The Right to Be Forgotten: A New Era of Dignity for Cancer Survivors

Life after cancer should not be accompanied by lifelong financial exclusion

For many decades, completing cancer treatment did not always mean the end of obstacles for those who had been diagnosed with the disease. Years after their treatment, many survivors continued to face higher insurance premiums, denied insurance applications, and difficulties accessing financial services.A history of cancer could act as a permanent “stigma,” even many years after treatment had ended.

Thus, medical progress and a return to daily life were not always accompanied by corresponding social and economic rehabilitation.

With Law No. 5317/2026, published on July 10, 2026, Greece is moving forward with the legislative enshrinement of the so-called “Right to Be Forgotten” for cancer survivors, in the context of insurance contracts linked to consumer credit agreements. This specific provision is found in Article 16, paragraph 4, of the law.

What the new provision stipulates

The law prohibits the use of personal data related to a consumer’s cancer diagnosis when such data is to be used for an insurance contract linked to a credit agreement and five years have passed since the completion of treatment.

Simply put, once the five-year period has elapsed, a prior history of a cancer diagnosis cannot be used in this specific context as a factor in assessing the insurance contract accompanying the credit agreement. This represents a significant shift: individuals are no longer assessed indefinitely through the lens of a past
illness, but are given the opportunity to move forward with their lives without their previous diagnosis serving as a permanent obstacle.

The four key points of the new entitlement

The Right to be Forgotten does not mean that the diagnosis is deleted from the medical record. It means that, after the prescribed five-year period, data related to the cancer diagnosis may not be used for that specific insurance purpose.

Fourth, special oversight is provided for.

The Personal Data Protection Authority is responsible for enforcing paragraph 4 of Article 16 and possesses the supervisory and auditing powers provided for by the General Data Protection Regulation.

What the New Regulation Does Not Cover

Accurate information is particularly important so that citizens are aware of both their rights and the actual
limits of the protection provided.

The new legislative provision:

  • does not apply to all forms of private insurance,
  • does not automatically guarantee the approval of a loan or an insurance application,
  • does not cover credit agreements secured by a mortgage on real property,
  • does not cover credit intended for the purchase or retention of rights in real estate,

does not cover professional or business loans, as the law applies to consumers acting outside the
scope of their professional or business activities.

Furthermore, consumer credit agreements already in effect as of November 20, 2026, will, as a general rule, continue to be governed by the previous legal framework until their expiration.
Therefore, the new regulation represents a very important step, but it does not yet provide comprehensive coverage of all the financial and insurance needs of survivors.

From Voluntary Commitment to Legal Enshrinement

The Right to Be Forgotten did not first appear in Greece in 2026. As of March 26, 2024, the Code of Ethics of the Hellenic Association of Insurance Companies has been in effect, to which life insurance companies had adhered.

The Code applied to life insurance policies linked to mortgage, business, or consumer loans, with a maximum total insured amount of 300,000 euros. It provided for a ten-year period following the completion of treatment for those diagnosed as adults and a five-year period for those diagnosed before
turning 18.

The new legislation is particularly significant because protection is no longer based exclusively on the insurance industry’s voluntary commitment. For contracts falling within its scope, the failure to use the oncological diagnosis after the five-year period becomes a legal obligation.

At the same time, there is a need to clarify the relationship between the new law and the existing Code, particularly with regard to mortgage and business loans that are not subject to the new legislative provision.

Additional Safeguards for Consumers

Article 16 includes other important safeguards. When insurance is required for the granting of credit, the creditor must accept equivalent insurance coverage from an insurance company of the consumer’s choice. Choosing a different company must not result in less favorable credit terms.

At the same time, the consumer is given a period of at least three business days to compare insurance quotes, unless the consumer requests in writing that the contract be concluded earlier.

The European Dimension

The Greek regulation transposes Directive (EU) 2023/2225 on consumer credit agreements. The European
Directive requires Member States to establish a time limit beyond which data related to oncological
diagnoses may not be used for insurance policies linked to credit agreements. The European text stipulated that this period must not exceed fifteen years; Greece opted for the significantly shorter period of five years.

This choice has particular social significance. It recognizes that advances in oncology, increased survival rates, and people’s return to family, social, and professional life must be accompanied by corresponding
developments in the law.

When Does It Take Ef ect?

Although Law No. 5317/2026 has already been published, the provisions of Part A, which include the
Right to Be Forgotten, will take effect on November 20, 2026.
Until then, substantial preparation is required on the part of banks, insurance companies, and the relevant
authorities. Clear procedures, understandable information for citizens, appropriate staff training, and an
easily accessible mechanism for submitting reports or complaints are needed.

A Significant Achievement—Not the End of the Journey

The Right to Be Forgotten represents a significant institutional victory for dignity and equality. Cancer
should not be a lifelong social and economic stigma. A person’s medical history should not negate their
right to plan for the future, participate equally in society, and make a fresh start.
At the same time, the new regulation must be viewed as a starting point, not the culmination of our
efforts. The next step must be to extend meaningful protection to more insurance and financial products,
including housing needs, as well as to address the discrimination that continues to occur in the workplace
and other aspects of social life.
Scientific progress has transformed cancer from a terminal diagnosis into an experience of life and
survival for millions of people. Society and the law must follow suit.

Because the Right to Be Forgotten is not a privilege. It is every person’s right not to remain forever
trapped by a past diagnosis—and to move forward into the future without discrimination, without
stigma, and with dignity.

Find more : http://elib.aade.gr/elib/view?

Kapa3 partners with PRAXI Network (FORTH) to boost international networking and access to European funding opportunities

The Cancer Guidance Center – Kapa3 announces its partnership with the PRAXI Network of the Foundation for Research and Technology – Hellas (FORTH), within the framework of the European Digital Innovation Hub smartHEALTH: European Digital Innovation Hub for Smart Health – Precision Medicine and Innovative e-Health Services.

This collaboration is part of the broader Digital Europe Programme 2021–2027 and aims to strengthen Kapa3’s participation in research, innovation, and health policy initiatives, focusing on improving services and enhancing the quality of life of oncology patients.

Within this partnership, Kapa3 will receive substantial support in identifying and leveraging funding opportunities through systematic information and expert guidance on available programmes at European, national, and regional level, including Horizon Europe, EU4Health, Erasmus+, and EIT Health. At the same time, its capacity to actively participate in competitive proposals and collaborative projects will be reinforced, expanding its potential to develop innovative initiatives in the health sector.

Particular emphasis is also placed on the development of strategic partnerships with universities, research centres, and healthcare organisations across Europe. Through targeted support in partner identification and the exploration of synergies, Kapa3 strengthens its position within the European research and innovation ecosystem, creating opportunities for participation in international consortia.

In parallel, the collaboration contributes to enhancing the organisation’s international presence and networking capacity through participation in thematic conferences, brokerage events, and matchmaking initiatives in the fields of public health, digital health, social innovation, and patient-centred care.

This Kapa3 PRAXI Network partnership is expected to act as a catalyst for strengthening Kapa3’s outward-looking orientation and sustainable development, reinforcing its role as an active and dynamic stakeholder in the field of health and patient support at both national and European level.

The support services are provided within the smartHEALTH framework and are co-funded by European and national resources.

The Founding Sponsor of the “Myrto”Health Navigator is the TIMA Foundation.

Press release source: PRESS-RELEASE-PRAXI-Network-–-FORTH

Text/adaptation: Ifiyenia Anastasiou for Kapa3

World Health Day 2026: Together for Health, Guided by Science

Every year, on April 7th, the World Health Organization (WHO) reminds us through World Health Day that health is a fundamental human right. World Health Day 2026 highlights, through its central message “Together for health. Stand with science”, the importance of scientific knowledge, research, and collaboration as key pillars for a fairer and more effective health system.

In an era where information is more accessible than ever—but not always reliable—science remains the solid foundation on which modern healthcare is built. This is not merely theoretical knowledge but a dynamic system grounded in data, clinical studies, and continuous evaluation. Thanks to science, recent years have seen significant advances in the prevention, diagnosis, and treatment of serious illnesses such as cancer, improving both survival rates and patients’ quality of life.

However, this progress is not equally accessible to everyone. In Greece, health inequalities remain pronounced and multifactorial. A significant proportion of citizens report not receiving the necessary medical care due to cost, geographical limitations, or long waiting times, while nearly 1 in 10 households faces severe financial burden from healthcare expenses. Residents of remote areas often need to travel to major urban centers to access specialized services.

At the same time, innovative treatments already available in other European countries may take considerable time to reach Greek patients, limiting timely access to the benefits of scientific progress. This unequal access clearly demonstrates that science, however vital, is not enough on its own—it requires the right mechanisms to ensure its benefits reach everyone.

In this context, technology can serve as a bridge. Artificial intelligence (AI), when based on scientifically validated data, can play a key role in providing accurate and reliable information, reducing misinformation, and improving access to support. Kapa3’s digital assistant, Myrto, is one such example, bringing scientific knowledge closer to patients and supporting their daily needs, always in complement to healthcare professionals.

Stand with science” therefore means not only trusting science but actively applying it in everyday life. It means seeking reliable information, using modern tools grounded in data, and advocating for equal access to innovations that can improve patients’ lives.

At Kapa3, this commitment is reflected through continuous updates on advances in oncology, new therapeutic approaches, innovative care practices, as well as through collaborations, participation in initiatives, and European programs such as MELODIC. (You can explore related articles here, here, and here.)

World Health Day 2026 offers a valuable opportunity to reflect not only on the achievements of science but also on the challenges that remain. By investing in knowledge, strengthening collaboration, and reducing inequalities, we can shape a health system that is more accessible, fair, and humane for all.

Health should not depend on where one lives, what one knows, or what one can afford. Science exists—the key is to make it reach everyone.
In this context, to “stand with science” ultimately means standing with every person in need of care.

Text/adaptation: Ifiyenia Anastasiou for Kapa3

 

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