Quality of Life Archives

Newsletter Kapa3| June 2026,From survivorship to quality of life — from information to support — from technology to human-centred care.

May was a month of important developments, scientific outreach and service enhancement for Kapa3. From the new European scientific publication of the MELODIC project and educational participation in international networks, to the development of “Myrto”, the creation of a new Psychological Support Team and support through social and corporate initiatives, Kapa3 continues to bring together knowledge, technology, human care and social action.

Our mission remains focused on equal access for cancer patients and their caregivers to information, rights, services and meaningful support.

1. June: Cancer Survivors Month

June is dedicated to people living with and beyond cancer. Survivorship is not only the end of treatment; it is continuity, adaptation, reintegration, psychosocial support, quality of life and the right to care beyond therapy.

▸ EN: https://www.kapa3.gr/en/june-cancer-survivors-month-title-sep-sitename/

2. Kapa3 Introduces Its New Psychological Support Team

On the occasion of Mental Health Awareness Month and Cancer Survivors Month, Kapa3 introduces its new Psychological Support Team: a safe space for listening, support and empowerment for patients, survivors, caregivers and families.

▸ CONTACT US https://www.kapa3.gr/en/kapa3-introduces-its-new-psychological-support-team/

3. New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Mental health is an integral part of cancer care, particularly for young adults facing the complex challenges of a cancer diagnosis. Kapa3 contributes to the new scientific publication of the European MELODIC project, highlighting the educational needs of healthcare professionals.

▸ READ THE ARTICLE

4. Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

Kapa3 participated in the INE-CSC 2026 Conference in Coimbra, contributing to the European dialogue on cancer survivorship, supportive care, digital health and participatory solutions that respond to the real needs of patients and caregivers.

▸ READ THE ARTICL Ehttps://www.kapa3.gr/en/participation-in-ca21152-implementation-network-europe-for-cancer-survivorship-care/

5. Co-creating Myrto: A Digital Health and Rights Navigator for Oncology Patients

Myrto is designed as a digital health and rights navigator — a Patient Empowerment e-Navigator — that goes beyond information provision to guide, support and evolve according to users’ real needs.

▸ READ THE ARTICLE https://www.kapa3.gr/en/myrto-health-navigator-oncology-patients-greece/

6. Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Kapa3 participated in the European programme Service Learning 2.0: CoLab, an initiative connecting academic knowledge with meaningful social action and highlighting collaboration between universities, civil society organisations and community actors.

▸ FIND OUT MOREhttps://www.kapa3.gr/en/learning-by-doing-participation-in-the-european-service-learning-2-0-colab-programme/

7. Alpha Bank and Its Employees Support Kapa3 through the Match for Good Initiative

Through the Match for Good initiative, Alpha Bank and its employees supported Kapa3, strengthening our mission to stand alongside people affected by cancer, their families and caregivers.

▸ FIND OUT MORE https://www.kapa3.gr/en/i-alpha-bank-kai-oi-ergazomenoi-tis-stirizoyn-to-kapa3-kai-tin-isotimi-prosvasi-stin-ypostirixi-ton-ogkologikon-asthenon/

8. 6 Awards for Kapa3 at the 4th Vouliagmeni Summer Crossing: Is There Such a Thing as a “Lonely Race”?

Kapa3 took part in the 4th Vouliagmeni Summer Crossing, sharing a strong message of participation, resilience, empowerment and solidarity. Even when a race seems individual, it does not have to be lonely.

Newsletter closing note

If this newsletter reached you through forwarding or another source, subscribe today to receive reliable updates, news and useful information directly in your inbox.

Support our work and help us continue to provide information, guidance and support to patients and their families.

▸ SUBSCRIBE TO NEWSLETTER

▸ SUPPORT US

EOPYY: New reimbursement framework for respiratory devices – What changes for patients

The reimbursement of respiratory devices under EOPYY has been updated through a new decision published in the Government Gazette (FEK) on April 27, 2026.

On April 27, 2026, a new EOPYY decision was published in the Government Gazette, establishing revised reimbursement prices for respiratory devices such as CPAP, Auto CPAP, and BiPAP machines.

These are medical devices primarily used by patients with respiratory disorders, including sleep apnoea, and they represent a fundamental part of daily treatment and quality of life.

EOPYY reimbursement for respiratory devices: what changes

With this regulation:

specific reimbursement prices are defined for each category of respiratory device
the prices apply to all products included in the Reimbursed Medical Devices Register
previous decisions for the same categories are replaced

Prices are unified per device category, regardless of manufacturer or commercial model.

What this means for patients

The new EOPYY reimbursement framework for respiratory devices provides a clearer structure for people living with respiratory conditions who depend on these devices in their daily lives:

it clarifies what is covered by EOPYY
it strengthens transparency regarding equipment costs
it ensures access to essential therapeutic tools that are not a choice, but a necessity

In some cases, a patient co-payment may apply when the device price exceeds the reimbursement amount.

Temporary nature of the regulation

The decision is considered temporary, as it is part of a transitional framework until the completion of the negotiation process for final pricing.

Nevertheless, it is fully applicable from the moment of its publication in the Government Gazette and constitutes the current reimbursement framework.

A more human perspective

Behind technical terms, codes, and regulatory tables, there are people who rely on these devices to breathe better, sleep better, and maintain a more stable daily life.

A clear reimbursement framework is not merely an administrative measure. It helps reduce uncertainty in situations that are already difficult to manage.

Source

The full text of the decision, along with the detailed list of reimbursed respiratory devices and corresponding prices, is available (in Greek) in the Government Gazette (FEK) of April 27, 2026.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Research studies giving voice to lived experience

At Kapa3, we actively encourage participation in health research studies, as we work every day alongside people affected by cancer, whether as patients or caregivers. Through this work, it becomes increasingly clear how important it is to truly listen to lived experience.

For this reason, the research initiatives we support or contribute to are not just questionnaires. They are a way to better understand the needs, experiences and priorities of the community we serve.

Through participation in these studies, individuals who are at the centre of the cancer experience are given the opportunity to share their reality. Every response, every story, every contribution adds another piece to a broader picture: a more meaningful and human-centred approach to care and support.

The contribution of each participant is highly valuable. The data collected helps us identify needs that are often not visible, better understand challenges, and design actions that reflect the real everyday lives of people.

Through participation in health research studies, lived experience can be transformed into knowledge that makes a real difference. Each study we support is part of a broader effort to understand the experiences of patients and caregivers.

Below you will find the current research studies open for participation, organised by target audience.

Each health research study includes a short description of its purpose and how participation contributes to the overall research effort.

For healthcare professionals

Patient safety culture in hospitals

A pilot study focused on the translation and adaptation of the international SOPS® Hospital Survey 2.0 developed by the AHRQ, adapted for the Greek hospital setting.

The aim of the study is to evaluate the clarity, comprehension and suitability of the tool through the participation of healthcare professionals working in hospital environments.

The study also includes a test–retest phase to assess the stability of responses over time.

Participation: https://forms.gle/Jev7mQ95vt1swtXF7

For research networks and collaborations

sleepCare – sleep quality assessment

The sleepCare research initiative, in collaboration with Christos Frantzidis (University of Lincoln) and his research team, explores sleep quality through real-life experiences and self-reported data from participants.

The aim is to better understand the factors that influence sleep in everyday life through anonymous data collection and short questionnaires.

English questionnaire: https://lnkd.in/e7wYjspX
Greek questionnaire: https://lnkd.in/ejbjGQPC
Platform: https://lnkd.in/e7YHUXdi

For breast cancer survivors

Survivorship experience and quality of life

A thesis-based research study examining fear of cancer recurrence, quality of life, and the role of social support among breast cancer survivors in Greece.

The aim is to better understand post-treatment experiences and the factors that influence psychosocial well-being.

Participation: https://docs.google.com/forms/d/e/1FAIpQLSeUgku0yi7LBGg42v_FeKtzVsj5F5uw8hYr-y-hcVKL-fhoeQ/viewform

For patients with respiratory conditions and caregivers

Lung transplantation experiences in Greece

A nationwide study collecting experiences, needs and perspectives of patients with respiratory conditions and their caregivers regarding lung transplantation.

The aim is to capture lived experience across all stages of the disease in order to improve care pathways and healthcare services.

The study is open to patients with respiratory conditions (transplanted or not) as well as their caregivers.

Participation: https://forms.gle/66h4CQJK3pdr1gKK7
Information: https://www.cysticfibrosis.gr/draseis/lung-transplant-working-group/

Text/Adaptation: Ifiyenia Anastasiou for Kapa3