inclusion.
No one should be left behind.

Building more inclusive societies: From vision to practice

Creating a truly accessible environment requires:

  • Accessible cities and public services
  •  Training for professionals in health, social care, and customer service
  •  Accessible digital technologies
  •  Employment policies that enable active participation
  •  Awareness-raising and dialogue to combat stigma

Inclusion is not an act of “good will” — it is a prerequisite for social progress.

At the same time, the transition to a genuinely inclusive society is not instantaneous. It requires coordinated efforts from the State, civil society, and persons with disabilities themselves. Continuous evaluation, transparency, and meaningful participation are the foundations of lasting change.

Access is a right.
Every person deserves respect and equal opportunities.

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Sources

 

The Impact of the Kapa3 Internship Programme: 30 Young Professionals in Our First 5 Years of Operation

The Impact of the Kapa3 Internship Programme: 30 Young Professionals in Our First 5 Years of Operation

In the five years since our establishment, thirty young people have had the opportunity to learn and grow through the Kapa3 Internship Programme.

International scientific literature highlights that internships are far more than a first work experience. They serve as a fundamental mechanism of experiential learning, enabling students to connect theoretical knowledge with real-world professional contexts.

Through their involvement in a civil society organisation like Kapa3, interns developed reflective and critical thinking skills—core elements of modern professional education. By engaging with real needs and challenges, students strengthened their professional identity and gained a deeper understanding of their role as future practitioners in health and social services. In many cases, the internship at Kapa3 played a significant role in supporting their transition from university to the labour market, enhancing their confidence, social skills, and clarity of professional direction.

Furthermore, the structured field experiences offered opportunities to build professional networks, a key factor in long-term career development.

At Kapa3, the value of internships is evident across all aspects of our work. We strive to create an environment where students can deepen their academic knowledge, apply their skills to real cases, and map out the next steps of their careers with realism and self-awareness.

The result is a community of young professionals who are both socially conscious and scientifically equipped to contribute meaningfully to health and social care. We are proud to be at the forefront of education and warmly thank our partner universities for their trust and collaboration.

 

Biomarkers Open New Paths in Cancer Treatment in Greece

Good news for cancer patients in Greece — access to personalized treatments is now becoming a reality.

A recent decision by the Ministry of Health (ΦΕΚ Β’ 5627/20-10-2025, Απόφαση Δ3(α) 41081/2025) approves and reimburses a wider range of biomarker tests, marking an important step forward for modern oncology care.

Read the Government Gazette here

But what are biomarkers?
They are special indicators detected through molecular tests that help doctors understand the unique characteristics of each patient’s cancer. In simple terms, biomarkers act like a “compass,” guiding doctors to choose the most effective and safest treatment for every individual.

Until now, only a few biomarkers were covered by the public health system — for example, molecular signatures that determine whether a woman with early-stage breast cancer needs chemotherapy (approved in 2018), or BRCA1/2 gene tests that reveal inherited risk for breast and ovarian cancer.

The new decision significantly expands this list, adding additional biomarkers for 39 indications. This allows oncologists to tailor treatments to the specific profile of each patient’s tumor, bringing Greece closer to international standards of personalized medicine.

KAPA3, which consistently supports patient education and empowerment, welcomes this development as a vital step toward more human-centred, targeted care.

This progress brings hope, better quality of life, and greater trust in the healthcare system. It is only the beginning, but it lays strong foundations for a future where every patient has access to the right treatment, at the right time.

Learn about patient rights via KAPA3’s extensive library here

Learn more about cancer biomarkers here

Text/Adaptation: Ifiyenia Anastasiou for Kapa3