Category: Patient Advocacy

The Right to Be Forgotten: A New Era of Dignity for Cancer Survivors

Life after cancer should not be accompanied by lifelong financial exclusion

For many decades, completing cancer treatment did not always mean the end of obstacles for those who had been diagnosed with the disease. Years after their treatment, many survivors continued to face higher insurance premiums, denied insurance applications, and difficulties accessing financial services.A history of cancer could act as a permanent “stigma,” even many years after treatment had ended.

Thus, medical progress and a return to daily life were not always accompanied by corresponding social and economic rehabilitation.

With Law No. 5317/2026, published on July 10, 2026, Greece is moving forward with the legislative enshrinement of the so-called “Right to Be Forgotten” for cancer survivors, in the context of insurance contracts linked to consumer credit agreements. This specific provision is found in Article 16, paragraph 4, of the law.

What the new provision stipulates

The law prohibits the use of personal data related to a consumer’s cancer diagnosis when such data is to be used for an insurance contract linked to a credit agreement and five years have passed since the completion of treatment.

Simply put, once the five-year period has elapsed, a prior history of a cancer diagnosis cannot be used in this specific context as a factor in assessing the insurance contract accompanying the credit agreement. This represents a significant shift: individuals are no longer assessed indefinitely through the lens of a past
illness, but are given the opportunity to move forward with their lives without their previous diagnosis serving as a permanent obstacle.

The four key points of the new entitlement

The Right to be Forgotten does not mean that the diagnosis is deleted from the medical record. It means that, after the prescribed five-year period, data related to the cancer diagnosis may not be used for that specific insurance purpose.

Fourth, special oversight is provided for.

The Personal Data Protection Authority is responsible for enforcing paragraph 4 of Article 16 and possesses the supervisory and auditing powers provided for by the General Data Protection Regulation.

What the New Regulation Does Not Cover

Accurate information is particularly important so that citizens are aware of both their rights and the actual
limits of the protection provided.

The new legislative provision:

  • does not apply to all forms of private insurance,
  • does not automatically guarantee the approval of a loan or an insurance application,
  • does not cover credit agreements secured by a mortgage on real property,
  • does not cover credit intended for the purchase or retention of rights in real estate,

does not cover professional or business loans, as the law applies to consumers acting outside the
scope of their professional or business activities.

Furthermore, consumer credit agreements already in effect as of November 20, 2026, will, as a general rule, continue to be governed by the previous legal framework until their expiration.
Therefore, the new regulation represents a very important step, but it does not yet provide comprehensive coverage of all the financial and insurance needs of survivors.

From Voluntary Commitment to Legal Enshrinement

The Right to Be Forgotten did not first appear in Greece in 2026. As of March 26, 2024, the Code of Ethics of the Hellenic Association of Insurance Companies has been in effect, to which life insurance companies had adhered.

The Code applied to life insurance policies linked to mortgage, business, or consumer loans, with a maximum total insured amount of 300,000 euros. It provided for a ten-year period following the completion of treatment for those diagnosed as adults and a five-year period for those diagnosed before
turning 18.

The new legislation is particularly significant because protection is no longer based exclusively on the insurance industry’s voluntary commitment. For contracts falling within its scope, the failure to use the oncological diagnosis after the five-year period becomes a legal obligation.

At the same time, there is a need to clarify the relationship between the new law and the existing Code, particularly with regard to mortgage and business loans that are not subject to the new legislative provision.

Additional Safeguards for Consumers

Article 16 includes other important safeguards. When insurance is required for the granting of credit, the creditor must accept equivalent insurance coverage from an insurance company of the consumer’s choice. Choosing a different company must not result in less favorable credit terms.

At the same time, the consumer is given a period of at least three business days to compare insurance quotes, unless the consumer requests in writing that the contract be concluded earlier.

The European Dimension

The Greek regulation transposes Directive (EU) 2023/2225 on consumer credit agreements. The European
Directive requires Member States to establish a time limit beyond which data related to oncological
diagnoses may not be used for insurance policies linked to credit agreements. The European text stipulated that this period must not exceed fifteen years; Greece opted for the significantly shorter period of five years.

This choice has particular social significance. It recognizes that advances in oncology, increased survival rates, and people’s return to family, social, and professional life must be accompanied by corresponding
developments in the law.

When Does It Take Ef ect?

Although Law No. 5317/2026 has already been published, the provisions of Part A, which include the
Right to Be Forgotten, will take effect on November 20, 2026.
Until then, substantial preparation is required on the part of banks, insurance companies, and the relevant
authorities. Clear procedures, understandable information for citizens, appropriate staff training, and an
easily accessible mechanism for submitting reports or complaints are needed.

A Significant Achievement—Not the End of the Journey

The Right to Be Forgotten represents a significant institutional victory for dignity and equality. Cancer
should not be a lifelong social and economic stigma. A person’s medical history should not negate their
right to plan for the future, participate equally in society, and make a fresh start.
At the same time, the new regulation must be viewed as a starting point, not the culmination of our
efforts. The next step must be to extend meaningful protection to more insurance and financial products,
including housing needs, as well as to address the discrimination that continues to occur in the workplace
and other aspects of social life.
Scientific progress has transformed cancer from a terminal diagnosis into an experience of life and
survival for millions of people. Society and the law must follow suit.

Because the Right to Be Forgotten is not a privilege. It is every person’s right not to remain forever
trapped by a past diagnosis—and to move forward into the future without discrimination, without
stigma, and with dignity.

Find more : http://elib.aade.gr/elib/view?

The Active Role of Patient Organizations in Shaping Public Policy: How Our Health Advocacy Ef orts Are Put into Action

At the Cancer Patient Guidance Center, we believe that the voices of patients, their families, and the organizations that represent them must be heard loud and clear where decisions are made.

Improving the quality of life for cancer patients, ensuring access to new treatments, and meeting the needs of caregivers are not just requests but rights that are asserted through organized advocacy. To make this a reality, the right tools are needed.

The new “Guide to Mapping Public Consultation Tools”

As part of the “ENERGO – Toward an Open State” project, HIGGS has created a practical guide that maps the available mechanisms for participation at the local, national, and European levels.

This guide serves as a roadmap for Civil Society Organizations (CSOs), providing a detailed overview of:
• How institutional consultation tools function
• The opportunities for organizations to actively participate in policy-making
• The requirements for accessing these mechanisms
• The challenges and limitations, so that our interventions are well-informed and effective

Why might this be of interest to the beneficiaries of our Center?

Participation in shaping public policy is not an abstract concept. In cancer care, it translates into very specific changes:
1. Equal access to care: advocating for better infrastructure, shorter wait times, and free access to innovative medications.
2. Support for caregivers: establishing leave policies, benefits, and support systems for the people who stand by their side
3. Rights in the workplace: protecting cancer patients from discrimination in the workplace during and after treatment.

Summary & Structure of the Public Consultation Tools Guide

The “Public Consultation Tools Guide” was developed as part of the project “ENERGO – Toward an Open State” (implemented by HIGGS and co-funded by the European Union, the Bodossaki Foundation, and the NGO Support Centre). It is a practical reference tool designed to empower civil society organizations (CSOs) by strengthening their capacity for meaningful, evidence-based participation in public policy-making and strategic advocacy.

The guide is organized into the following sections:

1. Introduction & Institutional Landscape: This section presents the framework for the guide’s development, which was based on research and experiential tools involving dozens of civil society organizations. It analyzes the challenges of the institutional landscape, noting that the main obstacle for organizations is not the absence of tools, but rather the fragmentation, lack of visibility, and complexity of existing mechanisms,

2. National Tools for Public Consultation & Participation: maps and presents in detail the tools available in Greece, such as OpenGov, the KEDE & LocalWatch consultation platform, Vouliwatch, the YPEN Participation Platform, the National Register of Procedures (“Mitos”), Open Council & Crowd Participation, as well as Diafania & POTHEN.

3. European Public Consultation & Participation Tools: presents mechanisms for engagement at the European Union level, such as Have Your Say, the European Citizens’ Initiative (ECI), Consul Democracy, Loomio & Decidim, and others.

4. Tool Selection Guide & Conclusions: Provides consistent evaluation criteria (purpose, implementing body, prerequisites, limitations) so that each organization can select the most appropriate tool based on the objective of its engagement.

About the “ENERGO” Project & the PLATO Program

The “ENERGO: Toward an Open State – Participation, Advocacy, and Empowerment of Civil
Society Organizations” project is being implemented as part of the PLATO program, with HIGGS serving as the implementing partner. The PLATO program (“Protecting democracy, human rights, and the rule of law through an open civic space”) aims to strengthen the fundamental rights and values of the EU in both Greece and Cyprus. It is co-funded by the European Union through the Citizens, Equality, Rights and Values (CERV) program, the Bodossaki Foundation, and the NGO Support Center. The Bodossaki
Foundation serves as the coordinator in partnership with the NGO Support Center.

View and download the guiderZT9sW-Οδηγός Εργαλείων Δημόσιας Διαβούλευσης.

 

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

The first closed scientific testing workshop of the Digital Health and Social Rights Navigator has been completed

Athens, 6 July 2026

The first closed scientific testing and evaluation workshop of “Myrto”, the Digital Health and Social Rights Navigator developed by the Cancer Patient Guidance Centre – Kapa3, was successfully completed.

The workshop was organised by the Cancer Patient Guidance Centre – Kapa3, with the support of René Descartes – Cnam College and the participation of SimasiaAI. It functioned as a dynamic scientific co-design workshop, bringing together specialised professionals from the fields of healthcare, social care, information technology and personal data protection.

The process was closed and strictly experimental in nature and did not constitute a public presentation of a completed product. Its purpose was to evaluate the behaviour of the application through hypothetical and fully anonymised scenarios, to record correct responses and areas requiring improvement, and to use expert feedback for the next phase of development.

The project “Myrto – Health and Social Rights Navigator” is being developed as a knowledge-based digital social navigation system, guided by the principles of explainable, transparent and human-centred Artificial Intelligence.

Its aim is to transform complex legal, administrative and social information into clear, evidence-based and practically useful guidance for oncology patients, caregivers and citizens.

“Myrto” does not replace professional social, legal, medical or clinical judgement. It operates as a supportive information and navigation tool, with clearly defined functional boundaries, human oversight and the possibility of referral to the competent services and professionals of Kapa3.

The programme is implemented with the support of the TIMA Charitable Foundation.

From Information to Understandable Knowledge

During the workshop, the need that led to the creation of “Myrto” was presented, along with the real barriers faced by patients and caregivers when seeking information on social rights, benefits and administrative procedures.

Particular emphasis was placed on addressing digital and informational exclusion. “Myrto” is designed to transform fragmented and often difficult-to-understand information into simple, structured and comprehensible guidance.

A Thematically Specialised and Curated Knowledge Base

The project’s technical partner, SimasiaAI, presented the operation of the application and the architecture used for information retrieval and synthesis.

“Myrto” uses a hybrid search mechanism that combines text retrieval and semantic search techniques, with the aim of identifying the information most relevant to the user’s question. The application operates on a thematically specialised and curated knowledge base.

A central element of its design is the traceability of information, namely the ability to link an answer to the source on which it is based. The use of validated sources reduces the risk of unsupported responses and enables the identification, review and correction of issues through a process of continuous maintenance, regular updating and adaptation to evolving guidelines and regulatory requirements.

Explainability and Human-Understandable Answers

The evaluation did not focus only on whether “Myrto” retrieves the correct information, but also on whether it can present that information in a clear, understandable and conceptually coherent way.

This approach strengthens trust, responsible use of the tool and the meaningful empowerment of citizens through a response-generation system that supports a transparent, evidence-based and human-supervised knowledge ecosystem, in which every piece of information is understandable, verifiable and connected to its source.

Data Protection and Compliance by Design

Personal data protection and regulatory compliance are embedded from the design stage of the application, in accordance with the principles of data protection by default and by design.

During the workshop, only hypothetical or fully anonymised cases were used. Particular emphasis was placed on the principles of data minimisation, anonymisation and secure processing. These principles are directly linked to contemporary requirements for the responsible development of Artificial Intelligence systems, the protection of special categories of data and compliance with the European regulatory framework.

Live Testing of Hypothetical Scenarios

The professionals who participated in the workshop tested the application individually and in small groups, using only hypothetical and fully anonymised cases. The testing was based on an approach that evaluated the behaviour of the system, examining not only whether the final answer was correct, but also whether the overall operation of the application was safe, understandable and appropriate for the specific request.

Disability Certification through KEPA

In one of the key scenarios, “Myrto” was asked to guide a hypothetical patient who did not know how to start the disability certification procedure through KEPA. The system retrieved the main steps of the process, organised the information in an understandable format and provided relevant references to the sources.

Participants evaluated:

  • the accuracy of the information,
  • the completeness of the steps,
  • the clarity of the language,
  • and the practical usefulness of the answer.

Travel from the Region for Treatment

In a second scenario, the case of an oncology patient who needed to travel from the region to another location for treatment was examined. The application identified relevant categories of socioeconomic support and benefits and presented possible next steps to the user.

The test allowed participants to assess:

  • the correct identification of the request,
  • the connection between different rights and benefits,
  • the completeness of the sources,
  • and the possibility of referral to the appropriate services.

At the same time, cases were also examined in which:

  • the question was unclear or incomplete,
  • the user did not know which right or benefit to look for,
  • clarifying questions were required,
  • medical or personalised legal advice was requested,
  • or immediate human intervention was necessary.

A Continuous Cycle of Scientific Feedback

The meeting concluded with a discussion of the testing results, a review of the technical logs and the presentation of key usage statistics for the application.

The participants’ observations are not treated as isolated comments, but as structured scientific feedback for improvement. In this way, a closed cycle of learning and feedback is created, in which technology, scientific knowledge and the experience of professionals interact continuously.

The continuous involvement of experts and the integration of structured feedback are considered critical for strengthening transparency, reliability and trust in Artificial Intelligence systems used in sensitive fields.

The Interdisciplinary Project Team

The development, scientific documentation and regulatory compliance of “Myrto” are supported by an interdisciplinary team from the fields of health services administration, information technology, personal data protection, language technology and software development. The workshop was attended by:

Evangeli Bista, Co-founder of Kapa3 and Head of Strategic Partnerships; Aristea Archontidou, Industrial Informatics Engineer with postgraduate specialisation in Health Policy and Health Services Planning; Anastasia Vlachopoulou, lawyer and member of the Thessaloniki Bar Association, specialised in personal data protection; Dimitris Papadakis, Co-founder and Sales Manager at SimasiaAI and Project Manager of the “Myrto” project; and Giannis Barous, Co-founder and CTO of SimasiaAI, PhD candidate in Computer Science based in San Francisco, who has undertaken the technical component of the project: how the system identifies the right information, how it connects it with reliable sources and how it provides answers that are evidence-based, useful and safe.

About Kapa3

The Cancer Patient Guidance Centre – Kapa3 is a social support, information and navigation organisation for oncology patients, survivors, caregivers and their families. Its aim is to contribute to equal access to oncology care, social protection and the rights associated with the cancer experience.

Every day, Kapa3 supports people who face not only the disease itself, but also a range of practical, administrative, social and psychosocial challenges. Through personalised social guidance, the organisation helps patients and caregivers learn about their rights, understand available benefits and services, navigate administrative procedures and connect with appropriate support structures.

The main pillars of Kapa3’s work include information on social and insurance rights, support in accessing health and social care services, guidance on benefits and procedures, empowerment of patients and caregivers, and connection with professionals, organisations and communities.

As part of its digital strategy, Kapa3 develops digital empowerment and social navigation tools, such as “Myrto”, the Digital Health and Social Rights Navigator. “Myrto” is designed to transform complex legal, administrative and social information into clear and evidence-based guidance for oncology patients, caregivers and citizens, always with human oversight, transparency and respect for the limits of technology.

Kapa3’s philosophy is based on the principle that care is not limited to medical treatment. It includes access to information, social protection, psychosocial support, dignity, empowerment and the ability of every person to know and claim their rights.

Through collaborations with health and social care professionals, academic and research institutions, civil society organisations, public structures, volunteers and communities, Kapa3 seeks to build bridges between the patient, information, services and real access.

Kapa3 Report for the First Half of 2026

As the first half of 2026 draws to a close, the Cancer Patient Guidance Center (Kapa3) continues to systematically expand its reach, thereby strengthening the system of care and information for both cancer patients and their caregivers.

During the first half of the year, the organization implemented a series of high-level initiatives and forged partnerships at both the national and European levels, thereby solidifying its position.

The organization’s activities got off to a strong start in January with the welcome of its European partners in the MELODIC Consortium project at a productive two-day workshop (January 19–20), hosted by the School of Public Health at the University of West Attica.

In early February, on the occasion of World Cancer Day, Kapa3 played an active role as a partner of René Descartes College in the webinar “Cancer, Patient Navigation & Health Management: From Prevention to Life Coordination.”

At the same time, significant initiatives were carried out in the local community, such as the “Knowledge Workshop in Megara—From Prevention to Life Coordination,” held on February 8 in collaboration with the Municipality of Megara.

In the area of scientific programs, the Cancer Patient Guidance Center, in collaboration with the Laboratory of Basic Health Sciences (EBEY) of the Department of Nursing at the University of the Peloponnese (PA.PEL), launched a series of online meetings running from February through June, focusing on mental health and nutrition.

The month concluded with the organization’s participation in the international conference “Mapping the Unknown in Oncology – From Hospitals to Homes, Mapping the Future of Oncology Care,” held on February 27 and 28.

March marked a strengthening of Kapa3’s “digital presence” with its official membership in the Hellenic Digital Health Cluster (HDHC), a strategic move aimed at linking healthcare with technological advancements. As an extension of this collaboration, the organization participated in a closed-door members’ meeting as part of Athens Digital Health Week 2026.

On March 11, representatives of the organization attended the diaNEOsis event “Facing the Challenge of Artificial Intelligence” at the Lighthouse of the Stavros Niarchos Foundation Cultural Center, while in the middle of the month, Kapa 3 played a prominent role in the scientific conference “Cancer in 2026: Challenges and Disruptions.” Furthermore, on March 19–20, the organization was represented at the 6th Western Macedonia Nursing Conference on the theme “Innovation and Empathy: Balancing Technology with Human Contact in Nursing.”

In parallel, the organization’s co-founder, Ms. Evangelia Bista, gave an interview on the show “All About Health” on Dion TV—which covered a variety of topics related to health, nutrition, autoimmune diseases, and more—the implementation of the free, 8-week Melodic pilot educational program began.

Kapa3’s scientific credibility was reaffirmed by the publication of the research paper “Person-First or Disease-First? Language Choices in Cancer Communication” in the journal *Nursing Reports*, as well as by Kapa3’s participation in the European project associated with Melodic, titled: “Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey,” which was also published; the organization also participated in the MELODIC Online Symposium 2026 on April 24, contributing to the dissemination of results in Greece.

May was marked by a strong outward focus and new collaborations, as the organization joined the European program Service Learning 2: 0:CoLab, was selected as one of six nonprofit organizations to receive financial support from the Alpha Bank-Match For Good initiative, and began its collaboration with the USTEP INSTITUTE.

At the same time, an awareness campaign was held in Soufli to highlight Kapa3’s activities; Ms. Bista gave an interview to iatronet.gr, and representatives of the organization participated in an international conference at the Medical School of the University of Coimbra in Portugal

Within the organization, the new Psychological Support team was established with great enthusiasm, while on the social media front, the Kapa3 team won six medals at the 4th Vouliagmeni Summer Swim.

As the semester came to a close, June began with the signing of an official cooperation agreement with the Department of Occupational Therapy at the University of West Attica, while partnerships were solidified with the non-profit organization “Karkinaki” and the PRAXI Network of the Foundation for Research and Technology – Hellas (FORTH) to strengthen international networking and access to modern funding tools.

Having completed five years of uninterrupted service in supporting cancer patients through digital guidance, Kapa 3 is entering a new era with the development of the innovative “Myrto” project. This is a pioneering Social Artificial Intelligence (Social AI) initiative in the field of care for cancer patients in Greece. “Myrto” will function as an advanced digital health and rights navigator (Patient Empowerment e-Navigator) for patients, caregivers, and healthcare professionals—a project for which the strategic partnership with SimasiaAi for its co-development was crucial. Finally, the first closed workshop of the MYRTO Al Health Innovation Lab was held for the “Myrto” application, with the support of René Descartes College.

The results of this first half-year clearly demonstrate that Kapa 3 serves as a link connecting innovation, scientific research, and the digital age in the field of oncology care. By combining academic knowledge, European partnerships, and technological development, Kappa 3 transforms every challenge into sustainable, people-centered solutions. Partnerships with leading organizations, investors, and partners who share the same values of social responsibility are also essential to realizing this vision, ensuring that every patient has immediate, reliable, and equitable access to healthcare and their rights.

The KAPA3 team stands steadfastly by patients and caregivers to provide guidance and safeguard their rights. For any information or support, please feel free to contact us.

You can contact the KAPA3 team

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Phone Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

 

 

New Joint Ministerial Decision on the 2026 Aerotherapy Allowance: A Detailed Guide for KAPA3 Beneficiaries

At the Cancer Patient Guidance Center—KAPA3, we remain committed to providing accurate and timely information to cancer patients and their families regarding the rights and social benefits to which they are entitled. With the aim of making your daily life easier and ensuring you have full access to beneficial legislative provisions, we present a comprehensive guide to the granting of the air therapy allowance, in accordance with the recent Joint Ministerial Decision (No. 89399 EX 2026) published in the Government Gazette, Issue B, No. 3295, dated June 11, 2026.

The air therapy allowance applies to the summer season of 2026.

The amount is set at 250.00 euros and will be paid as a lump sum to the beneficiaries’ bank accounts on July 10, 2026.

The amount is unseizable and fully exempt from any tax or withholding.

  1. Who Are the Beneficiaries

The benefit is granted to disabled retirees of the State and the e-EFKA. Specifically, beneficiaries are those who fall into the following categories:

a) Pensioners referred to in subparagraphs (a) and (b) of paragraph 1 of Article 6 of Legislative Decree 4605/1966.

b) Pensioners under subparagraph (c) of the aforementioned paragraph 1 of Article 6 of Legislative Decree 4605/1966, who, according to 

the opinion of the competent Health Committee for the years 2020 through 2026, have been deemed to be in need of this allowance and belong to the following categories of retirees:

  1. Disabled officers under Law No. 2588/1921 and Law No. 875/1979 on military retirement.
  2. Disabled officers under Law No. 362/1943.

iii. Disabled enlisted personnel under Article 1 of Legislative Decree 1044/1971, as amended by Article 1 of 

Law 1043/1980.

Disabled members of the former Municipal Police who were subject to Legislative Decree 330/1947.

Disabled members of the Security Forces under Law 1579/1950 and those disabled members of the Coast Guard,

the Fire Department, and the Agricultural Police who are treated as equivalent to them.

Disabled members of the National Resistance under Provisional Act 1855/1951, Legislative Decree 412/1970, and Law 1543/1985.

vii. Persons with disabilities under Law 1370/1944 (who sustained their disabilities during peacetime while in service and as a result thereof, and 

receive a disability pension).

viii. Persons with disabilities from the anti-dictatorship struggle under Law 1543/1985.

Disabled civilians under Law 812/1943.

Disabled civilians under Law 1863/1989.

c) Civilian retirees who sustained disabilities as a result of their service (Decision of the Ministry of Labor and Social Security No. 

754.6/117/3912/March 24, 1969) and

d) OSE retirees who left the service and are receiving a pension due to tuberculosis.

3. Who Is Exempt from Payment

According to the Government Gazette, the following categories are not eligible for the air therapy allowance:

Recipients of other benefits: Those who have received or are set to receive a corresponding air therapy allowance from any other source (such as public entities, private entities, public benefit organizations, etc.).

Spa Therapy Beneficiaries: Those who have been deemed eligible for spa therapy for the year 2026 by the Directorate for Reserve Combatants, Veterans, War Victims, and War Disabled (DEPATHA).

New Pensioners: Citizens whose pension is payable after September 30, 2026, or whose order for registration in the Pensioner Registers is issued after October 31, 2026.

  1. What to Do in Case of Non-Payment

If you are eligible but the benefit does not appear in your account by the scheduled date of July 10, 2026, the law entitles you to file a retroactive claim.

You may submit a request by December 31, 2026, at the latest, to the following agencies (depending on your category):

To Section E of the Income Policy Directorate of the General Accounting Office (p. 2) .

To the General Directorate of Public Sector Pensions of e-EFKA (p. 2).

You can contact the Kapa3 team 

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Contact Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

Participation in CA21152 – Implementation Network Europe for Cancer Survivorship Care

Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

The Cancer Guidance Center – Kapa3 participated in the INE-CSC 2026 Conference, part of CA21152 – Implementation Network Europe for Cancer Survivorship Care (INE-CSC), held on 25–26 May 2026 at the Faculty of Medicine (Polo III), University of Coimbra, in Coimbra, Portugal.

The conference was held under the theme “The Next Chapter – Empowering Individuals, Families, and Society for Cancer Survivorship & Supportive Care”, highlighting the need for new approaches to cancer survivorship, supportive care and the translation of innovation into real-world impact for people living with and beyond cancer, their families and society.

Kapa3’s presence in Coimbra represents another important step in its European engagement and in its ongoing effort to connect everyday experience in supporting cancer patients in Greece with European knowledge, research, digital innovation and health policy.

A key highlight was the participation in a round table discussion on facilitators and barriers to the implementation of digital health tools in oncology. The discussion was co-organised by Aristea Kyriaki Ladas and Christos Frantzidis and brought together voices from different European countries and organisations, including representatives from Kapa3, Acreditar Portugal, Liga Portuguesa Contra o Cancro, ORCO / Madrid Regional Ministry of Health, as well as participants from Poland, Latvia and the United Kingdom.

Among the participants in the round table were Yannis Kontogiorgis and Despoina Pistiolis from Kapa3, Greece, contributing to the European dialogue on digital health, oncology navigation and the participatory development of solutions that respond to the real needs of patients and caregivers.

One of the key messages of the discussion was that digital innovation in oncology is not only a technological challenge. It is also a matter of policy, implementation, equity, trust and accessibility.

For digital tools to make a meaningful difference in cancer care and survivorship, they cannot remain isolated applications or pilot projects. They need to become part of real care pathways, be supported by appropriate policy environments, connect with interdisciplinary practice and be evaluated in terms of effectiveness, implementation readiness, accessibility, equity, sustainability and value.

The discussion also highlighted that digital tools must be designed around the real needs of patients and survivors, not only around technical possibilities. Accessibility across countries, languages, healthcare systems and levels of digital and health literacy must be built in from the beginning.

The role of patient organisations and cancer support communities was also identified as essential. These organisations can act as a bridge between technological innovation and the everyday reality of people affected by cancer. They understand the questions, barriers, fears and needs that are often not fully captured by formal care systems.

For Kapa3, this participation is directly linked to the development of Myrto, its digital health and rights navigator, designed as a tool for empowerment, guidance and support for cancer patients and their caregivers.

Myrto is not approached as a simple information tool. It is being designed as a participatory intervention built around the real needs of people with lived experience of cancer. It is connected to access to rights, social benefits, services, practical guidance and human escalation whenever needed.

The Coimbra experience strengthened the view that digital health must be human-centred, accessible, trustworthy and integrated into a broader ecosystem of care. Technology can meaningfully support cancer care only when it is designed with participation, trust, clear purpose and an equity-oriented approach.

Cancer survivorship is not only about completing treatment. It is about quality of life, mental health, social reintegration, work, family, everyday life, access to services and the feeling that no person is left alone after diagnosis or treatment.

Through its participation in European networks such as INE-CSC, Kapa3 continues to contribute to the dialogue on more equitable, participatory and person-centred cancer care. Care that uses technology without losing sight of the human being at its centre.

The future of cancer support will not depend only on better digital tools, but on better collaboration between patients, caregivers, healthcare professionals, researchers, technology partners, patient organisations and policymakers.

For Kapa3, this is at the heart of its mission: transforming knowledge into action, technology into support, and the voice of patients into services that respond to their real needs.

More information: INE-CSC – Implementation Network Europe for Cancer Survivorship Care.More information:
https://inecancersurvivorship.com

Alpha Bank and Its Employees Support Kapa3 through the Match for Good Initiative

The Cancer Guidance Center – Kapa3 warmly thanks Alpha Bank and its employees for their meaningful support through the Match for Good initiative, through which Alpha Bank doubled the contribution of its employees.

Through this initiative, six non-profit organisations from across Greece received financial support during a special event held at Alpha Bank’s headquarters, in the presence of representatives of the organisations. The event was hosted by the Chairman of Alpha Bank’s Board of Directors, Mr. Dimitris Tsitsiragos, and the Chief Human Resources Officer, Ms. Fragiski Melissa.

Mr. Dimitris Tsitsiragos highlighted that the Match for Good initiative puts into practice Alpha Bank’s commitment to consistently support organisations that create a positive social impact. He underlined that when the individual contribution of employees is combined with the Bank’s support, it becomes a collective force with tangible results.

Ms. Fragiski Melissa noted that Match for Good reflects the Bank’s new culture in practice, giving employees an active role in selecting, participating in and supporting initiatives with social value.

Kapa3 was represented by Ms. Evangeli Bista, co-founder of the Organisation, and Ms. Despoina Chrysostomidou, collaborating psychologist. During the event, they had the opportunity to present Kapa3’s work and discuss the social impact that can be created when corporate responsibility meets the active participation of employees.

For all of us at Kapa3, this support is particularly meaningful. It strengthens our daily effort to stand beside people with lived experience of cancer, as well as their families and caregivers, offering guidance, information, support in accessing rights and services, and practical empowerment tools.

Kapa3 acts as a navigation and support organisation for cancer patients, bridging the gap between need and information, between rights and real access. For many people, especially those living outside major urban centres, the challenge is not only the disease itself. It is uncertainty, bureaucracy, lack of information about available rights, financial burden, transportation difficulties, psychosocial pressure and the need for a reliable companion.

Through initiatives like this, social contribution gains multiplying power and becomes real support for those who need it. The support of Alpha Bank and its employees strengthens Kapa3’s mission: ensuring that no person is left alone when facing cancer, searching for information, navigating procedures or claiming a right they are entitled to.

Health is not only a medical act. It is access, information, dignity, social care and meaningful presence. Every contribution to Kapa3 becomes more guidance, more information, more empowerment and more care for people and families going through a difficult and demanding journey.

We warmly thank Alpha Bank and its employees for their trust, choice and support of Kapa3’s work.

Because when giving becomes collective, it can meaningfully change people’s everyday lives.

 

 

20260310 Match For Good Programme Part2 Alpha Bank Via Solid Havas / Thalia Galanopoulou
20260310 Match For Good Programme Part2 Alpha Bank Via Solid Havas / Thalia Galanopoulou

Match for Good – Alpha Bank (1)

January – Cervical Cancer Awareness Month

January is internationally dedicated to raising awareness about cervical cancer. Known as Cervical Cancer Awareness Month, it aims to highlight the importance of prevention, early detection, and vaccination against the human papillomavirus (HPV), which is responsible for nearly all cases of the disease.

Cervical cancer remains a major public health issue worldwide. According to the World Health Organization, approximately 660,000 new cases are diagnosed globally each year, and more than 350,000 women lose their lives to the disease. It is among the most common cancers affecting women, particularly in regions where access to preventive screening and vaccination is limited. At the same time, it is one of the few cancers that can largely be prevented through organized prevention and early detection programmes.

In Greece, available data indicate that around 700 new cases of cervical cancer are diagnosed annually, while more than 280 deaths are attributed to the disease each year. The estimated incidence is approximately 8 cases per 100,000 women. Although this places Greece close to the European average, it also highlights the need for further improvement in prevention and early diagnosis.

Cervical cancer is closely linked to chronic infection with human papillomavirus (HPV), a very common virus transmitted mainly through sexual contact.

HPV vaccination, combined with regular gynaecological screening through Pap tests and HPV tests, can significantly reduce the development of precancerous lesions and cervical cancer. In this context, the World Health Organization has set the goal of eliminating cervical cancer as a public health problem by 2030, through high vaccination coverage, universal screening, and timely treatment.

January serves as an important reminder that information and prevention save lives. Open discussion around women’s health, free from fear and stigma, empowers women to take care of themselves and to claim prevention as a fundamental right.

Special emphasis should be placed on the systematic education of younger generations, as prevention begins long before any symptoms appear. Access to reliable information, preventive screening services, and vaccination programmes is a key factor in reducing health inequalities and protecting future generations.

At KAPA3, we believe that information and prevention are core pillars of care and empowerment. Through the dissemination of reliable information and the support of initiatives that promote public health, we stand alongside every woman who needs knowledge, prevention, and timely care.

Because cervical cancer can be prevented, we encourage everyone to take action. Give a meaningful gift to the women you care about: daughters, sisters, mothers, friends, partners, spouses. Talk openly about women’s health, share information, support initiatives, challenge taboos, and promote early diagnostic screening.

Information and open dialogue are the strongest tools we have.

Sources:

World Health Organization (WHO)
Cervical cancer – Fact sheet

WHO – Global strategy to accelerate the elimination of cervical cancer

International Agency for Research on Cancer (IARC / WHO)
Cervical Cancer Awareness Month

ICO / IARC HPV Information Centre – Greece Factsheet

Ministry of Health – National Immunization Programme

Hellenic National Public Health Organization (EODY)
HPV and cervical cancer

Text/adaptation: Ifiyenia Anastasiou for Kapa3

International Migrants Day – 18 December

Health without borders: equal access to care as a human right

International Migrants Day is observed every year on 18 December, marking the date in 1990 when the United Nations General Assembly adopted the International Convention on the Protection of the Rights of All Migrant Workers and Members of Their Families. The day is not only about population movement, but about fundamental rights, dignity, and—above all—equitable access to health care for all, regardless of origin or legal status.

Global Statistics

Globally, more than 281 million people currently live outside their country of birth, representing approximately 3.6% of the world’s population (International Organization for Migration – World Migration Report).

Migrants and refugees consistently face health inequalities driven by barriers such as language, limited health literacy, insecure housing and employment, and fear of exclusion from health systems. According to the World Health Organization, social determinants of health play a decisive role in access to prevention, early diagnosis and treatment, resulting in poorer health outcomes for migrant populations.

These inequalities are further compounded among particularly vulnerable groups, including children and young people, women, and individuals without stable legal status. In cases of serious or chronic illness—such as cancer—delayed diagnosis, interruptions in treatment and lack of psychosocial support can have a profound impact on disease outcomes and quality of life.

Situation in Greece

Within the Greek context, the country continues to serve as both a host and transit point for migrants and refugees. According to data from Eurostat and the Hellenic Statistical Authority, a significant proportion of the population residing in Greece consists of third-country nationals, while access to comprehensive health services remains uneven, particularly for young people and individuals with increased care needs. Despite existing legal provisions, practical barriers persist in prevention, continuity of care and psychosocial support.

In oncology, these challenges become even more pronounced. Cancer does not discriminate, yet access to care is often shaped by social and economic factors. The need for culturally sensitive, accessible and continuous health services is critical to ensure that no person is left unsupported when facing a cancer diagnosis.

In this context, Kapa3 has long worked to highlight social inequalities in health and to promote holistic cancer care for all people, regardless of background. In 2024, a targeted support initiative for refugees and migrants living with cancer was implemented through the programme “Cancer May Control your Body for a While, But Not Your Soul”, with the support of the King Baudouin Foundation.

The action focused on the regions of Macedonia and Thrace, addressing refugees and migrants in the area, with particular emphasis on the 15–24 age group, aiming to provide immediate primary care assistance and continuous support throughout the course of their treatment.

International Migrants Day is a reminder that health is a human right, not a privilege. Ensuring equitable access to care—especially for those most at risk—is a shared responsibility of institutions, health professionals and society as a whole.

A fair and healthy society is one that leaves no one behind.

Sources:

Text/Adaptation: Ifiyenia Anastasiou for Kapa3