September has been established as Childhood Cancer Awareness Month.

Childhood Cancer Awareness Month.

It is a rare disease, according to the Hellenic Society of Pediatric Hematology – Oncology (EEPAO), but with serious consequences for both patients and their families. A disease that can be defeated but often with painful and long-term efforts and serious immediate and delayed complications.

The numbers are indicative: 300-350 new diagnoses every year in Greece, 35000 throughout Europe with 6000 children dying due to cancer. The Pediatric Oncologists-Hematologists, Elena Solomou and Antonis Kattamis (Professor NKUA) report that in early 2020, the COVID-19 pandemic resulted in the research community turning to a new path of research approach.

In Lancet Oncology, the work of Sheena Mukkada and partners has shown that the scientific community is united for the common good at this difficult time.  This prospective study analyzed data from children and adolescents (<19 years) with cancer and COVID-19 around the world.  Typically, data from approximately 1500 patients from 131 hospitals in 45 countries, including patients from Greece, were used. 259 (19.9%) of the patients had a severe or critical infection, while 50 (3.8%) patients died.  Comparing the data with adults, mortality in adults with cancer is 28%, much higher than in children.

Childhood cancer must be a priority for any strategic planning of each country’s health system. These diseases in childhood are treatable, with overall survival at 80% in high-income countries. But when the right resources are lacking, such as in low-income and middle-income countries (where about three-quarters of the global number of childhood cancer is recorded),  only 20-30% of individuals have long-term survival. Delays in early detection, poor access to diagnostic services in the absence of full access to required cancer medicines, higher rates of comorbidity (e.g. malnutrition, infections and poverty) as well as refusal or abandonment of treatment are common, resulting in increased morbidity and mortality. All these factors result in lower survival rates and higher morbidity rates than in high-income countries.

The COVID-19 pandemic has exacerbated inequalities in access to each country’s health system despite efforts to tackle childhood cancer. With the mandate given by governments in the 2018 cancer resolution, the WHO, together with major international childhood cancer hospitals, set a goal of treating at least 60% of all children with cancer worldwide and reducing pain for all children.

The data from this study enable us to understand that during the pandemic there is a unique opportunity to develop and implement strategies tailored to specific health systems and to reduce inequalities in diagnosis and access to medication in children with cancer globally.

The scientific community makes concerted efforts to achieve high cure rates, with the best possible quality of life and the minimum possible long-term complications. Genetic and molecular biology are now the necessary element of diagnosis and treatment in a large part of neoplasms of children and adolescents. Personalized treatment, which will further increase the chances of cure for young patients, reducing immediate and ultimate toxicity, is a goal that may become a reality in the near future.

In this context, HSPHO has taken initiatives to strengthen cooperation between the oncology departments of the Territory and the recognition of our country as an equal member of European scientific organizations. It participates in international collaborative treatment protocols, thus ensuring access to innovative medicines and therapies under proper and organized supervision. Of course, the process of Greece’s full, equal access to each of these protocols comes at a high cost. Fortunately, however, in the long, arduous struggle of the children and their families, over the years, valuable helpers and supporters, associations and volunteers have stood by.

The understaffing of the Pediatric Hematology / Oncology Departments in medical, nursing and paramedical staff, the lack of public structures for targeted molecular tests, the lack of financial coverage of specialized tests and the difficulty of access to innovative medicines are problems for which we have repeatedly informed the competent bodies.

Each of us can help to the best of our ability! You can become a volunteer blood donor, or volunteer bone marrow donor, or help associations and organizations supporting children and their families, either through sponsorships or by donating some of his time.

Any effort to improve the care of children with cancer is welcome and important!

Learn more:

https://www.iatronet.gr/article/104037/paidiatrikos-karkinos-kai-pandhmia-covid19

https://www.iatronet.gr/eidiseis-nea/epistimi-zwi/news/52168/septemvrios-minas-efaisthitopoiisis-gia-ton-karkino-tis-paidikis-ilikias.html

Digital-in-Health: Unlocking the Value for Everyone

Digital technology can strengthen health systems, improve health financing and public health, and increase reach to underserved populations, according to a new World Bank report launched today. The report also finds that digital technology and data are especially helpful to prevent and manage chronic diseases, care for both young and aging populations, and prepare for future health emergencies and health risks triggered by climate change.

The report, Digital-in-Health: Unlocking the Value for Everyone, was launched today during the G20 Health Ministers Meeting in Gandhinagar, India. It presents a new way of thinking from simple digitization of health data to fully integrating digital technology in health systems: Digital-in-health. This means, for example, infusing digital technologies in health financing, service delivery, diagnostics, medical education, pandemic preparedness, climate and health efforts, nutrition, and aging.

The report also underscores that the successful use of digital technologies must be inclusive of all population groups, and ensure access to digital infrastructure, modern technologies, and skills, especially for vulnerable people.

Designed with people at the center, digital technology can make health services more personal, prevent healthcare costs from increasing, reduce differences in care, and make the job easier for those who provide health services,” said Mamta Murthi, Vice President for Human Development, World Bank. “We hope that this report will give governments confidence and practical guidance, regardless of the country’s stage of digital maturity or fiscal challenges.

Improving health is getting harder, not easier. Health systems face serious and growing challenges and policy decisions are too often not based on reliable data.  It is estimated that some countries use less than 5% of health data to improve health which means that decisions are not based on data or data is not used effectively to make improvements. Within challenging fiscal environments, people-centered and evidence-based digital investments can help governments save up to 15% of health costs. The report presents pragmatic, low-cost actions to improve digital-in-health, no matter the maturity of a country’s systems or digital infrastructure. For example, better health data governance and standards to ensure systems can readily connect and exchange information are not costly but will be game changing in reducing siloed digital solutions and fragmentation.

In India, we have shown that digital innovations such as tele-consultations have reached more than 140 million people and provided accessible, affordable and efficient healthcare for everyone,” said Mansukh L Mandaviya, Minister for Health and Family Welfare, India. “We believe a digital-in-health approach can unlock the value of digital technologies and data and has the potential to prevent disease and lower healthcare costs while helping patients monitor and manage chronic conditions.” 

 

To help countries embrace a digital-in-health approach, the report proposes three essential areas to guide investments:

  1. Prioritizeevidence-based digital investments that tackle the biggest problems and focus on the needs of patients and providers.
  2. Connect the regulatory, governance, information, and infrastructure dots so that patients know that data is safe and health workers can use digital solutions transparently.
  3. Scale digital health for the long run based on trust with sustainable financing, and improved capacity and skills for digital solutions.

It will take global, regional, and country leadership to make digital-in-health a reality. The report recommends strong country leadership involving all relevant sectors and stakeholders, including civil society. Digital technology and data improvements will involve investments beyond the health sector and new partnerships with the private sector. A digital-in-health mindset needs to be a routine aspect of annual health system planning, budgeting, and implementation.

The World Bank is committed to helping low-and middle-income countries to make digital-in-health a reality to improve health for everyone. Over the past decade, the World Bank has invested almost $4 billion in digital health including in health information systems, digital governance, identification systems, and infrastructure.

For more information, including a copy of the new report, Digital-in-Health: Unlocking the Value for Everyone, please visit:

Website: www.worldbank.org/en/topic/health

Twitter: http://www.twitter.com/WBG_Health

Facebook: http://www.facebook.com/worldbank

YouTube: http://www.youtube.com/worldbank

 

New modern facilities of the non-profit organization KAPA3

With immense joy and pride, we announce that the non-profit organization Kapa3, with a mission to offer to people suffering from Cancer, will continue the creative and productive work from the new, modern offices at 13 Kostis Palamas Street, Athens.

Το ΚΑΠΑ3, is an organization that aims to support and inform people suffering from cancer, and their families, regarding their accessibility to the beneficial provisions of the current legislation, as well as the utilization of existing structures and services that operate for this purpose throughout the Greek territory. The organization and the members of the organization believe that people with cancer and their families should have access to accurate information at the time they need it. The organization’s website and the free kapa3 app (available on smartphone, tablet, Android, and iOS), operate as a guide to specific Rights and Benefits.

Improving the quality of life for Cancer patients is a top priority for the Kapa3 organization. A team of professionals supports patients in all procedural matters outside and inside the hospitals. The measurement of social impact had excellent results with 91% of patients stating that the presence of the service was instrumental in making their daily life easier.

The Movable Groups operate from the Theagenio Cancer Hospital of Thessaloniki and the University General Hospital of Alexandroupolis, covering the region of Macedonia – Thrace and beyond, while their aim is to improve the quality of life of oncology patients and to provide new prospects for social integration, social protection, and employment. Soon we will be able to announce new “Information and Management” groups.

The Movable Units started their work with the foundational donation of TIMA Public Benefit Foundation https://www.timafoundation.org/el/ which supports Greek non-profit organizations that contribute to social improvement with a focus on the Elderly.

Kapa3, in three years of operation, has employed more than 15 people, while it has been the first preference in the choice of graduates of social support professionals, in the context of their internship, resulting in the strengthening of the action groups and its network, with more than 25 students. In addition, it has proceeded to establish collaborations with Universities in Northern Greece and beyond, as well as with Research Laboratories of Medical Departments of Universities in the country and abroad, in an effort to improve and scientifically approach and document activities and services provided to cancer patients throughout the country..

On the basis of the activation of the organization’s new offices and according to the needs of its beneficiaries and employees, another step is taken to encourage the development and expansion of the organization’s network, through proper cooperation, flexibility, empowerment, trust, and equality. “The beneficiaries and partners of the organization find support at all levels and thus are encouraged to be the best version of themselves in an environment that is built based on the vision and mission of the organization”, said by, Ms. Bista Evangeli, Development and Operations Manager of Kapa3.“In an environment where each of us feels cared of, supported, and connected, with a strong sense of ownership, the organization’s growth is taken for granted,” she added.

In addition, Ms. Bista emphasized that the organization’s new offices are made possible with the valuable support of the company “THENAMARIS” which she thanked for its valuable assistance.

“The contribution to our community is at the forefront for the company, leaving a strong, continuous, and positive social footprint that meets the specific features and needs of Greek society. Moreover, the ability to respond to challenges, to anticipate and adapt to the “seas and storms” is a warranty of viability for us and an important partner in the work and contribution of Kapa3“, Ms. Bista concluded.

Cancer Effects on Caregivers and Work

A CANCER DIAGNOSIS RESULTS IN A LOT OF CHANGES for both the patient and the caregiver.

For the caregiver, those changes can include adjusting work schedules, which, in turn, can affect their finances.

The unexpected expense of cancer treatments coupled with the lack of paid leave can be a one-two punch to caregivers’ financial resources. “For many caregivers, keeping debt low or nonexistent may not be possible,” says Cathy J. Bradley, a health economics researcher and co-author of a study titled “Working, Low Income, and Cancer Caregiving: Financial and Mental Health Impacts,” published online April 12 in the Journal of Clinical Oncology. “The Federal Reserve reports that many households would have difficulty absorbing $400 in unexpected costs. Cancer treatments are among the most expensive treatments in the United States.”

In many instances, caregivers can take paid leave to care for their loved one, which can mitigate financial hardship, but that’s not always the case. Often, caregivers are faced with taking unpaid leave or having to stop working altogether—both of which negatively impact their finances.

According to Bradley’s study, 35% of cancer caregivers stopped working and 30% saw their household debt increase. Those in households earning less than the median household income were more likely to experience decreased income and stop work than peers in similar financial situations who were caring for people with conditions other than cancer.

“Data on reasons for stopping work was not part of this study, but we speculate that caregiving demands are greater for cancer patients,” says Bradley, an associate dean of the Colorado School of Public Health and deputy director of the University of Colorado Cancer Center. “We also speculate that lower-income households cannot pay for additional help so that the caregiver can continue working.”

A key element forcing caregivers to stop work is no paid leave at their workplace. According to the American Cancer Society Cancer Action Network (ACS CAN), studies show that cancer patients with paid leave have higher rates of job retention and lower rates of financial burden. However, 48% of caregivers report experiencing problems related to financial pressure caused by not being able to work or having to reduce work hours to care for their loved one.

“Cancer treatment is so all-consuming for the patient but also for the family and anyone who is caregiving for the patient,” says Jennifer Hoque, associate policy principal on access to care for ACS CAN. “And that includes all-consuming with finances and time. Time is money. The more time you have to spend caregiving for the cancer patient, the more potential for lost wages and other money you’re spending. And it’s not just time caring for the patient. It’s also transportation, taking the patient to and from their treatments. Sometimes it’s lodging because sometimes you have to stay overnight.”

To help cancer caregivers, ACS CAN supports legislation providing for paid leave in the workplace so everyone has access to it and can help their family members. The Family and Medical Insurance Leave (FAMILY) Act was introduced in Congress on May 17. If passed, it would provide workers with a maximum of 12 weeks of financial support during a family or medical leave from work. In addition, 11 states and Washington, D.C., have enacted paid leave laws.

Finding assistance is crucial for cancer caregivers. “Caregivers provide a tremendous service to their families and society at large with very few supports,” Bradley says. “As a result, they suffer not only physical and mental consequences, but they also suffer financial consequences that last for years. Lower-income households take on the greatest financial burden and may never recover.”

If you’re caring for a cancer patient, it’s important to find out what type of leave is available. For instance, the Family and Medical Leave Act currently in effect provides 12 weeks of unpaid leave during a one-year period. Although leave is unpaid, the law protects your job while you’re away from work. Also, find out how flexible your employer is in allowing remote work or changing your work hours for doctor appointments and treatments.

Other assistance may be available through local, state and national programs such as the CancerCare Co-Payment Assistance Foundation, HealthWell Foundation, and the Leukemia & Lymphoma Society. Patient navigators at your loved one’s hospital or cancer treatment center can also be a valuable resource in advising you about financial assistance.

Cancer Effects on Caregivers and Work

Quality Questions:When you are diagnosed with cancer, how can you be sure you’re getting appropriate care?

IN APRIL 2020, truck driver John Lex was waiting to load up his tractor trailer at a Walmart distribution center in LaGrange, Georgia, when he felt a severe, sharp pain in his lower abdomen. The self-proclaimed “stubborn guy” figured if he went home to lie down, he would feel better. However, by the time he arrived home in Monroe, Georgia, the pain had amped up to “an eight out of 10.” He asked his wife to drive him to the local hospital’s emergency room.

Doctors there thought his pain might be appendicitis, but a CT scan revealed something unexpected: a mass in his colon. “The doctor told me that they believed it was cancerous, but he wouldn’t know for sure until they got in there,” says Lex, now 56, who had immediate surgery to remove the mass and have his colon resected. He would need to wait for results from the biopsy to get confirmation, but “[the doctor] was pretty confident that it was cancer,” Lex says

Three days after surgery, on April 25, 2020, these suspicions were confirmed. Lex’s tumor was malignant—with 19 positive lymph nodes. He had stage IIIC colon cancer. He was referred to a medical oncologist at Piedmont Walton Hospital in Monroe—the same hospital where he had his surgery. He completed a six-month course of chemotherapy with FOLFOX (folinic acid, fluorouracil and oxaliplatin), but in January 2021, the scans showed that the tumors were back in his colon, as well as the lining of his abdominal cavity.

At that time, his oncologist suggested another chemotherapy combination and referred Lex to a colleague at Atlanta-based Winship Cancer Institute at Emory University, which is less than 30 miles away from Lex’s home, for a second opinion. Winship Cancer Institute has earned the National Cancer Institute’s highest honor—a comprehensive cancer center designation—which signifies significant research infrastructure along with the capacity to provide high-quality treatments to patients. The oncologist at Winship confirmed the treatment plan. Lex continued to be treated by his original oncologist, satisfied that he was receiving appropriate care.

Treatment Close to Home

Like an estimated 80% to 85% of people with cancer in the U.S., Lex sought treatment at a community cancer center. Community cancer centers typically provide care through oncology practices or networks, offering treatment at local hospitals instead of specialty cancer centers. They are not usually a part of large academic teaching hospitals and don’t have NCI designations.

“Community hospitals are those institutions that are designed to take care of patients. They’re not necessarily teaching and they’re not necessarily doing research. That’s not to say that they never do,” says Thomas Tucker, the senior director for cancer surveillance and associate director of the Kentucky Cancer Registry at the Markey Cancer Center Prevention and Control Program at the University of Kentucky in Lexington. Tucker has published research on Markey Cancer Center’s efforts to form an alliance with community cancer hospitals to help provide more standardized cancer care throughout Kentucky.

The decision to receive care in a community cancer center is often influenced by geography, given that many people in the U.S. do not live near large academic teaching hospitals or one of the 71 NCI-designated cancer centers spread across 36 states and the District of Columbia. “The number one criterion that’s going to affect where a cancer patient gets treated is going to be their location,” says Rose Gerber, a breast cancer survivor who is the director of patient advocacy and education at the Community Oncology Alliance, a nonprofit organization based in Washington, D.C., that advocates for the preservation of oncology private practices that offer patients high-quality, affordable cancer care close to home. Gerber notes referrals often come from a patient’s primary care doctor who is familiar with local oncologists. In addition, a patient’s and doctor’s familiarity with the local health system and the convenience of not traveling far for what are usually multiple treatments often provide reassurance to patients, Gerber says

Experience Matters

Other variables, including a person’s cancer type, stage, the pathology and genetic makeup of the tumor, and any previous treatments, can all factor into people’s decisions about where they go for their care. When analyzing choices, oncologist Diane Reidy-Lagunes suggests that patients start by asking questions to gain an understanding of the doctor’s experience with the patient’s stage and type of cancer.

“There are definitely some questions that you want to ask the oncologist when you’re meeting them … particularly for instances of rare diseases,” says Reidy-Lagunes, who is the associate deputy physician-in-chief of the Regional Care Network at Memorial Sloan Kettering Cancer Center in New York City. She suggests asking, “Is this a disease that you’re often taking care of? Have you only seen one in your lifetime or do you see five in clinic daily?”

Patients can also look up a physician’s specialties online before the office visit, says Nancy Keating, a primary care physician at Brigham and Women’s Hospital and a researcher in the Department of Health Care Policy at Harvard Medical School in Boston, who studies factors that influence the delivery of high-quality care for people with cancer. “The more specialized training someone has, the better, especially when complex care is needed,” she says, using the example of a surgeon who specializes in a certain kind of cancer. “If you are a colorectal surgeon, you’ve done a fellowship, and you only do colorectal surgery. In addition, you are continually getting exposed to new cases daily and that’s all you do.”

With more experience comes greater proficiency. Research indicates that people with cancer who undergo complex procedures at high-volume surgical centers have better outcomes compared to low-volume centers, including for lung, esophageal and pancreatic cancer. For example, one study published in the April 2017 Annals of Surgery suggests patients with esophageal cancer who traveled to high-volume surgical centers had significantly better five-year survival rates, with 39.8% of patients living five years or longer compared to 20.6% who sought treatment at low-volume surgical centers. Another study published Nov. 1, 2021, in Cancer, compared outcomes at high-volume and low-volume radiation centers for a number of cancers and found patients receiving adjuvant radiation had significantly improved survival at very high-volume facilities when compared to low-volume facilities. Patients who received radiation alone for prostate, non-small cell lung, pancreatic, and head and neck cancer without surgery or other treatments also had increased survival, according to the study.

Lindsay Longo, an IT services director who lives in Tampa, Florida, was diagnosed with stage II Hodgkin lymphoma in November 2020 after going to an emergency room with escalating symptoms from COVID-19. While she was there, doctors performed a CT scan and discovered a large mass in her left lung, a rare presentation of Hodgkin lymphoma. She had a lung biopsy on Nov. 25, 2020, and five days later was diagnosed with cancer.

Longo ultimately decided to get her treatment at Moffitt Cancer Center, an NCI-designated cancer center in Tampa. The 39-year-old was impressed with the depth of experience that Moffitt provided, including swift coordination of care. “I didn’t feel like [the hospital where I was diagnosed] was moving fast enough for me, so I decided on Moffitt for its credibility and the top ranking. For me, it was a no-brainer,” she says.

On Dec. 31, 2020, Longo began treatment, receiving eight rounds of ABVD (Adriamycin, bleomycin, vinblastine, and dacarbazine) administered every two weeks. At the end of treatment, a scan revealed one spot on a lymph node. At that point, a tumor board, consisting of a multidisciplinary team of physicians at Moffitt, reviewed her case and suggested she have four more rounds of chemotherapy. On July 27, 2020, her scans were clear.

Access to Clinical Trials

While the standard-of-care treatments offered in cancer centers and community hospitals already have proven efficacy, some patients may also be interested in experimental treatments and clinical trials, says Gerber, who was diagnosed with stage II HER2-positive breast cancer in 2003.

Gerber had a lumpectomy followed by eight rounds of chemotherapy and radiation at Eastern Connecticut Hematology and Oncology, an oncology practice affiliated with Backus Hospital in Norwich, Connecticut. Her physicians also offered her an opportunity to participate in a clinical trial that tested the use of a targeted medication called Herceptin (trastuzumab) to reduce the chance of her cancer returning.

“[HER2-positive breast cancer] at the time was one of the deadliest diagnoses with a very poor prognosis,” she says. Gerber realizes now how fortunate she was to take part in a ground-breaking clinical trial. Today, she credits her survival and good health to being a part of the Herceptin clinical trial, and the drug is now the standard of care for patients with HER2-positive breast cancer. Gerber notes that many community cancer centers offer clinical trials—and the idea that this type of research is only offered at larger research or academic hospitals is a misconception.

Having access to a range of treatment options—both the standard of care and experimental drugs—is especially important for patients who have advanced cancer, says Heidi Nelson, medical director of the American College of Surgeons, Cancer Programs, which is responsible for the Commission on Cancer (CoC) accreditation program for hospitals. The accreditation means facilities have demonstrated that they provide a range of services, either on-site or through referrals to other facilities, including diagnostic imaging, radiation oncology, systemic therapy, psychosocial support, rehabilitation, nutrition and access to clinical research.

Collaboration between medical oncologists, surgeons, radiation oncologists, nurses and social workers provides a good measure for quality care, Nelson says. “With an appropriate team of specialists, each professional sees a different part of the patients’ needs and the cancer details. The full picture comes together when all the professionals come together around each patient to make sure nothing is left out of the care plan,” she says.

That type of collaboration can also extend across hospital systems—including between NCI-designated cancer centers and community hospitals. One example of this type of collaboration is with the NCI-designated University of Kentucky Markey Cancer Center, in Lexington, which started an affiliate program in 2006 that now includes 21 community hospitals. One of the requirements for facilities taking part in the alliance is achieving and maintaining CoC accreditation, as a means to increase quality of care in cancer hospitals across the state. A study of 13 hospitals in the network published in the February 2021 Annals of Surgical Oncology showed this collaboration increased the hospitals’ ability to meet quality measures three years after they joined the network compared to three years prior. In addition, the number of hospitals that received CoC accreditation increased from three to 12.

“This is an opportunity for the medium- and small-sized hospitals to have access to resources for facing issues or problems they may not have seen before,” says Tucker, who notes that academic and research hospitals don’t have the capacity to treat every cancer patient. “The smart thing [to do] is to help community hospitals develop that capacity. Many of them are quite good at it [already],” he says.

For patients like Lex, having the ability to tap into expertise at both his local cancer center and a larger cancer center provided extra reassurance. This collaboration included having a multidisciplinary team review his case at the hospital to determine the best course of care. “Knowing that it’s not just [my oncologist] that’s looking at my records, that it’s all the doctors that she works with really eased my mind,” he says.

In May 2021, Lex went back to Winship for another second opinion after a PET scan showed one of his three tumors was growing. Genetic testing in early 2021 showed his tumors tested positive for BRAF mutations, which made Lex eligible for a combination of targeted therapies, Erbitux (cetuximab) and Braftovi (encorafenib). Since starting treatment, his tumors have appeared to be less active in the PET scans, which could be an indication that treatment is working. In addition, one tumor has gotten smaller in size. He hopes the targeted therapy will keep his tumors at bay. “We’re hoping that maybe the treatment will knock it out completely,” says Lex. “I am so happy I got the second opinion. It just eases your mind because I have two great doctors looking over me.”

Quality Questions

Digital and digital non-clinical solutions

➡️What will be the digital and digital non-clinical solutions for people with cancer in the future 🧐
This post aims to consider some possible digital solutions to bring medical resources and information to patients in the future.

➡️📱Mobile Apps: Mobile cancer apps can play a crucial role in patient education, symptom management and treatment monitoring.
These apps could provide information about cancer, medications, side effects, proper diets, as well as reminders for medications and medical appointments.

➡️⌨️Connected objects and wearables:
Wearable devices such as smart watches, bracelets and monitoring sensors could be used to monitor the vital signs of cancer patients in real time.

➡️Artificial Intelligence
(Al) and Data
Analytics: Al can be used to analyze large amounts of medical data and help identify patterns, correlations and predictions. This could contribute to a better understanding of risk factors,
treatment responses and patient
outcomes.

➡️Virtual Reality (VR):
Virtual reality can be used to help cancer
patients manage pain, anxiety and stress. Calming and interactive virtual environments can be created to distract patients during medical treatments or to help them relax during difficult times

For more just read: E-Health4Cancer : Sharing good practices in the use of nonclinical e-health solutions for cancer patients and their caregivers in Europe. Non-profit Organizations

https://www.linkedin.com/company/ehealth4cancer/

WHO/Europe explores collaborations to improve quality of health information online

The WHO Office on Quality of Care and Patient Safety in Athens recently joined forces with YouTube Health to host a workshop in Berlin to enhance the quality of health information online and support Member States’ efforts in this area. This collaborative endeavour lays the groundwork to promote health literacy and make high-quality health information universally accessible.

“We are very much looking forward to working together for a world where people can access the health information they need online without having to guess its accuracy,” noted Dr Natasha Azzopardi-Muscat, Director of WHO/Europe’s Division of Country Health Policies and Systems, at the workshop.

The role of digital platforms in health

The COVID-19 pandemic brought into the spotlight the prominent role of digital platforms in disseminating health-related information and the importance of reliable information, while also exposing the potential perils of misinformation and disinformation. Data indicates that, in the WHO European Region, a large share of consultations now take place online, as people’s initial approach is to search for symptoms and medical advice online. Health-related searches make up 7% of daily online searches, with approximately 4 billion results related to COVID-19.

In 2021, YouTube had over 110 billion views of health condition videos globally and is working on raising high-quality health content to make it easier for people to identify credible information that can help answer their questions. Commenting on the platform’s impact in the online space, Dr Nira Goren, Clinical Lead at YouTube Health, said, “People use platforms like YouTube to seek answers to questions, such as how do I live with breast cancer or how do I take care of myself.” An increasing number of individuals are also turning to online platforms to share personal stories, alleviate acute distress, and build a community to help decrease feelings of isolation.

However, online health information that is inaccurate or misleading can pose a significant risk to one’s health. A recent WHO review showed that infodemics and misinformation negatively affect people’s health behaviours. The distorted understanding of health hazards, such as smoking, alcohol intake, unhealthy eating habits, or physical inactivity, can result in various life-altering and potentially fatal noncommunicable diseases (NCDs), such as cancer or diabetes.

Empowering health through high-quality health information online

High-quality health information can empower individuals to take control of their health, make informed decisions about their treatment options, and improve their overall well-being and quality of life. With more and more people relying on the internet for medical advice, it is essential that the information available is reliable, accurate, easy to understand, and up-to-date. Collaboration with health care stakeholders in Member States across the Region is needed to ensure this. It also requires fostering inclusive partnerships that bring together patients, health care professionals, ministries, nongovernmental organizations, and major social media platforms.

“Social media platforms are crucial tools to improve and disseminate high-quality health information online and we should work on that together, involving everyone in this process. Our primary focus should be to actively listen to community concerns, promote understanding of risk and health expert advice, engage and empower communities to take positive action, and support health professionals and

Moreover, fostering trust in authoritative online health information sources at the population level entails working with academia and other partners to create further scientific evidence on the impact of misinformation on quality of care, acting as a lighthouse in consolidating the creation of scientific evidence.

“Empowering communities with education is essential to helping people live healthier lives. YouTube Health is delighted to interact with WHO and authoritative health sources across Europe to increase access to evidence-based, equitable and engaging health information,” noted Dr Garth Graham, Director and Global Head, Healthcare and Public Health, YouTube.

Πηγή: who.int

How A.I. Could Help Medical Professionals Spend Less Time on Admin Work and More Time on Care

Some entrepreneurs are betting that generative A.I. tech like ChatGPT can provide a solution to the medical industry’s burnout crisis.

A survey of 1,000 Americans and 500 health care professionals conducted by Tebra–an all-in-one digital platform used by medical providers to manage their practices–showed that one in 10 providers is currently using A.I., while 50 percent of surveyed respondents signaled an intention to adopt the tech in the future, particularly in use cases involving data entry, appointment scheduling, and medical research.

Luke Kervin, Tebra’s founder, says that if A.I. can help providers to stave off burnout by increasing efficiency, saving costs, and allowing them to spend less time on admin work and more time helping people, it will likely see mass adoption by the industry. “When we talk to our providers about what keeps them up at night, it’s always burnout,” adds Kervin, “and a lot of that burnout comes from having so much admin work to do.”

Ironically, the advent of electronic medical records (EMRs) was meant to help physicians save time that had previously been spent maintaining analog health charts, but some practitioners are now spending an increasing amount of time behind the computer. Indeed, a 2017 study published in the Annals of Family Medicine found that in an 11.4-hour workday, physicians spent an average of nearly six hours on tasks related to administrative tasks, like data entry and inbox management, which contributed to their burnout.
Some solutions are already available, such as from Microsoft-owned A.I. business solutions provider Nuance. According to a case study, physicians at the Nebraska Medicine health system were frustrated with the time and effort required to complete patient notes, so Nuance provided an A.I.-powered voice recognition solution, allowing providers to fill out notes using just their voice. The change was a success, with 94.2 percent of surveyed physicians saying that the tech helped them to save time and do their job better.

Another company working on A.I.-powered solutions for both providers and patients is New York-based mental health employee benefits company Spring Health, which has raised nearly $400 million and attained a $2.5 billion valuation since its 2016 founding. Once a client has signed up for the service, they fill out a short assessment containing a series of questions about both their medical history and the current state of their mental health. The company’s machine-learning algorithm then crafts a personalized care plan that includes both wellness recommendations like daily routines, and specific recommendations for nearby mental health care providers.

Spring Health co-founder Adam Chekroud says that they’ve barely begun to scratch the surface of how automation could improve business for health care providers, adding that the company recently rolled out a new functionality that enables providers to “translate” their shorthand notes from patient meetings into full sentences with the use of a large language learning model.

Chekroud is also excited about the possibility of integrating chatbots as a way of helping people find providers who are a perfect fit for them, and described one prototype in development. “Our chatbot could ask, ‘Is there anything you want us to know that would help us find you a provider?’” According to Chekroud, the patient could answer with something like, “I’m very religious and I want a provider who could do faith-based treatment” or “I’m going through some gender identity issues and I want to have a provider that understands that.” The chatbot would then scan through the Spring Health network to surface providers with those desired traits.

A small number of providers are even beginning to use A.I. to help them make diagnoses by using tools such as Med-PaLM, Google’s large language model for medical information. But when it comes to using chatbots as virtual therapists, Chekroud is much less convinced. He concedes that generative A.I. is surprisingly capable of imitating empathy, “but we still have this fundamental problem that you’re talking to a robot. A robot can’t know what you’re going through. Nothing can replace that human connection.”

Πηγή: inc.com

The Economics of Health for All and the Transformative Power of the Arts

In the first-ever report of its kind, the WHO Council on the Economics of Health for All has outlined a bold new path to reorient economies to deliver what matters – health for all.

The Council has put forward a bold new narrative grounded in new economic wisdom to reorient economies to deliver health for all across four interrelated themes:

  1. Value – valuing and measuring what matters through new economic metrics;
  2. Finance – how to finance health for all as a long-term investment, not a short-term cost;
  3. Innovation – how to advance health innovation for the common good;
  4. Capacity – how to strengthen dynamic public sector capacity to achieve health for all.

Meet the new WHO Goodwill Ambassadors for Arts and Health

The appointments of Fleming and Yende underscore the profound link between arts and health. Engagement in creative activities, such as music, art, and dance, positively impacts physical, mental health, social well-being, and overall quality of life.

Through their roles as Goodwill Ambassadors, Fleming and Yende will promote the integration of arts into healthcare systems, advocate for access to creative arts therapies, and champion the importance of artistic expression in improving health outcomes globally.

Health for All Film Festival

A shortlist of 93 films has been selected for the 4th Health for All Film Festival out of more than 780 entries received.

Watch the shortlisted films here. Winners will be announced on 6 June.

Key highlights from the Seventy-sixth World Health Assembly

As the world faces ongoing health and humanitarian emergencies, the Seventy-sixth World Health Assembly focuses on driving forward health for all. This year’s session of the World Health Assembly determines the immediate and longer-term future of WHO, starting with the program budget for the next two years, key decisions about the sustainable financing of the Organization and changes put in place to improve WHO’s processes and accountability. Delegates also deliberate about the critical role that WHO has in the Global Health Emergency Architecture.
Read more :

World Health Organization

Women Less Satisfied With Cancer Care

WHEN STEPHANIE RIVERA’S DOCTOR DISCOVERED THYROID NODULES during a routine exam in 2019, she began getting yearly thyroid ultrasound monitoring. She was told that 95% of the time these nodules are benign, but that she should watch for symptoms. “My doctor said if anything changes—if my voice changes or if I have trouble swallowing—I should come in sooner than my annual check-up,” says Rivera, 54, CEO of the Lazarex Cancer Foundation, which focuses on breaking barriers to health care for marginalized communities.

In April 2022, when Rivera began to experience unusual hoarseness five months before her scheduled annual thyroid ultrasound, she called her doctor as directed. But instead of getting an expedited appointment, “I was told, ‘Everything is fine. Just come back in August when you’re supposed to,’” Rivera says. When her hoarseness continued, Rivera called her doctor’s office again, and the medical staff relayed the same message: “Just come back in August.”

After that August check-up, however, Rivera was diagnosed with thyroid cancer that had spread to her lymph nodes. Rivera felt validated but remorseful. “Statistically, I wasn’t supposed to have thyroid cancer that has metastasized, but I knew my body. I should have called a third time and said, ‘This hoarseness is different. I need to come in now just to make sure everything is OK,’” she says.

Rivera is far from alone in having her cancer symptoms dismissed. According to a recent American Cancer Society Cancer Action Network (ACS CAN) survey involving 1,236 patients with cancer and survivors who have been diagnosed or treated within the past seven years, women were twice as likely as men (6% vs. 3%) to have reported symptoms five or more times before getting a diagnosis. For patients diagnosed after experiencing symptoms (as opposed to those diagnosed after screening), women were less likely than men to report that their symptoms were taken very seriously (31% vs. 21%) or taken seriously “at all” (8% vs. 1%).

“These small survey numbers echo a bigger trend women may be experiencing throughout their cancer journey: that physicians are not listening to them,” says Sarah Long, ACS CAN project manager for survey administration and analysis. “The fact that women, in particular, were going to physicians repeatedly and saying repeatedly, ‘I have these symptoms,’ and those symptoms were not taken seriously is an issue.”

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Having initial cancer symptoms dismissed may especially be a problem for younger, healthy-looking women who don’t fit the profile of what doctors believe to be a typical cancer patient, Long says. According to ACS CAN survey respondents, physicians are apt to chalk up younger patients’ symptoms, such as feeling tired, to having a stressful job or a too-busy life, when, in fact, after pushing for follow-up appointments and additional testing, many of these women are eventually diagnosed with cancer.

Women are having to say, ‘No, this isn’t normal for me’ over and over again,” says Kirsten Sloan, managing director of public policy at ACS CAN. “What we’re concerned about are those women who don’t say it over again, who just accept what their doctor says, rather than pushing for more testing. If it is cancer, they later find out it could have been diagnosed and treated sooner, with potentially a more favorable prognosis.”

Who is to blame? “It’s not the fault of the doctor. It’s the high-pressure system doctors find themselves in. The models of care are not as patient centered as they need to be,” Sloan says. “If you’ve only got a 15-minute visit, you don’t have much time to figure out which symptoms don’t make sense for the patient’s life.”

If You Feel Something, Say Something Again and Again

Still, there is no time to wait for the system to change, if it ever does. “As health care consumers, we need to educate ourselves about the symptoms to look for, make sure we’re doing our routine screenings so things are caught early, and be really good advocates for ourselves,” says Sloan. “We also need to find a doctor who listens in the way we need to be listened to.”

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Rivera, who has worked directly with doctors on various levels at major health care networks for more than 30 years, has learned a lot about herself from her experience being diagnosed with thyroid cancer. “If this can happen to me, it can happen to anyone,” she says. “I trusted my doctor. And, apparently, I trusted him very much. What I didn’t trust was myself enough to say: ‘I know my body, and something is different. I need to be seen now for peace of mind.’”

Rivera says pushing back is not in her comfort zone. Insisting on being heard by your doctor or your clinical care team can feel like talking back to the teacher or your boss. Still, when something doesn’t feel right, your life can depend on it. “The lesson I learned is that my voice about my body is a top priority,” Rivera says.

Women Less Satisfied With Cancer Care