Category: Healthcare accessibility

New Disability Benefits Registry: What’s Changing and How It Will Make Life Easier for Citizens and People with Disabilities.

As part of the digital transformation of social care, the joint ministerial decision on the establishment, maintenance, and operation of the “Disability Benefits Registry.”

This new digital tool on the National Disability Portal promises to put an end to the bureaucracy and the fragmentation of information that both people with disabilities and their families face on a daily basis.

A government-wide initiative.
The scope and significance of this initiative are underscored by the fact that the decision was signed by the overwhelming majority of government members—ranging from the Ministries of Finance, Health, and Labor, all the way to the Ministries of Education, Infrastructure & Transportation, Environment, and Digital Governance. This broad consensus highlights that benefits for people with disabilities are not limited to financial allowances alone, but extend to tax exemptions, transportation assistance, educational
facilities, social services, and special provisions across the entire public sector.

What is the Disability Benefits Registry?

The Registry is a specialized subsystem of the National Disability Portal. Its purpose is to collect, record, and transparently document all accommodations, allowances, benefits, and services to which people with disabilities or their related individuals are entitled.

What does the documentation of each benefit include?

For each available benefit or accommodation, the Registry will document the following in a standardized and clear manner:
• Title & Description: the distinctive title and brief description of the benefit.
• Legal Framework & Competent Authorities: the applicable provisions and the competent agencies
responsible for awarding or granting the benefit.
• Eligibility Requirements: the disability-related and other requirements for receiving the benefit.
• Financial Details & Frequency: the frequency and monetary value (exact amount or range), provided
that it is quantified in monetary terms.
• Application Process: detailed instructions for submitting the application and a direct link to the National Registry of Administrative Procedures “MITOS.”

Who is the Operating Agency, and what are the agencies’ obligations?

The Organization for Welfare Benefits and Social Solidarity (OPEKA) is designated as the operating agency for the Registry. It is responsible for ensuring continuous operation, maintaining the system, verifying the accuracy of entries, and issuing access credentials.
With regard to data entry personnel and data updates, each competent Ministry, Agency, and Municipality shall designate authorized “Data Entry Personnel”; such designations must be made within 10 days of publication.

They are required to complete the initial registration of benefits within one (1) month of the
decision’s publication, to immediately update the system in the event of changes or new benefits, and to annually verify the accuracy of the data.

Public Access and Information.

One of the most significant benefits of the new regulatory framework is that all information in the registry is public and accessible to everyone via the Internet. This provides immediate, accurate, and comprehensive information to those interested, without requiring them to travel or contact multiple public agencies—a process that often causes considerable inconvenience to thousands of people.

The creation of the Disability Benefits Registry is a positive step toward ensuring equal access to information and reducing bureaucratic burdens.

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

“Myrto” under Scientific Evaluation: Transparency, Evidence and Human Oversight in Social Navigation for Oncology Patients

The first closed scientific testing workshop of the Digital Health and Social Rights Navigator has been completed

Athens, 6 July 2026

The first closed scientific testing and evaluation workshop of “Myrto”, the Digital Health and Social Rights Navigator developed by the Cancer Patient Guidance Centre – Kapa3, was successfully completed.

The workshop was organised by the Cancer Patient Guidance Centre – Kapa3, with the support of René Descartes – Cnam College and the participation of SimasiaAI. It functioned as a dynamic scientific co-design workshop, bringing together specialised professionals from the fields of healthcare, social care, information technology and personal data protection.

The process was closed and strictly experimental in nature and did not constitute a public presentation of a completed product. Its purpose was to evaluate the behaviour of the application through hypothetical and fully anonymised scenarios, to record correct responses and areas requiring improvement, and to use expert feedback for the next phase of development.

The project “Myrto – Health and Social Rights Navigator” is being developed as a knowledge-based digital social navigation system, guided by the principles of explainable, transparent and human-centred Artificial Intelligence.

Its aim is to transform complex legal, administrative and social information into clear, evidence-based and practically useful guidance for oncology patients, caregivers and citizens.

“Myrto” does not replace professional social, legal, medical or clinical judgement. It operates as a supportive information and navigation tool, with clearly defined functional boundaries, human oversight and the possibility of referral to the competent services and professionals of Kapa3.

The programme is implemented with the support of the TIMA Charitable Foundation.

From Information to Understandable Knowledge

During the workshop, the need that led to the creation of “Myrto” was presented, along with the real barriers faced by patients and caregivers when seeking information on social rights, benefits and administrative procedures.

Particular emphasis was placed on addressing digital and informational exclusion. “Myrto” is designed to transform fragmented and often difficult-to-understand information into simple, structured and comprehensible guidance.

A Thematically Specialised and Curated Knowledge Base

The project’s technical partner, SimasiaAI, presented the operation of the application and the architecture used for information retrieval and synthesis.

“Myrto” uses a hybrid search mechanism that combines text retrieval and semantic search techniques, with the aim of identifying the information most relevant to the user’s question. The application operates on a thematically specialised and curated knowledge base.

A central element of its design is the traceability of information, namely the ability to link an answer to the source on which it is based. The use of validated sources reduces the risk of unsupported responses and enables the identification, review and correction of issues through a process of continuous maintenance, regular updating and adaptation to evolving guidelines and regulatory requirements.

Explainability and Human-Understandable Answers

The evaluation did not focus only on whether “Myrto” retrieves the correct information, but also on whether it can present that information in a clear, understandable and conceptually coherent way.

This approach strengthens trust, responsible use of the tool and the meaningful empowerment of citizens through a response-generation system that supports a transparent, evidence-based and human-supervised knowledge ecosystem, in which every piece of information is understandable, verifiable and connected to its source.

Data Protection and Compliance by Design

Personal data protection and regulatory compliance are embedded from the design stage of the application, in accordance with the principles of data protection by default and by design.

During the workshop, only hypothetical or fully anonymised cases were used. Particular emphasis was placed on the principles of data minimisation, anonymisation and secure processing. These principles are directly linked to contemporary requirements for the responsible development of Artificial Intelligence systems, the protection of special categories of data and compliance with the European regulatory framework.

Live Testing of Hypothetical Scenarios

The professionals who participated in the workshop tested the application individually and in small groups, using only hypothetical and fully anonymised cases. The testing was based on an approach that evaluated the behaviour of the system, examining not only whether the final answer was correct, but also whether the overall operation of the application was safe, understandable and appropriate for the specific request.

Disability Certification through KEPA

In one of the key scenarios, “Myrto” was asked to guide a hypothetical patient who did not know how to start the disability certification procedure through KEPA. The system retrieved the main steps of the process, organised the information in an understandable format and provided relevant references to the sources.

Participants evaluated:

  • the accuracy of the information,
  • the completeness of the steps,
  • the clarity of the language,
  • and the practical usefulness of the answer.

Travel from the Region for Treatment

In a second scenario, the case of an oncology patient who needed to travel from the region to another location for treatment was examined. The application identified relevant categories of socioeconomic support and benefits and presented possible next steps to the user.

The test allowed participants to assess:

  • the correct identification of the request,
  • the connection between different rights and benefits,
  • the completeness of the sources,
  • and the possibility of referral to the appropriate services.

At the same time, cases were also examined in which:

  • the question was unclear or incomplete,
  • the user did not know which right or benefit to look for,
  • clarifying questions were required,
  • medical or personalised legal advice was requested,
  • or immediate human intervention was necessary.

A Continuous Cycle of Scientific Feedback

The meeting concluded with a discussion of the testing results, a review of the technical logs and the presentation of key usage statistics for the application.

The participants’ observations are not treated as isolated comments, but as structured scientific feedback for improvement. In this way, a closed cycle of learning and feedback is created, in which technology, scientific knowledge and the experience of professionals interact continuously.

The continuous involvement of experts and the integration of structured feedback are considered critical for strengthening transparency, reliability and trust in Artificial Intelligence systems used in sensitive fields.

The Interdisciplinary Project Team

The development, scientific documentation and regulatory compliance of “Myrto” are supported by an interdisciplinary team from the fields of health services administration, information technology, personal data protection, language technology and software development. The workshop was attended by:

Evangeli Bista, Co-founder of Kapa3 and Head of Strategic Partnerships; Aristea Archontidou, Industrial Informatics Engineer with postgraduate specialisation in Health Policy and Health Services Planning; Anastasia Vlachopoulou, lawyer and member of the Thessaloniki Bar Association, specialised in personal data protection; Dimitris Papadakis, Co-founder and Sales Manager at SimasiaAI and Project Manager of the “Myrto” project; and Giannis Barous, Co-founder and CTO of SimasiaAI, PhD candidate in Computer Science based in San Francisco, who has undertaken the technical component of the project: how the system identifies the right information, how it connects it with reliable sources and how it provides answers that are evidence-based, useful and safe.

About Kapa3

The Cancer Patient Guidance Centre – Kapa3 is a social support, information and navigation organisation for oncology patients, survivors, caregivers and their families. Its aim is to contribute to equal access to oncology care, social protection and the rights associated with the cancer experience.

Every day, Kapa3 supports people who face not only the disease itself, but also a range of practical, administrative, social and psychosocial challenges. Through personalised social guidance, the organisation helps patients and caregivers learn about their rights, understand available benefits and services, navigate administrative procedures and connect with appropriate support structures.

The main pillars of Kapa3’s work include information on social and insurance rights, support in accessing health and social care services, guidance on benefits and procedures, empowerment of patients and caregivers, and connection with professionals, organisations and communities.

As part of its digital strategy, Kapa3 develops digital empowerment and social navigation tools, such as “Myrto”, the Digital Health and Social Rights Navigator. “Myrto” is designed to transform complex legal, administrative and social information into clear and evidence-based guidance for oncology patients, caregivers and citizens, always with human oversight, transparency and respect for the limits of technology.

Kapa3’s philosophy is based on the principle that care is not limited to medical treatment. It includes access to information, social protection, psychosocial support, dignity, empowerment and the ability of every person to know and claim their rights.

Through collaborations with health and social care professionals, academic and research institutions, civil society organisations, public structures, volunteers and communities, Kapa3 seeks to build bridges between the patient, information, services and real access.

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Mapping the efficiency of cancer care in Greece: findings from the All.Can Greece report

Cancer care efficiency in Greece remains one of the most complex and pressing challenges for the Greek health system — not only in terms of its clinical burden, but also in how care is organized around the patient.

With approximately 63,000 new cancer cases diagnosed annually and more than 32,000 cancer-related deaths each year, Greece faces a steadily increasing oncological burden. Projections suggest that cancer incidence will rise by around 23% by 2040, further intensifying pressure on health services.

Against this backdrop, All.Can Greece has published a landmark report titled “Mapping the Efficiency of Cancer Care in Greece”, based on the pilot implementation of the All.Can Action Guide for Efficient Cancer Care.

Rather than simply describing the current situation, the report aims to measure it — identifying where efficiency is lost across the cancer care pathway and where targeted reforms could make the greatest impact.

Cancer care efficiency in Greece: delays in care delivery

One of the most critical findings of the report relates to delays in the patient journey.

Despite the existence of modern infrastructure and highly specialized oncology centres, significant delays persist between initial suspicion, diagnosis, and the start of treatment.

These delays are not the result of a single bottleneck, but of systemic fragmentation:

  • fragmented referral pathways,
  • limited coordination between levels of care,
  • and the absence of standardized clinical protocols.

A key structural weakness is the lack of systematic monitoring of waiting times and time-to-treatment indicators. As a result, inefficiencies remain partially invisible to the system itself, limiting the ability to implement targeted improvements.

Fragmentation across the care continuum

The report highlights a broader issue of fragmentation in cancer care delivery.

The patient journey from primary care to specialist oncology services is often not clearly structured or consistently coordinated. Referral pathways depend heavily on individual practice rather than standardized national protocols.

A major gap is the absence of structured patient navigation services. In practice, this means that patients and families are often left to navigate a complex system on their own, increasing delays and adding unnecessary psychological burden.

At the same time, multidisciplinary tumor boards represent a positive development, supporting collaborative clinical decision-making across specialties. However, systematic monitoring of their performance remains limited.

The development of Comprehensive Cancer Centers is identified as a promising step forward, although further regulatory strengthening and clearer governance structures are still needed to maximize their impact.

Patient-centered care: progress with remaining gaps

Greece has made notable progress in collecting Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs), reflecting a growing commitment to integrating patient perspectives into care delivery.

However, patients’ access to their own clinical data remains limited, restricting their ability to actively participate in decision-making processes.

In addition, patient education and shared decision-making are not yet systematically embedded across the health system.

Another important gap concerns survivorship care. As cancer survival rates improve, the lack of structured long-term follow-up pathways leaves many patients without continuous support after active treatment ends.

Key policy directions

The report outlines several strategic priorities for improving cancer care efficiency in Greece:

  • Development of a comprehensive national cancer strategy with clear targets and governance mechanisms
  • Strengthening coordination across all levels of care
  • Implementation of standardized clinical pathways with defined time-to-treatment and quality indicators
  • Investment in oncology workforce capacity, particularly in shortage specialties
  • Establishment of structured patient navigation programmes
  • Acceleration of Comprehensive Cancer Center development
  • Systematic use of health data for monitoring performance and accountability
  • Greater patient engagement through PROMs, PREMs, and shared decision-making

Conclusion: a system with strong foundations but limited integration

Greece has many of the essential building blocks for a high-performing cancer care system — including infrastructure, clinical expertise, and emerging digital health capabilities.

However, the key challenge lies not in the existence of these components, but in their integration.

The All.Can Greece report highlights a system that is still operating in silos: strong individual elements that do not yet function as a fully connected care pathway.

In oncology, this lack of integration is not merely an organizational issue. It directly affects timeliness, patient experience, and ultimately outcomes.

The opportunity now lies in moving from fragmented capacity to coordinated care — where patients no longer have to bridge the gaps between system components themselves.

Source: Mapping-the-Efficiency-of-Cancer-Care-in-Greece-FINAL

Text/adaptation: Ifiyenia Anastasiou for Kapa3

International Migrants Day – 18 December

Health without borders: equal access to care as a human right

International Migrants Day is observed every year on 18 December, marking the date in 1990 when the United Nations General Assembly adopted the International Convention on the Protection of the Rights of All Migrant Workers and Members of Their Families. The day is not only about population movement, but about fundamental rights, dignity, and—above all—equitable access to health care for all, regardless of origin or legal status.

Global Statistics

Globally, more than 281 million people currently live outside their country of birth, representing approximately 3.6% of the world’s population (International Organization for Migration – World Migration Report).

Migrants and refugees consistently face health inequalities driven by barriers such as language, limited health literacy, insecure housing and employment, and fear of exclusion from health systems. According to the World Health Organization, social determinants of health play a decisive role in access to prevention, early diagnosis and treatment, resulting in poorer health outcomes for migrant populations.

These inequalities are further compounded among particularly vulnerable groups, including children and young people, women, and individuals without stable legal status. In cases of serious or chronic illness—such as cancer—delayed diagnosis, interruptions in treatment and lack of psychosocial support can have a profound impact on disease outcomes and quality of life.

Situation in Greece

Within the Greek context, the country continues to serve as both a host and transit point for migrants and refugees. According to data from Eurostat and the Hellenic Statistical Authority, a significant proportion of the population residing in Greece consists of third-country nationals, while access to comprehensive health services remains uneven, particularly for young people and individuals with increased care needs. Despite existing legal provisions, practical barriers persist in prevention, continuity of care and psychosocial support.

In oncology, these challenges become even more pronounced. Cancer does not discriminate, yet access to care is often shaped by social and economic factors. The need for culturally sensitive, accessible and continuous health services is critical to ensure that no person is left unsupported when facing a cancer diagnosis.

In this context, Kapa3 has long worked to highlight social inequalities in health and to promote holistic cancer care for all people, regardless of background. In 2024, a targeted support initiative for refugees and migrants living with cancer was implemented through the programme “Cancer May Control your Body for a While, But Not Your Soul”, with the support of the King Baudouin Foundation.

The action focused on the regions of Macedonia and Thrace, addressing refugees and migrants in the area, with particular emphasis on the 15–24 age group, aiming to provide immediate primary care assistance and continuous support throughout the course of their treatment.

International Migrants Day is a reminder that health is a human right, not a privilege. Ensuring equitable access to care—especially for those most at risk—is a shared responsibility of institutions, health professionals and society as a whole.

A fair and healthy society is one that leaves no one behind.

Sources:

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

International Universal Health Coverage Day – December 12

International Universal Health Coverage (UHC) Day is observed every year on December 12 to remind us that access to quality, affordable healthcare is a fundamental human right and a cornerstone of just and sustainable societies. The United Nations established this day to strengthen global commitment so that all people, everywhere, can access the health services they need without financial hardship. (WHO)

Statistics

Universal health coverage is not just a goal. It is a central element of the United Nations  Sustainable Development Goals for 2030. Despite progress in recent decades, the reality remains challenging. Approximately 4.6 billion people worldwide still lack access to essential health services. At the same time, 2.1 billion face financial hardship in accessing care. Finally 1.6 billion pushed into poverty due to health expenditures.

These statistics demonstrate that universal coverage remains far from fully achieved, with significant inequalities between countries and within societies: poorer populations, rural residents, people with lower education, and other vulnerable groups face much greater barriers to healthcare. (WHO – World Bank Report)

Situation in Greece

In Greece, although universal coverage exists in principle through the National Health System, access to care is not always equitable or complete. Only a small percentage of citizens report high satisfaction with service availability, while around 12.1% of people have unmet healthcare needs, a rate significantly higher than the OECD average. (OECD)

Out-of-pocket healthcare expenses particularly affect lower-income households. Nearly nearly 10% of households facing catastrophic health spending, forcing families to sacrifice essentials such as food or housing. (WHO – Health Care Greece)

These inequalities are not just numbers—they have real consequences for quality of life. For cancer patients, universal coverage means timely diagnosis, access to treatments, continuous monitoring, psychosocial support, and palliative care. Lack of comprehensive, accessible care can worsen disease outcomes and increase psychological and financial burden for patients and their families.

At Kapa3, we strive to ensure that no cancer patient or their loved ones feel alone. Through educational initiatives, experiential programs, psychosocial support, and guidance materials, we advocate for healthcare access that respects human dignity, life, and real needs.

Universal Health Coverage Day is not just a date—it is a call to action for broader access, reduced inequalities, and genuine support for all. Together, we can make meaningful change.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

October 17 – International Day for the Eradication of Poverty

October 17 has been established by the United Nations as the International Day for the Eradication of Poverty, a day dedicated to raising awareness and taking action against a phenomenon that continues to affect millions of people worldwide. The observance began in 1987, when thousands of citizens gathered in Paris to honor the victims of extreme poverty and advocate for a more just and equitable future for all.

Poverty is not only about lack of income—it affects access to education, healthcare, housing, employment, and mental well-being. For people living with serious or chronic illnesses, such as cancer, financial insecurity further complicates daily life, limiting access to treatments, medications, and supportive services.

According to the latest Hellenic Statistical Authority data (Income and Living Conditions Survey 2024), 26.9% of Greece’s population—approximately 2.74 million people—is at risk of poverty or social exclusion, an increase compared to the previous year. Greece ranks second in the EU after Bulgaria, highlighting the difficulty households face in coping with inflation, the energy crisis, and limited social protection.

Globally, according to the United Nations World Social Report 2025, over 690 million people live in extreme poverty (less than $2.15 per day), while 1.1 billion experience multidimensional poverty, lacking access to healthcare, education, and a decent standard of living. Social and economic crises, combined with climate change, disproportionately impact vulnerable households, increasing inequalities and reducing opportunities for stable recovery.

The International Day for the Eradication of Poverty also emphasizes the role of communities and decision-makers in creating inclusive systems. Addressing social determinants of health, ensuring access to essential services, and empowering vulnerable groups are critical to reducing inequalities and improving quality of life. By working together—health professionals, social organizations, and civil society—we can create a world where those facing illness are not further burdened by poverty.

At Kapa3, we firmly believe that access to quality healthcare and decent living conditions are fundamental human rights. Poverty and health are interconnected—the one can easily amplify or worsen the other. Through awareness, empowerment, and social support initiatives, we strive to contribute to a society where no one is deprived of the care they deserve, regardless of income. 

Read more: https://www.un.org/en/observances/day-for-eradicating-poverty

https://www.statistics.gr/documents/20181/3d7d2251-2302-9023-5280-a1d962c3a7a5

ESMO Highlights the Importance of Prioritising the Fight Against Cancer in the EU4Health 2026 Work Programme

The European Society for Medical Oncology (ESMO) submitted its response to the public consultation on the 2026 Annual Work Programme of EU4Health, emphasising the urgent need to make cancer a top priority across Europe. With the number of cancer cases projected to rise from over 4.47 million in 2022 to 5.48 million in 2045, ESMO calls for dedicated EU4Health actions to address this growing challenge.

Among the key areas highlighted by ESMO is the importance of improving accessibility to healthcare based on current medical knowledge and international standards, while adequately monitoring the quality of healthcare services to prevent inequalities across the EU. This approach aligns closely with the mission and activities of Kapa3, which aims to ensure equitable access to health support for all, particularly young adults affected by cancer.

Through its initiatives, Kapa3 actively promotes awareness, supports access to quality healthcare, and works to reduce disparities in health services, reflecting the same commitment emphasised by ESMO in its response to EU4Health.

Read more on ESMO’s response, here