June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

Participation in CA21152 – Implementation Network Europe for Cancer Survivorship Care

Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

The Cancer Guidance Center – Kapa3 participated in the INE-CSC 2026 Conference, part of CA21152 – Implementation Network Europe for Cancer Survivorship Care (INE-CSC), held on 25–26 May 2026 at the Faculty of Medicine (Polo III), University of Coimbra, in Coimbra, Portugal.

The conference was held under the theme “The Next Chapter – Empowering Individuals, Families, and Society for Cancer Survivorship & Supportive Care”, highlighting the need for new approaches to cancer survivorship, supportive care and the translation of innovation into real-world impact for people living with and beyond cancer, their families and society.

Kapa3’s presence in Coimbra represents another important step in its European engagement and in its ongoing effort to connect everyday experience in supporting cancer patients in Greece with European knowledge, research, digital innovation and health policy.

A key highlight was the participation in a round table discussion on facilitators and barriers to the implementation of digital health tools in oncology. The discussion was co-organised by Aristea Kyriaki Ladas and Christos Frantzidis and brought together voices from different European countries and organisations, including representatives from Kapa3, Acreditar Portugal, Liga Portuguesa Contra o Cancro, ORCO / Madrid Regional Ministry of Health, as well as participants from Poland, Latvia and the United Kingdom.

Among the participants in the round table were Yannis Kontogiorgis and Despoina Pistiolis from Kapa3, Greece, contributing to the European dialogue on digital health, oncology navigation and the participatory development of solutions that respond to the real needs of patients and caregivers.

One of the key messages of the discussion was that digital innovation in oncology is not only a technological challenge. It is also a matter of policy, implementation, equity, trust and accessibility.

For digital tools to make a meaningful difference in cancer care and survivorship, they cannot remain isolated applications or pilot projects. They need to become part of real care pathways, be supported by appropriate policy environments, connect with interdisciplinary practice and be evaluated in terms of effectiveness, implementation readiness, accessibility, equity, sustainability and value.

The discussion also highlighted that digital tools must be designed around the real needs of patients and survivors, not only around technical possibilities. Accessibility across countries, languages, healthcare systems and levels of digital and health literacy must be built in from the beginning.

The role of patient organisations and cancer support communities was also identified as essential. These organisations can act as a bridge between technological innovation and the everyday reality of people affected by cancer. They understand the questions, barriers, fears and needs that are often not fully captured by formal care systems.

For Kapa3, this participation is directly linked to the development of Myrto, its digital health and rights navigator, designed as a tool for empowerment, guidance and support for cancer patients and their caregivers.

Myrto is not approached as a simple information tool. It is being designed as a participatory intervention built around the real needs of people with lived experience of cancer. It is connected to access to rights, social benefits, services, practical guidance and human escalation whenever needed.

The Coimbra experience strengthened the view that digital health must be human-centred, accessible, trustworthy and integrated into a broader ecosystem of care. Technology can meaningfully support cancer care only when it is designed with participation, trust, clear purpose and an equity-oriented approach.

Cancer survivorship is not only about completing treatment. It is about quality of life, mental health, social reintegration, work, family, everyday life, access to services and the feeling that no person is left alone after diagnosis or treatment.

Through its participation in European networks such as INE-CSC, Kapa3 continues to contribute to the dialogue on more equitable, participatory and person-centred cancer care. Care that uses technology without losing sight of the human being at its centre.

The future of cancer support will not depend only on better digital tools, but on better collaboration between patients, caregivers, healthcare professionals, researchers, technology partners, patient organisations and policymakers.

For Kapa3, this is at the heart of its mission: transforming knowledge into action, technology into support, and the voice of patients into services that respond to their real needs.

More information: INE-CSC – Implementation Network Europe for Cancer Survivorship Care.More information:
https://inecancersurvivorship.com

Person-centred cancer care: a new global report for more sustainable health systems

Cancer continues to place a growing burden on individuals, health systems, and society, making it essential to strengthen person-centred cancer care and rethink how care is delivered. New cancer diagnoses are expected to rise by nearly 77% by 2050, further straining already pressured healthcare systems.

Many countries report limited access to treatments, workforce shortages, and long waiting times as key challenges. In this context, policymakers must rethink how cancer care is delivered, ensuring that limited resources are used effectively while maintaining access to high-quality services.

The report titled “Implementing Person-Centred Cancer Care to Improve Outcomes, Experiences and Efficiency”, published by All.Can International, is based on evidence and studies from 2018–2025. It brings together insights from experts across 11 countries and aims to support policymakers and health systems in redesigning cancer care towards a more person-centred and efficient model.

The report highlights that person-centred cancer care is a practical, high-impact approach that improves patient experience while strengthening the resilience of health systems. It places individuals at the centre of care, taking into account their needs, values, and goals, rather than relying on a one-size-fits-all clinical pathway.

The framework is structured around seven key areas of intervention, with a common goal: better care for patients and more sustainable health systems.

1. Early diagnosis and timely initiation of treatment

Late diagnosis remains a major global challenge. Limited health literacy, low participation in screening programmes, and weaknesses in primary care often lead to delays in treatment.

The report recommends more tailored public information, taking into account health literacy levels and cultural context. It also emphasises the co-design of screening programmes with communities to improve participation and enable earlier diagnosis.

2. Coordinated and multidisciplinary care

Lack of coordination between services leads to delays and unequal care provision. Strengthening multidisciplinary teams and introducing patient navigation can help individuals move more smoothly through the healthcare system and receive more consistent care.

3. Digital tools and system integration

Fragmented data management and limited interoperability between health systems remain major barriers. Developing integrated data infrastructures, national cancer registries, and using technologies such as artificial intelligence can improve efficiency and coordination.

4. Telemedicine and remote care

At the same time, digital health services can reduce geographical barriers and bring care closer to patients. However, investment in infrastructure and training is necessary to ensure equitable access.

The use of wearable health technologies and mobile applications can support continuous monitoring and care beyond hospital settings.

5. Communication and shared decision-making

Effective communication between healthcare professionals and patients remains a critical challenge. Shared decision-making models, the use of patient experience data, and culturally appropriate communication can strengthen trust and improve care quality.

At the same time, involving caregivers in communication processes is essential, as their needs are often overlooked.

6. Supportive care and survivorship

Access to psychosocial and supportive care remains limited in many settings, negatively affecting quality of life. Integrating support services throughout the care pathway is essential, especially as more people live with and beyond cancer.

The report also highlights the importance of advance care planning, which can reduce unnecessary hospitalisations and support patient autonomy.

7. Financial support and access to care

The financial burden of cancer remains a major barrier to accessing care. The report recommends improved reimbursement systems, financial navigation services, and support for indirect costs to reduce financial toxicity for patients and their families.

Person-centred cancer care in Greece

Although the report has a global scope, its findings are highly relevant for countries like Greece. Challenges such as delays in diagnosis, inequalities in access, workforce pressure, and limited system integration reflect real issues within the Greek healthcare system.

In this context, the transition towards more coordinated, digitally supported, and person-centred cancer care becomes particularly important.

Call to action

Therefore, policymakers must urgently embed person-centred care into national cancer strategies. Collaboration with people with lived experience of cancer is essential to designing more equitable, efficient, and sustainable health systems.

Adopting this approach can contribute to earlier diagnosis, improved quality of care, better use of resources, and ultimately more resilient health systems in the face of rising cancer burden.

You can read the full report here: Person-centred-cancer-care-improving-outcomes-experiences-and-efficiency-2

Text/Adaptation: Ifiyenia Anastasiou for Kapa3