Access to Information Archives

New Scientific Publication with the Participation of Kapa3: Cancer Survivorship in the Post-COVID-19 Era

New scientific publication involving the Cancer Patient Guidance Center – Kapa3 highlights the significant psychological, social, and functional challenges that people living with and beyond cancer continue to face following the COVID-19 pandemic.

The article, entitled “Cancer Survivorship After COVID-19: Psychological Burden, Symptom Experience, and Social Support,” was published in the international peer-reviewed journal Medicina. It examines psychological distress, symptom experience, quality of life, and the protective role of social support among people affected by cancer.

What Did the Study Examine?

The research involved 162 adults diagnosed with cancer in Greece during the post-COVID-19 period. Participants completed validated questionnaires assessing depression, anxiety, stress, health-related quality of life, and perceived social support.

The results revealed a substantial and persistent psychological burden:

32.1% of participants reported severe or extremely severe depression.
40.1% reported severe or extremely severe anxiety.
29% reported severe or extremely severe stress.

The overall quality of life of participants was found to be moderate. Emotional and social functioning were among the most affected areas, while fatigue, insomnia, breathlessness, and financial difficulties emerged as some of the most significant challenges in everyday life.

The Close Relationship Between Mental Health and Quality of Life

One of the study’s key findings was the strong relationship between psychological distress and poorer quality of life.

Higher levels of depression, anxiety, and stress were associated with:

poorer daily and functional performance;
lower perceived overall health;
greater symptom severity;
increased difficulty in emotional and social functioning.

The results demonstrate that psychological well-being cannot be separated from the physical, social, and practical experience of cancer.

Social Support as a Protective Factor

At the same time, the study underlines the important protective role of social support.

Support from family members, friends, and other significant people was associated with better overall health and functioning, lower levels of depression, anxiety, and stress, and reduced symptom burden.

The findings show that social connection is not simply an additional element of care. It is a meaningful component of recovery, adaptation, and quality of life throughout the cancer journey.

Cancer Survivorship Does Not End When Treatment Is Completed

The findings reinforce the need to move beyond a model of oncology care focused exclusively on treating the disease.

Cancer survivorship requires a comprehensive, person-centred approach that addresses the physical, psychological, social, functional, and financial dimensions of life with and after cancer.

Routine psychological assessment, early identification of emotional distress, timely referral to psycho-oncology services, rehabilitation, social support, and the meaningful involvement of families and caregivers should become integral parts of standard oncology care.

The study also points to the potential value of telehealth and digital support services in improving access to supportive care. At the same time, it highlights inequalities related to digital literacy, healthcare accessibility, and the ability of all patients to benefit equally from digital services.

The experience of the COVID-19 pandemic demonstrated that effective cancer care must be resilient, accessible, multidisciplinary, and capable of maintaining continuity even during periods of crisis.

A Calm Summer Begins with Proper Preparation Proactive Care Planning, Mental Decompression and Digital Support

Proactive Care Planning, Mental Decompression and Digital Support

Summer is a valuable opportunity for rest, renewal and quality time with the people we love. For people living with or after a cancer diagnosis, as well as for their caregivers, the possibility of enjoying a few days away from everyday life can contribute meaningfully to physical and mental well-being.

When a person’s health condition allows it, and with the agreement of the treating physician, even a short break can have a beneficial effect, enhancing quality of life and supporting the sense of returning to everyday life (Lim et al., 2022).

The quality of life of people living with or after a cancer diagnosis does not depend solely on medical treatment. Mental well-being, social support, optimism and resilience are equally important factors that facilitate adaptation to the disease and contribute to patients’ overall well-being (Ruiz-Rodríguez et al., 2022). At the same time, current guidelines underline the importance of integrated and personalised care, as well as continuous support for people living with or after cancer at every stage of their journey (Hart et al., 2024).

However, the peace of mind associated with holidays does not begin on the day of departure. It begins much earlier, through proper preparation. Practical pending issues, administrative procedures or concerns about unexpected events during the holidays can increase stress and reduce the feeling of safety. By contrast, proactive care planning allows patients to organise what is needed in advance, so that they can devote their time to rest rather than obligations.

Timely renewal of medical certificates, ensuring an adequate supply of medication for the entire period of absence, communicating with the treating physician when necessary, and keeping essential medical documents in an easily accessible format are simple but important steps of preparation. In this way, continuity of care is safeguarded, while the uncertainty that often accompanies travel is reduced.

Reliable information and timely support are key pillars of modern oncology care. When people know where they can turn and have easy access to trustworthy information, they feel safer, their autonomy is strengthened and the management of daily life becomes easier (Ruiz-Rodríguez et al., 2022; Hart et al., 2024).

In today’s world, digital tools can complement support services by facilitating access to reliable information wherever the patient may be. In this direction, Kapa3 is moving forward with the development of Myrto, the digital social navigator, designed to provide direct access to information on social rights, available services and useful guidance. In this way, it facilitates access to the organisation’s services and reliable information, contributing to better preparation before and during holidays.

For all of us at Kapa3, technology does not replace human care; it complements it. It is another means of facilitating access to trustworthy information and available services, while the Social Service and Psychological Support Service of Kapa3 remain the core pillar of holistic support for people living with cancer and their families.

Let us remember that care does not stop when holidays begin. It continues through small but meaningful acts of preparation, proper information and timely planning. Because, many times, the greatest luxury of a holiday is not the destination itself, but the feeling that we can enjoy our moments with calmness, safety and trust.

The Social Service and Psychological Support Service of Kapa3 wish everyone a safe, peaceful and refreshing summer, with health, strength and beautiful moments.

Before Leaving for Your Holidays…

✔️ Make sure you have an adequate supply of your medication for the entire period of your absence.

✔️ Check whether there are any medical certificates, prescriptions or other administrative pending issues that need to be settled in time.

✔️ Discuss with your treating physician any special instructions related to travel or movement.

✔️ Keep with you the necessary medical documents and important contact details.

✔️ Find out about available support services and make use of the Kapa3 App, so that you have easy access to useful information wherever you are.

References

Hart, N. H., Nekhlyudov, L., Smith, T. J., Yee, J., Fitch, M. I., Crawford, G. B., et al. (2024). Survivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations. JCO Oncology Practice, 20(9), 1160–1172. https://doi.org/10.1200/OP.23.00716

Lim, J. H. C., Keenan, C., & Flaherty, G. T. (2022). All My Life to Live: Travel Health Benefits and Risks for Cancer Survivors. Journal of Travel Medicine, 29(5), taac069. https://doi.org/10.1093/jtm/taac069

National Comprehensive Cancer Network. (2024). NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®): Survivorship. Version 2.2024. Plymouth Meeting, PA: National Comprehensive Cancer Network.

Ruiz-Rodríguez, I., Hombrados-Mendieta, I., Melguizo-Garín, A., & Martos-Méndez, M. J. (2022). The Importance of Social Support, Optimism and Resilience on the Quality of Life of Cancer Patients. Frontiers in Psychology, 13, 833176. https://doi.org/10.3389/fpsyg.2022.833176

World Health Organization. (2022). World Mental Health Report: Transforming Mental Health for All. Geneva: World Health Organization.

Official Access Links

Hart et al., 2024 — MASCC-ASCO Standards:
https://ascopubs.org/doi/10.1200/OP.23.00716

Lim et al., 2022:
https://doi.org/10.1093/jtm/taac069

NCCN Clinical Practice Guidelines in Oncology: Survivorship:
https://www.nccn.org/professionals/physician_gls/pdf/survivorship.pdf

Ruiz-Rodríguez et al., 2022:
https://doi.org/10.3389/fpsyg.2022.833176

WHO World Mental Health Report:
https://www.who.int/publications/i/item/9789240049338

Marilia Barka
Psychology Student
Kapa3 Volunteer

www.linkedin.com/in/maria-garyfalia-marilia-barka-03825a409

Head and Neck Cancer: The Importance of Early Diagnosis and Prevention.

July 27 has been designated as World Head and Neck Cancer Day (WHNCD). The initiative was launched on July 27, 2014, during the 5th World Congress of the International Federation of Head and Neck Oncology Societies (IFHNOS) in New York, with the goal of raising awareness, education, and the
promotion of prevention. The declaration is supported by dozens of scientific communities worldwide, governments, and, most notably, the UICC (Union for International Cancer Control).

What is Head and Neck Cancer?
This type of cancer includes tumors located in the oral cavity, the lips, the pharynx, the larynx, the
salivary glands, the thyroid gland, the skin of the region, and the cervix.

In terms of prevalence, it is the fifth most common cancer worldwide. Seventy-five percent of cases are located in the mouth and pharynx, while the most common histological type is squamous cell carcinoma (HNSCC). For example, more specifically in Greece in 2012, 1,350 new cases were recorded, a figure that accounted for 3.3% of all new cancer diagnoses in the country.

Based on these percentages, 30% of cases occur in the tongue, 20% on the lip, 15% on the floor of the
mouth and in the larynx, and 10% in the pharynx.

Risk Factors

Understanding the factors that increase the risk is the first step towards prevention. Everyday habits, such as smoking and alcohol consumption, place a significant strain on the body. In particular, 70 per cent of those affected are long-term smokers, with current smokers facing a 300 per cent higher risk. When
smoking is combined with alcohol, the two have a negative synergistic effect, multiplying the likelihood of developing the disease. At the same time, in recent years there has been an increase in HPV-positive cancers, mainly of the pharynx, which often occur in younger people with no history of smoking or
alcohol consumption. Finally, it is worth noting that up to 25 per cent of cases are observed in patients who have never smoked and have no other known risk factors.

Suspicious lesions and symptoms

Delay in diagnosis is the most unfavourable prognostic factor. Conversely, 85–90 per cent of cases can be
cured if diagnosed at an early stage.

Suspected precancerous lesions

Particular care is required when identifying suspected precancerous lesions in the oral cavity. These
include leukoplakia, a white patch of unknown aetiology that does not flake off, in which, in 20–25 per
cent of cases, cancer or severe dysplasia is present. Even more dangerous is erythroplakia, where the rate
of co-occurrence with cancer or severe dysplasia reaches 90 per cent. At the same time, suspicious lesions
include punctate leukoplakia, as well as any chronic ulcer – that is, a sore that is not caused by any
obvious injury and remains unhealed for more than two weeks.

Symptoms requiring medical assessment

There are also certain suspicious symptoms that necessitate immediate assessment by a doctor. These include any unexplained swelling, lump or puffiness in the mouth or throat area, as well as persistent pain when chewing, swallowing or speaking, or pain that radiates to the ear. Furthermore, symptoms such as hoarseness, a change in the tone of the voice, and unexplained bleeding inside the mouth are signs that
should not be ignored.

Prevention and Screening
Screening is particularly important for people over the age of 45, smokers, people who drink alcohol, or
those with a history of HPV infection. Screening involves four simple steps:
1. Neck: Palpation of the lymph nodes and the thyroid gland.
2. Lips: External examination.
3. Mouth: Examination of the tongue, floor of the mouth, cheeks, gums and soft palate.
4. Pharynx: Examination of the tonsils, soft palate and base of the tongue.

The importance of early intervention

Despite advances in surgery, radiotherapy and chemotherapy, the 5-year survival rate remains at around 60 per cent. Furthermore, treatments for advanced-stage disease can affect patients’ quality of life, causing functional (difficulty speaking, chewing, swallowing and breathing), aesthetic or psychological problems.

July: Global Sarcoma Awareness Month

July has been established internationally as Sarcoma Awareness Month, a rare but particularly important group of cancers that often remains unknown to the general public. Raising awareness about sarcomas is not just about learning about a rare disease; it is about the early recognition of symptoms, access to specialized care, support for patients and their families, and the need to ensure that no one is left alone to face a difficult diagnosis.

Sarcomas are malignant tumors that develop in the tissues that support, connect, or surround organs and body parts. They can occur in muscles, fat, tendons, blood vessels, nerves, connective tissues, tissues surrounding the joints, and bones. They can occur almost anywhere in the body, with the most common sites being the extremities, the trunk, the abdomen, and the retroperitoneal space.

Despite their rarity, sarcomas are of particular importance. They account for approximately 1% of cancers in adults, while in children and adolescents the percentage is proportionally higher, reaching about 15–20% of pediatric malignancies. It is, therefore, a disease that can affect all age groups and requires increased vigilance on the part of both the general public and healthcare professionals.

One of the key characteristics of sarcomas is that, in the early stages, they may not cause severe pain or obvious symptoms. They are often noticed as a painless lump, a swelling that grows, persistent swelling, or pain that does not subside and cannot be explained by an injury. When a sarcoma develops deeper within the body—for example, in the abdomen or chest—it may go unnoticed for a longer period of time and only cause symptoms once it grows in size or presses on nearby organs, nerves, muscles, or blood vessels.

Symptoms that warrant medical evaluation include a new or growing lump, pain in bone or soft tissue, difficulty moving, persistent swelling, abdominal pain, unexplained weight loss, shortness of breath, or gastrointestinal symptoms when the tumor is located internally. These symptoms do not necessarily indicate the presence of a sarcoma, but when they persist or worsen, they should not be ignored.

The diagnosis of sarcoma requires a specialized medical approach. It typically involves a clinical examination, imaging tests such as ultrasound, MRI, or CT scan, and confirmation via biopsy. It is particularly important that the biopsy and evaluation of the sample be performed according to a proper protocol by a team with experience in sarcomas, as the accurate diagnosis of the subtype, grade, and stage of the disease has a decisive impact on the treatment strategy.

Treatment is personalized and depends on the type of sarcoma, its location, size, grade, stage, the patient’s age, and overall health. It may include surgery, radiation therapy, chemotherapy, targeted therapies, immunotherapy, or a combination of these. Modern oncological care places particular emphasis on interdisciplinary collaboration so that the patient is treated holistically rather than in a fragmented manner.

Early diagnosis, referral to specialized centers, and collaboration among different medical specialties can significantly contribute to the best possible management of the disease and the maintenance of quality of life. Advances in medicine, surgical oncology, radiation therapy, molecular diagnostics, and targeted therapies are creating new possibilities for many patients, while participation in research and clinical trials remains crucial for improving treatment options.

However, managing sarcoma is not merely a medical issue. A diagnosis of a rare cancer is often accompanied by uncertainty, delays, difficulty accessing specialized information, financial burden, psychological stress, and the need for guidance within a complex health and social protection system. For this reason, information, social support, psychosocial empowerment, and access to patients’ rights are critical components of comprehensive care.

The Cancer Patient Guidance Center – Kapa3, through its information, social guidance, and support services, stands by people affected by cancer and their families. Kapa3’s collaboration with the Hellenic Sarcoma Patients Association – Sarcoma Fighters reinforces this effort, highlighting the importance of networking, accurate information, patient advocacy, and collective action.

With the central message that no one should feel alone in the face of sarcoma, July provides an opportunity to talk more about a rare disease that needs visibility. To learn. To pay attention to our bodies. To seek medical advice when something persists. To support those who are ill. To participate in information and awareness campaigns. To promote access to early diagnosis, specialized treatment, and compassionate care.

Knowledge is no substitute for medical advice, but it can be the first step toward taking action. And when knowledge is combined with solidarity, cooperation, and access to care, it can fundamentally change a patient’s journey.

Please do not hesitate to contact us for anything you may need.

The KAPA3 team stands firmly by patients and caregivers to provide guidance and ensure their rights are protected. For any information or support, please feel free to contact us.You can contact the KAPA3 team.

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Phone Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

Newsletter Kapa3| June 2026,From survivorship to quality of life — from information to support — from technology to human-centred care.

May was a month of important developments, scientific outreach and service enhancement for Kapa3. From the new European scientific publication of the MELODIC project and educational participation in international networks, to the development of “Myrto”, the creation of a new Psychological Support Team and support through social and corporate initiatives, Kapa3 continues to bring together knowledge, technology, human care and social action.

Our mission remains focused on equal access for cancer patients and their caregivers to information, rights, services and meaningful support.

1. June: Cancer Survivors Month

June is dedicated to people living with and beyond cancer. Survivorship is not only the end of treatment; it is continuity, adaptation, reintegration, psychosocial support, quality of life and the right to care beyond therapy.

▸ EN: https://www.kapa3.gr/en/june-cancer-survivors-month-title-sep-sitename/

2. Kapa3 Introduces Its New Psychological Support Team

On the occasion of Mental Health Awareness Month and Cancer Survivors Month, Kapa3 introduces its new Psychological Support Team: a safe space for listening, support and empowerment for patients, survivors, caregivers and families.

▸ CONTACT US https://www.kapa3.gr/en/kapa3-introduces-its-new-psychological-support-team/

3. New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Mental health is an integral part of cancer care, particularly for young adults facing the complex challenges of a cancer diagnosis. Kapa3 contributes to the new scientific publication of the European MELODIC project, highlighting the educational needs of healthcare professionals.

▸ READ THE ARTICLE

4. Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

Kapa3 participated in the INE-CSC 2026 Conference in Coimbra, contributing to the European dialogue on cancer survivorship, supportive care, digital health and participatory solutions that respond to the real needs of patients and caregivers.

▸ READ THE ARTICL Ehttps://www.kapa3.gr/en/participation-in-ca21152-implementation-network-europe-for-cancer-survivorship-care/

5. Co-creating Myrto: A Digital Health and Rights Navigator for Oncology Patients

Myrto is designed as a digital health and rights navigator — a Patient Empowerment e-Navigator — that goes beyond information provision to guide, support and evolve according to users’ real needs.

▸ READ THE ARTICLE https://www.kapa3.gr/en/myrto-health-navigator-oncology-patients-greece/

6. Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Kapa3 participated in the European programme Service Learning 2.0: CoLab, an initiative connecting academic knowledge with meaningful social action and highlighting collaboration between universities, civil society organisations and community actors.

▸ FIND OUT MOREhttps://www.kapa3.gr/en/learning-by-doing-participation-in-the-european-service-learning-2-0-colab-programme/

7. Alpha Bank and Its Employees Support Kapa3 through the Match for Good Initiative

Through the Match for Good initiative, Alpha Bank and its employees supported Kapa3, strengthening our mission to stand alongside people affected by cancer, their families and caregivers.

▸ FIND OUT MORE https://www.kapa3.gr/en/i-alpha-bank-kai-oi-ergazomenoi-tis-stirizoyn-to-kapa3-kai-tin-isotimi-prosvasi-stin-ypostirixi-ton-ogkologikon-asthenon/

8. 6 Awards for Kapa3 at the 4th Vouliagmeni Summer Crossing: Is There Such a Thing as a “Lonely Race”?

Kapa3 took part in the 4th Vouliagmeni Summer Crossing, sharing a strong message of participation, resilience, empowerment and solidarity. Even when a race seems individual, it does not have to be lonely.

Newsletter closing note

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Support our work and help us continue to provide information, guidance and support to patients and their families.

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Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Within the framework of the European programme Service Learning 2.0: CoLab – Erasmus+ Strategic Partnerships KA2, KE: 22707, coordinated by the University of Bucharest, an online workshop and focus group was organised with civil society organisations, focusing on the educational approach of Service-Learning.

Service-Learning is a contemporary experiential learning method that combines academic knowledge with active student engagement in society. Through activities that respond to real social or environmental needs, students develop meaningful skills, strengthen their social awareness and connect theoretical learning with practical action.

The workshop brought together universities and civil society organisations from across Europe, including Université Aix-Marseille, University of Bucharest, University of Salzburg, University of Padova, Sapienza University of Rome, and Eurasianet.eu. The discussion focused on cooperation between universities and NGOs, the exchange of experiences, and the adaptation of practices that can strengthen the social impact of education.

Participation in such initiatives highlights the importance of collaboration between academia, civil society and non-profit organisations.

For Kapa3, the philosophy of Service-Learning is closely aligned with its mission: transforming knowledge into action, empowering people affected by cancer, and building bridges between education, social care and active citizenship.

Through these educational collaborations, the connection between universities and society is strengthened, while new opportunities are created for participatory learning, social innovation and meaningful support for vulnerable groups.

Find more

Flyer – Workshop_ Service Learning (2) Service-learning-key-facts (1)

Service-learning-key-facts (1)

May 27 th 2026 Workshop SL with CSOs

Kapa3 in the second half of April: Information, collaborations and strengthening patient care

Kapa3 in April

Throughout April, Kapa3 continued to develop actions and initiatives aimed at improving access to care for oncology patients and their families, with a strong focus on information, prevention, and the development of innovative collaborations.

This period’s activities focused on raising awareness about key cancer types, improving patients’ daily lives through policy and systemic developments, and expanding partnerships that enhance the quality of care and services provided.

In an ever-evolving healthcare environment, the connection between reliable information, human support, and technology remains a key pillar for a more accessible and effective care system.

Below are the main initiatives and developments that marked the second half of the month.

Awareness

April is an awareness month for head and neck cancer as well as testicular cancer, highlighting the importance of prevention and early diagnosis. Although these types of cancer are often underrepresented in public discourse, awareness plays a crucial role in reducing late diagnoses and improving patients’ quality of life.

Patients’ rights

Important developments took place in the field of patients’ rights, including the establishment of the National Registry for Hospital-at-Home Care (NOSPI), aiming to better organise and ensure the safety of home-based care.

At the same time, the new framework for Public Administration introduces changes that directly affect citizens’ daily lives, enhancing transparency, reducing bureaucracy, and improving access to public services.

Collaborations

During April, Kapa3 further strengthened its network of collaborations through significant partnerships.

The collaboration with the PRAXI Network/FORTH, within the European smartHEALTH hub, enhances participation in innovation and health policy initiatives, opening new opportunities at European level.

In addition, the partnership with Karkinaki focuses on supporting children, adolescents, and families living with cancer, promoting a holistic approach to care.

Furthermore, the collaboration with SimasiaAI for the development of “Myrto”, an AI-powered digital assistant, highlights the importance of technology in empowering patients and improving access to reliable information and services.

Research & knowledge

A new international report on person-centred cancer care highlights the need for a holistic model that places the patient at the centre. This approach recognises not only clinical needs but also psychosocial dimensions, reinforcing the importance of patient involvement in decision-making.

Patients & society

On the occasion of European Patients’ Rights Day (18 April), Kapa3 highlighted the importance of equal access to quality care. Despite progress, challenges such as inequalities and delays remain, making the continued strengthening of support structures essential.

Supporting our work

Kapa3’s collection of handmade scarves continues to serve as a creative way of supporting the organisation’s mission, combining aesthetics with meaningful contribution to people living with cancer.

We continue to monitor developments and work towards improving patients’ daily lives — more news coming soon.

Text/adaptation: Ifigenia Anastasiou for Kapa3

Evangeli Bista on DION TV: Social Support and Kapa3’s Role in Guiding Oncology Patients

On March 19, 2026, Evangeli Bista, Co-founder of Kapa3, gave an interview to Christos Thanasainas, journalist and Scientific Director of Forlife Clinic, on Central Macedonia’s DION TV, during the daily program All About Health, which covers topics on health, nutrition, autoimmune diseases, and recent scientific developments.

The discussion highlighted the importance of social support for cancer patients and their families, both inside and outside the hospital, as well as the critical role of Kapa3 in guiding and providing holistic support to patients.

WHAT IS SOCIAL SUPPORT – TWO WORLDS:

Social support in cancer care is not a single, uniform concept. Inside the hospital, it mainly concerns assistance with the public healthcare system and bureaucratic procedures. Outside the hospital, real life begins: family, caregivers, and decisions the patient must make.

MAJOR SYSTEM CHALLENGES:

As Ms. Bista noted, hospitals face a significant shortage of social workers and related professionals. International literature suggests that there should be 10 social workers for every 2,500 residents—but this is not the case in Greece. In 92 municipalities, there is not a single social worker, while in areas where social workers exist, most are on fixed-term contracts or funded through programs (such as ESIF). The result is a maze of bureaucracy and uncertainty for the patient, who must understand medical and legal terms, make critical decisions, and manage financial consequences—often without support.

THE ROLE OF KAPA3 – SOLUTION, NOT JUST A SERVICE:

In this environment, Kapa3 provides holistic guidance and support, helping patients navigate procedural and practical issues—either independently, if they feel capable, or with active assistance from the organization at every step. Coverage is nationwide, although the complexity and fragmented structure of the system require ongoing study and time for effective support.

THE “HEAVY” MESSAGE – UNDERSTANDING VS. INFORMATION:

As Ms. Bista emphasized:

“The patient doesn’t need more information – they need understanding.”

The process is essentially behavioral: understanding reduces uncertainty, uncertainty reduces anxiety, anxiety affects behavior, and behavior determines health outcomes.

Kapa3 operates within this “maze,” offering holistic guidance and support. Intervention can be supportive, giving patients the ability to act on their own, or active, guiding them step by step. Kapa3 covers the entire country, addressing the growing needs of patients.

THE BIG CHALLENGE: “MYRTO”

“Myrto” represents Kapa3’s major initiative for 2026. After five years in oncology social support, Kapa3 addresses secondary digital exclusion with “Myrto”—a Digital Health Navigator designed to transform knowledge into practical understanding and provide real-time guidance for patients, avoiding the “chaotic wandering” through the healthcare system. The platform is currently in the study and design phase, aiming to meet the real needs of patients and their caregivers.

The interview highlighted the importance of social support, understanding over mere information, and the role of digital technology in modern oncology care. Kapa3 and Myrto strive to bring care from the hospital into patients’ daily lives through a holistic, personalized, and practical approach.

For more information and to watch the full interview, see the video on YouTube here.

(Note: Video in Greek with no English subtitles).

You can dowload our Press Release here

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Digital Access to Test Results: An Important Right for Patients

Digital access to medical test results has become an important right for patients in Greece, following new regulations that strengthen the use of the Digital Repository of Diagnostic Laboratory Results. According to the relevant decision published in the Government Gazette (March 2026), public and private healthcare units collaborating with EOPYY are required to record diagnostic test results in digital form within a specified timeframe.

This change is not just a technical procedure or an administrative obligation for healthcare providers. In practice, it represents a meaningful enhancement of patients’ rights, ensuring that every citizen can have immediate and organized access to their medical data.

Digital access to test results now reduces the need for physical documents, printed copies, or trips to diagnostic centers. Instead, results are stored in a unified digital environment connected to the Individual Electronic Health Record. This allows patients to have their test history consolidated, reducing the risk of losing important information.

For people living with cancer, this development is especially significant. Disease monitoring often involves repeated tests, visits to different doctors, and continuous evaluation of results. Immediate access to all data facilitates collaboration among healthcare professionals and contributes to more coordinated and effective care.

Moreover, the obligation to record results is linked to reimbursement procedures through EOPYY, enhancing transparency in the healthcare system. This ensures that only tests that have actually been performed are reimbursed, limiting abuse and strengthening the reliability of services.

It is also worth noting that data management is carried out under the current personal data protection framework, safeguarding patients’ privacy and information security.

Transitioning to a more digital healthcare system is not just a technological advancement. It is a step toward a more human, transparent, and accessible system of care, where the patient has an active role and meaningful control over their own data.

Ultimately, strengthening digital access to test results represents an important step forward in empowering patients and improving the quality of healthcare provided.

Source: Government Gazette, FEK B’ 1503/17.03.2026

Text/adaptation: Ifiyenia Anastasiou for Kapa3

New Collaboration between Cancer Guidance Center – Kapa3 and the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS)

Cancer Guidance Center – Kapa3 announces its new collaboration with the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS), strengthening synergies between organizations active in the field of health and patient support.

This collaboration aims to develop joint initiatives that will contribute to raising awareness, promoting public information, and providing meaningful support to people living with chronic conditions, with particular focus on cancer patients and persons living with Multiple Sclerosis. Through the exchange of knowledge, experience and good practices, the two organizations seek to strengthen actions that promote equal access to information, healthcare services and social inclusion for patients.

Cancer Guidance Center – Kapa3 is dedicated to supporting people living with cancer and their caregivers by providing reliable information, practical guidance and access to benefits and services. At the same time, the organization develops initiatives that enhance patients’ awareness of their rights and promote their psychosocial empowerment. Through initiatives such as Mobile Units, digital tools and educational programmes, Kapa3 promotes a patient-centred approach to cancer care, encouraging patients to actively participate in decisions concerning their health and quality of life, while fostering collaborations with organizations working in the fields of health and social support.

The Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS) is a secondary non-profit organization founded in 2008 with the aim of uniting and supporting primary associations of persons with Multiple Sclerosis across Greece, while also raising awareness about the disease among the wider public. The Federation currently brings together nine primary patient associations from across the country. HFoPwMS implements awareness and advocacy initiatives related to Multiple Sclerosis and works to ensure the equal participation of people with MS in the educational, professional, athletic and cultural life of the country. It is a member of the National Confederation of Disabled People (ESAmeA) and the European Multiple Sclerosis Platform (EMSP).

Within the framework of this collaboration, the two organizations plan to develop joint initiatives such as the organization of conferences, workshops and awareness events, the implementation of information and public awareness campaigns, participation in national and European programmes, as well as the development of joint research initiatives on issues related to patients’ quality of life. The partnership will also contribute to strengthening interdisciplinary cooperation and knowledge exchange among organizations active in the health sector.

This new collaboration reflects the shared vision of the two organizations to strengthen the voice of patients and promote a society that respects, supports and empowers people living with chronic conditions.