Category: Patient Education

Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

On Tuesday, June 9, a meeting was held to sign a Memorandum of Understanding between the University of West Attica—specifically the Department of Occupational Therapy—and the NGO KAPA3.

The meeting was attended by the Rector of the University of West Attica, Panagiotis Kaldis Penelope Vlotinou, Assistant Professor in the Department of Occupational Therapy Evangelia Bista, co-founder of the organization, as well as representatives from both organizations, including the interdisciplinary team of KAPA3: Despoina Chrysostomou, Psychologist Katerina Georgiopoulou, Social Worker Yiannis Kontogiorgis, Psychologist, and Eleftheria-Irini Polyzoti, an intern from the Department of Social and Educational Policy, as well as students from the Occupational Therapy Department.

During the meeting, a constructive discussion took place regarding the prospects for cooperation between the two organizations, with the aim of developing joint actions and initiatives that will contribute to strengthening education, research, social contribution, and the connection between the academic community and society.

In this context,  it was decided in April to jointly organize a major scientific conference, which will focus on an interdisciplinary and holistic approach to health, on combating social inequalities in healthcare, as well as on the management of chronic disease. The aim of this initiative is to raise community awareness, facilitate the exchange of expertise among professionals and scientific bodies, and disseminate scientific knowledge and information to the general public.

Special mention was made of the innovative work of KAPA3, the digital Health Navigator “Myrto,” a modern artificial intelligence tool currently under development and designed to support cancer patients, their families, and their caregivers. “Myrto” will function as a digital assistant (Chatbot) and Health and Rights Navigator, providing immediate, reliable, and personalized information on health, social welfare, rights, benefits, and available support services. The project aims to empower patients, improve their access to information, and reduce inequalities in health and social care through the use of digital technologies and artificial intelligence applications. The development of “Myrtos” represents a pioneering application of social artificial intelligence in the field of oncology care in Greece and is part of KAPA3’s strategy to promote innovation, accessibility, and the active participation of patients in managing their own health.

The meeting concluded in a particularly positive atmosphere of mutual appreciation and recognition. In this context, the Department of Occupational Therapy at the University of West Attica made a symbolic gesture toward the representative of KAPA3, Evangelia Bista, presenting her with a commemorative gift as a token of appreciation for her many years of valuable social contribution in the field of support for cancer patients. At the same time, as a gesture of hospitality and appreciation, the team was offered a specially produced wine, which is an original creation of the University of West Attica.

 

 

Confirmation of AMKA for Child and Parent

A major institutional development is set to simplify the lives of cancer patients and their families by eliminating unnecessary bureaucratic hurdles. The new ministerial decision introduces digital proof of kinship for the dispensing of High-Cost Medications (FCM). The Kapa3 team presents a detailed overview of all the changes affecting insured individuals’ daily access to their essential treatments.

A Digital Leap Toward Equal Access to Care

The new decision provides for the launch of the specialized online service “AMKA Verification for Child-Parent.” This service is directly integrated into the “PLATFORM FOR THE DISTRIBUTION OF PHARMACY-ISSUE MEDICATIONS BY PRIVATE PHARMACIES/EOPYY PHARMACIES” information system.

For the people Kapa3 serves every day, this development translates into an immediate reduction in bureaucracy and hassle. From now on, the verification of family relationships will be performed automatically, ensuring that vulnerable groups and their caregivers do not waste valuable time waiting for approval of their necessary treatment regimens.

 This upgrade is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we gain is precious.

What’s Changing in Patients’ Daily Lives

Until now, in order to obtain approval for the dispensing or delivery of an expensive medication for a child or dependent, it was often necessary to submit additional documents (such as family status certificates) or in-person verification of the parent-child relationship. 

What sets Decision 3 of this Government Gazette apart is the following:

Automatic Data Matching: It digitally connects information systems in real time. The EOPYY platform now automatically “reads” the relationship between a parent’s and child’s AMKA numbers through the Interoperability Center.

Immediate Approval of Requests: The parent or close relative logs into the digital “FYK DISPENSATION PLATFORM” using their own credentials and can submit the request immediately, without the process being held up due to a lack of the child’s identification.

Flexibility in Pickup: It facilitates faster scheduling of appointments at EOPYY pharmacies or pickup from private pharmacies, dramatically reducing wait times for vulnerable patients

 

Reducing bureaucracy is not merely a digital upgrade; it is a matter of respect and dignity for the patient who is fighting their own battle. At Kapa3, we continue to stand by every cancer patient and their family, ensuring that information and care reach those who truly need them—quickly and easily. Because when it comes to health, every minute we save is

 

Newsletter Kapa3| June 2026,From survivorship to quality of life — from information to support — from technology to human-centred care.

May was a month of important developments, scientific outreach and service enhancement for Kapa3. From the new European scientific publication of the MELODIC project and educational participation in international networks, to the development of “Myrto”, the creation of a new Psychological Support Team and support through social and corporate initiatives, Kapa3 continues to bring together knowledge, technology, human care and social action.

Our mission remains focused on equal access for cancer patients and their caregivers to information, rights, services and meaningful support.

1. June: Cancer Survivors Month

June is dedicated to people living with and beyond cancer. Survivorship is not only the end of treatment; it is continuity, adaptation, reintegration, psychosocial support, quality of life and the right to care beyond therapy.

▸ EN: https://www.kapa3.gr/en/june-cancer-survivors-month-title-sep-sitename/

2. Kapa3 Introduces Its New Psychological Support Team

On the occasion of Mental Health Awareness Month and Cancer Survivors Month, Kapa3 introduces its new Psychological Support Team: a safe space for listening, support and empowerment for patients, survivors, caregivers and families.

▸ CONTACT US  https://www.kapa3.gr/en/kapa3-introduces-its-new-psychological-support-team/

3. New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Mental health is an integral part of cancer care, particularly for young adults facing the complex challenges of a cancer diagnosis. Kapa3 contributes to the new scientific publication of the European MELODIC project, highlighting the educational needs of healthcare professionals.

▸ READ THE ARTICLE

4. Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

Kapa3 participated in the INE-CSC 2026 Conference in Coimbra, contributing to the European dialogue on cancer survivorship, supportive care, digital health and participatory solutions that respond to the real needs of patients and caregivers.

▸ READ THE ARTICL Ehttps://www.kapa3.gr/en/participation-in-ca21152-implementation-network-europe-for-cancer-survivorship-care/

5. Co-creating Myrto: A Digital Health and Rights Navigator for Oncology Patients

Myrto is designed as a digital health and rights navigator — a Patient Empowerment e-Navigator — that goes beyond information provision to guide, support and evolve according to users’ real needs.

▸ READ THE ARTICLE https://www.kapa3.gr/en/myrto-health-navigator-oncology-patients-greece/

6. Learning by Doing: Participation in the European Service Learning 2.0: CoLab Programme

Kapa3 participated in the European programme Service Learning 2.0: CoLab, an initiative connecting academic knowledge with meaningful social action and highlighting collaboration between universities, civil society organisations and community actors.

▸ FIND OUT MOREhttps://www.kapa3.gr/en/learning-by-doing-participation-in-the-european-service-learning-2-0-colab-programme/

7. Alpha Bank and Its Employees Support Kapa3 through the Match for Good Initiative

Through the Match for Good initiative, Alpha Bank and its employees supported Kapa3, strengthening our mission to stand alongside people affected by cancer, their families and caregivers.

▸ FIND OUT MORE https://www.kapa3.gr/en/i-alpha-bank-kai-oi-ergazomenoi-tis-stirizoyn-to-kapa3-kai-tin-isotimi-prosvasi-stin-ypostirixi-ton-ogkologikon-asthenon/

8. 6 Awards for Kapa3 at the 4th Vouliagmeni Summer Crossing: Is There Such a Thing as a “Lonely Race”?

Kapa3 took part in the 4th Vouliagmeni Summer Crossing, sharing a strong message of participation, resilience, empowerment and solidarity. Even when a race seems individual, it does not have to be lonely.

▸ READ MOREhttps://www.kapa3.gr/en/kapa3-6-vraveia-diaplous-vouliagmenis/

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Support our work and help us continue to provide information, guidance and support to patients and their families.

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June: Cancer Survivors Month

Survival is a victory — but care must continue

June is dedicated to people living with and beyond cancer. It is a month of recognition, hope and respect for every person who has faced a cancer diagnosis, completed treatment, continues treatment, or lives with cancer as a long-term condition.

Cancer survival is a major victory. However, for many people, it is not the end of the story. Life after cancer often brings a new reality: follow-up appointments, fear of recurrence, fatigue, emotional distress, changes in body image, work-related challenges, financial pressure, family adjustments and the need to rebuild everyday life with confidence and dignity.

Cancer Survivors Month reminds us that survivorship is not only about living longer. It is also about living better.

A cancer survivor is not only a person who has completed treatment and is disease-free. The term also includes people receiving maintenance treatment, people living with cancer as a chronic condition, and those who continue to experience the physical, emotional, social or economic consequences of the disease and its treatment.

In recent years, advances in early diagnosis, targeted therapies, immunotherapy, surgery, radiotherapy and supportive care have increased the number of people living many years after a cancer diagnosis. This is a major achievement for medicine, research and public health. At the same time, it creates a new responsibility: to ensure that survivorship care is organised, person-centred and accessible to all.

For many survivors, the end of active treatment is a moment of relief and gratitude. Yet it may also bring uncertainty. Some people feel that everyone around them expects them to “go back to normal”, while they are still trying to understand what has changed in their body, their emotions, their relationships and their daily life.

The fear of recurrence, anxiety before follow-up tests, persistent fatigue, pain, cognitive difficulties, changes in sexuality, emotional vulnerability and social isolation are real experiences for many people after cancer. These needs should not be underestimated. Survivors need space to speak, reliable information, access to professional support when needed, and connection with communities and organisations that understand their journey.

Long-term follow-up is also essential. Survivorship care should not focus only on recurrence. It should also include prevention, early recognition of late effects, management of treatment-related complications, support for mental health, healthy lifestyle guidance and personalised monitoring according to each person’s cancer type, treatment history, age and individual risk factors.

The message is not fear. The message is awareness, prevention and continuity of care.

Life after cancer is also about rights. It is about returning to work, accessing social benefits, understanding available services, managing financial toxicity, supporting caregivers, protecting dignity and ensuring equal access to care. Survivorship must be seen as a social, psychological and practical issue — not only a medical one.

At Kapa3, we see every day that cancer does not always end with the last treatment. It continues in the questions people ask about their rights, their next steps, their follow-up, their access to benefits, psychological support, work, family life and social reintegration.

This is why people living with and beyond cancer need holistic support. They need information, guidance, psychosocial care, access to rights and services, empowerment and continuity of care. No one should feel alone after treatment. No one should be left to navigate bureaucracy, uncertainty or lack of information without support.

Cancer Survivors Month invites us to change the way we talk about survival. We should not ask only: “Did the person survive cancer?” We should also ask:

Are they living with quality of life?
Do they have access to the care they need?
Do they know their rights?
Do they receive psychological and social support?
Can they return to work and daily life with dignity?
Is there a follow-up plan?
Is there someone to guide them when they do not know where to turn?

Cancer survival is a victory. But the real challenge is to turn this victory into a life with quality, safety, rights, support and hope.

At Kapa3, we continue to stand beside every person living with and beyond cancer. Through information, guidance, empowerment and human-centred support, we believe that care does not stop at treatment.

It continues in life.

New MELODIC Scientific Publication on the Mental Health of Young Adults with Cancer

Kapa3 participates in the new scientific publication of the European MELODIC project, entitled:

“Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey.”

The publication addresses a highly important issue in contemporary cancer care: the educational needs of healthcare professionals working with young adults with cancer, particularly in relation to recognising and supporting mental health concerns.

Young adults experiencing cancer often face complex psychosocial challenges. Diagnosis, treatment, changes in daily life, impact on studies, work, relationships, body image and future planning can deeply affect their mental health and quality of life.

The European study, involving 271 healthcare professionals from 21 countries, highlighted an important gap between professionals’ willingness to support patients and the systematic use of validated assessment tools. While approximately half of the participating professionals reported feeling confident in identifying mental health issues, only a small percentage reported using validated screening tools.

This finding is particularly important. It shows that awareness and professional experience are valuable, but they are not enough on their own. Targeted education, appropriate tools, interdisciplinary collaboration and clear support pathways are needed so that the needs of young adults with cancer can be recognised early and addressed in a comprehensive way.

The message of the publication is clear: the education of healthcare professionals can make a meaningful difference in the early recognition, support and care of young adults with cancer.

At Kapa3, this approach is a core principle of our work. Before every intervention and every support action, there is education, information and empowerment of the people who stand beside patients.

Kapa3 professionals and collaborators are trained, informed and actively involved in European projects such as MELODIC, ensuring that the support provided is evidence-informed, human-centred and meaningful.

Kapa3’s active participation in such scientific initiatives strengthens its role as an organisation that connects research with practice, European knowledge with real patient needs, and education with everyday care.

We are proud of our participation in the MELODIC project and of our contribution to a European effort that highlights the importance of mental health, early recognition and targeted education in cancer care.

More information: https://lnkd.in/e9Pw4epy

Kapa3 in the First Half of March: Actions, Collaborations, and Updates for Oncology Patients

During the first half of March, Kapa3 continued to highlight important topics concerning the oncology patient support, rights, and daily lives  through initiatives, collaborations, and informational activities.

Efforts focused both on strengthening access to information and services, and on promoting practical and digital tools that make patients’ daily lives easier.

In an environment where patients’ needs remain complex and constantly evolving, reliable information, enhanced collaboration among stakeholders, and the promotion of holistic care are especially important.

Below is a summary of the main developments from the month.

Collaborations

Key partnerships were strengthened with the Sarcoma Fighters Patients Association, the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS), and Doctor Homie, aiming to enhance information, support, and quality care for patients.

Actions & Presentations

Kapa3 participated in the scientific meeting “Cancer in 2026: Challenges and Breakthroughs,” emphasizing the pivotal role of supportive care for oncology patients, while also presenting recent developments addressing their evolving needs. Kapa3 also attented the event “Facing the Challenge of Artificial Intelligence” as we remain focused on supporting dialogue around the opportunities and challenges of A.I.

Patient Rights

Supporting oncology patients remains a central goal of our initiatives. Focus was given to updates on the 2026 constant attendance allowance and improved digital access for patients to their test results.

Digital Health & Research

A new European Commission report highlights the critical role of digital health technologies in transforming healthcare systems, outlining both opportunities and challenges for the future of care.

Awareness

March is Colorectal Cancer Awareness Month, reminding everyone of the importance of prevention and early detection.

Oncology patient support remains our top priority, and we continue to monitor developments — more news will follow.

Kapa3’s Contribution to the 6th Nursing Symposium of Western Macedonia: Digital Health, Empathy, and Patient Navigation

With active participation in a well-established scientific meeting on contemporary nursing issues, Kapa3 took part in the 6th Nursing Symposium of Western Macedonia on “Innovation and Empathy: Balancing Technology with Human Contact in Nursing”, held on March 19–20, 2026, in Ptolemaida.

The Symposium, now a key annual event for the nursing community, serves as a platform for dialogue, knowledge exchange, and highlighting the multifaceted role of nurses in modern healthcare.

As part of the thematic session “Innovation and Citizen Engagement: Creating Accessible Tools with Empathy”, Ms. Evangeli Bista, co-founder of Kapa3, joined the panel along with Ms. Pisti Krystallidou, President of the NGO WinCancer, showcasing the role of civil society in shaping contemporary, accessible healthcare services.

On March 20, Ms. Evangeli Bista and Ms. Pisti Krystallidou actively participated in the Round Table on the same theme. Ms. Krystallidou presented “Empathy in Practice: What the Caregiver Gains from Health Professionals”, highlighting the daily challenges and support needs of people caring for patients. Ms. Bista emphasized Kapa3’s role and the use of digital tools in guiding patients effectively.

During her presentation, Ms. Bista outlined how the healthcare system is transforming: from episodic care to continuous support, from hospital-centered services to daily-life integration, and from the healthcare professional as the sole source of knowledge to the patient as an active participant. In this new environment, digital health and patient navigation go beyond mere tools, focusing on the citizen’s ability to use them meaningfully in everyday life.

Special attention was given to the needs of oncology patients, who require not only access to information but also guidance through a complex healthcare system—knowing where to turn, what they are entitled to, and how to manage critical decisions in daily life. In this context, the importance of patient navigation was highlighted, a model that Kapa3 has implemented since its foundation, acting as a bridge between available services and patients’ real needs.

Finally, the digital social assistant “Myrto” was presented, serving as a single reference point for patients, facilitating access to information and services, and translating knowledge into practical, everyday support.

Kapa3’s participation in the Symposium highlighted the importance of combining technological innovation with empathy, confirming that the future of oncology care is not only about personalized treatment but also about personalized understanding of each patient’s needs.

Download our Press Release here 

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Colorectal Cancer Awareness Month – March

March is dedicated to raising awareness and promoting prevention of colorectal cancer, one of the most common but also highly treatable cancers when detected early. It is also referred to as colorectal carcinoma.

According to a European Commission report published in March 2021, colorectal cancer accounted for 12.7% of all new cancer diagnoses and 12.4% of all cancer-related deaths in the EU-27 countries in 2020. By 2045, it is estimated that 3.29 million new cases will be diagnosed worldwide, leading to 1.66 million deaths.

The disease occurs more frequently in men than in women, with age being a significant factor. Approximately 90% of people diagnosed with colorectal cancer worldwide are over 50 years old.

Prevention and early detection save lives.

Regular screenings, such as colonoscopy, can detect early lesions or precancerous changes before they develop into serious disease. During a colonoscopy, tissue samples (biopsies) can be taken for histological examination if a suspicious lesion is found, and polyps can be removed to prevent progression to cancer.

Treatment options depend on the stage of the disease, the tumor’s molecular characteristics, and the patient’s overall health. Standard therapies include surgery, chemotherapy, radiotherapy—which plays a key role in rectal cancer—as well as targeted therapies and immunotherapies guided by specific molecular biomarkers.

Through the National Colorectal Cancer Screening Program, the goal is to detect precancerous lesions or the disease itself early, allowing prompt intervention and treatment. Adenomatous polyps or early-stage neoplasms have a 100% cure rate when managed at an early stage, highlighting the critical importance of early detection.

For more information, visit the National Colorectal Cancer Screening Program website: https://colon.gov.gr

For any questions, you can contact the service department at tel. 11401 or via email: prolipsis-helpdesk@idika.gr.

Sources:

New Collaboration between Cancer Guidance Center – Kapa3 and the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS)

Cancer Guidance Center – Kapa3 announces its new collaboration with the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS), strengthening synergies between organizations active in the field of health and patient support.

This collaboration aims to develop joint initiatives that will contribute to raising awareness, promoting public information, and providing meaningful support to people living with chronic conditions, with particular focus on cancer patients and persons living with Multiple Sclerosis. Through the exchange of knowledge, experience and good practices, the two organizations seek to strengthen actions that promote equal access to information, healthcare services and social inclusion for patients.

Cancer Guidance Center – Kapa3 is dedicated to supporting people living with cancer and their caregivers by providing reliable information, practical guidance and access to benefits and services. At the same time, the organization develops initiatives that enhance patients’ awareness of their rights and promote their psychosocial empowerment. Through initiatives such as Mobile Units, digital tools and educational programmes, Kapa3 promotes a patient-centred approach to cancer care, encouraging patients to actively participate in decisions concerning their health and quality of life, while fostering collaborations with organizations working in the fields of health and social support.

The Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS) is a secondary non-profit organization founded in 2008 with the aim of uniting and supporting primary associations of persons with Multiple Sclerosis across Greece, while also raising awareness about the disease among the wider public. The Federation currently brings together nine primary patient associations from across the country. HFoPwMS implements awareness and advocacy initiatives related to Multiple Sclerosis and works to ensure the equal participation of people with MS in the educational, professional, athletic and cultural life of the country. It is a member of the National Confederation of Disabled People (ESAmeA) and the European Multiple Sclerosis Platform (EMSP).

Within the framework of this collaboration, the two organizations plan to develop joint initiatives such as the organization of conferences, workshops and awareness events, the implementation of information and public awareness campaigns, participation in national and European programmes, as well as the development of joint research initiatives on issues related to patients’ quality of life. The partnership will also contribute to strengthening interdisciplinary cooperation and knowledge exchange among organizations active in the health sector.

This new collaboration reflects the shared vision of the two organizations to strengthen the voice of patients and promote a society that respects, supports and empowers people living with chronic conditions.

March – Multiple Myeloma Awareness Month

March – Multiple Myeloma Awareness Month

March is internationally recognized as Multiple Myeloma Awareness Month, a type of blood cancer that affects plasma cells – immune system cells responsible for producing antibodies and defending the body against infections.

This period provides an important opportunity to raise public awareness, highlight the challenges faced by patients, and enhance understanding of the disease, early diagnosis, and the importance of access to modern treatments.

What is Multiple Myeloma

Multiple myeloma develops in the bone marrow, when plasma cells grow uncontrollably and produce abnormal proteins. The presence of these cells can affect the production of healthy blood cells, cause bone damage, and impair the function of vital organs such as the kidneys. Although relatively rare, it is the second most common blood cancer worldwide.

The disease’s symptoms may be initially nonspecific and develop gradually. Fatigue, bone pain – especially in the spine or ribs – frequent infections, anemia, or kidney problems are some of the signs that may prompt further investigation. Early awareness and timely medical evaluation are therefore crucial for diagnosis and disease management.

Multiple Myeloma by the Numbers

Globally, the disease affects a significant number of people. According to international epidemiological data:

  • 188,000 new cases were reported worldwide in 2022

  • Approximately 121,000 people died from the disease the same year

  • It is estimated that more than 540,000 people are currently living with multiple myeloma worldwide

The disease occurs more often in older adults. Most diagnoses occur in people over 60–65 years old, and around 80% of cases are reported in individuals over 65. Experts predict that the disease’s incidence may rise in the coming decades, largely due to the aging population in many countries.

The Situation in Greece

In Greece, the exact epidemiological picture of multiple myeloma is not fully clear, as there is no comprehensive national cancer registry recording all cases systematically.

However, according to available international estimates for 2022:

  • About 763 new multiple myeloma cases were reported in the country

  • Approximately 579 deaths were attributed to the disease

  • It is estimated that around 2,154 people in Greece are living with the disease over a five-year period

These figures highlight the importance of improving health data collection and continuously supporting patients living with the disease.

Advances in Treatments

In recent years, scientific progress has significantly changed the course of the disease.

Modern therapies include:

  • Immunotherapies

  • Monoclonal antibodies

  • Proteasome inhibitors

  • Immunomodulatory drugs

  • CAR‑T cell therapies (for advanced stages of the disease)

New therapeutic combinations and ongoing clinical studies are providing more treatment options, reinforcing hope for even more effective therapies in the future.

The Importance of Awareness and Support

Despite these advancements, public awareness and support for people living with the disease remain crucial. Early diagnosis, access to specialized medical care, and equitable access to modern therapies are key factors in improving disease outcomes and patients’ quality of life.

Multiple Myeloma Awareness Month serves as a reminder that knowledge, research, and collective effort can make a difference. Through education, support for scientific research, and assistance to patients and their families, we can help create an environment where no one faces cancer alone.

Sources:

https://gco.iarc.fr
(Global Cancer Observatory – International Agency for Research on Cancer)

https://pubmed.ncbi.nlm.nih.gov/39658225/
(Global burden and projections of multiple myeloma)

https://www.oecd.org/health/cancer-profiles/greece.html
(EU Country Cancer Profile – Greece)

https://ehoonline.biomedcentral.com/articles/10.1186/s40164-025-00684-x
(Global epidemiology of multiple myeloma)

https://pmc.ncbi.nlm.nih.gov/articles/PMC3627436/
(Multiple myeloma epidemiology study)

Text/adaptation: Ifiyenia Anastasiou for Kapa3