Category: HEALTH DATA

28 January – Data Protection Day: privacy, health and trust

European Data Protection Day, observed every year on 28 January, was established by the Council of Europe and is linked to Convention 108, the first legally binding international instrument on the protection of personal data. The day serves as a reminder that the right to privacy is a fundamental human right — especially in a time when personal information is increasingly collected, stored and processed digitally.

Personal data are not merely technical entries in databases and systems. They are fragments of people’s lives. They include health information, personal experiences, vulnerable moments and deeply private aspects of identity. When individuals share such information, they do so with the expectation that it will be handled with care, confidentiality and respect.

For organisations such as Kapa3, which work closely with patients and people in vulnerable situations, data protection goes far beyond legal compliance. It is a matter of dignity and trust. Health data — including information related to both physical and mental health — belong to the most sensitive categories of personal data. Inadequate protection or misuse can lead to stigma, discrimination and a profound sense of insecurity.

Within the European Union, the General Data Protection Regulation (GDPR) provides a common framework to ensure that individuals retain control over their personal information. Rights such as informed consent, access to data and the ability to request deletion are not administrative formalities. They are essential safeguards that protect human integrity, particularly in the context of healthcare and social support.

According to the World Health Organization (WHO), confidentiality and ethical governance of health data are fundamental to the provision of safe and high-quality care. Trust between patients and healthcare or support organisations is strengthened when personal information is managed transparently, responsibly and within clearly defined limits.

European Data Protection Day is not only an occasion to reflect on legal obligations or technical safeguards. It is an opportunity to consider how we approach privacy as a core element of respectful and ethical care. Protecting personal data is ultimately not about technology — it is about protecting the people behind the data and the trust that underpins every meaningful human relationship.

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Text/adaptation: Ifiyenia Anastasiou for Kapa3

KAPA3 at the 18th Panhellenic Congress of Nutrition & Dietetics

The 18th Panhellenic Congress of Nutrition & Dietetics took place at the Athens Concert Hall from 4–6 December 2025, bringing together scientists and professionals to discuss the latest developments in nutrition under the central theme “Bridging Research and Practice.”

The Congress covered topics ranging from alternative proteins to eating disorders, through lectures, workshops, and roundtable discussions.

During the session “Co-Creating Health: Participatory Research with Cancer Patients on Nutrition and Mental Resilience”, held on Friday, 5 December in Hall MC3, participants included Andrea Paola Rojas Gil, Associate Professor of Biology – Biochemistry and Director of the Laboratory of Basic Health Sciences at the University of Peloponnese, a close KAPA3 collaborator in the field of nutrition, with the topic “Nutrition as a Tool to Support Treatment and Wellbeing: Comparison of Co-Design Programs for Oncology Patients in Greece and Colombia”; Evagelia Bista on behalf of KAPA3 with “Nutrition as a Social Determinant of Health: Inequalities, Education, Environment and Policies”; and Ioanna Sideri with “Mental Health and Strategies for Empowerment and Resilience”.

Nutrition as a Social Determinant of Health

Evagelia Bista emphasized that nutrition is not merely a personal choice but one of the most critical social determinants of health, directly affecting the prevention, progression, and quality of life of oncology patients. Nearly half of people worldwide lack access to healthy food, and socio-economic inequalities determine who can follow a nutritious diet. Greece is no exception: the economic crisis, the high cost of healthy foods, and the turn towards cheap, highly processed options have worsened the situation.

Key points highlighted in the presentation included:

  • Income, education level, and food availability determine dietary quality, with low-income households experiencing higher rates of obesity and chronic diseases.

  • A shift from the Mediterranean diet towards Western-style options due to economic and social factors.

  • A double burden for vulnerable populations: undernutrition and obesity coexist, particularly affecting those facing food insecurity.

  • Impacts on oncology patients: adequate nutrition is crucial for treatment tolerance, recovery, and quality of life, yet many patients face financial and treatment-related barriers.

Ms. Bista presented KAPA3’s actions with a focus on nutritional support and the participatory approach applied in online Experiential Sessions, conducted in collaboration with the University of Peloponnese. These sessions continue a series dedicated to holistic care for body and mind, emphasizing both nutrition and mental health for oncology patients and their caregivers.

KAPA3 underlines that nutrition cannot be seen as an individual behavior alone but as the result of social, economic, and environmental factors. Reducing inequalities and ensuring access to healthy food for all is essential for better health outcomes, especially in oncology care.

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Artificial Intelligence (AI) is transforming the fight against cancer.The European Cancer Organisation’s “Harnessing AI for Cancer Care in Europe” report

Artificial Intelligence (AI) is transforming the fight against cancer, enabling machines to learn, reason, and assist humans in detecting, diagnosing and treating the disease more accurately and efficiently. It works by analysing vast amounts of data, learning patterns, and making predictions or recommendations to support human decision-making.

Cancer care is rapidly transforming with the use of AI, which serves as a powerful tool in prevention, detection, treatment and research of the disease. The European Cancer Organisation’s “Harnessing AI for Cancer Care in Europe” report states that AI has the potential to transform every stage of the cancer pathway. Simultaneously, the report emphasises the need for AI to be used responsibly, by protecting patients, upholding ethical standards, and aligning with European values, to ensure its benefits are delivered fairly and effectively across healthcare systems.

The Promise of AI in Cancer Care

The report highlights several ways AI can improve cancer outcomes across the care pathway. In primary prevention, AI can analyse genetic, environmental, and lifestyle data to identify high-risk patients and guide preventive strategies before symptoms appear. For early detection, AI can dramatically speed up screening, reducing test interpretation from days to hours, improving accuracy, and lowering missed diagnoses. In diagnostics, deep-learning models trained on large datasets can detect even the smallest lesions, prioritise urgent cases, and support more precise diagnoses. AI also enables personalised treatment by integrating tumour genomics, imaging data, and real-world outcomes to help clinicians select the most effective therapies for individual patients. Finally, in drug development, AI can identify promising compounds and targets, shortening traditional development cycles and discovering new uses for existing medicines.

Challenges That Cannot Be Ignored

However, the report also highlights significant risks associated with AI in cancer care. Key concerns include regulatory gaps as AI tools advance faster than current rules, making it challenging to ensure they remain safe, accurate, and accountable. Many promising AI systems require further validation in real-world clinical settings, as untested tools could lead to misdiagnoses or unsafe decisions. Bias and inequity are also risks, since AI trained on unrepresentative data may produce less accurate recommendations for specific patient groups. Implementation barriers, such as limited infrastructure, funding, and trained staff, can hinder the integration of AI into everyday healthcare. Finally, trust issues may arise, as both patients and clinicians need to understand and have confidence in AI systems for them to be effectively adopted.

Policy Recommendations: A Roadmap for Safe and Effective Use

To tackle these challenges, the report puts forward four key recommendations. First, it calls for national standards and validation frameworks, including speciality-specific rules and post-market monitoring of AI tools. Second, it emphasises the importance of training and literacy, proposing pan-European AI education to ensure that at least 50% of oncology professionals are confident in using AI by 2030. Third, the report urges robust regulatory guidance and oversight, including EU-wide support for data protection under GDPR, implementation of the AI Act, and strong patient engagement to ensure clinical accountability. Finally, it highlights the need for investment in data infrastructure, leveraging the European Health Data Space to harmonise systems, modernise cancer registries, and build representative datasets that support safe and effective AI deployment.

Why This Matters for Kapa3

Building on these advancements, K3 is preparing to launch its digital assistant, “Myrto”, in 2026. Designed to harness the power of AI, “Myrto” will support patients and healthcare professionals across the cancer care pathway. By integrating cutting-edge AI capabilities with user-friendly guidance, “Myrto” exemplifies K3’s commitment to improving outcomes, streamlining workflows, and empowering both patients and clinicians in Europe’s rapidly evolving healthcare landscape.

To see the full article, please click here.

https://www.europeancancer.org/resources/publications/harnessing-ai-for-cancer-care-in-europe.html

Kapa3 participation in the MELODIC consortium meeting in Lisbon

We are delighted to announce that Kapa3 had the opportunity to take part in the recent MELODIC consortium meeting, which was held in Lisbon. Although our participation was online, it was in real time, and our team contributed actively to the discussions, which focused on the development of the training program for healthcare professionals and the design of the intervention study, both aiming to support the mental health of young adults living with cancer.

The MELODIC project, funded by the EU4HEALTH program with a total budget of €1.8 million, addresses a critical yet often overlooked issue: the mental health of young adults aged 18–35 living with cancer.

During the meeting, partners exchanged experiences and findings from European research and interviews with healthcare professionals, families, and young adults with cancer. These insights strengthened collaboration and the formulation of strategies for timely psychosocial support.

Next spring, the project will launch the intervention phase, focusing on social prescribing and the use of green and blue spaces—harnessing the power of nature and community to promote well-being.

Kapa3 continues to work closely with its European partners to ensure a meaningful impact on the lives of young adults facing cancer.

Read more on the Melodic project here

Melodic, A New European Project Supporting the Mental Health of Young Adults with Cancer

At Kapa3, we know that healing goes far beyond the body. A cancer diagnosis in young
adulthood — just as life is beginning to unfold — often leaves deep emotional marks. That’s
why we’re proud to participate in MELODIC, a new European initiative dedicated to
supporting the mental health of young adults (18–30) living with or after cancer.

The project Melodic brings together 13 partners from 6 European countries, including patient organizations, universities, and healthcare experts. Coordinated by Turku University of Applied Sciences (Finland), MELODIC aims to co-design innovative digital tools, peer
support models, and educational workshops that reflect the actual needs and voices of
young people affected by cancer.

Kapa3 joined the project in 2024, and our role is to bring Greek patients’ perspectives to
the table while also ensuring that everything we co-create reaches the people who need it
most — especially here in Greece.

We believe that mental well-being is not a luxury, but a vital part of cancer care. Over the next two years, we’ll be working closely with survivors, caregivers, professionals, and youth groups to build safe spaces for expression, support, and growth.

Want to learn more? Visit our website and check out the new MELODIC subpage to see how
we’re working to make a difference — and how you can get involved.

Together, we can make mental health care more humane, inclusive, and empowering.
Because no one should face cancer — or life after it — alone.

Read more on Melodic project: Melodic Project Mental Health on YAC