Author: k3-editor

June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

Co-Creating Myrto: A Digital Health and Rights Navigator for Cancer Patients

After five years of continuous work supporting cancer patients through digital guidance, the Cancer Guidance Center – Kapa3 is developing a new pioneering project: Myrto.

Myrto is a Social Artificial Intelligence intervention in the field of welfare and cancer patient support in Greece. It is an advanced digital tool, integrated into Kapa3’s website, designed to function as a digital health and rights navigator — a Patient Empowerment e-Navigator for people experiencing cancer, their caregivers and the professionals who support them.

Myrto is not limited to simply providing information. Its purpose is to interact, guide and evolve through the real needs of users. With particular attention to accessibility, the psychological dimension of the cancer experience and the everyday reality of patients, Myrto aims to become a human-centred and trustworthy environment for information, empowerment and support.

At Kapa3, we know that the cancer experience is not limited to diagnosis or treatment. It is often accompanied by uncertainty, administrative procedures, the search for rights, the need for social benefits, psychosocial pressure, practical barriers and the need for reliable guidance. For this reason, Myrto is being designed to support people throughout this complex journey in a clear, accessible and understandable way.

The development of Myrto is based on collaboration and co-creation. Recognising the multifaceted work of organisations, professionals and institutions that work daily with vulnerable groups, Kapa3 is inviting partners to contribute to the pilot testing, evaluation and improvement of the tool.

The experience of field professionals is invaluable. Social workers, legal experts, psychologists, healthcare professionals, social care organisations and civil society actors who work closely with people affected by cancer can make a meaningful contribution by identifying the most frequent questions, needs and concerns that emerge in everyday practice.

In this context, Myrto will be developed, tested and evaluated with the contribution of relevant experts, so that it responds to the real needs of cancer patients, caregivers and the professionals who support them. The evaluation will take place both online and in person in different parts of Greece, strengthening participation, accessibility and representativeness.

For Kapa3, technology has value when it serves people. Myrto is not being developed as an isolated technological product, but as part of a broader digital, inclusive and human-centred support framework. Its aim is to strengthen access to information, help patients and families understand available options and rights, and support the work of professionals who stand beside them at every stage of the journey.

The success of the project depends on collaboration. Together with organisations, professionals and communities, we are designing a tool that does not begin with technology, but with people’s real needs.

Myrto is a step towards more accessible, human-centred and equal support for cancer patients. A step that brings together field experience, social care, digital innovation and active participation.

Because real innovation in health and welfare is not only about creating new tools. It is about creating them together with those who understand the real needs.

Participation in CA21152 – Implementation Network Europe for Cancer Survivorship Care

Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

The Cancer Guidance Center – Kapa3 participated in the INE-CSC 2026 Conference, part of CA21152 – Implementation Network Europe for Cancer Survivorship Care (INE-CSC), held on 25–26 May 2026 at the Faculty of Medicine (Polo III), University of Coimbra, in Coimbra, Portugal.

The conference was held under the theme “The Next Chapter – Empowering Individuals, Families, and Society for Cancer Survivorship & Supportive Care”, highlighting the need for new approaches to cancer survivorship, supportive care and the translation of innovation into real-world impact for people living with and beyond cancer, their families and society.

Kapa3’s presence in Coimbra represents another important step in its European engagement and in its ongoing effort to connect everyday experience in supporting cancer patients in Greece with European knowledge, research, digital innovation and health policy.

A key highlight was the participation in a round table discussion on facilitators and barriers to the implementation of digital health tools in oncology. The discussion was co-organised by Aristea Kyriaki Ladas and Christos Frantzidis and brought together voices from different European countries and organisations, including representatives from Kapa3, Acreditar Portugal, Liga Portuguesa Contra o Cancro, ORCO / Madrid Regional Ministry of Health, as well as participants from Poland, Latvia and the United Kingdom.

Among the participants in the round table were Yannis Kontogiorgis and Despoina Pistiolis from Kapa3, Greece, contributing to the European dialogue on digital health, oncology navigation and the participatory development of solutions that respond to the real needs of patients and caregivers.

One of the key messages of the discussion was that digital innovation in oncology is not only a technological challenge. It is also a matter of policy, implementation, equity, trust and accessibility.

For digital tools to make a meaningful difference in cancer care and survivorship, they cannot remain isolated applications or pilot projects. They need to become part of real care pathways, be supported by appropriate policy environments, connect with interdisciplinary practice and be evaluated in terms of effectiveness, implementation readiness, accessibility, equity, sustainability and value.

The discussion also highlighted that digital tools must be designed around the real needs of patients and survivors, not only around technical possibilities. Accessibility across countries, languages, healthcare systems and levels of digital and health literacy must be built in from the beginning.

The role of patient organisations and cancer support communities was also identified as essential. These organisations can act as a bridge between technological innovation and the everyday reality of people affected by cancer. They understand the questions, barriers, fears and needs that are often not fully captured by formal care systems.

For Kapa3, this participation is directly linked to the development of Myrto, its digital health and rights navigator, designed as a tool for empowerment, guidance and support for cancer patients and their caregivers.

Myrto is not approached as a simple information tool. It is being designed as a participatory intervention built around the real needs of people with lived experience of cancer. It is connected to access to rights, social benefits, services, practical guidance and human escalation whenever needed.

The Coimbra experience strengthened the view that digital health must be human-centred, accessible, trustworthy and integrated into a broader ecosystem of care. Technology can meaningfully support cancer care only when it is designed with participation, trust, clear purpose and an equity-oriented approach.

Cancer survivorship is not only about completing treatment. It is about quality of life, mental health, social reintegration, work, family, everyday life, access to services and the feeling that no person is left alone after diagnosis or treatment.

Through its participation in European networks such as INE-CSC, Kapa3 continues to contribute to the dialogue on more equitable, participatory and person-centred cancer care. Care that uses technology without losing sight of the human being at its centre.

The future of cancer support will not depend only on better digital tools, but on better collaboration between patients, caregivers, healthcare professionals, researchers, technology partners, patient organisations and policymakers.

For Kapa3, this is at the heart of its mission: transforming knowledge into action, technology into support, and the voice of patients into services that respond to their real needs.

More information: INE-CSC – Implementation Network Europe for Cancer Survivorship Care.More information:
https://inecancersurvivorship.com

6 Awards for Kapa3 at the 4th Vouliagmeni Summer Crossing: Is There Such a Thing as a “Lonely Race”?

The Cancer Guidance Center – Kapa3 participated with great joy and emotion in the 4th Vouliagmeni Summer Swimming Crossing, an important sports and community event organised by the Vouliagmeni Nautical Club.

This year’s participation was particularly meaningful for all of us. The Kapa3 team received 6 awards, sharing a powerful message of participation, endurance, empowerment and togetherness.

But beyond the awards, what we hold most deeply is the message:

Is there really such a thing as a “lonely race”?

For us at Kapa3, the answer lies in our choice. And our choice is togetherness.

Despoina brought the idea — and much more.
Eirini stayed until the very end.

Leoni, Kalliopi, Giorgos, Christoforos, Athina, Christiana and Aria stood together as a true Winning Team.

They competed in every category, participated in every activity, informed, supported and left their own mark of empowerment, endurance and hope.

Leoni, Kalliopi, Giorgos, Christoforos, Athina, Christiana and Aria stood together as a true Winning Team.

They competed in every category, participated in every activity, informed, supported and left their own mark of empowerment, endurance and hope.

For Kapa3, the 6 awards are not only an athletic distinction. They are a symbol. They represent the power of effort, the importance of persistence and the value of community in every difficult journey.

ust as in the sea, the cancer journey requires rhythm, breath, emotional strength and people by our side. Even when a struggle feels personal, it does not have to be — and should never be — lonely.

Kapa3’s participation in the Vouliagmeni Crossing was an act of presence and awareness. It was a way to remind everyone that support for cancer patients, caregivers and families is not limited to information or access to rights and services. It is also about creating a community that stands beside people, encourages them and reminds them that they are not alone.

The sea carries a powerful symbolism. It represents the journey, uncertainty, effort, endurance, but also freedom. Every participant in the Crossing carries their own story, their own effort and their own path. For us at Kapa3, this image is deeply connected to the experience of people affected by cancer.

At Kapa3, we know that the experience of cancer is not limited to treatment. It is connected to everyday life, emotional resilience, access to information, rights, social benefits, transportation, work, family, uncertainty and the need for human presence.

This is why every community action we participate in has a dual purpose: to inform and to unite. To make visible the need for equal access to care, while also reminding everyone that support is not an abstract concept. It is presence. It is care. It is listening. It is guidance. It is the hand that helps someone keep going.

The 4th Vouliagmeni Summer Crossing was another moment of outreach, participation and empowerment for Kapa3. A moment that showed that strength is not found only at the finish line, but also in the decision to start, to try and to keep going.

We are grateful for the support, the care, the participation and the result.

We warmly thank the Vouliagmeni Nautical Club for organising the event, as well as everyone who participated, supported and stood beside us in this initiative.

We continue to choose togetherness at Kapa3.

Because even when a race is individual, it should never be lonely.

Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Within the framework of the European programme Service Learning 2.0: CoLab – Erasmus+ Strategic Partnerships KA2, KE: 22707, coordinated by the University of Bucharest, an online workshop and focus group was organised with civil society organisations, focusing on the educational approach of Service-Learning.

Service-Learning is a contemporary experiential learning method that combines academic knowledge with active student engagement in society. Through activities that respond to real social or environmental needs, students develop meaningful skills, strengthen their social awareness and connect theoretical learning with practical action.

The workshop brought together universities and civil society organisations from across Europe, including Université Aix-Marseille, University of Bucharest, University of Salzburg, University of Padova, Sapienza University of Rome, and Eurasianet.eu. The discussion focused on cooperation between universities and NGOs, the exchange of experiences, and the adaptation of practices that can strengthen the social impact of education.

Participation in such initiatives highlights the importance of collaboration between academia, civil society and non-profit organisations.

For Kapa3, the philosophy of Service-Learning is closely aligned with its mission: transforming knowledge into action, empowering people affected by cancer, and building bridges between education, social care and active citizenship.

Through these educational collaborations, the connection between universities and society is strengthened, while new opportunities are created for participatory learning, social innovation and meaningful support for vulnerable groups.

Find more

Flyer – Workshop_ Service Learning (2) Service-learning-key-facts (1)

Service-learning-key-facts (1)

May 27 th 2026 Workshop SL with CSOs

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Alpha Bank and Its Employees Support Kapa3 through the Match for Good Initiative

The Cancer Guidance Center – Kapa3 warmly thanks Alpha Bank and its employees for their meaningful support through the Match for Good initiative, through which Alpha Bank doubled the contribution of its employees.

Through this initiative, six non-profit organisations from across Greece received financial support during a special event held at Alpha Bank’s headquarters, in the presence of representatives of the organisations. The event was hosted by the Chairman of Alpha Bank’s Board of Directors, Mr. Dimitris Tsitsiragos, and the Chief Human Resources Officer, Ms. Fragiski Melissa.

Mr. Dimitris Tsitsiragos highlighted that the Match for Good initiative puts into practice Alpha Bank’s commitment to consistently support organisations that create a positive social impact. He underlined that when the individual contribution of employees is combined with the Bank’s support, it becomes a collective force with tangible results.

Ms. Fragiski Melissa noted that Match for Good reflects the Bank’s new culture in practice, giving employees an active role in selecting, participating in and supporting initiatives with social value.

Kapa3 was represented by Ms. Evangeli Bista, co-founder of the Organisation, and Ms. Despoina Chrysostomidou, collaborating psychologist. During the event, they had the opportunity to present Kapa3’s work and discuss the social impact that can be created when corporate responsibility meets the active participation of employees.

For all of us at Kapa3, this support is particularly meaningful. It strengthens our daily effort to stand beside people with lived experience of cancer, as well as their families and caregivers, offering guidance, information, support in accessing rights and services, and practical empowerment tools.

Kapa3 acts as a navigation and support organisation for cancer patients, bridging the gap between need and information, between rights and real access. For many people, especially those living outside major urban centres, the challenge is not only the disease itself. It is uncertainty, bureaucracy, lack of information about available rights, financial burden, transportation difficulties, psychosocial pressure and the need for a reliable companion.

Through initiatives like this, social contribution gains multiplying power and becomes real support for those who need it. The support of Alpha Bank and its employees strengthens Kapa3’s mission: ensuring that no person is left alone when facing cancer, searching for information, navigating procedures or claiming a right they are entitled to.

Health is not only a medical act. It is access, information, dignity, social care and meaningful presence. Every contribution to Kapa3 becomes more guidance, more information, more empowerment and more care for people and families going through a difficult and demanding journey.

We warmly thank Alpha Bank and its employees for their trust, choice and support of Kapa3’s work.

Because when giving becomes collective, it can meaningfully change people’s everyday lives.

 

 

20260310 Match For Good Programme Part2 Alpha Bank Via Solid Havas / Thalia Galanopoulou
20260310 Match For Good Programme Part2 Alpha Bank Via Solid Havas / Thalia Galanopoulou

Match for Good – Alpha Bank (1)

Language in cancer care: why words are never neutral

Language used in cancer care is never neutral. The words chosen to describe a diagnosis can significantly shape how a person experiences illness, especially during a highly vulnerable period of life. Depending on how they are used, words may either reinforce fear and stigma or support dignity, psychological safety, and empowerment.

This perspective is highlighted in a recent interview with Evangeli Bista, co-founder of the Cancer Guidance Center (Kapa3), published on iatronet.gr, where she discusses the findings of a study exploring how patients themselves perceive the language used around cancer.

The study, conducted by Kapa3, examined how people living with cancer experience terms such as “cancer patient,” “oncology patient,” or simply “patient,” and how these labels influence their emotional response and sense of identity.

Findings suggest that many patients feel that labels directly linking them to their disease can increase emotional burden and reinforce the idea that cancer defines their entire identity. In contrast, more neutral or person-first expressions (“person with cancer”) appear to offer greater psychological comfort, allowing individuals to maintain a sense of self beyond the diagnosis.

The qualitative analysis also highlights the crucial role of healthcare professionals. Clear, honest, and compassionate communication—without exaggeration or dramatic framing—is consistently described by patients as a key element of trust and emotional support. Communication, in this sense, is not simply a soft skill but an essential part of clinical care.

The study further reinforces the importance of a person-first approach, where the individual comes before the illness. At the same time, participants expressed resistance both to stigma and to excessive heroisation, calling instead for balanced, respectful, and realistic communication.

Ultimately, language in oncology is not just descriptive—it actively shapes the patient experience and becomes part of the care process itself.

Read the full interview with Evangeli Bista on iatronet.gr:
https://www.iatronet.gr/article/139695/karkinopathhs-ogkologikos-asthenhs-h-apla-asthenhs-o-antiktypos-ton-lexeon-ston-karkino

Read the related scientific publication by the Cancer Guidance Center (Kapa3):
https://www.kapa3.gr/nea-epistimoniki-dimosieysi-gia-to-kapa3/

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

May, Melanoma Awareness Month: Prevention, awareness and early diagnosis

May is internationally recognized as Melanoma Awareness Month and Skin Cancer Awareness Month, dedicated to raising awareness about prevention, sun protection, and the importance of early diagnosis.

Skin cancer is the most common type of cancer worldwide, with melanoma being its most aggressive form. Although it accounts for a smaller proportion of skin cancer cases, it is responsible for the majority of skin cancer-related deaths.

Globally, in 2020 there were approximately 325,000 new cases of melanoma and around 57,000 deaths, with numbers expected to rise in the coming years if prevention and awareness efforts are not strengthened.

In Europe, melanoma remains one of the most common cancers, with more than 100,000 new cases annually and over 15,000 deaths each year. The incidence is higher in Northern and Western European countries, while overall UV radiation exposure is considered the main contributing factor for the majority of cases.

Excessive exposure to ultraviolet (UV) radiation, whether from the sun or artificial sources such as tanning beds, is the most significant risk factor for melanoma. Many cases could be prevented through proper sun protection and behavioral changes.

In countries like Greece, where sunlight exposure is high throughout much of the year, awareness and prevention are especially important. Regular skin self-examinations and dermatological check-ups can play a key role in identifying suspicious changes in moles (naevi) at an early stage.

Early diagnosis significantly improves survival rates. When detected in its initial stages, melanoma is highly treatable, whereas delayed diagnosis is associated with more aggressive disease progression. This highlights the critical importance of awareness and timely medical evaluation.

Preventive measures remain essential: using sunscreen, avoiding peak sun hours, wearing protective clothing, and avoiding artificial tanning can all significantly reduce risk.

Melanoma Awareness Month serves as an important reminder that skin health is not only an aesthetic concern but a vital part of overall health and cancer prevention.

Read also Kapa3’s article on Bladder Cancer Awareness Month.

Sources:

  • World Health Organization (WHO)
  • International Agency for Research on Cancer (IARC) – GLOBOCAN
  • European Cancer Information System (ECIS)
  • European Environment Agency (EEA)

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Bladder Cancer Awareness Month: Awareness, prevention and early diagnosis

May is internationally recognized as Bladder Cancer Awareness Month, an important initiative led by health organizations and patient advocacy groups worldwide to promote public awareness, prevention, and early diagnosis.

Bladder cancer is among the most common types of cancer globally, with hundreds of thousands of new cases diagnosed each year. In Europe, it is considered one of the most common urological cancers, affecting men significantly more often than women.

In Greece, the data remains particularly concerning. The country records the highest incidence rate in Southern Europe, with approximately 39.7 new cases per 100,000 men annually. In terms of mortality, an estimated 7–8 men per 100,000 lose their lives to the disease every year, placing Greece among the countries with the highest mortality rates in the region. These figures highlight the importance of prevention, awareness, and timely medical intervention.

Behind every statistic are people — patients and families facing the emotional, physical, and practical challenges that accompany a cancer diagnosis. Raising awareness is therefore not only about numbers, but also about supporting individuals throughout their journey.

Smoking remains the most significant risk factor for bladder cancer and is linked to a large percentage of cases. Long-term exposure to certain chemicals, especially in specific occupational environments, as well as chronic inflammation of the urinary tract, may also increase the risk of developing the disease.

Recognizing the symptoms early can make a critical difference. The most common warning sign is blood in the urine (hematuria), even when no pain is present. Other symptoms may include frequent urination, burning during urination, or a sudden urge to urinate. Although these symptoms may also be associated with less serious conditions, they should never be ignored.

When bladder cancer is diagnosed at an early stage, survival rates are significantly higher, underlining the importance of early detection. However, the disease is also known for its high recurrence rates, making long-term follow-up and monitoring essential even after treatment.

Prevention remains a key pillar in reducing the burden of the disease. Quitting smoking, limiting exposure to harmful chemicals, and increasing awareness of the symptoms can all contribute to lowering the risk.

In Greece, awareness initiatives are also supported by scientific organizations such as the Hellenic Genito-Urinary Cancer Group (HGUCG), contributing to public education and the promotion of early symptom recognition.

Bladder Cancer Awareness Month is an important opportunity to encourage open discussion around the disease. Awareness is more than information — it is a tool that can lead to earlier diagnosis, improved treatment outcomes, and ultimately, more lives saved.

Sources:

Text/adaptation: Ifiyenia Anastasiou for Kapa3