Category: Patient Associations

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

The first closed scientific testing workshop of the Digital Health and Social Rights Navigator has been completed

Athens, 6 July 2026

The first closed scientific testing and evaluation workshop of “Myrto”, the Digital Health and Social Rights Navigator developed by the Cancer Patient Guidance Centre – Kapa3, was successfully completed.

The workshop was organised by the Cancer Patient Guidance Centre – Kapa3, with the support of René Descartes – Cnam College and the participation of SimasiaAI. It functioned as a dynamic scientific co-design workshop, bringing together specialised professionals from the fields of healthcare, social care, information technology and personal data protection.

The process was closed and strictly experimental in nature and did not constitute a public presentation of a completed product. Its purpose was to evaluate the behaviour of the application through hypothetical and fully anonymised scenarios, to record correct responses and areas requiring improvement, and to use expert feedback for the next phase of development.

The project “Myrto – Health and Social Rights Navigator” is being developed as a knowledge-based digital social navigation system, guided by the principles of explainable, transparent and human-centred Artificial Intelligence.

Its aim is to transform complex legal, administrative and social information into clear, evidence-based and practically useful guidance for oncology patients, caregivers and citizens.

“Myrto” does not replace professional social, legal, medical or clinical judgement. It operates as a supportive information and navigation tool, with clearly defined functional boundaries, human oversight and the possibility of referral to the competent services and professionals of Kapa3.

The programme is implemented with the support of the TIMA Charitable Foundation.

From Information to Understandable Knowledge

During the workshop, the need that led to the creation of “Myrto” was presented, along with the real barriers faced by patients and caregivers when seeking information on social rights, benefits and administrative procedures.

Particular emphasis was placed on addressing digital and informational exclusion. “Myrto” is designed to transform fragmented and often difficult-to-understand information into simple, structured and comprehensible guidance.

A Thematically Specialised and Curated Knowledge Base

The project’s technical partner, SimasiaAI, presented the operation of the application and the architecture used for information retrieval and synthesis.

“Myrto” uses a hybrid search mechanism that combines text retrieval and semantic search techniques, with the aim of identifying the information most relevant to the user’s question. The application operates on a thematically specialised and curated knowledge base.

A central element of its design is the traceability of information, namely the ability to link an answer to the source on which it is based. The use of validated sources reduces the risk of unsupported responses and enables the identification, review and correction of issues through a process of continuous maintenance, regular updating and adaptation to evolving guidelines and regulatory requirements.

Explainability and Human-Understandable Answers

The evaluation did not focus only on whether “Myrto” retrieves the correct information, but also on whether it can present that information in a clear, understandable and conceptually coherent way.

This approach strengthens trust, responsible use of the tool and the meaningful empowerment of citizens through a response-generation system that supports a transparent, evidence-based and human-supervised knowledge ecosystem, in which every piece of information is understandable, verifiable and connected to its source.

Data Protection and Compliance by Design

Personal data protection and regulatory compliance are embedded from the design stage of the application, in accordance with the principles of data protection by default and by design.

During the workshop, only hypothetical or fully anonymised cases were used. Particular emphasis was placed on the principles of data minimisation, anonymisation and secure processing. These principles are directly linked to contemporary requirements for the responsible development of Artificial Intelligence systems, the protection of special categories of data and compliance with the European regulatory framework.

Live Testing of Hypothetical Scenarios

The professionals who participated in the workshop tested the application individually and in small groups, using only hypothetical and fully anonymised cases. The testing was based on an approach that evaluated the behaviour of the system, examining not only whether the final answer was correct, but also whether the overall operation of the application was safe, understandable and appropriate for the specific request.

Disability Certification through KEPA

In one of the key scenarios, “Myrto” was asked to guide a hypothetical patient who did not know how to start the disability certification procedure through KEPA. The system retrieved the main steps of the process, organised the information in an understandable format and provided relevant references to the sources.

Participants evaluated:

  • the accuracy of the information,
  • the completeness of the steps,
  • the clarity of the language,
  • and the practical usefulness of the answer.

Travel from the Region for Treatment

In a second scenario, the case of an oncology patient who needed to travel from the region to another location for treatment was examined. The application identified relevant categories of socioeconomic support and benefits and presented possible next steps to the user.

The test allowed participants to assess:

  • the correct identification of the request,
  • the connection between different rights and benefits,
  • the completeness of the sources,
  • and the possibility of referral to the appropriate services.

At the same time, cases were also examined in which:

  • the question was unclear or incomplete,
  • the user did not know which right or benefit to look for,
  • clarifying questions were required,
  • medical or personalised legal advice was requested,
  • or immediate human intervention was necessary.

A Continuous Cycle of Scientific Feedback

The meeting concluded with a discussion of the testing results, a review of the technical logs and the presentation of key usage statistics for the application.

The participants’ observations are not treated as isolated comments, but as structured scientific feedback for improvement. In this way, a closed cycle of learning and feedback is created, in which technology, scientific knowledge and the experience of professionals interact continuously.

The continuous involvement of experts and the integration of structured feedback are considered critical for strengthening transparency, reliability and trust in Artificial Intelligence systems used in sensitive fields.

The Interdisciplinary Project Team

The development, scientific documentation and regulatory compliance of “Myrto” are supported by an interdisciplinary team from the fields of health services administration, information technology, personal data protection, language technology and software development. The workshop was attended by:

Evangeli Bista, Co-founder of Kapa3 and Head of Strategic Partnerships; Aristea Archontidou, Industrial Informatics Engineer with postgraduate specialisation in Health Policy and Health Services Planning; Anastasia Vlachopoulou, lawyer and member of the Thessaloniki Bar Association, specialised in personal data protection; Dimitris Papadakis, Co-founder and Sales Manager at SimasiaAI and Project Manager of the “Myrto” project; and Giannis Barous, Co-founder and CTO of SimasiaAI, PhD candidate in Computer Science based in San Francisco, who has undertaken the technical component of the project: how the system identifies the right information, how it connects it with reliable sources and how it provides answers that are evidence-based, useful and safe.

About Kapa3

The Cancer Patient Guidance Centre – Kapa3 is a social support, information and navigation organisation for oncology patients, survivors, caregivers and their families. Its aim is to contribute to equal access to oncology care, social protection and the rights associated with the cancer experience.

Every day, Kapa3 supports people who face not only the disease itself, but also a range of practical, administrative, social and psychosocial challenges. Through personalised social guidance, the organisation helps patients and caregivers learn about their rights, understand available benefits and services, navigate administrative procedures and connect with appropriate support structures.

The main pillars of Kapa3’s work include information on social and insurance rights, support in accessing health and social care services, guidance on benefits and procedures, empowerment of patients and caregivers, and connection with professionals, organisations and communities.

As part of its digital strategy, Kapa3 develops digital empowerment and social navigation tools, such as “Myrto”, the Digital Health and Social Rights Navigator. “Myrto” is designed to transform complex legal, administrative and social information into clear and evidence-based guidance for oncology patients, caregivers and citizens, always with human oversight, transparency and respect for the limits of technology.

Kapa3’s philosophy is based on the principle that care is not limited to medical treatment. It includes access to information, social protection, psychosocial support, dignity, empowerment and the ability of every person to know and claim their rights.

Through collaborations with health and social care professionals, academic and research institutions, civil society organisations, public structures, volunteers and communities, Kapa3 seeks to build bridges between the patient, information, services and real access.

Kapa3 Report for the First Half of 2026

As the first half of 2026 draws to a close, the Cancer Patient Guidance Center (Kapa3) continues to systematically expand its reach, thereby strengthening the system of care and information for both cancer patients and their caregivers.

During the first half of the year, the organization implemented a series of high-level initiatives and forged partnerships at both the national and European levels, thereby solidifying its position.

The organization’s activities got off to a strong start in January with the welcome of its European partners in the MELODIC Consortium project at a productive two-day workshop (January 19–20), hosted by the School of Public Health at the University of West Attica.

In early February, on the occasion of World Cancer Day, Kapa3 played an active role as a partner of René Descartes College in the webinar “Cancer, Patient Navigation & Health Management: From Prevention to Life Coordination.”

At the same time, significant initiatives were carried out in the local community, such as the “Knowledge Workshop in Megara—From Prevention to Life Coordination,” held on February 8 in collaboration with the Municipality of Megara.

In the area of scientific programs, the Cancer Patient Guidance Center, in collaboration with the Laboratory of Basic Health Sciences (EBEY) of the Department of Nursing at the University of the Peloponnese (PA.PEL), launched a series of online meetings running from February through June, focusing on mental health and nutrition.

The month concluded with the organization’s participation in the international conference “Mapping the Unknown in Oncology – From Hospitals to Homes, Mapping the Future of Oncology Care,” held on February 27 and 28.

March marked a strengthening of Kapa3’s “digital presence” with its official membership in the Hellenic Digital Health Cluster (HDHC), a strategic move aimed at linking healthcare with technological advancements. As an extension of this collaboration, the organization participated in a closed-door members’ meeting as part of Athens Digital Health Week 2026.

On March 11, representatives of the organization attended the diaNEOsis event “Facing the Challenge of Artificial Intelligence” at the Lighthouse of the Stavros Niarchos Foundation Cultural Center, while in the middle of the month, Kapa 3 played a prominent role in the scientific conference “Cancer in 2026: Challenges and Disruptions.” Furthermore, on March 19–20, the organization was represented at the 6th Western Macedonia Nursing Conference on the theme “Innovation and Empathy: Balancing Technology with Human Contact in Nursing.”

In parallel, the organization’s co-founder, Ms. Evangelia Bista, gave an interview on the show “All About Health” on Dion TV—which covered a variety of topics related to health, nutrition, autoimmune diseases, and more—the implementation of the free, 8-week Melodic pilot educational program began.

Kapa3’s scientific credibility was reaffirmed by the publication of the research paper “Person-First or Disease-First? Language Choices in Cancer Communication” in the journal *Nursing Reports*, as well as by Kapa3’s participation in the European project associated with Melodic, titled: “Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey,” which was also published; the organization also participated in the MELODIC Online Symposium 2026 on April 24, contributing to the dissemination of results in Greece.

May was marked by a strong outward focus and new collaborations, as the organization joined the European program Service Learning 2: 0:CoLab, was selected as one of six nonprofit organizations to receive financial support from the Alpha Bank-Match For Good initiative, and began its collaboration with the USTEP INSTITUTE.

At the same time, an awareness campaign was held in Soufli to highlight Kapa3’s activities; Ms. Bista gave an interview to iatronet.gr, and representatives of the organization participated in an international conference at the Medical School of the University of Coimbra in Portugal

Within the organization, the new Psychological Support team was established with great enthusiasm, while on the social media front, the Kapa3 team won six medals at the 4th Vouliagmeni Summer Swim.

As the semester came to a close, June began with the signing of an official cooperation agreement with the Department of Occupational Therapy at the University of West Attica, while partnerships were solidified with the non-profit organization “Karkinaki” and the PRAXI Network of the Foundation for Research and Technology – Hellas (FORTH) to strengthen international networking and access to modern funding tools.

Having completed five years of uninterrupted service in supporting cancer patients through digital guidance, Kapa 3 is entering a new era with the development of the innovative “Myrto” project. This is a pioneering Social Artificial Intelligence (Social AI) initiative in the field of care for cancer patients in Greece. “Myrto” will function as an advanced digital health and rights navigator (Patient Empowerment e-Navigator) for patients, caregivers, and healthcare professionals—a project for which the strategic partnership with SimasiaAi for its co-development was crucial. Finally, the first closed workshop of the MYRTO Al Health Innovation Lab was held for the “Myrto” application, with the support of René Descartes College.

The results of this first half-year clearly demonstrate that Kapa 3 serves as a link connecting innovation, scientific research, and the digital age in the field of oncology care. By combining academic knowledge, European partnerships, and technological development, Kappa 3 transforms every challenge into sustainable, people-centered solutions. Partnerships with leading organizations, investors, and partners who share the same values of social responsibility are also essential to realizing this vision, ensuring that every patient has immediate, reliable, and equitable access to healthcare and their rights.

The KAPA3 team stands steadfastly by patients and caregivers to provide guidance and safeguard their rights. For any information or support, please feel free to contact us.

You can contact the KAPA3 team

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Phone Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

 

 

Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

On Tuesday, June 9, a meeting was held to sign a Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

The meeting was attended by the Rector of the University of West Attica, Panagiotis Kaldis Penelope Vlotinou, Assistant Professor in the Department of Occupational Therapy Evangelia Bista, co-founder of the organization, as well as representatives from both organizations, including the interdisciplinary team of KAPA3: Despoina Chrysostomou, Psychologist Katerina Georgiopoulou, Social Worker Yiannis Kontogiorgis, Psychologist, and Eleftheria-Irini Polyzoti, an intern from the Department of Social and Educational Policy, as well as students from the Occupational Therapy Department.

During the meeting, a constructive discussion took place regarding the prospects for cooperation between the two organizations, with the aim of developing joint actions and initiatives that will contribute to strengthening education, research, social contribution, and the connection between the academic community and society.

In this context,  it was decided in April to jointly organize a major scientific conference, which will focus on an interdisciplinary and holistic approach to health, on combating social inequalities in healthcare, as well as on the management of chronic disease. The aim of this initiative is to raise community awareness, facilitate the exchange of expertise among professionals and scientific bodies, and disseminate scientific knowledge and information to the general public.

Special mention was made of the innovative work of KAPA3, the digital Health Navigator “Myrto,” a modern artificial intelligence tool currently under development and designed to support cancer patients, their families, and their caregivers. “Myrto” will function as a digital assistant (Chatbot) and Health and Rights Navigator, providing immediate, reliable, and personalized information on health, social welfare, rights, benefits, and available support services. The project aims to empower patients, improve their access to information, and reduce inequalities in health and social care through the use of digital technologies and artificial intelligence applications. The development of “Myrtos” represents a pioneering application of social artificial intelligence in the field of oncology care in Greece and is part of KAPA3’s strategy to promote innovation, accessibility, and the active participation of patients in managing their own health.

The meeting concluded in a particularly positive atmosphere of mutual appreciation and recognition. In this context, the Department of Occupational Therapy at the University of West Attica made a symbolic gesture toward the representative of KAPA3, Evangelia Bista, presenting her with a commemorative gift as a token of appreciation for her many years of valuable social contribution in the field of support for cancer patients. At the same time, as a gesture of hospitality and appreciation, the team was offered a specially produced wine, which is an original creation of the University of West Attica.

 

 

Update on Constant Attendance Allowance – March 2026

Based on the latest available data for March 2026, the Constant Attendance Allowance, provided through e-EFKA, has been increased and now reaches up to €845–846 per month, depending on the category and insurance status. This allowance applies to pensioners with severe disabilities or serious mobility impairments who require continuous assistance and supervision from another person, following disability certification by the KEPAs.

The year 2026 features increases and retroactive payments in EFKA allowances, including disability benefits, aiming to strengthen support for vulnerable pensioners and reduce financial difficulties in daily life. This adjustment reflects the ongoing commitment to support pensioners with increased care needs.

Eligible Pensioners

  • Pensioners with a disability rate above 67%, for whom continuous care by another person is certified.

  • Blind elderly pensioners.

  • Survivors’ pensioners, provided the deceased had their first insurance before 1/1/1993.

Amounts and Supplements

  • For those insured before 1/1/1993, the supplement reaches 50% of the pension, up to €671.40.

  • For those insured from 1/1/1993 onwards, the amount is €173.34.

  • Employees may also receive an extra-institutional allowance, with a total maximum of €846.

  • At a social assistance level, the amount can reach up to €380 per month.

For public sector pensioners, the corresponding supplement is calculated at 2.5% to 4.5% of the basic lieutenant salary, depending on the degree of incapacity, and in cases of 80% or higher incapacity, the amount increases by 50%. The allowance is tax-free and protected from garnishment.

Important Note: The official decision on the adjustment is expected to be published in the Government Gazette in the coming days. Once available, the article will be updated with full details and the official Gazette reference.

This increase on the Constant Attendance Allowance, forms part of the broader adjustment of social welfare allowances for 2026, confirming the commitment to support pensioners with higher self-care needs and ensure a dignified standard of living.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Continuing the Journey: Online Group Sessions for Mental Health and Nutrition – Third Cycle with Kapa3 and the LB.H.Sc

Following the warm response to the second cycle of meetings (see the related article here ), focusing on Nutritional Guidance and Experiential Psychological Support, Kapa3 and the Laboratory of Basic Health Sciences (LB.H.Sc), Department of Nursing University of Peloponnese are delighted to continue their collaboration with a third series of online group sessions for mental health and nutrition, dedicated to the holistic care of body and mind, designed for people living with cancer and their caregivers.

In this third cycle, mental health and nutrition are approached as two complementary sides of the same care.

The mental health sessions help participants recognize and manage challenging emotions such as anxiety, fear, sadness, or guilt, strengthen resilience, and cultivate a deeper connection with themselves and others.

The nutrition sessions explore how mindful and balanced eating can support the body, improve energy and mood, and become a meaningful act of self-care. Food is not only a necessity but also a way to nurture the body, mind, and spirit.

Program of Online Sessions for Mental Health and Nutrition & Themes

  • Saturday, February 28, 2026, 17:30–19:00
    Myths and truths about “anti-cancer” diets. How to evaluate nutritional information and avoid risky practices.

  • Saturday, March 14, 2026, 17:30–19:00
    Stress and uncertainty: practical ways to manage them during treatments and exams.

  • Saturday, March 21, 2026, 17:30–19:00
    Giving space to emotions without being overwhelmed: recognizing and expressing fear, anger, sadness, and guilt.

  • Saturday, March 28, 2026, 17:30–19:00
    Nutritional support during treatment & the role of cachexia.

  • Saturday, April 25, 2026, 17:30–19:00
    Boundaries without guilt: protecting energy and mental resilience.

  • Saturday, May 9, 2026, 17:30–19:00
    Safe cooking practices & kitchen hygiene.

  • Saturday, May 23, 2026, 17:30–19:00
    Family and illness: changes in relationships and ways to support each other.

  • Saturday, June 6, 2026, 17:30–19:00
    The Tree of Life: who I am beyond the illness.

  • Saturday, June 13, 2026, 17:30–19:00
    What gives meaning to life now: discovering small but meaningful elements that sustain us.

Format & Participation

The meetings are held online, based on dialogue, experiential learning, and the sharing of personal experiences. Everyone participates at their own pace, in a warm environment of acceptance and trust. Consistent attendance helps build safety and confidence within the group.

To express your interest or join the first session of the third cycle (Saturday, February 28, 17:30–19:00): [Registration Link]

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Giving Voice to People with Primary Biliary Cholangitis (PBC) in Greece

Promitheas launches MyPBCVoice, an innovative initiative aimed at empowering and supporting people with Primary Biliary Cholangitis (PBC) in Greece. PBC is a rare, chronic autoimmune liver disease with symptoms such as fatigue, itching, abdominal discomfort, and psychological challenges.

MyPBCVoice focuses on patient education, information, and mutual support to improve quality of life. Activities include:

  • Questionnaires to assess patient needs (fill here)
  • A PBC-focused microsite
  • Interactive Facebook community for communication and support (join here)
  • Short videos and vidcasts with patients and experts
  • Online webinars
  • Digital archive of complaints and reports to map access barriers

We encourage everyone to share and promote this initiative to reach more patients and health professionals.

Kapa3 is proud to support initiatives like MyPBCVoice, which empower patients and foster connection and knowledge within the community.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Scientific Seminar: Psychosocial Support after Cancer Treatment and Post-Traumatic Growth

The Psychology Laboratory of INEB/CEST (Institute of Applied Biosciences / CERTH), with the support of the Municipality of Thessaloniki, is organizing on Saturday, 1 November 2025 (10:00–15:00), at the “Manolis Anagnostakis” Hall of the Thessaloniki City Hall, the scientific seminar “Psychosocial Support after Cancer Treatment and Post-Traumatic Growth.”

The event, initiated by the Psychology Laboratory as part of the IC-GROWTH research project, focuses on the psychological and social dimensions of life after cancer treatment, highlighting good practices for care, empowerment, and post-traumatic growth.

The program includes expert presentations and an open discussion with the audience, featuring researchers, healthcare professionals, and representatives from patient associations.

Participation is free, but pre-registration is required through the following form:
Registration Form

This seminar offers a valuable opportunity for learning and sharing experiences on psychosocial support and care after cancer treatment.

Kapa3 supports initiatives that strengthen mental health and quality of life for individuals who have experienced cancer.

Date: Saturday, 1 November 2025
Time: 10:00–15:00
Location: “Manolis Anagnostakis” Hall, Thessaloniki City Hall

Kapa3 at the Patients Summit 2025: A strong voice for cancer patients and their families

The Patients Summit 2025—the annual nationwide meeting organized by the Hellenic Patients Association—was successfully completed with great success. The event has become the leading forum for dialogue and collaboration among patient organizations across Greece. This year’s conference brought together representatives of patient associations, healthcare professionals, and policymakers to strengthen the voice of patients and shape a more humane, participatory, and effective healthcare system.

Participants exchanged experiences, presented best practices, and discussed key issues such as sustainability of patient associations, access to innovative treatments, the use of digital health tools, and patient empowerment in decision-making.

Through thematic panels and interactive workshops, the event highlighted the need for cooperation, transparency, and the use of data to drive targeted solutions with real social impact.

Kapa3 actively participated in the Summit, representing cancer patients and their families. A highlight of its presence was its contribution to the Strategic Workshop: “How do we measure our value?”, where Kapa3 presented its approach and operational philosophy on data collection and utilization as a tool for developing innovative initiatives.

For Kapa3, data collection is a key process in understanding the real needs of its beneficiaries. As emphasized during the session, data analysis—conducted in collaboration with the organization’s biostatistician, Mr. Konstantinos Tzanas—helps Kapa3 design targeted and evidence-based strategies. Continuous evaluation by patients themselves enables the adaptation of services and the development of innovative solutions that have a tangible, positive impact on their lives.

Kapa3’s presence at the Patients Summit 2025 underscored the importance of collaboration, scientific evidence, and collective action. The organization remains committed to amplifying the voice of cancer patients through knowledge, innovation, and transparency—values that can truly transform the patient experience and contribute to a fairer, more humane healthcare system for all.

 

The new OECD report (2025) highlights Greece’s challenges and priorities in cancer

The new OECD report (2025) highlights Greece’s challenges and priorities in cancer, comparing them with other European countries.

Key points:

  • Increased incidence: Greece records ~67,000 new cancer diagnoses and ~36,000 deaths annually (2022 data). By 2050, cases are expected to increase by 36%.
  • Risk factors: Smoking, obesity, poor diet, air pollution, low HPV vaccination coverage.
  • Early diagnosis: There are programs for breast, cervical, and colorectal cancer, but they are not yet sufficiently developed or sustainable beyond 2025.
  • Inequalities in care: Staff shortages, geographical inequalities, high out-of-pocket costs, difficulties in access for vulnerable groups.
  • Survivors & caregivers: There is no organized strategy for the quality of life of survivors, while caregivers are overburdened. The “right to be forgotten” does not yet apply in Greece.
  • Data & policy: Until recently, there was no national cancer registry. Greece does not yet have a comprehensive National Cancer Plan, unlike many other European countries.

Conclusion:
Greece is called upon to:

– strengthen prevention and population-based screening,

– reduce inequalities in access,

– support survivors and caregivers,

– and develop a holistic national cancer plan with clear targets and evaluation.

The report clearly shows that the country needs greater investment, better organization, and integration of actions into European planning.

See the report in detail here  22087cfa-en (1)

The main points are given in the file below by the Kapa3 team. OOSA 2025 REPORT

It’s never been more important to focus on cancer prevention

With an ageing population, cancer cases predicted to increase from 17 million to 30 million by 2040 and rising levels of overweight and obesity, it’s never been more important to focus on cancer prevention. Over 40% of cancers could be prevented if we all lived healthy lifestyles, including maintaining a healthy weight, being physically active and eating a healthy diet.

But what does this mean in practice? Every day we’re bombarded with information about what’s healthy and what isn’t. It can be confusing and seem contradictory: what’s missing is the context – how do all the disparate pieces fit together to make a coherent picture?

That’s where our Global Cancer Update Programme, formerly known as the Continuous Update Project, comes in. This huge undertaking pulls the puzzle pieces together to show how what we eat, what we weigh and how active we are all affect our risk of cancer. The Expert Paneloverseeing the process then use that information to develop Recommendations for Cancer Prevention.

A while back I wrote about how this work was moving into a new and exciting phase of development. This new phase has now started and the programme has changed in a number of ways. It’s more:

  • targeted – looking at specific research questions such as early life exposures and their impact on cancer risk later in life.
  • collaborative – to increase the reach and scope of the work a number of collaborations with leading international research groups will take place that focus on specific areas such as dietary patterns and the life course.
  • efficient – we are shifting from reviewing all risk factors for every cancer to systematically scanning the evidence to identify which topics are likely to be the most fruitful areas of detailed study. Integrating more automation into the review process will be central to this.
  • inclusive – in addition to looking at cancer prevention, the work will expand to encompass cancer survivors. With improved diagnosis and treatment the good news is that there is a growing population of people living with and beyond cancer. The Global Cancer Update Programme will help us to understand how diet, nutrition and physical activity can improve long-term health and prolong survival after a cancer diagnosis.

There are four major themes to the work:

1. Cancer incidence

Looking at how a wide range of factors relating to diet, nutrition and physical activity as well as patterns of diet and lifestyle can affect cancer risk – either through decreasing risk or increasing it.

2. Cancer survivors

Focusing on the impact of diet, nutrition and physical activity on long-term health (cancer and non-cancer related morbidity, mortality and quality of life) after a cancer diagnosis. As part of this, we will look to determine for the first time the impact of diet, nutrition and physical activity on childhood cancer survivors.

3. Cancer mechanisms

Understanding the biological processes that underpin the links between diet, nutrition and physical activity and cancer.

4. Obesity

Ensuring previous work in relation to overweight and obesity remains up to date, given its critical role in increasing the risk of many cancer types. In addition, we will explore whether more specific guidance can be made for preventing obesity in adulthood and early life.

This comprehensive programme of work will allow us to look more deeply at how diet, nutrition and physical activity affect cancer risk and survival. In the next few years, the Global Cancer Update Programme will enable a more sophisticated understanding, with a more personalised approach to cancer prevention and survival than ever before.

Find out more about our Global Cancer Update Programme