patient empowerment Archives

Kapa3 Report for the First Half of 2026

As the first half of 2026 draws to a close, the Cancer Patient Guidance Center (Kapa3) continues to systematically expand its reach, thereby strengthening the system of care and information for both cancer patients and their caregivers.

During the first half of the year, the organization implemented a series of high-level initiatives and forged partnerships at both the national and European levels, thereby solidifying its position.

The organization’s activities got off to a strong start in January with the welcome of its European partners in the MELODIC Consortium project at a productive two-day workshop (January 19–20), hosted by the School of Public Health at the University of West Attica.

In early February, on the occasion of World Cancer Day, Kapa3 played an active role as a partner of René Descartes College in the webinar “Cancer, Patient Navigation & Health Management: From Prevention to Life Coordination.”

At the same time, significant initiatives were carried out in the local community, such as the “Knowledge Workshop in Megara—From Prevention to Life Coordination,” held on February 8 in collaboration with the Municipality of Megara.

In the area of scientific programs, the Cancer Patient Guidance Center, in collaboration with the Laboratory of Basic Health Sciences (EBEY) of the Department of Nursing at the University of the Peloponnese (PA.PEL), launched a series of online meetings running from February through June, focusing on mental health and nutrition.

The month concluded with the organization’s participation in the international conference “Mapping the Unknown in Oncology – From Hospitals to Homes, Mapping the Future of Oncology Care,” held on February 27 and 28.

March marked a strengthening of Kapa3’s “digital presence” with its official membership in the Hellenic Digital Health Cluster (HDHC), a strategic move aimed at linking healthcare with technological advancements. As an extension of this collaboration, the organization participated in a closed-door members’ meeting as part of Athens Digital Health Week 2026.

On March 11, representatives of the organization attended the diaNEOsis event “Facing the Challenge of Artificial Intelligence” at the Lighthouse of the Stavros Niarchos Foundation Cultural Center, while in the middle of the month, Kapa 3 played a prominent role in the scientific conference “Cancer in 2026: Challenges and Disruptions.” Furthermore, on March 19–20, the organization was represented at the 6th Western Macedonia Nursing Conference on the theme “Innovation and Empathy: Balancing Technology with Human Contact in Nursing.”

In parallel, the organization’s co-founder, Ms. Evangelia Bista, gave an interview on the show “All About Health” on Dion TV—which covered a variety of topics related to health, nutrition, autoimmune diseases, and more—the implementation of the free, 8-week Melodic pilot educational program began.

Kapa3’s scientific credibility was reaffirmed by the publication of the research paper “Person-First or Disease-First? Language Choices in Cancer Communication” in the journal *Nursing Reports*, as well as by Kapa3’s participation in the European project associated with Melodic, titled: “Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey,” which was also published; the organization also participated in the MELODIC Online Symposium 2026 on April 24, contributing to the dissemination of results in Greece.

May was marked by a strong outward focus and new collaborations, as the organization joined the European program Service Learning 2: 0:CoLab, was selected as one of six nonprofit organizations to receive financial support from the Alpha Bank-Match For Good initiative, and began its collaboration with the USTEP INSTITUTE.

At the same time, an awareness campaign was held in Soufli to highlight Kapa3’s activities; Ms. Bista gave an interview to iatronet.gr, and representatives of the organization participated in an international conference at the Medical School of the University of Coimbra in Portugal

Within the organization, the new Psychological Support team was established with great enthusiasm, while on the social media front, the Kapa3 team won six medals at the 4th Vouliagmeni Summer Swim.

As the semester came to a close, June began with the signing of an official cooperation agreement with the Department of Occupational Therapy at the University of West Attica, while partnerships were solidified with the non-profit organization “Karkinaki” and the PRAXI Network of the Foundation for Research and Technology – Hellas (FORTH) to strengthen international networking and access to modern funding tools.

Having completed five years of uninterrupted service in supporting cancer patients through digital guidance, Kapa 3 is entering a new era with the development of the innovative “Myrto” project. This is a pioneering Social Artificial Intelligence (Social AI) initiative in the field of care for cancer patients in Greece. “Myrto” will function as an advanced digital health and rights navigator (Patient Empowerment e-Navigator) for patients, caregivers, and healthcare professionals—a project for which the strategic partnership with SimasiaAi for its co-development was crucial. Finally, the first closed workshop of the MYRTO Al Health Innovation Lab was held for the “Myrto” application, with the support of René Descartes College.

The results of this first half-year clearly demonstrate that Kapa 3 serves as a link connecting innovation, scientific research, and the digital age in the field of oncology care. By combining academic knowledge, European partnerships, and technological development, Kappa 3 transforms every challenge into sustainable, people-centered solutions. Partnerships with leading organizations, investors, and partners who share the same values of social responsibility are also essential to realizing this vision, ensuring that every patient has immediate, reliable, and equitable access to healthcare and their rights.

The KAPA3 team stands steadfastly by patients and caregivers to provide guidance and safeguard their rights. For any information or support, please feel free to contact us.

You can contact the KAPA3 team

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Phone Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

Information about the actions of Kapa3 in Soufli. An initiative of the Branch and the Social Service of the Municipality of Soufli

On Friday, May 29, 2026, a working meeting was held at the offices of the Evros Branch of the Hellenic Anti-Cancer Society in Soufli, at the initiative of the Branch and the Social Service of the Municipality of Soufli, with the aim of strengthening the support of oncology patients and the cooperation between local bodies.

The meeting was attended by the President of the Evros Branch of the Hellenic Anti-Cancer Society, Ms. Theodora Rokka, the Head of the Social Service of the Municipality of Soufli, Mr. Marinos Mantziaras, Ms. Aristea Archontidou from KAPA3, social workers of the Municipality of Soufli, as well as health professionals of the Soufli Health Center.

Particularly important was the presence of Ms. Kalliopi Kafetzaki, a social worker at the Day Center for Children, Adolescents and Young Adults with Neoplastic Diseases of the Hellenic Anti-Cancer Society, who presented the services of the Day Center and the hostel in Athens, as well as the challenges faced by oncology patients in the region.

The actions of KAPA3 were also presented, while information was provided on digital tools that can facilitate citizens’ access to health services, such as the Health Insurance Fund, the National Health Insurance Fund and the myHealth application. At the same time, the development of “Myrto”, a digital assistant that will support patients, caregivers and health professionals in searching for information and services, was discussed. During the discussion, issues related to inequalities in access to health services in the region, as well as the difficulties that patients encounter in administrative procedures and social benefits, were highlighted.

The meeting concluded with a joint commitment to continue cooperation and develop initiatives that will strengthen the support of oncology patients and their families in the Evros region. We are particularly happy about the presence of Kappa3 throughout Greece and for the trust of social services in our Organization. We remain faithful to the vision and mission of the Organization. For anything you need, please do not hesitate to contact us. The Kappa3 team is constantly by the patients and caregivers’ side to guide and ensure their rights. For any information or support, you can contact us.

You can contact the Kapa3 team at 13 Kostis Palamas, 3rd floor (Opening hours: 09:00 – 17:00). Contact numbers: 210 5221424 & 6906265170. Email: info@kapa3.gr

There is an urgent need for psychological support for cancer patients. The KAPA3 team explains and advocates for this

There is an urgent need for psychological support for cancer patients. The KAPA3 team explains and advocates for this

Every day, healthcare professionals are called upon to communicate with, assess, and, above all, support people who are going through cancer.

Does cancer affect only physical health, or does it also have a profound impact on a person’s psychological, social, and emotional life? The needs that arise during the course of the illness are many and are often accompanied by the question: “What does the disease really bring to a person’s life?” A cancer diagnosis brings about significant changes in daily life, relationships, social roles, and the way a person perceives themselves and their future.

A cancer diagnosis is an extremely stressful event, often accompanied by feelings of fear, uncertainty, anxiety, and grief. At the same time, patients are called upon to cope with the effects of treatments such as chemotherapy, radiation therapy, and surgery. Changes in physical appearance, fatigue, pain, and limitations in daily functioning can significantly affect their self-esteem and quality of life (Pitman et al., 2018).

Uncertainty regarding the course of the disease and the likelihood of relapse are significant sources of psychological distress. The extent of this phenomenon is reflected in the meta-analysis by Mitchell et al. (2011), which included 94 studies and more than 14,000 cancer patients. According to the results, 16.3% of patients met the diagnostic criteria for major depressive disorder, 10.3% for anxiety disorder, and 19.2% for adjustment disorder.

These data highlight that a significant proportion of cancer patients experience severe psychological distress, a fact that underscores the need for specialized psychological support.

Furthermore, cancer often affects an individual’s family and social relationships. The patient may be forced to limit or abandon professional and social roles, while the family is called upon to adapt to new demands and responsibilities, experiencing significant psychological strain of their own (Northouse et al., 2010).

Cancer patients have an increased need for psychological support, as the disease significantly affects their psychological, social, and emotional functioning. Fear of the disease’s progression, uncertainty about the future, the side effects of treatments, and the possibility of recurrence are major sources of psychological distress. At the same time, the experience of cancer is often accompanied by feelings of loss of control, fear, and emotional distress. The contemporary psycho-oncology literature recognizes that the early identification of psychosocial needs and the provision of appropriate interventions are an integral part of holistic oncology care (Caruso & Breitbart, 2020; Mehnert-Theuerkauf et al., 2023).

Within this context, psychological support is a key component of holistic care for cancer patients. Holistic care refers to a comprehensive approach that takes into account not only the patient’s physical needs but also the psychological, social, and spiritual dimensions of their health. Counseling, psychotherapy, and support groups provide a safe space for expressing emotions and building psychological resilience (National Comprehensive Cancer Network [NCCN], 2024).

At the same time, they help improve adherence to treatment, strengthen cooperation with healthcare professionals, and maintain quality of life. As Holland and Weiss (2008) argue, psychosocial care is an integral part of high-quality oncology care, from diagnosis through the survival phase.

In conclusion, the experience of cancer is a complex and multidimensional process that affects every aspect of a person’s life. Managing the disease is not limited solely to physical treatment but requires the recognition and addressing of the psychological and social needs that arise at every stage. Providing timely and systematic psychological support can empower the patient, improve their ability to adapt to the demands of treatment, and contribute significantly to maintaining their dignity, hope, and quality of life. Psychological care should be regarded as a fundamental right of every cancer patient and as an integral part of modern oncology practice.

Coordination of Psychological and Social Services within the Framework of Psychosocial Care

The care of cancer patients is not limited to treating the disease and its physical effects. The needs that arise during treatment are often multifaceted and concern both the individual’s psychological well-being and practical, social, or financial issues that affect their daily life.

For this reason, effective support requires close collaboration among different healthcare professionals within a shared framework of psychosocial care. Within this framework, the Social Services and Psychological Services operate in a complementary manner, with the shared goal of enhancing the individual’s quality of life and overall adjustment to the experience of illness.

A client’s contact with the service can begin either through the Social Services Department or the Psychological Services Department. During the initial contact, an assessment of the client’s needs is conducted, and information is provided about all available support services.

Regardless of the initial request, the beneficiary is informed about the option of receiving psychological support, as the experience of cancer is often accompanied by heightened psycho-emotional needs that are not always apparent from the first contact. With their consent, an internal referral can be made to the Psychological Services Department for further evaluation and support.

The Psychological Services Department is responsible for the initial assessment, obtaining informed consent, and creating an individual support file. A structured series of sessions is then provided, tailored to the beneficiary’s needs. During this process, issues may arise related to social benefits, employment challenges, financial burdens, disability certification procedures, or other practical needs that significantly impact the daily functioning of the individual and their family. In such cases, and always with the beneficiary’s consent, cooperation with Social Services is initiated, and Social Services assumes responsibility for managing the relevant social and administrative matters.

The collaboration between the two services enables the timely identification of new needs and ensures continuity of care. Social Services focuses on the practical, social, and administrative aspects of support, while Psychological Services focuses on psychological resilience, emotional processing of the experience of the disease, and adaptation to the changes it brings about. The collaboration between the two services allows for a more comprehensive response to the needs of the cancer patient. In this way, a unified framework of psychosocial care is established that provides substantial support to the patient and their support network at all stages of their journey with the disease.

At the same time, regular communication and coordination between the two services allow for the timely identification of new needs and ensure continuity of care. The Social Services Department focuses on the practical, social, and administrative aspects of support, while the Psychological Services Department focuses on psychological resilience, emotional processing of the experience of the disease, and adaptation to the changes it brings about. The collaboration between the two services enables a more comprehensive response to the needs of cancer patients. In this way, a unified framework of psychosocial care is established that provides substantial support to the patient and their support network at all stages of their journey with the disease.

Kapa3 – Cancer Patient Guidance Center

Together, with knowledge, care, and a human touch.

https://www.kapa3.gr/epikoinonia/ by typing “Psychological Support” in the Message box

OR CALL

2105221424 – info@kapa3.gr

Athens: 13 Kostis Palamas Street, 3rd floor, (9:00 AM – 5:00 PM) 6982003282

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Kapa3 in the First Half of March: Actions, Collaborations, and Updates for Oncology Patients

During the first half of March, Kapa3 continued to highlight important topics concerning the oncology patient support, rights, and daily lives through initiatives, collaborations, and informational activities.

Efforts focused both on strengthening access to information and services, and on promoting practical and digital tools that make patients’ daily lives easier.

In an environment where patients’ needs remain complex and constantly evolving, reliable information, enhanced collaboration among stakeholders, and the promotion of holistic care are especially important.

Below is a summary of the main developments from the month.

Collaborations

Key partnerships were strengthened with the Sarcoma Fighters Patients Association, the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS), and Doctor Homie, aiming to enhance information, support, and quality care for patients.

Actions & Presentations

Kapa3 participated in the scientific meeting “Cancer in 2026: Challenges and Breakthroughs,” emphasizing the pivotal role of supportive care for oncology patients, while also presenting recent developments addressing their evolving needs. Kapa3 also attented the event “Facing the Challenge of Artificial Intelligence” as we remain focused on supporting dialogue around the opportunities and challenges of A.I.

Patient Rights

Supporting oncology patients remains a central goal of our initiatives. Focus was given to updates on the 2026 constant attendance allowance and improved digital access for patients to their test results.

Digital Health & Research

A new European Commission report highlights the critical role of digital health technologies in transforming healthcare systems, outlining both opportunities and challenges for the future of care.

Awareness

March is Colorectal Cancer Awareness Month, reminding everyone of the importance of prevention and early detection.

Oncology patient support remains our top priority, and we continue to monitor developments — more news will follow.

Kapa3 Supports Digital Innovation for Oncology Patients at Morning Health Talks

On Thursday, 4 December 2025, the second Morning Health Talk titled “Health Data for Innovation in Greece: Building a Stronger Digital Health Ecosystem” took place at the National Documentation Centre (EKT) in Athens. The event was held in a hybrid format (in-person and online participation), bringing together health professionals, researchers, policymakers and technology partners from Greece and abroad.

During the event, international and Greek experiences were presented on the management and use of health data, digital transformation, and best practices for leveraging data to strengthen the country’s digital health ecosystem.

Among the speakers were:

Dr Athanasios Batagiannis, General Director, 3-psi
Georgios Dimitriou, Cluster Manager, Hellenic Digital Health Cluster
Dr Ioannis Koumpouros, Director of DigInHealth, University of West Attica
Elpida Fotiadou, Head of eHealth, IDIKA

With the contribution of the distinguished speakers, key issues were discussed, including infrastructure interoperability, the need for reliable data, bureaucratic barriers, gaps in digital literacy, the development of focused platforms and processes, faster care pathways and needs assessment, the reduction of information fragmentation, and the development of human-centred digital solutions with practical value and social acceptance.

KAPA3 presented its strategic approach, focusing on standardised procedures, data quality improvement, interdisciplinarity, and the use of digital tools to support people living with cancer, as well as on guidance, interaction, empowerment and patient participation in data utilisation processes. At every step, KAPA3 addresses key challenges such as data fragmentation, stakeholder collaboration and human-centred digital solutions—issues that are also summarised in the Good Practices Guide developed within the eHealth4Cancer project.

In summary, the main points highlighted were:

A human-centred approach and the application of good practices to ensure the usability and social acceptance of digital solutions.
Strengthening collaboration between healthcare professionals, researchers and citizens to develop reliable and functional digital infrastructures.
The need for systematic scientific research to address challenges such as skills gaps, limited access and data fragmentation.

The event provided an important opportunity for networking and knowledge exchange, promoting the alignment of digital health infrastructures with citizens’ needs and reinforcing KAPA3’s role as an active contributor to the digital transformation of healthcare in Greece.

Read the full Morning Health Talks 2025 press release here and view photos from the event.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Rethinking Solidarity in Health – A European Perspective

Health Systems Under Pressure in Europe

Across Europe, health systems face mounting pressures. Workforce shortages, uneven access, and entrenched inequalities leave many citizens underserved, and public trust in institutions is eroding. The pandemic briefly rekindled a sense of shared responsibility, yet shifting geopolitical tensions and economic priorities have since drawn attention away from collective well-being. This context raises a vital question: what does solidarity in health mean in Europe today? This context was highlighted at the European Health Forum Gastein (EHFG) 2025, where policymakers, civil society representatives, and health experts discussed the challenges and opportunities for solidarity in health across Europe.

Health is not merely a commodity; it is the foundation for social cohesion and long-term resilience. Investing in preventive care, mental health, and social support is not a trade-off with economic competitiveness — it is a prerequisite. In the European Union alone, premature deaths in 2022 accounted for 2.4 million lost work-years, highlighting the societal and economic consequences of insufficient early action. Across member states, access to care remains uneven, chronic diseases are on the rise, and innovations are not uniformly available, leaving vulnerable populations facing overlapping disadvantages.

The Role of Preventive Care and Mental Health

Solidarity in health demands action at every level. Primary and community care serve as the first line of defense, with multidisciplinary teams — including doctors, nurses, psychologists, and social workers — partnering with civil society organisations to reach underserved groups. Examples from Andalusia, Portugal, and Estonia’s e-consultation payment model show how coordinated, person-centred approaches build trust, improve access, and empower citizens. Prevention, early detection, and health literacy must complement innovation, ensuring no one is left behind. In the EU, the average diagnostic delay for asthma is 4.5 years, underlining the need for timely, equitable care.

Digital Health Innovation and Equity

Digital transformation presents both promise and challenge. AI, big data, and digital health tools can enhance early detection and patient monitoring. They also improve system efficiency. However, they risk amplifying bias and mistrust if governance is weak.. Europe’s task is to combine innovation with ethical oversight, embedding transparency, accountability, and accessibility into every design decision. Initiatives like the European Health Data Space (EHDS) aim to unify interoperability, research, and patient empowerment under one framework, giving citizens control over their health data while supporting innovation and equity.

Health systems also intersect with broader social and environmental challenges. Climate change, rising social inequalities, and ageing populations disproportionately affect vulnerable groups, while end-of-life care and rare diseases expose gaps in equity, research, and policy. Across Europe, collaborative solutions — from shared patient pathways to cross-border networks — are essential. Health contributes approximately 10% of EU GDP and 9% of employment, demonstrating its central role in both social and economic stability. Public funding, strategic investment in long-term care, and multi-sector collaboration strengthen resilience and uphold solidarity. Notably, €170 million has been allocated to the EU’s Strategic Research and Innovation Agenda on Health and Climate Change, ensuring vulnerable populations are included in solutions.

Examples of Person-Centred Care in the EU

Ultimately, solidarity in health is not merely about funding or policies; it is a commitment to fairness, inclusivity, and collective responsibility. From innovative care models like Karolinska University Hospital’s “hospital at home” programme to Estonia’s digital solutions, Europe has examples of what works when equity and person-centred design guide decisions. Rebuilding trust and strengthening solidarity requires transparency, engagement with civil society, and measures that demonstrate care in action.

Europe’s social contract in health can be renewed, balancing competitiveness with care. When investments, innovation, and policies are guided by solidarity, the continent can ensure that health becomes the common ground on which trust is restored — measured not in slogans or speeches, but in the well-being of every citizen.

Read the EHFG report here

Text/adaptation: Ifiyenia Anastasiou for Kapa3