Accessibility Archives

Kapa3 Introduces Its New Psychological Support Team

On the occasion of May, Mental Health Awareness Month, and June, a month dedicated to cancer survivors, Kapa3 introduces its new Psychological Support Team.

The experience of cancer does not affect only the body. It deeply touches a person’s emotional world, daily life, relationships, family, work and sense of safety. From the moment of diagnosis, throughout treatment, and also in life after treatment, patients and their loved ones are often called to cope with fear, uncertainty, change, loss, exhaustion and, at times, a profound sense of loneliness.

At Kapa3, we know that supporting people affected by cancer requires a holistic approach. Information about rights, benefits and procedures is essential. Guidance through the health and social care system is equally important. But people also need a safe space where they can speak, be heard, express what weighs on them and receive support with respect, discretion and professionalism.

Kapa3’s new Psychological Support Team has been created for this purpose: to provide counselling and psychosocial support to people experiencing cancer, as well as to caregivers and family members.

The aim of the service is to empower, support and improve the quality of life of beneficiaries. Through psychological support, individuals may better recognise what they are experiencing, manage anxiety and uncertainty, strengthen their emotional resilience and feel that they are not alone in their journey.

The service is addressed to adult cancer patients, survivors, caregivers and family members. Support may relate to different stages of the cancer experience, including a new diagnosis, active treatment, the post-treatment period, recurrence, long-term follow-up or the daily challenges faced by caregivers.

Support is provided through a cycle of up to eight individual sessions, scheduled in consultation with the beneficiary and according to the availability of the service. Sessions may take place either in person or online, depending on the needs of the beneficiary and the operational framework of the service.

Confidentiality, professional ethics and the protection of personal data are central to the service. Participation is based on informed consent, and the information shared by the beneficiary remains confidential. Any exchange of information between Kapa3’s Psychological and Social Services is limited strictly to what is necessary in order to provide appropriate support.

The new team is part of Kapa3’s broader philosophy of interdisciplinary, person-centred and responsible care. Psychological support is connected with social guidance, information on rights and benefits, referral needs and the overall empowerment of the beneficiary.

At the same time, the service operates within clear boundaries. It has a supportive and counselling character and does not replace psychiatric monitoring, emergency psychiatric intervention or long-term psychotherapy. When needed, beneficiaries may be guided towards appropriate services or specialised mental health professionals.

At Kapa3, we believe that no one should have to face cancer alone. Psychological support is not a luxury. It is part of care. It is a space for listening, acceptance and empowerment.

Asking for help is not a weakness.
It is an act of care.
It is an act of self-awareness.
It is an act of strength.

Kapa3 – Cancer Guidance Centre
Together, with knowledge, care and human presence.

6 Awards for Kapa3 at the 4th Vouliagmeni Summer Crossing: Is There Such a Thing as a “Lonely Race”?

The Cancer Guidance Center – Kapa3 participated with great joy and emotion in the 4th Vouliagmeni Summer Swimming Crossing, an important sports and community event organised by the Vouliagmeni Nautical Club.

This year’s participation was particularly meaningful for all of us. The Kapa3 team received 6 awards, sharing a powerful message of participation, endurance, empowerment and togetherness.

But beyond the awards, what we hold most deeply is the message:

Is there really such a thing as a “lonely race”?

For us at Kapa3, the answer lies in our choice. And our choice is togetherness.

Despoina brought the idea — and much more.
Eirini stayed until the very end.

Leoni, Kalliopi, Giorgos, Christoforos, Athina, Christiana and Aria stood together as a true Winning Team.

They competed in every category, participated in every activity, informed, supported and left their own mark of empowerment, endurance and hope.

Leoni, Kalliopi, Giorgos, Christoforos, Athina, Christiana and Aria stood together as a true Winning Team.

They competed in every category, participated in every activity, informed, supported and left their own mark of empowerment, endurance and hope.

For Kapa3, the 6 awards are not only an athletic distinction. They are a symbol. They represent the power of effort, the importance of persistence and the value of community in every difficult journey.

ust as in the sea, the cancer journey requires rhythm, breath, emotional strength and people by our side. Even when a struggle feels personal, it does not have to be — and should never be — lonely.

Kapa3’s participation in the Vouliagmeni Crossing was an act of presence and awareness. It was a way to remind everyone that support for cancer patients, caregivers and families is not limited to information or access to rights and services. It is also about creating a community that stands beside people, encourages them and reminds them that they are not alone.

The sea carries a powerful symbolism. It represents the journey, uncertainty, effort, endurance, but also freedom. Every participant in the Crossing carries their own story, their own effort and their own path. For us at Kapa3, this image is deeply connected to the experience of people affected by cancer.

At Kapa3, we know that the experience of cancer is not limited to treatment. It is connected to everyday life, emotional resilience, access to information, rights, social benefits, transportation, work, family, uncertainty and the need for human presence.

This is why every community action we participate in has a dual purpose: to inform and to unite. To make visible the need for equal access to care, while also reminding everyone that support is not an abstract concept. It is presence. It is care. It is listening. It is guidance. It is the hand that helps someone keep going.

The 4th Vouliagmeni Summer Crossing was another moment of outreach, participation and empowerment for Kapa3. A moment that showed that strength is not found only at the finish line, but also in the decision to start, to try and to keep going.

We are grateful for the support, the care, the participation and the result.

We warmly thank the Vouliagmeni Nautical Club for organising the event, as well as everyone who participated, supported and stood beside us in this initiative.

We continue to choose togetherness at Kapa3.

Because even when a race is individual, it should never be lonely.

Evangeli Bista on DION TV: Social Support and Kapa3’s Role in Guiding Oncology Patients

On March 19, 2026, Evangeli Bista, Co-founder of Kapa3, gave an interview to Christos Thanasainas, journalist and Scientific Director of Forlife Clinic, on Central Macedonia’s DION TV, during the daily program All About Health, which covers topics on health, nutrition, autoimmune diseases, and recent scientific developments.

The discussion highlighted the importance of social support for cancer patients and their families, both inside and outside the hospital, as well as the critical role of Kapa3 in guiding and providing holistic support to patients.

WHAT IS SOCIAL SUPPORT – TWO WORLDS:

Social support in cancer care is not a single, uniform concept. Inside the hospital, it mainly concerns assistance with the public healthcare system and bureaucratic procedures. Outside the hospital, real life begins: family, caregivers, and decisions the patient must make.

MAJOR SYSTEM CHALLENGES:

As Ms. Bista noted, hospitals face a significant shortage of social workers and related professionals. International literature suggests that there should be 10 social workers for every 2,500 residents—but this is not the case in Greece. In 92 municipalities, there is not a single social worker, while in areas where social workers exist, most are on fixed-term contracts or funded through programs (such as ESIF). The result is a maze of bureaucracy and uncertainty for the patient, who must understand medical and legal terms, make critical decisions, and manage financial consequences—often without support.

THE ROLE OF KAPA3 – SOLUTION, NOT JUST A SERVICE:

In this environment, Kapa3 provides holistic guidance and support, helping patients navigate procedural and practical issues—either independently, if they feel capable, or with active assistance from the organization at every step. Coverage is nationwide, although the complexity and fragmented structure of the system require ongoing study and time for effective support.

THE “HEAVY” MESSAGE – UNDERSTANDING VS. INFORMATION:

As Ms. Bista emphasized:

“The patient doesn’t need more information – they need understanding.”

The process is essentially behavioral: understanding reduces uncertainty, uncertainty reduces anxiety, anxiety affects behavior, and behavior determines health outcomes.

Kapa3 operates within this “maze,” offering holistic guidance and support. Intervention can be supportive, giving patients the ability to act on their own, or active, guiding them step by step. Kapa3 covers the entire country, addressing the growing needs of patients.

THE BIG CHALLENGE: “MYRTO”

“Myrto” represents Kapa3’s major initiative for 2026. After five years in oncology social support, Kapa3 addresses secondary digital exclusion with “Myrto”—a Digital Health Navigator designed to transform knowledge into practical understanding and provide real-time guidance for patients, avoiding the “chaotic wandering” through the healthcare system. The platform is currently in the study and design phase, aiming to meet the real needs of patients and their caregivers.

The interview highlighted the importance of social support, understanding over mere information, and the role of digital technology in modern oncology care. Kapa3 and Myrto strive to bring care from the hospital into patients’ daily lives through a holistic, personalized, and practical approach.

For more information and to watch the full interview, see the video on YouTube here.

(Note: Video in Greek with no English subtitles).

You can dowload our Press Release here

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Artificial Intelligence (AI) is transforming the fight against cancer.The European Cancer Organisation’s “Harnessing AI for Cancer Care in Europe” report

Artificial Intelligence (AI) is transforming the fight against cancer, enabling machines to learn, reason, and assist humans in detecting, diagnosing and treating the disease more accurately and efficiently. It works by analysing vast amounts of data, learning patterns, and making predictions or recommendations to support human decision-making.

Cancer care is rapidly transforming with the use of AI, which serves as a powerful tool in prevention, detection, treatment and research of the disease. The European Cancer Organisation’s “Harnessing AI for Cancer Care in Europe” report states that AI has the potential to transform every stage of the cancer pathway. Simultaneously, the report emphasises the need for AI to be used responsibly, by protecting patients, upholding ethical standards, and aligning with European values, to ensure its benefits are delivered fairly and effectively across healthcare systems.

The Promise of AI in Cancer Care

The report highlights several ways AI can improve cancer outcomes across the care pathway. In primary prevention, AI can analyse genetic, environmental, and lifestyle data to identify high-risk patients and guide preventive strategies before symptoms appear. For early detection, AI can dramatically speed up screening, reducing test interpretation from days to hours, improving accuracy, and lowering missed diagnoses. In diagnostics, deep-learning models trained on large datasets can detect even the smallest lesions, prioritise urgent cases, and support more precise diagnoses. AI also enables personalised treatment by integrating tumour genomics, imaging data, and real-world outcomes to help clinicians select the most effective therapies for individual patients. Finally, in drug development, AI can identify promising compounds and targets, shortening traditional development cycles and discovering new uses for existing medicines.

Challenges That Cannot Be Ignored

However, the report also highlights significant risks associated with AI in cancer care. Key concerns include regulatory gaps as AI tools advance faster than current rules, making it challenging to ensure they remain safe, accurate, and accountable. Many promising AI systems require further validation in real-world clinical settings, as untested tools could lead to misdiagnoses or unsafe decisions. Bias and inequity are also risks, since AI trained on unrepresentative data may produce less accurate recommendations for specific patient groups. Implementation barriers, such as limited infrastructure, funding, and trained staff, can hinder the integration of AI into everyday healthcare. Finally, trust issues may arise, as both patients and clinicians need to understand and have confidence in AI systems for them to be effectively adopted.

Policy Recommendations: A Roadmap for Safe and Effective Use

To tackle these challenges, the report puts forward four key recommendations. First, it calls for national standards and validation frameworks, including speciality-specific rules and post-market monitoring of AI tools. Second, it emphasises the importance of training and literacy, proposing pan-European AI education to ensure that at least 50% of oncology professionals are confident in using AI by 2030. Third, the report urges robust regulatory guidance and oversight, including EU-wide support for data protection under GDPR, implementation of the AI Act, and strong patient engagement to ensure clinical accountability. Finally, it highlights the need for investment in data infrastructure, leveraging the European Health Data Space to harmonise systems, modernise cancer registries, and build representative datasets that support safe and effective AI deployment.

Why This Matters for Kapa3

Building on these advancements, K3 is preparing to launch its digital assistant, “Myrto”, in 2026. Designed to harness the power of AI, “Myrto” will support patients and healthcare professionals across the cancer care pathway. By integrating cutting-edge AI capabilities with user-friendly guidance, “Myrto” exemplifies K3’s commitment to improving outcomes, streamlining workflows, and empowering both patients and clinicians in Europe’s rapidly evolving healthcare landscape.

To see the full article, please click here.

https://www.europeancancer.org/resources/publications/harnessing-ai-for-cancer-care-in-europe.html

This Year’s Good-Luck Charm (2026): A Symbol of Self-Care

The Good Luck Charm of the Year (2026) for Kapa3: The Crown

A Symbol of Self-Care

This year’s good luck charm is dedicated to self-care — a small, daily reminder of the deep importance of tending to ourselves with gentleness, respect, and consistency.
In a time when everyday life becomes increasingly demanding, this charm reminds us that self-care is not a luxury, but a necessity.

It symbolizes all those small acts that keep us standing: the pause, the breath, the moment of rest; the warm embrace we offer ourselves. The choice to listen to our bodies, to acknowledge our limits, and to prioritize our health, joy, and inner balance.

And it is precisely this “pause” that led us to our good-luck charm for 2026: the Crown — a symbol that carries far more than what meets the eye.

In music, the crown (fermata) is the pause held by the performer —
the moment of emphasis before the melody continues.
So it is with every struggle: it requires breaths, pauses, small breaks — not to stop, but to continue.

A crown is also a circle. And a circle means you are not alone; around you are people, care, support — a circle that holds you.

If there were a title of honor for those who fight cancer, it would be a crown. Not as a symbol of power, but as a recognition of dignity.

Cancer can sometimes feel like a thorny wreath — heavy, painful, relentless.
And yet, depending on how we choose to face it, it can transform into a wreath of victory: the victory of persistence, endurance, return — and above all, the victory of effort.

Because behind every crown lies a story: of a parent, a friend, a child, a partner, someone who is fighting or supporting someone who fights.

That is why the crown is not just a piece of jewelry — it is a message of strength:

It is not what happens to us that defines us —
but how we choose to face it.

It reminds us that when we care for ourselves, we can truly care for others. That strength, well-being, and kindness begin within us.

May this year’s charm be a small talisman accompanying us each day, inspiring us to make space for what nourishes us, to embrace our vulnerability, and to celebrate our worth.

For a year filled with more care, more peace, and more love — beginning with ourselves.

Let’s fill our days with small acts that make a difference.
Let’s uplift one another.
Let’s turn self-care into a habit.

And for all of us at Kapa3, the invitation is simple: To weave self-care into our everyday lives.

Join the #kapa3gouri Self-Care Challenge

Inspired by this year’s charm — dedicated to self-care — we invite you to join the #kapa3gouri Self-Care Challenge, a collective action that brings us together through moments of care, calm, and mindfulness.

How the challenge works:

Take one small self-care action during your day.
It can be something simple: a walk, a breathing break, a warm cup of tea, a few minutes away from screens, journaling your thoughts, a hug you needed.
Capture a photo or write a few words that reflect that moment.
Share it on Instagram or Facebook using the hashtag #kapa3gouri.
Tag two friends to keep the chain of self-care going.

Our goal is not the “perfect” image — but the daily reminder that we deserve time, space, and care. Each post becomes a small mosaic of tenderness toward ourselves.
A collective message that wellbeing begins within.

For 2026, choose the Crown — as a symbol of hope, strength, and dignity.
Wear it. Offer it. Share its power.

Thank you for being part of this journey.

The Kapa3 Team

Disability Card in Greece: What You Need to Know

The Disability Card was established under Law 4961/2022 (FEK A’ 146, Article 106) and is regulated by Ministerial Decision 16996/2023 (FEK B’ 932/23-02-2023).
It serves as a unified proof of identity and disability, which must be accepted by all public and private entities.

Read the text of Ministerial Decision 16996/2023 (Article 20) here.

In short, the Disability Card offers:

Proof of disability without the need to show medical certificates or documents from KEPA.
Priority service at public offices, utilities, banks, and hospitals.
Free or reduced access to museums, archaeological sites, and cultural events for the cardholder and their companion.
Use of special facilities (e.g., seats or parking spaces for people with disabilities).
Mutual recognition of the Card in EU countries where an agreement exists.

Card format

The Card is digital, but it can also:

Be saved as a PDF,
Be printed,
Be added to the Gov.gr Wallet,
And will soon be available in a plastic card format.

How to obtain it

The process is simple:

Visit the National Disability Portal here: karta.epan.gov.gr
Log in with your Taxisnet credentials.
If a valid disability certificate exists, the Card is issued immediately.
The same process applies for minors or companions using their respective Taxisnet credentials.

Applications for the plastic disability card began on November 18, 2025. The process is carried out as described above (through the National Disability Portal), and the plastic card is sent by registered mail within a two-week period.

For any inquiries, you can call: Helpdesk 210-3007606 or send an email to: helpdesk@epan.gov.gr

KAPA3 continues to stand by cancer patients and their families, offering reliable guidance and practical support so that every patient feels safe and fully informed about their rights and benefits.

For oncology patients who want detailed information on all the exemptions and benefits they are entitled to, KAPA3 has compiled a complete guide in the “Exemptions and Benefits” section of its website here.

Text/adaptation: Ifiyenia Anastasiou for KAPA3

New Guide by the Greek Ombudsman on Serving Vulnerable Groups in Public Services

The Greek Ombudsman has released a new, comprehensive Guide addressing the service of vulnerable social groups by public authorities. This important tool for awareness and training aims to improve the quality of service, strengthen equality, and promote respect for the rights of all citizens.

The Guide includes:

The main legal framework and legislative provisions concerning different categories of citizens.
The difficulties and barriers faced by groups such as Roma communities, persons with disabilities, victims of domestic violence, people living with addictions, or citizens with a migrant background.
Practical behavioral guidelines for civil servants to ensure that services are accessible, non-discriminatory, and respectful of each group’s specific needs.
Tools and points of reference (such as helplines, support structures, and competent services) for the immediate guidance of citizens in need.

In this way, the Guide serves as a bridge between citizens and Public Administration, promoting transparency, equal treatment, and social cohesion.

Its significance lies not only in providing up-to-date information and an overview of the relevant legislation, but also in offering clear, practical directions for the daily work of public employees. This ensures that every citizen – regardless of origin, gender, age, or social status – enjoys equal access to quality services.

The Guide is available on the website of the Greek Ombudsman and is recommended for use by all public bodies, welfare organizations, hospitals, municipalities, and citizens’ associations.

KAPA3 supports and highlights such initiatives, which contribute to both citizens’ empowerment and the better preparation of the staff who serve them. Disseminating this Guide is another step toward a society free of exclusion.

New evidence that brain and body health influence mental wellbeing

The study, published in Nature Mental Health, analysed UK Biobank data from more than 18,000 individuals. Of these, 7,749 people had no major clinically-diagnosed medical or mental health conditions, while 10,334 had reported a diagnosis of either schizophrenia, bipolar disorder, depression or anxiety.

Using advanced statistical models, the researchers found a significant association between poorer organ health and higher depressive symptoms, and that the brain plays an important role in linking body health and depression.

The organ systems studied included the lungs, muscles and bones, kidneys, liver, heart, and the metabolic and immune systems.

Dr Ye Ella Tian, lead author of the study from the Department of Psychiatry at the University of Melbourne, said. “Overall, we found multiple significant pathways through which poor organ health may lead to poor brain health, which may in turn lead to poor mental health.

“By integrating clinical data, brain imaging and a wide array of organ-specific biomarkers in a large population-based cohort, for the first time we were able to establish multiple pathways involving the brain as a mediating factor and through which poor physical health of body organ systems may lead to poor mental health.

“We identified modifiable lifestyle factors that can potentially lead to improved mental health through their impact on these specific organ systems and neurobiology.

“Our work provides a holistic characterisation of brain, body, lifestyle and mental health.”

Physical health was also taken into account, as well as lifestyle factors such as sleep quality, diet, exercise, smoking, and alcohol consumption.

Professor James Cole, an author of the study from UCL Computer Science, said: “While it’s well-known in healthcare that all the body’s organs and systems influence each other, it’s rarely reflected in research studies. So, it’s exciting to see these results, as it really emphases the value in combining measures from different parts of the body together.”

Professor Andrew Zalesky, an author of the study from the Departments of Psychiatry and Biomedical Engineering at the University of Melbourne, said. “This is a significant body of work because we have shown the link between physical health and depression and anxiety, and how that is partially influenced by individual changes in brain structure.

“Our results suggest that poor physical health across multiple organ systems, such as liver and heart, the immune system and muscles and bones, may lead to subsequent alterations in brain structure.

“These structural changes of the brain may lead to or exacerbate symptoms of depression and anxiety, as well as neuroticism.”

Find more : https://www.ucl.ac.uk/news/2024/aug/new-evidence-brain-and-body-health-influence-mental-wellbeing?utm_source=linkedin&utm_medium=social&utm_campaign=vpee_linkedin_newsletter&utm_content=bodyhealth_aug24

What to Know About the HPV Vaccine and Cancer Prevention

New research shows many eligible people are not getting the shots.

Nearly 20 years after the first vaccine against human papillomavirus became available, many eligible Americans still are not getting the shot — even though it provides powerful protection against the leading cause of cervical cancer and a strong risk factor for anal cancer.

HPV is the most common sexually transmitted infection in the United States, and while most infections are asymptomatic and clear up on their own within two years, a small number persist and can cause cancer. HPV causes nearly all cases of cervical cancer, and can also lead to penile, anal, oral, vulvar and vaginal cancers.

The HPV vaccine, delivered as two or three doses, can significantly cut the risk of infection. It “is really one of the most effective vaccines we have,” said Dr. Lauri Markowitz, the HPV team lead in the Centers for Disease Control and Prevention’s division of viral diseases. But uptake remains stubbornly low: A report released by the C.D.C. this month showed that in 2022, only 38.6 percent of children ages 9 to 17 had received at least one dose of the HPV vaccine. Other new research suggests that HPV vaccination rates stalled in the wake of the coronavirus pandemic.

A study published this week laid out some of the primary reasons cited by parents in the United States who don’t plan to vaccinate their children against HPV, including safety concerns, a lack of knowledge about the vaccine and a belief that it isn’t necessary.

“We are still facing an uphill battle from what I would call inappropriate messaging or incomplete messaging when the vaccine rolled out about why this is so important,” said Karen Knudsen, chief executive of the American Cancer Society.

How does the vaccine work?

The HPV vaccine fools the body into thinking it has come into contact with the virus, marshaling antibodies in defense. Those antibodies can help clear the virus and prevent infection if someone is later exposed, which can happen through oral, anal and vaginal sex.

The vaccine offers protection from the types most likely to cause cervical and anal cancers and genital warts. Since the vaccine was introduced in 2006, infections with the types of HPV that cause most HPV-related cancers and genital warts have fallen by 88 percent among teen girls and by 81 percent among young adult women, according to the C.D.C.

One reason doctors are so enthusiastic about the vaccine is that it is one of very few tools to combat HPV: Condoms do not entirely prevent transmission, and there is no treatment for the virus itself. Researchers believe HPV is responsible for more than 90 percent of cervical and anal cancers and a majority of vaginal, vulvar, and penile cancers.

Who should get it? And how?

Children can be vaccinated starting at age nine. The C.D.C. recommends the vaccine for all preteens from the age of 11 or 12 and anyone up to age 26. It’s most effective before people are exposed to the virus, and “the assumption is that most people have started having sexual intercourse by age 26,” said Dr. Ban Mishu Allos, an associate professor of medicine at Vanderbilt University Medical Center.

The vaccine may still provide some benefit for people over age 26, and is approved up until age 45. The C.D.C. says that people between the ages of 27 and 45 might get the vaccine after talking to their doctors about their risk for new HPV infections.

You can ask your primary care doctor or local health centers for the vaccine. Most insurance plans fully cover it through age 26. Children and adolescents who are uninsured or underinsured can get the shots for free through the Vaccines for Children program. After age 26, insurance may not fully cover the shot, which can cost hundreds of dollars per dose. Merck, which makes the HPV vaccine Gardasil 9, has a patient assistance program for eligible people.

Why are vaccination rates still low?

Researchers believe much of the hesitation stems from a key misunderstanding: “More people perceive it as a sexually transmitted infection prevention vaccine, as opposed to a cancer prevention vaccine,” said Kalyani Sonawane, an associate professor of public health sciences at the M.U.S.C. Hollings Cancer Center and an author of the new paper on parental attitudes toward HPV vaccination.

Dr. Sonawane’s research has also found that many parents are concerned about side effects. But doctors say many people do not experience side effects, and for those that do, the issues are generally mild and can include arm soreness, nausea, dizziness or, in some cases, fainting.

Doctors urge parents to vaccinate their children before they’re likely to become sexually active, which gives some parents pause, said Dr. Monica Woll Rosen, an obstetrician-gynecologist at the University of Michigan Medical School.

“You’re doing something to prevent them from getting cancer in 30 years,” she said, “and the disconnect might be too large for some people to really wrap their heads around.”

Find more : https://www.nytimes.com/2024/02/22/well/live/hpv-vaccine-cancer.html

Telehealth Palliative Care Provides the Same Benefits as In-person Care

A recent study found that video-based telehealth palliative care produced results similar to in-person palliative care for patients with advanced non-small cell lung cancer and their caregivers. The study, presented at the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting in June, found that quality-of-life scores were virtually the same for telehealth and in-person palliative care.

Barriers Impacting Access to Palliative Care

According to Lindsey Ulin, a palliative care fellow at Massachusetts General Hospital and Dana-Farber Cancer Institute in Boston, who was not involved in the study, palliative care is focused on providing supportive care to people living with cancer and other serious illnesses. Palliative care physicians help manage symptoms and side effects like pain, fatigue and nausea.

According to a 2019 analysis in Quality of Life Research, patients with advanced non-small cell lung cancer and family members or friends who care for them often face physical, emotional and financial challenges that may impact their mental health and overall quality of life. And a 2024 article in American Society of Clinical Oncology Educational Book argued that early integration of palliative care alongside cancer treatment can improve patients’ quality of life.

However, both Greer and Ulin say many barriers limit access to this care for advanced-stage patients and their caregivers. Common roadblocks include hospitals and clinics not offering palliative care, the misconception that palliative care is only for people at the end of life, transportation issues and the cost of care.

“The hope is that telehealth palliative care reduces these burdens for the patient and the caregiver,” Greer says.

Telehealth Palliative Care Study Shows Promising Results

Greer’s study involved 1,250 patients with advanced non-small cell lung cancer and their caregivers. His research team randomly assigned participants to telehealth or in-person early palliative care across 22 cancer centers in the United States.

Participants attended palliative care appointments every four weeks throughout their cancer treatment. At the week 24 assessments, quality-of-life scores were similar for telehealth (99.67) and in-person palliative care (97.67) based on the Functional Assessment of Cancer Therapy-Lung (FACT-L).

Researchers found there wasn’t a significant difference in patient-reported symptoms, such as anxiety and depression, between the groups. “These are fairly standard measures when looking at the effects of palliative care,” Greer says. “We look at these because we’ve found that palliative care clinicians can help patients improve their quality of life, as well as their symptoms of anxiety.”

One difference that study data revealed was less caregiver involvement (36.6%) in virtual palliative care than in-person care (49.7%). “We had hypothesized that, given how convenient telehealth is, it would be easier for caregivers to participate,” Greer says. “We realized that telehealth gives patients more autonomy to decide when to have a caregiver present. But with in-person care, the patient often needs a loved one to help them get to the clinic.”

“In palliative care, we think about the person living with cancer and their caregiver together as a unit,” Ulin says. “Palliative care is an extra layer of support, helping caregivers cope, communicate with other providers, understand a cancer diagnosis and treatment options, and provide resources.”