Category: Oncology Patients

Beyond Treatment: What Project 528 Reveals About Young Women Living with Advanced Breast Cancer

The hidden burden of diagnosis, the need for holistic care, and Kapa3’s commitment to patient navigation, psychosocial support and empowerment.

A cancer diagnosis at a young age affects far more than physical health. It can disrupt education, employment, family life, personal relationships, financial security and plans for the future. For young women living with advanced breast cancer, these challenges are often particularly complex, as they must navigate treatment and uncertainty while continuing to fulfil multiple personal, professional and family responsibilities.

The findings of Project 528, a global needs assessment led by the Young Survival Coalition (YSC), provide important evidence of these often-overlooked realities.

Presented at the 8th International Consensus Conference for Advanced Breast Cancer (ABC8) in Lisbon in November 2025, the survey gathered 3,881 responses from 67 countries. The findings presented at the conference focused on 385 young respondents under the age of 40 living with advanced breast cancer.

The results highlight significant gaps in access to information, psychological support, financial protection, practical assistance and meaningful participation in healthcare decisions.

Above all, they reinforce an essential message: cancer care must address the whole person, not only the disease.

The revealing findings of Project 528

The survey findings offer a compelling picture of the challenges experienced by young women with advanced breast cancer and demonstrate how deeply the disease affects everyday life.

Motherhood and family responsibilities

Almost half of the respondents (48%) had children under the age of 18.

For young mothers, living with advanced breast cancer means balancing demanding treatment schedules, physical symptoms and emotional uncertainty with the everyday responsibilities of raising children.

Childcare, family routines and concerns about their children’s future can become considerable sources of distress.

These findings highlight the importance of family-centred supportive care that recognises both the needs of patients and those of their loved ones.

Employment disruption and financial toxicity

The socioeconomic consequences of advanced breast cancer are substantial.

64% of respondents reported disruption to their employment following diagnosis, while 40% accumulated medical debt.

According to the detailed Project 528 report, the proportion of respondents who considered themselves financially secure fell from 51% before diagnosis to just 7% during treatment.

These findings illustrate the phenomenon of financial toxicity: the economic burden associated with cancer, including loss of income, treatment-related expenditure, travel costs, caregiving responsibilities and reduced employment opportunities.

Financial insecurity can further intensify emotional distress and create additional barriers to accessing appropriate care.

For younger patients, whose careers and financial independence may still be developing, the consequences can extend well beyond the treatment period.

Psychological distress and quality of life

80% of respondents reported psychological distress or mental health difficulties.

Concerns relating to body image, fertility, sexual health, emotional well-being and loss of independence were widespread, yet were often insufficiently addressed within routine cancer care.

For many young women, advanced breast cancer also raises difficult questions about identity, relationships, intimacy, motherhood and the future.

These challenges demonstrate why psychosocial support should not be viewed as an optional addition to cancer treatment.

It is an essential component of comprehensive, person-centred oncology care.

Delays in seeking care and diagnosis

The survey also revealed important gaps in awareness and early detection.

40% of respondents reported delaying their initial medical consultation. Contributing factors included fear, limited awareness of symptoms and experiences of having their concerns dismissed or underestimated by healthcare professionals.

Only 14% reported being diagnosed through screening or routine medical care, while 85% sought diagnosis after identifying symptoms themselves.

These findings point to the need for greater awareness of breast cancer in younger populations, timely clinical assessment of concerning symptoms and improved communication between patients and healthcare professionals.

They also remind us that young age should not automatically lead to the dismissal of potentially significant symptoms.

Gaps in information and access to precision medicine

The findings also identified differences in access to diagnostic testing and understanding of treatment options.

Although 90% reported undergoing genetic testing for inherited mutations, only 59% had received genomic or companion diagnostic testing to investigate characteristics of the tumour.

Such testing, when clinically indicated, can provide valuable information to support personalised treatment decisions.

Moreover, only 46% of respondents reported being offered more than one treatment option, while targeted therapies were among the least understood treatment approaches.

These results highlight the importance of accessible medical information, effective patient–professional communication and shared decision-making.

Online patient communities also emerged as valuable sources of information, peer support and empowerment. However, the detailed Project 528 report found that 43% had not been referred to peer-support or patient advocacy groups by their healthcare teams.

As Jennifer Merschdorf, Chief Executive Officer of the Young Survival Coalition, emphasised, healthcare systems too often place the burden of self-advocacy on patients who are already coping with fatigue, fear and financial strain.

The Kapa3 connection: From identifying needs to meaningful action

The findings of Project 528 are more than statistics. They reveal the personal, social and economic dimensions of cancer that healthcare systems must increasingly recognise and address.

Although the survey reflects experiences reported across different countries and healthcare contexts, many of the challenges it identifies are also relevant to the needs that cancer patients and families may encounter in Greece.

At Kapa3 – Cancer Guidance Center, we believe that the experience of cancer extends far beyond hospital appointments, medical consultations and treatment decisions.

Cancer affects the ability to work, care for loved ones, maintain financial stability, access essential services and participate fully in everyday life.

Our mission is to help bridge the gap between medical care and the practical, social and emotional needs that accompany a cancer diagnosis.

Patient navigation and guidance within healthcare and social support systems

As Professor Fatima Cardoso, President of the ABC Global Alliance, has highlighted, equitable access to appropriate diagnostics, personalised treatment and comprehensive supportive care is essential.

At Kapa3, we provide free patient navigation and social guidance services, helping people affected by cancer and their families better understand their rights and access available forms of support.

Our work includes guidance on administrative procedures, disability assessment and certification, social benefits, insurance-related matters, workplace rights and available community resources.

Through individualised support and cooperation with relevant services, we aim to reduce the bureaucratic and informational barriers that patients frequently encounter.

No person affected by cancer should have to navigate a complex health and welfare system alone.

Psychosocial support and quality of life

With psychological distress affecting such a high proportion of young patients in the Project 528 survey, emotional and psychosocial care must be recognised as a central part of the cancer journey.

Kapa3 provides psychological support services adapted to the needs of patients and caregivers, alongside social guidance and referrals to appropriate specialised services when necessary.

We recognise the importance of offering a supportive environment where people can discuss emotional uncertainty, changes in family and personal relationships, body image concerns, fear of recurrence or progression, and the challenges of adapting to life with cancer.

Our approach promotes dignity, emotional resilience and a more comprehensive understanding of quality of life.

Practical assistance and support for families

For a young mother living with advanced breast cancer, routine tasks can become overwhelming.

Childcare arrangements, travel for treatment, household responsibilities, employment obligations and financial pressures may all create additional burdens.

Kapa3 supports patients and caregivers by identifying their practical needs, providing information and connecting them with appropriate social services, community resources and support structures.

Through collaboration with local authorities, healthcare professionals and community organisations, we seek to strengthen continuity of support and help families navigate everyday challenges.

Empowerment, health literacy and patient advocacy

One of the strongest messages emerging from Project 528 is that reliable information is a fundamental resource for patient empowerment.

At Kapa3, we work to strengthen health literacy, informed participation and patient advocacy.

We encourage patients to ask questions, understand the information provided by their healthcare teams, become aware of relevant diagnostic and treatment options, and participate actively in decisions affecting their lives.

Our role is not to replace medical advice, but to help people access trustworthy information and feel better prepared to communicate with healthcare professionals.

At the same time, we advocate for more inclusive health and social policies that recognise the particular challenges experienced by adolescents and young adults affected by cancer (AYAs).

These include employment protection, financial security, psychosocial needs, family responsibilities, fertility-related concerns and continuity of care.

Moving forward together: Advocating for a better quality of life

Project 528 offers an important roadmap for researchers, healthcare professionals, patient organisations and policymakers.

It demonstrates the urgent need for healthcare systems that are not only medically effective, but also accessible, coordinated, compassionate and responsive to the realities of people’s lives.

The findings should be interpreted in the context of the survey’s limitations, including its reliance on self-reported experiences and uneven geographical representation. Nevertheless, they provide valuable patient-reported evidence that can inform further research and improvements in supportive care.

Behind every diagnosis is a woman who wants to continue living, loving, working, raising her children, building relationships and making plans for the future.

As Christina Thammasen, who shared her experience of living with metastatic breast cancer, reminds us:

“You have to keep fighting, you have to keep moving forward, you have to keep living your life.”

At Kapa3, we remain committed to ensuring that no woman, no young adult and no family affected by cancer has to face these challenges without information, guidance or support.

We advocate for a model of holistic, person-centred cancer care that extends beyond treatment and recognises every dimension of human life.

Because cancer care is not only about treatment. It is about protecting dignity, supporting everyday life and ensuring that no one is left behind.

Need support?

If you are a young person affected by cancer, a patient or a caregiver seeking guidance, psychological support or information about your rights, the Kapa3 team is here to help.

Kapa3 – Cancer Guidance Center

Telephone: +30 210 5221424
Email: info@kapa3.gr
Website: www.kapa3.gr

Sources and further reading

  1. Young Survival Coalition. Project 528 – First Look ABC Data: Global Needs Assessment of Young Adults Affected by Advanced Breast Cancer (2025).
    https://project528.youngsurvival.org/wp-content/uploads/2025/11/MBC-Report-Project528_11.2025.pdf
  2. ABC Global Alliance / ecancer. First global survey highlights challenges faced by young women with advanced breast cancer. 6 November 2025.
    https://ecancer.org/en/news/27226-first-global-survey-highlights-challenges-faced-by-young-women-with-advanced-breast-cancer
  3. Oncology Central. ABC8: Global survey highlights challenges that young breast cancer patients face. 6 November 2025.
    https://www.oncology-central.com/abc8-global-survey-highlights-challenges-that-young-breast-cancer-patients-face/
  4. Project 528 – Official website and research findings.
    https://project528.youngsurvival.org/results/

Article edited by:
Elena Panopoulou, Sociologist, Kapa3 Tripoli Team
Email: elenak3team@gmail.com
LinkedIn: Elena Panopoulou

Κapa3 at IEEE CBMS 2026 | AI for Equitable Oncology Information

Kapa3 at IEEE CBMS 2026: Artificial Intelligence in Support of Equitable Patient Information in Oncology Care

New scientific publication in the Proceedings of the 39th IEEE International Symposium on Computer-Based Medical Systems

The voice and lived experience of patients must remain at the centre of the emerging era of Artificial Intelligence in healthcare.

Kapa3 – Cancer Guidance Centre contributes to a new scientific publication presented in the Proceedings of the 2026 IEEE 39th International Symposium on Computer-Based Medical Systems (CBMS), focusing on how Artificial Intelligence and Retrieval-Augmented Generation can support more equitable, reliable and patient-centred access to information in oncology.

The paper, entitled:

“Informed, Empowered, and Heard: AI and Retrieval-Augmented Generation as Tools for Equitable Patient Information in Oncology”

is authored by Lars Münter, Evangeli Bista, Maria Lavdaniti and Christos Frantzidis, with Evangeli Bista representing Kapa3 as Co-founder.

From access to information to meaningful patient empowerment

A cancer diagnosis creates an immediate need for information that is reliable, understandable and relevant to the individual patient.

At the same time, patients and their families are often expected to understand complex medical terminology, treatment options, prognosis discussions and administrative procedures at a moment of intense psychological and emotional pressure.

The paper highlights that acute stress associated with a serious diagnosis can affect working memory, attention and the ability to process new information. This means that patient information cannot be designed for an ideal, fully attentive reader; it must respond to the real cognitive and emotional conditions experienced by people facing cancer.

The key question is therefore not simply:

“How much information do we provide?”

but rather:

“Are we providing the right information, at the right time, in a form that people can understand and act upon?”

AI and Retrieval-Augmented Generation: towards trustworthy and evidence-grounded information

The publication places particular emphasis on Retrieval-Augmented Generation (RAG).

RAG architectures combine the generative capabilities of large language models with the retrieval of information from curated and verified knowledge sources. In a healthcare setting, this can include clinical guidelines, validated patient information resources, regulatory documents and peer-reviewed literature.

This approach offers an important advantage over purely generative AI systems: responses can be grounded in identifiable sources, supporting greater transparency and enabling patients and healthcare professionals to verify where information comes from.

In oncology, this is especially important.

A patient does not simply need a quick answer. They need information that is:

accurate, current, understandable, accessible and appropriate to their individual situation.

Artificial Intelligence as a tool for equity

One of the central themes of the paper is inequality in access to high-quality oncology information.

Geography, language, socioeconomic circumstances, health literacy, digital literacy and access to specialised healthcare services can significantly influence a person’s ability to understand their diagnosis, treatment options and rights.

The publication pays particular attention to the Greek context, where patients living in large urban centres may experience a very different information environment from those living in rural, remote or island communities.

When equity is treated as a core design principle, AI-RAG systems can potentially support:

  • multilingual access to health information,
  • different levels of language and information complexity,
  • voice-based interfaces,
  • shorter and more manageable units of information,
  • low-bandwidth or offline-capable solutions,
  • and opportunities for patients to return to information when they are ready to process it.

Technology alone, however, does not create equity.

The way technology is designed determines whether it reduces existing inequalities or reproduces them.

Designed with patients, for patient needs

The paper calls for an important shift in the way digital health systems are developed.

Many traditional health information systems are designed primarily around institutional or clinical workflows, with patient-facing communication added later.

For patient-centred AI, this logic must be reversed.

Systems should be designed with patients and around patient needs, with patients and informal carers actively involved in shaping the knowledge base, the questions the system is expected to answer and the ways information is presented.

This also means moving beyond systems that simply respond to individual questions.

A meaningful AI-supported information environment could help patients prepare for clinical consultations, organise their questions, understand the next steps in their care and become more aware of their rights.

The paper highlights applications such as consultation preparation guides, question prompts before appointments and post-consultation summaries as examples of how technology can support patients before, during and after important healthcare interactions.

AI should strengthen, not replace, human relationships

Perhaps the most important message of the publication is that the transformative potential of AI in oncology is not primarily technical. It is relational.

Artificial Intelligence should not create distance between patients and healthcare professionals.

It should help strengthen their communication.

A better-informed patient can arrive at a clinical consultation more prepared, identify questions and concerns more clearly, participate more actively in shared decision-making and communicate more effectively with the healthcare team.

The same applies to informal carers, who often carry a significant part of the informational and emotional burden of cancer care.

For this reason, the paper argues that AI-RAG systems should be designed to strengthen the relationship between patients, carers and healthcare professionals, rather than to replace any part of this human network of care.

For healthcare professionals, trustworthy information systems may also reduce the time required for basic information provision, allowing more of the clinical encounter to focus on nuanced discussions, decision-making and the human aspects of care that technology cannot replicate.

From information to trust

This scientific contribution adds to an increasingly important discussion about the future of healthcare:

How can Artificial Intelligence be developed and used in ways that genuinely respond to human needs?

The answer does not lie only in more powerful AI models or larger volumes of data.

It also lies in evidence, transparency, accessibility, co-design, equity and respect for patient rights.

As the paper concludes, people affected by cancer in Greece and across Europe deserve access to information that is accurate, personalised, accessible and respectful of their rights, regardless of where they live, the language they speak or the socioeconomic resources available to them.

For Kapa3, participating in this scientific discussion also reflects a broader commitment: ensuring that real patient needs, lived experience and equitable access are represented in the design and evaluation of the next generation of digital health and AI-supported tools.

Publication details

Title: Informed, Empowered, and Heard: AI and Retrieval-Augmented Generation as Tools for Equitable Patient Information in Oncology

Authors: Lars Münter, Evangeli Bista, Maria Lavdaniti, Christos Frantzidis

Published in: 2026 IEEE 39th International Symposium on Computer-Based Medical Systems (CBMS)

DOI: 10.1109/CBMS69103.2026.00302

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The Right to Be Forgotten: A New Era of Dignity for Cancer Survivors

Life after cancer should not be accompanied by lifelong financial exclusion

For many decades, completing cancer treatment did not always mean the end of obstacles for those who had been diagnosed with the disease. Years after their treatment, many survivors continued to face higher insurance premiums, denied insurance applications, and difficulties accessing financial services.A history of cancer could act as a permanent “stigma,” even many years after treatment had ended.

Thus, medical progress and a return to daily life were not always accompanied by corresponding social and economic rehabilitation.

With Law No. 5317/2026, published on July 10, 2026, Greece is moving forward with the legislative enshrinement of the so-called “Right to Be Forgotten” for cancer survivors, in the context of insurance contracts linked to consumer credit agreements. This specific provision is found in Article 16, paragraph 4, of the law.

What the new provision stipulates

The law prohibits the use of personal data related to a consumer’s cancer diagnosis when such data is to be used for an insurance contract linked to a credit agreement and five years have passed since the completion of treatment.

Simply put, once the five-year period has elapsed, a prior history of a cancer diagnosis cannot be used in this specific context as a factor in assessing the insurance contract accompanying the credit agreement. This represents a significant shift: individuals are no longer assessed indefinitely through the lens of a past
illness, but are given the opportunity to move forward with their lives without their previous diagnosis serving as a permanent obstacle.

The four key points of the new entitlement

The Right to be Forgotten does not mean that the diagnosis is deleted from the medical record. It means that, after the prescribed five-year period, data related to the cancer diagnosis may not be used for that specific insurance purpose.

Fourth, special oversight is provided for.

The Personal Data Protection Authority is responsible for enforcing paragraph 4 of Article 16 and possesses the supervisory and auditing powers provided for by the General Data Protection Regulation.

What the New Regulation Does Not Cover

Accurate information is particularly important so that citizens are aware of both their rights and the actual
limits of the protection provided.

The new legislative provision:

  • does not apply to all forms of private insurance,
  • does not automatically guarantee the approval of a loan or an insurance application,
  • does not cover credit agreements secured by a mortgage on real property,
  • does not cover credit intended for the purchase or retention of rights in real estate,

does not cover professional or business loans, as the law applies to consumers acting outside the
scope of their professional or business activities.

Furthermore, consumer credit agreements already in effect as of November 20, 2026, will, as a general rule, continue to be governed by the previous legal framework until their expiration.
Therefore, the new regulation represents a very important step, but it does not yet provide comprehensive coverage of all the financial and insurance needs of survivors.

From Voluntary Commitment to Legal Enshrinement

The Right to Be Forgotten did not first appear in Greece in 2026. As of March 26, 2024, the Code of Ethics of the Hellenic Association of Insurance Companies has been in effect, to which life insurance companies had adhered.

The Code applied to life insurance policies linked to mortgage, business, or consumer loans, with a maximum total insured amount of 300,000 euros. It provided for a ten-year period following the completion of treatment for those diagnosed as adults and a five-year period for those diagnosed before
turning 18.

The new legislation is particularly significant because protection is no longer based exclusively on the insurance industry’s voluntary commitment. For contracts falling within its scope, the failure to use the oncological diagnosis after the five-year period becomes a legal obligation.

At the same time, there is a need to clarify the relationship between the new law and the existing Code, particularly with regard to mortgage and business loans that are not subject to the new legislative provision.

Additional Safeguards for Consumers

Article 16 includes other important safeguards. When insurance is required for the granting of credit, the creditor must accept equivalent insurance coverage from an insurance company of the consumer’s choice. Choosing a different company must not result in less favorable credit terms.

At the same time, the consumer is given a period of at least three business days to compare insurance quotes, unless the consumer requests in writing that the contract be concluded earlier.

The European Dimension

The Greek regulation transposes Directive (EU) 2023/2225 on consumer credit agreements. The European
Directive requires Member States to establish a time limit beyond which data related to oncological
diagnoses may not be used for insurance policies linked to credit agreements. The European text stipulated that this period must not exceed fifteen years; Greece opted for the significantly shorter period of five years.

This choice has particular social significance. It recognizes that advances in oncology, increased survival rates, and people’s return to family, social, and professional life must be accompanied by corresponding
developments in the law.

When Does It Take Ef ect?

Although Law No. 5317/2026 has already been published, the provisions of Part A, which include the
Right to Be Forgotten, will take effect on November 20, 2026.
Until then, substantial preparation is required on the part of banks, insurance companies, and the relevant
authorities. Clear procedures, understandable information for citizens, appropriate staff training, and an
easily accessible mechanism for submitting reports or complaints are needed.

A Significant Achievement—Not the End of the Journey

The Right to Be Forgotten represents a significant institutional victory for dignity and equality. Cancer
should not be a lifelong social and economic stigma. A person’s medical history should not negate their
right to plan for the future, participate equally in society, and make a fresh start.
At the same time, the new regulation must be viewed as a starting point, not the culmination of our
efforts. The next step must be to extend meaningful protection to more insurance and financial products,
including housing needs, as well as to address the discrimination that continues to occur in the workplace
and other aspects of social life.
Scientific progress has transformed cancer from a terminal diagnosis into an experience of life and
survival for millions of people. Society and the law must follow suit.

Because the Right to Be Forgotten is not a privilege. It is every person’s right not to remain forever
trapped by a past diagnosis—and to move forward into the future without discrimination, without
stigma, and with dignity.

Find more : http://elib.aade.gr/elib/view?

Evangeli Bista on DION TV: Social Support and Kapa3’s Role in Guiding Oncology Patients

On March 19, 2026, Evangeli Bista, Co-founder of Kapa3, gave an interview to Christos Thanasainas, journalist and Scientific Director of Forlife Clinic, on Central Macedonia’s DION TV, during the daily program All About Health, which covers topics on health, nutrition, autoimmune diseases, and recent scientific developments.

The discussion highlighted the importance of social support for cancer patients and their families, both inside and outside the hospital, as well as the critical role of Kapa3 in guiding and providing holistic support to patients.

WHAT IS SOCIAL SUPPORT – TWO WORLDS:

Social support in cancer care is not a single, uniform concept. Inside the hospital, it mainly concerns assistance with the public healthcare system and bureaucratic procedures. Outside the hospital, real life begins: family, caregivers, and decisions the patient must make.

MAJOR SYSTEM CHALLENGES:

As Ms. Bista noted, hospitals face a significant shortage of social workers and related professionals. International literature suggests that there should be 10 social workers for every 2,500 residents—but this is not the case in Greece. In 92 municipalities, there is not a single social worker, while in areas where social workers exist, most are on fixed-term contracts or funded through programs (such as ESIF). The result is a maze of bureaucracy and uncertainty for the patient, who must understand medical and legal terms, make critical decisions, and manage financial consequences—often without support.

THE ROLE OF KAPA3 – SOLUTION, NOT JUST A SERVICE:

In this environment, Kapa3 provides holistic guidance and support, helping patients navigate procedural and practical issues—either independently, if they feel capable, or with active assistance from the organization at every step. Coverage is nationwide, although the complexity and fragmented structure of the system require ongoing study and time for effective support.

THE “HEAVY” MESSAGE – UNDERSTANDING VS. INFORMATION:

As Ms. Bista emphasized:

“The patient doesn’t need more information – they need understanding.”

The process is essentially behavioral: understanding reduces uncertainty, uncertainty reduces anxiety, anxiety affects behavior, and behavior determines health outcomes.

Kapa3 operates within this “maze,” offering holistic guidance and support. Intervention can be supportive, giving patients the ability to act on their own, or active, guiding them step by step. Kapa3 covers the entire country, addressing the growing needs of patients.

THE BIG CHALLENGE: “MYRTO”

“Myrto” represents Kapa3’s major initiative for 2026. After five years in oncology social support, Kapa3 addresses secondary digital exclusion with “Myrto”—a Digital Health Navigator designed to transform knowledge into practical understanding and provide real-time guidance for patients, avoiding the “chaotic wandering” through the healthcare system. The platform is currently in the study and design phase, aiming to meet the real needs of patients and their caregivers.

The interview highlighted the importance of social support, understanding over mere information, and the role of digital technology in modern oncology care. Kapa3 and Myrto strive to bring care from the hospital into patients’ daily lives through a holistic, personalized, and practical approach.

For more information and to watch the full interview, see the video on YouTube here.

(Note: Video in Greek with no English subtitles).

You can dowload our Press Release here

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Colorectal Cancer Awareness Month – March

March is dedicated to raising awareness and promoting prevention of colorectal cancer, one of the most common but also highly treatable cancers when detected early. It is also referred to as colorectal carcinoma.

According to a European Commission report published in March 2021, colorectal cancer accounted for 12.7% of all new cancer diagnoses and 12.4% of all cancer-related deaths in the EU-27 countries in 2020. By 2045, it is estimated that 3.29 million new cases will be diagnosed worldwide, leading to 1.66 million deaths.

The disease occurs more frequently in men than in women, with age being a significant factor. Approximately 90% of people diagnosed with colorectal cancer worldwide are over 50 years old.

Prevention and early detection save lives.

Regular screenings, such as colonoscopy, can detect early lesions or precancerous changes before they develop into serious disease. During a colonoscopy, tissue samples (biopsies) can be taken for histological examination if a suspicious lesion is found, and polyps can be removed to prevent progression to cancer.

Treatment options depend on the stage of the disease, the tumor’s molecular characteristics, and the patient’s overall health. Standard therapies include surgery, chemotherapy, radiotherapy—which plays a key role in rectal cancer—as well as targeted therapies and immunotherapies guided by specific molecular biomarkers.

Through the National Colorectal Cancer Screening Program, the goal is to detect precancerous lesions or the disease itself early, allowing prompt intervention and treatment. Adenomatous polyps or early-stage neoplasms have a 100% cure rate when managed at an early stage, highlighting the critical importance of early detection.

For more information, visit the National Colorectal Cancer Screening Program website: https://colon.gov.gr

For any questions, you can contact the service department at tel. 11401 or via email: prolipsis-helpdesk@idika.gr.

Sources:

Digital Access to Test Results: An Important Right for Patients

Digital access to medical test results has become an important right for patients in Greece, following new regulations that strengthen the use of the Digital Repository of Diagnostic Laboratory Results. According to the relevant decision published in the Government Gazette (March 2026), public and private healthcare units collaborating with EOPYY are required to record diagnostic test results in digital form within a specified timeframe.

This change is not just a technical procedure or an administrative obligation for healthcare providers. In practice, it represents a meaningful enhancement of patients’ rights, ensuring that every citizen can have immediate and organized access to their medical data.

Digital access to test results now reduces the need for physical documents, printed copies, or trips to diagnostic centers. Instead, results are stored in a unified digital environment connected to the Individual Electronic Health Record. This allows patients to have their test history consolidated, reducing the risk of losing important information.

For people living with cancer, this development is especially significant. Disease monitoring often involves repeated tests, visits to different doctors, and continuous evaluation of results. Immediate access to all data facilitates collaboration among healthcare professionals and contributes to more coordinated and effective care.

Moreover, the obligation to record results is linked to reimbursement procedures through EOPYY, enhancing transparency in the healthcare system. This ensures that only tests that have actually been performed are reimbursed, limiting abuse and strengthening the reliability of services.

It is also worth noting that data management is carried out under the current personal data protection framework, safeguarding patients’ privacy and information security.

Transitioning to a more digital healthcare system is not just a technological advancement. It is a step toward a more human, transparent, and accessible system of care, where the patient has an active role and meaningful control over their own data.

Ultimately, strengthening digital access to test results represents an important step forward in empowering patients and improving the quality of healthcare provided.

Source: Government Gazette, FEK B’ 1503/17.03.2026

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 and Doctorhomie: Joining Forces to Support Cancer Patients

Kapa3 is pleased to announce the signing of a memorandum of cooperation with the digital home-care platform Doctorhomie. The Kapa3–Doctorhomie collaboration aims to strengthen support for cancer patients and their families across Greece.

Since its establishment, the Cancer Guidance Center – Kapa3 has been actively working to provide meaningful guidance to people living with cancer and their caregivers, with a strong focus on access to benefits and services, information about patients’ rights, and psychosocial support. Through Mobile Units, digital tools and educational initiatives, the organization promotes patient-centred care, creates channels of communication with beneficiaries and strengthens their participation in decisions concerning their health. Kapa3’s philosophy is grounded in building partnerships, leveraging technology and fostering collaborations with organizations that share the same vision.

Doctorhomie, on the other hand, is redefining home-based care in Greece by offering an integrated digital platform that connects patients with physicians, nurses, psychologists, physiotherapists and caregivers. Through tools that enhance monitoring and management of care at home, Doctorhomie contributes to strengthening Primary Health Care, promoting prevention, supporting families and improving both the safety and quality of care.

The new collaboration between Kapa3 and Doctorhomie opens opportunities for joint initiatives at multiple levels, including:

  • the organization of workshops, conferences and webinars aimed at informing patients, promoting quality of care and strengthening trust between patients and their treating physicians, particularly within the context of home-based care and Primary Health Care,

  • awareness and information campaigns focusing on prevention, the fight against myths and stigma, and a better understanding of patients’ symptoms and needs,

  • participation and collaboration in national and European programmes that promote innovation in oncology care and strengthen digital tools for patients and caregivers,

  • joint research initiatives on topics of shared interest, with the aim of supporting scientific evidence, disseminating knowledge and contributing to health policy development at both national and European level.

This partnership is founded on the shared belief that patient care begins with information and support, is strengthened through education and collaboration, and evolves through the combined use of technology and patient-centred practices.

Kapa3 and Doctorhomie are committed to making the most of this collaboration in order to strengthen patients’ participation in decisions regarding their health, reduce inequalities and provide timely and effective support to those who need it.

With a shared vision of quality and accessible care, Kapa3 and Doctorhomie are opening a new chapter of cooperation in support of cancer patients in Greece.

Download our Press Release in pdf or word

The “Myrto” Health Navigator : A New Era of Digital Support for Oncology Patients

The “Myrto” Health Navigator brings digital and AI-powered care closer to oncology patients, supporting personalization and equitable access to services.

On the occasion of the recent initiatives implemented by Kapa3 in the context of World Cancer Day, our organization once again highlighted the importance of access, empowerment, and meaningful support for oncology patients. Through awareness actions and public engagement, we reaffirmed our commitment to strengthening patients’ voices and improving their everyday reality.

Throughout its journey, Kapa3 has consistently demonstrated its dedication to supporting oncology patients by bridging gaps in information, accessibility, and social care. Building on this experience, we are now taking the next step forward.

After five years of continuous presence in empowering oncology patients through digital guidance, Kapa3 is expanding its footprint in the field of social accessibility by creating an innovative digital assistant: “Myrto.”
“Myrto” addresses the phenomenon of second-level digital exclusion, transforming digital information into a human, accessible, and meaningful experience. It represents the first Social Artificial Intelligence application in the field of social welfare for oncology patients in Greece.

It goes beyond providing information: it converses, guides, and evolves according to users’ real needs, with an emphasis on both accessibility and psychosocial support.

Our aim is to develop a fully functional chatbot integrated into the Kapa3 website, to train social workers and healthcare professionals in its use, and to substantially reduce the digital divide for vulnerable groups.

“Myrto” will offer holistic and personalized guidance to oncology patients as a true Patient Empowerment e-Navigator, through two main pillars:

  • Patient Advocate: Support with legal and administrative procedures (benefits, patient rights), facilitation of access to social welfare services, and guidance within the local healthcare system.

  • Health Navigator: Provision of essential information for health self-management.

At the same time, the platform will enhance communication, highlight available community resources, and incorporate an innovative health literacy assessment tool, enabling full personalization of the services provided.

The project will be developed, tested, and validated by oncology patients as well as by social workers, legal and financial experts, and consultants in health communication and psychology, both in person and online across Greece.

Your participation could substantially contribute to co-creating a personalized Navigator for every oncology patient, as a multidisciplinary perspective is a key factor in the project’s success.

Upon completion, we expect significant social, health, and scientific impact: improved patient quality of life, strengthened self-management, reduced resource requirements, and the creation of a network of experts and informed patients and professionals.

The Founding Sponsor of the “Myrto”Health Navigator is the TIMA Foundation.

We invite organizations, professionals, and stakeholders to become partners in this new chapter of the “Myrto” Health Navigator  by Kapa3 and contribute to building a more accessible, inclusive, and patient-centered healthcare environment.

Evangeli Bista, 

Co-founder Kapa3 – Head of Strategic Partnerships
PhD(c), MBA, MSc, BSc

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

World Cancer Day: United by Our Uniqueness

Every year on 4 February, World Cancer Day invites us to reflect on one of the greatest challenges of modern public health.

The goal is not only to confront cancer as a disease, but to face it with knowledge, empathy and shared responsibility. Because cancer touches millions of lives in countless ways, yet it does not define who we are. We are more than a diagnosis, more than a number.

World Cancer Day was established in 2000, following the World Summit Against Cancer for the New Millennium in Paris. It is a core element of the Paris Charter Against Cancer — a global commitment to advancing research, prevention, patient care, awareness and international mobilisation. Since then, the day has served as a reminder that addressing cancer requires long-term vision, cooperation and consistency.

This year’s message, “United by Unique”, highlights a fundamental truth: cancer is not only a medical event.

It is a deeply personal experience. Behind every diagnosis lies a unique human story — stories of fear and loss, but also of resilience, care, love and healing. Every story counts.

Cancer Today: Facts and Challenges

Cancer remains one of the most significant public health challenges in Europe and in Greece. Data from international and European organisations underline not only the scale of the disease, but also the persistent inequalities in prevention, early detection and access to care.

In Europe, approximately 2.7 million new cancer diagnoses are recorded each year, with around 1.3 million deaths, while the economic burden exceeds €93 billion annually. In Greece, cancer is the second leading cause of death, affecting thousands of families and carrying profound social and psychological consequences.

Progress, Prevention and Hope

At the same time, scientific progress offers well-founded reasons for optimism.

Prevention and early detection remain decisive factors. Screening programmes, vaccination, healthy lifestyle choices and access to reliable information can significantly reduce the risk of certain cancers and improve treatment outcomes. In this context, knowledge is not merely information — it is power and a fundamental right.

Advances in cancer management are equally important. Personalised medicine, targeted therapies, immunotherapy and improved management of treatment side effects contribute not only to increased survival rates, but also to a better quality of life for people living with and beyond cancer. Information and education are key tools for both prevention and empowerment.

Mental health plays a crucial role as well. Diagnosis and treatment are often accompanied by anxiety, fear, sadness and emotional exhaustion — affecting not only patients, but also their caregivers. Psychosocial support, counselling services and empowerment groups are essential components of holistic cancer care, helping to preserve dignity and quality of life.

Information, research and mental health care are core pillars of modern cancer management. Indicatively, you may explore the following Kapa3 articles:

Empowerment and Action

World Cancer Day is not just a day of awareness. It is a call to action:

  • to speak openly about prevention and our health,

  • to support people living with cancer and their caregivers,

  • to seek reliable information and evidence-based sources,

  • to advocate for equal access to care and psychological support,

  • to remember that no one should face cancer alone.

Because our strength lies in solidarity — and in respecting the uniqueness of every individual.

United by our uniqueness.

References:

World Health Organization (WHO) – Cancer
https://www.who.int/health-topics/cancer

International Agency for Research on Cancer (IARC)
https://www.iarc.who.int

Union for International Cancer Control (UICC) – World Cancer Day
https://www.worldcancerday.org

European Commission – Europe’s Beating Cancer Plan
https://health.ec.europa.eu/eu-policy/health-strategies/europes-beating-cancer-plan_en

European Cancer Information System (ECIS)
https://ecis.jrc.ec.europa.eu

Hellenic Statistical Authority (ELSTAT) – Health Data
https://www.statistics.gr/en/statistics/-/publication/SHE15/

Hellenic National Public Health Organization (EODY) – Cancer & Public Health
https://eody.gov.gr/

Greek Ministry of Health – Prevention & Screening
https://www.moh.gov.gr/articles/prevention-screening

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Webinar: “Cancer, Patient Navigation & Health Management: From Prevention to Coordinated Care” in collaboration with the Kapa3 Cancer Guidance Center

On the occasion of World Cancer Day, we invite you to join the webinar on cancer and patient navigation, organized in collaboration with René Descartes College and the Kapa3 Cancer Guidance Center. This webinar aims to open a meaningful dialogue around cancer, not only as a medical diagnosis but as a complex life journey.

Today, cancer requires holistic health management, proper guidance within the care system, coordination among professionals and services, and a patient-centered approach that considers the individual, their family, and social environment.

The webinar aims to highlight the importance of Patient Navigation and Health Management in cancer care, to illuminate the role of technology and innovation in oncology, and to raise awareness around prevention, quality of life, and continuous patient support.

Target Audience:

  • Patients and individuals at diagnosis, undergoing treatment, or in follow-up

  • Caregivers and family members

  • Health professionals, Health Management staff and students

  • Policy and quality of care professionals

  • Anyone interested in prevention, screening, organization of oncology services, and patient-centered healthcare approaches

Participants Will Gain:

  • Understanding of cancer as a holistic life issue

  • Knowledge of modern patient navigation and care coordination models

  • Insights into the role of technology in oncology

  • Practical information for better management within the healthcare system

  • Inspiration for more humane, coordinated, and high-quality care

Speakers:

  • Maria Gazouli, PhD – Professor of Biology-Genetics-Nanomedicine, Laboratory Geneticist

  • Dr. Christos A. Frantzidis – Assistant Professor, Computer Science / Machine Learning, School of Computer Science, University of Lincoln, UK

  • Dr. Maria Lavdaniti, MSc, PhD – Professor of Clinical Nursing, Director of the University Laboratory of Adult Cancer Patient Care, International Hellenic University (IHU)

  • Evangelia Mpista, PhD, MBA, MSc, BSc – Co-Founder, Kapa3

  • Dr. Vasiliki Kapaki – Postdoctoral Researcher in Health Economics, Professor of Health Economics, René Descartes College

Participation Details:

  • Duration: 2.5 hours (18:30 – 21:00)

  • Date: 06/02/2026

  • Attendance: Online

  • Participation is free

  • Certificate of attendance will be issued by René Descartes College and Kapa3

  • Registration form and participation declaration: Here

Text/adaptation: Ifiyenia Anastasiou for Kapa3