Category: Oncology Patient Support

Kapa3 Cancer Patient Support Center and the USTEP Institute announce the launch of their strategic partnership

The Kapa3 Cancer Patient Support Center and the USTEP Institute announce the launch of their strategic partnership, aimed at providing meaningful support to cancer patients and promoting equal opportunities in scientific, social, and educational levels.

The partnership was formalized through the signing of a Memorandum of Understanding, which was signed in Athens on May 26, 2026, by Evangelia Bista, Co-founder and Head of Development and Operations at Kapa3, and Vasileios Stavrou, Co-founder and Scientific Director of the USTEP Institute.

As part of the collaboration, the two organizations will develop joint initiatives that include:

Organizing workshops and conferences focused on patient education, improving the quality of care, and strengthening the relationship of trust between patients and healthcare professionals.

The implementation of information and awareness campaigns on prevention, symptom management, and combating myths and social stigma surrounding cancer.

Collaboration on national and European programs aimed at developing innovative initiatives and actions with a social impact.

Conducting joint research and disseminating the results at the national and European levels.

This partnership reaffirms the two organizations’ commitment to actively contribute to the creation of a more supportive and inclusive environment for people living with cancer, by enhancing access to knowledge, information, and social empowerment.

The Memorandum of Cooperation is valid for one year, with the option to renew upon mutual written agreement by both parties.

 

June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Mapping the efficiency of cancer care in Greece: findings from the All.Can Greece report

Cancer care efficiency in Greece remains one of the most complex and pressing challenges for the Greek health system — not only in terms of its clinical burden, but also in how care is organized around the patient.

With approximately 63,000 new cancer cases diagnosed annually and more than 32,000 cancer-related deaths each year, Greece faces a steadily increasing oncological burden. Projections suggest that cancer incidence will rise by around 23% by 2040, further intensifying pressure on health services.

Against this backdrop, All.Can Greece has published a landmark report titled “Mapping the Efficiency of Cancer Care in Greece”, based on the pilot implementation of the All.Can Action Guide for Efficient Cancer Care.

Rather than simply describing the current situation, the report aims to measure it — identifying where efficiency is lost across the cancer care pathway and where targeted reforms could make the greatest impact.

Cancer care efficiency in Greece: delays in care delivery

One of the most critical findings of the report relates to delays in the patient journey.

Despite the existence of modern infrastructure and highly specialized oncology centres, significant delays persist between initial suspicion, diagnosis, and the start of treatment.

These delays are not the result of a single bottleneck, but of systemic fragmentation:

  • fragmented referral pathways,
  • limited coordination between levels of care,
  • and the absence of standardized clinical protocols.

A key structural weakness is the lack of systematic monitoring of waiting times and time-to-treatment indicators. As a result, inefficiencies remain partially invisible to the system itself, limiting the ability to implement targeted improvements.

Fragmentation across the care continuum

The report highlights a broader issue of fragmentation in cancer care delivery.

The patient journey from primary care to specialist oncology services is often not clearly structured or consistently coordinated. Referral pathways depend heavily on individual practice rather than standardized national protocols.

A major gap is the absence of structured patient navigation services. In practice, this means that patients and families are often left to navigate a complex system on their own, increasing delays and adding unnecessary psychological burden.

At the same time, multidisciplinary tumor boards represent a positive development, supporting collaborative clinical decision-making across specialties. However, systematic monitoring of their performance remains limited.

The development of Comprehensive Cancer Centers is identified as a promising step forward, although further regulatory strengthening and clearer governance structures are still needed to maximize their impact.

Patient-centered care: progress with remaining gaps

Greece has made notable progress in collecting Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs), reflecting a growing commitment to integrating patient perspectives into care delivery.

However, patients’ access to their own clinical data remains limited, restricting their ability to actively participate in decision-making processes.

In addition, patient education and shared decision-making are not yet systematically embedded across the health system.

Another important gap concerns survivorship care. As cancer survival rates improve, the lack of structured long-term follow-up pathways leaves many patients without continuous support after active treatment ends.

Key policy directions

The report outlines several strategic priorities for improving cancer care efficiency in Greece:

  • Development of a comprehensive national cancer strategy with clear targets and governance mechanisms
  • Strengthening coordination across all levels of care
  • Implementation of standardized clinical pathways with defined time-to-treatment and quality indicators
  • Investment in oncology workforce capacity, particularly in shortage specialties
  • Establishment of structured patient navigation programmes
  • Acceleration of Comprehensive Cancer Center development
  • Systematic use of health data for monitoring performance and accountability
  • Greater patient engagement through PROMs, PREMs, and shared decision-making

Conclusion: a system with strong foundations but limited integration

Greece has many of the essential building blocks for a high-performing cancer care system — including infrastructure, clinical expertise, and emerging digital health capabilities.

However, the key challenge lies not in the existence of these components, but in their integration.

The All.Can Greece report highlights a system that is still operating in silos: strong individual elements that do not yet function as a fully connected care pathway.

In oncology, this lack of integration is not merely an organizational issue. It directly affects timeliness, patient experience, and ultimately outcomes.

The opportunity now lies in moving from fragmented capacity to coordinated care — where patients no longer have to bridge the gaps between system components themselves.

Source: Mapping-the-Efficiency-of-Cancer-Care-in-Greece-FINAL

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 and Karkinaki join forces to support children, adolescents, and families living with cancer

The Cancer Guidance Center – Kapa3 announces its new collaboration with the non-profit organization “Karkinaki”, aiming to strengthen information, psychosocial support, and awareness around childhood and adolescent cancer, as well as to support families experiencing the disease.

Karkinaki is a specialized organization working in the field of childhood and adolescent cancer, focusing on reliable information, empowering parents and caregivers, and fostering a supportive environment around children and teenagers affected by cancer. Through community-based actions and awareness initiatives, it seeks to reduce the sense of isolation that often accompanies diagnosis, while also enhancing understanding, social awareness, and access to available support resources for families.

Within the framework of this collaboration, the two organizations will develop joint initiatives focused on information and awareness-raising, with an emphasis on actions addressing both families and healthcare and support professionals. The partnership will also include the co-organization of informational events, the exchange of good practices, and the exploration of participation in national and European programs that promote a holistic approach to patient care, with an emphasis on continuity of support across all stages of the disease experience.

The Cancer Guidance Center – Kapa3 is dedicated to informing, guiding, and empowering people affected by cancer, providing practical support and access to reliable information and services. At the same time, it develops initiatives that strengthen patients’ active participation in managing their health and promotes a more accessible and human-centered model of care.

In this context, Kapa3 is also involved in European collaborations focusing on the psychosocial dimension of cancer across different stages of life, such as the MELODIC project, which addresses the mental health of young adults with lived experience of cancer. This work further enhances the organization’s ability to recognize needs that emerge throughout the cancer journey, from childhood to adulthood.

This collaboration with Karkinaki reflects the shared vision of both organizations to strengthen a support network that goes beyond medical treatment, extending into families’ daily lives, information access, and psychosocial empowerment, with the aim of providing a more stable and meaningful presence for those who need it most.

Our Press Release here: KARKINAKI PRESS RELEASE

Text: Ifiyenia Anastasiou for Kapa3

Evangeli Bista on DION TV: Social Support and Kapa3’s Role in Guiding Oncology Patients

On March 19, 2026, Evangeli Bista, Co-founder of Kapa3, gave an interview to Christos Thanasainas, journalist and Scientific Director of Forlife Clinic, on Central Macedonia’s DION TV, during the daily program All About Health, which covers topics on health, nutrition, autoimmune diseases, and recent scientific developments.

The discussion highlighted the importance of social support for cancer patients and their families, both inside and outside the hospital, as well as the critical role of Kapa3 in guiding and providing holistic support to patients.

WHAT IS SOCIAL SUPPORT – TWO WORLDS:

Social support in cancer care is not a single, uniform concept. Inside the hospital, it mainly concerns assistance with the public healthcare system and bureaucratic procedures. Outside the hospital, real life begins: family, caregivers, and decisions the patient must make.

MAJOR SYSTEM CHALLENGES:

As Ms. Bista noted, hospitals face a significant shortage of social workers and related professionals. International literature suggests that there should be 10 social workers for every 2,500 residents—but this is not the case in Greece. In 92 municipalities, there is not a single social worker, while in areas where social workers exist, most are on fixed-term contracts or funded through programs (such as ESIF). The result is a maze of bureaucracy and uncertainty for the patient, who must understand medical and legal terms, make critical decisions, and manage financial consequences—often without support.

THE ROLE OF KAPA3 – SOLUTION, NOT JUST A SERVICE:

In this environment, Kapa3 provides holistic guidance and support, helping patients navigate procedural and practical issues—either independently, if they feel capable, or with active assistance from the organization at every step. Coverage is nationwide, although the complexity and fragmented structure of the system require ongoing study and time for effective support.

THE “HEAVY” MESSAGE – UNDERSTANDING VS. INFORMATION:

As Ms. Bista emphasized:

“The patient doesn’t need more information – they need understanding.”

The process is essentially behavioral: understanding reduces uncertainty, uncertainty reduces anxiety, anxiety affects behavior, and behavior determines health outcomes.

Kapa3 operates within this “maze,” offering holistic guidance and support. Intervention can be supportive, giving patients the ability to act on their own, or active, guiding them step by step. Kapa3 covers the entire country, addressing the growing needs of patients.

THE BIG CHALLENGE: “MYRTO”

“Myrto” represents Kapa3’s major initiative for 2026. After five years in oncology social support, Kapa3 addresses secondary digital exclusion with “Myrto”—a Digital Health Navigator designed to transform knowledge into practical understanding and provide real-time guidance for patients, avoiding the “chaotic wandering” through the healthcare system. The platform is currently in the study and design phase, aiming to meet the real needs of patients and their caregivers.

The interview highlighted the importance of social support, understanding over mere information, and the role of digital technology in modern oncology care. Kapa3 and Myrto strive to bring care from the hospital into patients’ daily lives through a holistic, personalized, and practical approach.

For more information and to watch the full interview, see the video on YouTube here.

(Note: Video in Greek with no English subtitles).

You can dowload our Press Release here

Text/adaptation: Ifiyenia Anastasiou for Kapa3

March – Multiple Myeloma Awareness Month

March – Multiple Myeloma Awareness Month

March is internationally recognized as Multiple Myeloma Awareness Month, a type of blood cancer that affects plasma cells – immune system cells responsible for producing antibodies and defending the body against infections.

This period provides an important opportunity to raise public awareness, highlight the challenges faced by patients, and enhance understanding of the disease, early diagnosis, and the importance of access to modern treatments.

What is Multiple Myeloma

Multiple myeloma develops in the bone marrow, when plasma cells grow uncontrollably and produce abnormal proteins. The presence of these cells can affect the production of healthy blood cells, cause bone damage, and impair the function of vital organs such as the kidneys. Although relatively rare, it is the second most common blood cancer worldwide.

The disease’s symptoms may be initially nonspecific and develop gradually. Fatigue, bone pain – especially in the spine or ribs – frequent infections, anemia, or kidney problems are some of the signs that may prompt further investigation. Early awareness and timely medical evaluation are therefore crucial for diagnosis and disease management.

Multiple Myeloma by the Numbers

Globally, the disease affects a significant number of people. According to international epidemiological data:

  • 188,000 new cases were reported worldwide in 2022

  • Approximately 121,000 people died from the disease the same year

  • It is estimated that more than 540,000 people are currently living with multiple myeloma worldwide

The disease occurs more often in older adults. Most diagnoses occur in people over 60–65 years old, and around 80% of cases are reported in individuals over 65. Experts predict that the disease’s incidence may rise in the coming decades, largely due to the aging population in many countries.

The Situation in Greece

In Greece, the exact epidemiological picture of multiple myeloma is not fully clear, as there is no comprehensive national cancer registry recording all cases systematically.

However, according to available international estimates for 2022:

  • About 763 new multiple myeloma cases were reported in the country

  • Approximately 579 deaths were attributed to the disease

  • It is estimated that around 2,154 people in Greece are living with the disease over a five-year period

These figures highlight the importance of improving health data collection and continuously supporting patients living with the disease.

Advances in Treatments

In recent years, scientific progress has significantly changed the course of the disease.

Modern therapies include:

  • Immunotherapies

  • Monoclonal antibodies

  • Proteasome inhibitors

  • Immunomodulatory drugs

  • CAR‑T cell therapies (for advanced stages of the disease)

New therapeutic combinations and ongoing clinical studies are providing more treatment options, reinforcing hope for even more effective therapies in the future.

The Importance of Awareness and Support

Despite these advancements, public awareness and support for people living with the disease remain crucial. Early diagnosis, access to specialized medical care, and equitable access to modern therapies are key factors in improving disease outcomes and patients’ quality of life.

Multiple Myeloma Awareness Month serves as a reminder that knowledge, research, and collective effort can make a difference. Through education, support for scientific research, and assistance to patients and their families, we can help create an environment where no one faces cancer alone.

Sources:

https://gco.iarc.fr
(Global Cancer Observatory – International Agency for Research on Cancer)

https://pubmed.ncbi.nlm.nih.gov/39658225/
(Global burden and projections of multiple myeloma)

https://www.oecd.org/health/cancer-profiles/greece.html
(EU Country Cancer Profile – Greece)

https://ehoonline.biomedcentral.com/articles/10.1186/s40164-025-00684-x
(Global epidemiology of multiple myeloma)

https://pmc.ncbi.nlm.nih.gov/articles/PMC3627436/
(Multiple myeloma epidemiology study)

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Launch of Free MELODIC Training Programme – Greece

We are pleased to announce the launch of the free eight-week online training programme implemented in Greece within the framework of the European project MELODIC, in which Kapa3 participates as one of 13 partner organisations from 6 European countries.

The programme is addressed to doctors, nurses, other health professionals, and social care professionals working in oncology.

MELODIC is an international collaboration aimed at strengthening mental health support for young adults with cancer and their families, promoting high-quality, holistic oncology care.

Through the programme, participants will have the opportunity to develop skills in:

  • Assessing mental health needs using validated and evidence-based tools

  • Supporting families and caregivers

  • Delivering high-quality psychosocial care

  • Interprofessional collaboration

  • Sustaining personal and professional wellbeing

The programme is divided into an asynchronous part (on the Moodle platform), which participants can complete at their own pace, and four contact lessons, constituting the synchronous part via Zoom. Upon completion, participants will receive 5 ECTS credits and a certificate of completion.

Sessions will take place from March to April 2026.

The contribution of health professionals is crucial for the accurate assessment of mental health needs of young adults with cancer and their families, as well as for delivering high-quality, person-centred care. The MELODIC programme strengthens their skills, promoting collaboration, responsibility, and sustainable professional practice in oncology.

For further information, please contact:
Ifiyenia Anastasiou
email: ifi.k3team@gmail.com | phone: 690.62.65.170

January 24 – International Day of Education

January 24 has been designated by the United Nations as the International Day of Education, recognizing education as a fundamental human right and a key pillar of social cohesion, equality, and sustainable development. Access to knowledge is not only a means of professional growth but also a decisive factor in psychological resilience, personal identity, and hope for the future.

EDUCATION AND ILLNESS: WHEN LEARNING BECOMES SUPPORT

For children living with cancer or other serious illnesses, education takes on a special significance. International initiatives, such as hospital schools, have highlighted the role of learning in maintaining continuity of life during treatment. According to the World Health Organization, education for hospitalized children is not just about curriculum but also serves as a source of joy, normalcy, and psychological empowerment. Participation in lessons, interaction with teachers, and pursuing personal interests help children retain goals and envision their future, even under the strain of serious illness.

YOUNG ADULTS WITH CANCER: STUDIES, INTERRUPTIONS, AND RETURNS

Education is also a critical issue for young adults living with cancer, an age group often engaged in higher education, vocational training, or early career stages. International research shows that a cancer diagnosis during this period can lead to study interruptions, delayed completion, shifts in educational direction, and increased psychological burden. Studies from Europe and the United States report higher levels of anxiety, social isolation, and uncertainty about the future, while also highlighting that flexible educational structures and supportive policies significantly increase the likelihood of returning to and completing studies.

Yet there are also those who, through their experience with illness, redefine their priorities: pursuing new fields of knowledge, changing direction, or discovering previously untapped skills.

DATA IN GREECE

In Greece, there are no official data tracking continuation or interruption of studies for young adults living with cancer — such as how many students drop out, how many return after treatment, or the overall impact on their educational trajectory. However, it is estimated that the incidence of cancer in young adults is approximately 7.4 new cases per 100,000 inhabitants per year, highlighting the unique psychosocial and developmental challenges this group faces. The lack of systematic data on educational outcomes underscores the need for further research and for policies that support young people in continuing or completing their studies when and how they wish.

Education at any age can serve as a tool for hope and life reorientation. Many individuals who have experienced cancer choose to return to learning, acquire new skills, change career paths, or invest in postponed dreams. Knowledge does not erase the challenges of illness, but it can provide meaning, perspective, and a sense of control during uncertain times.

At KAPA3, we recognize the importance of education as an integral part of psychosocial support. Through our participation in European projects, such as MELODIC, which focuses on the mental health of young adults with cancer, we highlight the need for holistic approaches that consider life, studies, and personal plans beyond the diagnosis.

The International Day of Education serves as a reminder that knowledge does not stop in the face of illness. With support, understanding, and appropriate structures, education can remain alive — acting as a bridge to the future and a reminder that life continues.

Sources:

Text/Adaptation: Ifiyenia Anastasiou for Kapa3