Category: Oncology Patients

The Value of Pause: Why We Need to “Disconnect” Even During Treatment

Summer is often associated with the idea of holidays. Images of the sea, travel, and carefree moments fill our daily lives, creating the impression that rest requires a suitcase, a destination, and distance from obligations.

However, for cancer patients who are undergoing treatment, recovering from surgery, or waiting for test results, holidays are often not possible. Medical appointments, treatments, side effects, physical fatigue, and uncertainty about one’s health can make travelling difficult or even impossible.

And yet, the need for rest does not diminish. On the contrary, it often becomes even more important.

Perhaps, then, it is worth redefining what a “holiday” means. Not as travelling somewhere else, but as the ability to pause, even briefly, the relentless cycle of stress, worry, and constant vigilance that often accompanies serious illness. It can be a reminder that life is not only about the disease.

Rest is not a luxury — it is a need

Recent scientific literature shows that people need periods of recovery in order to maintain psychological and physical balance. Recovery is not simply “resting”; it is a process through which the body reduces the physiological and psychological burden caused by chronic stress.

In psychology, the term psychological detachment is used to describe the mental ability to step away from sources of pressure. This means allowing oneself, even for a short while, not to think constantly about what feels overwhelming.

Research by Sonnentag, Binnewies, and Mojza (2010) showed that psychological detachment is associated with lower emotional exhaustion, better mood, and greater resilience in everyday life. Similarly, Fritz and colleagues (2010) found that people who are able to mentally disengage from stress experience higher levels of well-being, energy, and functioning.

Although these studies were mainly conducted among workers, the underlying mechanism applies to every person: when the brain remains in a constant state of alert, it struggles to recover its strength.

In this sense, these small pauses matter not because they make us “forget” the illness, but because they give the brain an opportunity to step out, even temporarily, of a continuous state of alarm.

When illness takes over every thought

The experience of cancer is not limited to treatment days. It often affects everyday life as a whole. Thoughts about tests, medical decisions, bodily changes, work, family, and the future may accompany a person from morning to night.

This constant mental vigilance is exhausting in itself.

International guidelines from the National Comprehensive Cancer Network (NCCN) recognise that psychological distress is a common part of the cancer experience and recommend integrating psychosocial support into overall patient care. Likewise, guidelines from the American Society of Clinical Oncology (ASCO) and the European Society for Medical Oncology (ESMO) emphasise that mental health care and quality of life are essential parts of cancer management.

Holidays are not always about travelling

It is easy to believe that rest requires a trip. Yet scientific research suggests that the greatest benefit of holidays does not necessarily come from the destination itself, but from a change of pace and temporary distance from stressors.

Nawijn and colleagues (2010) found that people tend to feel greater well-being shortly before and during holidays, but that this feeling often fades relatively soon after they return.

This finding reminds us of something important: psychological renewal does not depend only on a few days of holiday each year, but also on the small moments of relief that we can create in everyday life.

For someone undergoing treatment, these moments may be even more valuable.

What does it mean to “pause” as a cancer patient?

To pause does not mean ignoring reality or neglecting one’s health. It means allowing oneself to remember, even for a little while, that life is not only about illness.

This may include:

  • a few quiet minutes on the balcony or in the garden,
  • a short walk in nature, when possible,
  • listening to favourite music,
  • reading a book,
  • engaging in a creative activity,
  • spending time with people who make us feel safe,
  • a few minutes of relaxation or mindful breathing, when appropriate for one’s health condition.

These moments do not change the diagnosis. But they can change the experience of the day.

The importance of quality of life

In modern oncology, quality of life is now considered a key therapeutic goal. Treating the disease is not enough; it is equally important for the person to maintain as much functionality, autonomy, emotional balance, and sense of meaning as possible.

This importance is also reflected in the value framework for cancer treatments developed by the American Society of Clinical Oncology (ASCO). According to this framework, the value of a treatment is not determined solely by its effectiveness, but also by its toxicity, its impact on quality of life, and the personal priorities and preferences of the patient.

This highlights the importance of personalised, patient-centred care, in which the person’s everyday experience is an essential part of the therapeutic process.

Within this perspective, small moments of pause, the continuation of pleasant activities, and connection with what brings joy are not secondary aspects of life. They are meaningful elements that contribute to preserving quality of life. They are not luxuries, signs of weakness, or attempts to avoid reality. They are forms of self-care.

The same applies to family caregivers, who often experience high levels of emotional and physical burden. Taking some time for their own rest is not selfishness; it is a necessary condition for continuing to support their loved one in a meaningful way.

The value of a small pause

The experience of cancer often extends beyond the limits of the disease itself, affecting a person’s self-image, social roles, and daily life. Intense psychological distress and uncertainty can gradually allow the illness to occupy more and more space in life.

In this context, psycho-oncological education appears particularly important. Its aim is to help patients and family caregivers understand the emotional reactions that naturally accompany diagnosis and treatment, develop more effective coping strategies, and actively participate in treatment decisions.

In this way, the sense of control and self-efficacy is strengthened, while also preserving the sense that a person remains something more than their illness.

When health does not allow for travel, it is easy to feel deprived of something important. Yet perhaps the essence of a holiday lies not in the distance we travel, but in the distance we allow ourselves to take from stress.

To “pause” does not mean to stop being a patient. It means allowing oneself, even for a little while, to be something more than the illness.

Perhaps, in the end, the most meaningful holidays are not those that take us far from home, but those that allow us to rest the body, calm the mind, and turn toward ourselves with greater care.

A peaceful sunlit balcony with a chair, a book, a cup, flowers, and an olive tree, illustrating the importance of small moments of rest and self-care during cancer treatment.

By Marilia Barka
Psychology Student
Kapa3 Volunteer

DISABILITY CARD OR TRANSPORTATION PASS FOR PEOPLE WITH DISABILITIES 2026. WHAT BENEFICIARIES NEED TO KNOW.

The new explanatory circular regarding transportation for people with disabilities (PWDs) for 2026 has raised several questions among beneficiaries and their families who are trying to understand what the current rules are. The most common question is: “I have the plastic Disability Card. Do I also need to get a PWD Transportation Pass?” The answer is that the Disability Card has not completely replaced the Transportation Pass. Both of these documents remain valid simultaneously, and the need for one or the other depends on the mode of transportation used by each eligible person. To make this clearer, here’s what applies in each case.

Athens and Thessaloniki: The Disability Card can be used for urban travel

For travel on OASA transit in Athens and OSETH transit in Thessaloniki, the plastic Disability Card can be used by eligible beneficiaries.

Cardholders can travel by validating their card at the designated machines, without needing to obtain a separate Travel Pass specifically for these transit services.

The following are required:

  • the Disability Card must be valid,
  • must bear the designated disability level II or III designation,
  • or the beneficiary must receive disability financial assistance from OPEKA,
  • and income criteria must be met where required.

URBAN KTEL BUSES IN THE PROVINCE: THE TRAVEL PASS REMAINS NECESSARY

This is the point that has caused the most confusion. Possession of a Disability Card does not mean that the Travel Pass is no longer required for all trips.

For urban KTEL buses operated by the Regional Units, as well as by the municipalities of Kos and Rhodes, a Mobility Card for People with Disabilities is required, even if the beneficiary holds a Disability Card.

Therefore, those who use urban KTEL buses in their area should apply:

  • at the Citizen Service Centers (KEP),
  • or at the relevant offices of the Regional Unit.

FOR 2026, THE PROCESS BEGINS ON JULY 1, 2026, AND ENDS ON NOVEMBER 30, 2026.

Intercity Buses (KTEL): 50% Discount on Fares

For travel on intercity buses (KTEL)—that is, for trips from one city to another—a 50% discount is available.

The discount can be obtained with:

  • A valid Disability Card,
  • or a Transportation Pass for People with Disabilities.

Thus, for intercity routes, the beneficiary has more options.

 

Are there income criteria for free transportation?

One point that often causes confusion concerns income. There are no income criteria for issuing the Disability Card.

The income limits apply to eligibility for free transportation.

For 2026, the limits are as follows:

  • individual taxable income up to 23,000 euros,
  • declared family income up to 29,000 euros.

The family income limit increases by 5,600 euros for each additional person with a disability of 67% or higher who lives with and is financially dependent on the taxpayer.

It is important to note that: OPEKA disability benefits are not included in the above income limits. A relevant certificate from OPEKA may be required to exclude them.

 

Who is exempt from the income criteria?

People who are totally blind are exempt from the income criteria.

What applies to the companion?

In many cases, a companion is also entitled to travel.

If the Disability Card is marked with an “S” (Companion):

  • in Athens and Thessaloniki, the companion travels with the cardholder upon a single validation of the card. For KTEL buses, however, the prescribed procedure and the corresponding Companion Travel Pass are required where necessary.

So, what do beneficiaries need to keep?

The Disability Card is a significant benefit, but it does not mean that the Travel Pass is being eliminated.

In simple terms:

Disability Card:

✔ Athens and Thessaloniki

✔ Intercity KTEL buses for a 50% discount

Travel Pass:

✔ Provincial KTEL buses

✔ Situations where a companion’s entitlement is required

✔ Those who do not have a Disability Card

 

At Kapa3, we believe that accurate information can save time, trips, and unnecessary hassle, especially for people who already face increased challenges due to a disability or a serious illness.

 

View the circular here: TRANSPORTATION 2026

DISABILITY CIRCULAR

For more information, please don’t hesitate to contact the Kapa3 team:

📍Athens: 13 Kosti Palama, 3rd floor, (9:00 AM – 5:00 PM)

📍13 Kosti Palama, 11141 Athens

☎️210 5221424

📱6906265170

www.kapa3.gr

info@kapa3.gr

Kapa3 Report for the First Half of 2026

As the first half of 2026 draws to a close, the Cancer Patient Guidance Center (Kapa3) continues to systematically expand its reach, thereby strengthening the system of care and information for both cancer patients and their caregivers.

During the first half of the year, the organization implemented a series of high-level initiatives and forged partnerships at both the national and European levels, thereby solidifying its position.

The organization’s activities got off to a strong start in January with the welcome of its European partners in the MELODIC Consortium project at a productive two-day workshop (January 19–20), hosted by the School of Public Health at the University of West Attica.

In early February, on the occasion of World Cancer Day, Kapa3 played an active role as a partner of René Descartes College in the webinar “Cancer, Patient Navigation & Health Management: From Prevention to Life Coordination.”

At the same time, significant initiatives were carried out in the local community, such as the “Knowledge Workshop in Megara—From Prevention to Life Coordination,” held on February 8 in collaboration with the Municipality of Megara.

In the area of scientific programs, the Cancer Patient Guidance Center, in collaboration with the Laboratory of Basic Health Sciences (EBEY) of the Department of Nursing at the University of the Peloponnese (PA.PEL), launched a series of online meetings running from February through June, focusing on mental health and nutrition.

The month concluded with the organization’s participation in the international conference “Mapping the Unknown in Oncology – From Hospitals to Homes, Mapping the Future of Oncology Care,” held on February 27 and 28.

March marked a strengthening of Kapa3’s “digital presence” with its official membership in the Hellenic Digital Health Cluster (HDHC), a strategic move aimed at linking healthcare with technological advancements. As an extension of this collaboration, the organization participated in a closed-door members’ meeting as part of Athens Digital Health Week 2026.

On March 11, representatives of the organization attended the diaNEOsis event “Facing the Challenge of Artificial Intelligence” at the Lighthouse of the Stavros Niarchos Foundation Cultural Center, while in the middle of the month, Kapa 3 played a prominent role in the scientific conference “Cancer in 2026: Challenges and Disruptions.” Furthermore, on March 19–20, the organization was represented at the 6th Western Macedonia Nursing Conference on the theme “Innovation and Empathy: Balancing Technology with Human Contact in Nursing.”

In parallel, the organization’s co-founder, Ms. Evangelia Bista, gave an interview on the show “All About Health” on Dion TV—which covered a variety of topics related to health, nutrition, autoimmune diseases, and more—the implementation of the free, 8-week Melodic pilot educational program began.

Kapa3’s scientific credibility was reaffirmed by the publication of the research paper “Person-First or Disease-First? Language Choices in Cancer Communication” in the journal *Nursing Reports*, as well as by Kapa3’s participation in the European project associated with Melodic, titled: “Educational Needs Regarding Mental Health of Professionals Working with Young Adults with Cancer: A European Survey,” which was also published; the organization also participated in the MELODIC Online Symposium 2026 on April 24, contributing to the dissemination of results in Greece.

May was marked by a strong outward focus and new collaborations, as the organization joined the European program Service Learning 2: 0:CoLab, was selected as one of six nonprofit organizations to receive financial support from the Alpha Bank-Match For Good initiative, and began its collaboration with the USTEP INSTITUTE.

At the same time, an awareness campaign was held in Soufli to highlight Kapa3’s activities; Ms. Bista gave an interview to iatronet.gr, and representatives of the organization participated in an international conference at the Medical School of the University of Coimbra in Portugal

Within the organization, the new Psychological Support team was established with great enthusiasm, while on the social media front, the Kapa3 team won six medals at the 4th Vouliagmeni Summer Swim.

As the semester came to a close, June began with the signing of an official cooperation agreement with the Department of Occupational Therapy at the University of West Attica, while partnerships were solidified with the non-profit organization “Karkinaki” and the PRAXI Network of the Foundation for Research and Technology – Hellas (FORTH) to strengthen international networking and access to modern funding tools.

Having completed five years of uninterrupted service in supporting cancer patients through digital guidance, Kapa 3 is entering a new era with the development of the innovative “Myrto” project. This is a pioneering Social Artificial Intelligence (Social AI) initiative in the field of care for cancer patients in Greece. “Myrto” will function as an advanced digital health and rights navigator (Patient Empowerment e-Navigator) for patients, caregivers, and healthcare professionals—a project for which the strategic partnership with SimasiaAi for its co-development was crucial. Finally, the first closed workshop of the MYRTO Al Health Innovation Lab was held for the “Myrto” application, with the support of René Descartes College.

The results of this first half-year clearly demonstrate that Kapa 3 serves as a link connecting innovation, scientific research, and the digital age in the field of oncology care. By combining academic knowledge, European partnerships, and technological development, Kappa 3 transforms every challenge into sustainable, people-centered solutions. Partnerships with leading organizations, investors, and partners who share the same values of social responsibility are also essential to realizing this vision, ensuring that every patient has immediate, reliable, and equitable access to healthcare and their rights.

The KAPA3 team stands steadfastly by patients and caregivers to provide guidance and safeguard their rights. For any information or support, please feel free to contact us.

You can contact the KAPA3 team

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Phone Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

 

 

New Joint Ministerial Decision on the 2026 Aerotherapy Allowance: A Detailed Guide for KAPA3 Beneficiaries

At the Cancer Patient Guidance Center—KAPA3, we remain committed to providing accurate and timely information to cancer patients and their families regarding the rights and social benefits to which they are entitled. With the aim of making your daily life easier and ensuring you have full access to beneficial legislative provisions, we present a comprehensive guide to the granting of the air therapy allowance, in accordance with the recent Joint Ministerial Decision (No. 89399 EX 2026) published in the Government Gazette, Issue B, No. 3295, dated June 11, 2026.

The air therapy allowance applies to the summer season of 2026.

The amount is set at 250.00 euros and will be paid as a lump sum to the beneficiaries’ bank accounts on July 10, 2026.

The amount is unseizable and fully exempt from any tax or withholding.

  1. Who Are the Beneficiaries

The benefit is granted to disabled retirees of the State and the e-EFKA. Specifically, beneficiaries are those who fall into the following categories:

a) Pensioners referred to in subparagraphs (a) and (b) of paragraph 1 of Article 6 of Legislative Decree 4605/1966.

b) Pensioners under subparagraph (c) of the aforementioned paragraph 1 of Article 6 of Legislative Decree 4605/1966, who, according to 

the opinion of the competent Health Committee for the years 2020 through 2026, have been deemed to be in need of this allowance and belong to the following categories of retirees:

  1. Disabled officers under Law No. 2588/1921 and Law No. 875/1979 on military retirement.
  2. Disabled officers under Law No. 362/1943.

iii. Disabled enlisted personnel under Article 1 of Legislative Decree 1044/1971, as amended by Article 1 of 

Law 1043/1980.

Disabled members of the former Municipal Police who were subject to Legislative Decree 330/1947.

Disabled members of the Security Forces under Law 1579/1950 and those disabled members of the Coast Guard,

the Fire Department, and the Agricultural Police who are treated as equivalent to them.

Disabled members of the National Resistance under Provisional Act 1855/1951, Legislative Decree 412/1970, and Law 1543/1985.

vii. Persons with disabilities under Law 1370/1944 (who sustained their disabilities during peacetime while in service and as a result thereof, and 

receive a disability pension).

viii. Persons with disabilities from the anti-dictatorship struggle under Law 1543/1985.

Disabled civilians under Law 812/1943.

Disabled civilians under Law 1863/1989.

c) Civilian retirees who sustained disabilities as a result of their service (Decision of the Ministry of Labor and Social Security No. 

754.6/117/3912/March 24, 1969) and

d) OSE retirees who left the service and are receiving a pension due to tuberculosis.

3. Who Is Exempt from Payment

According to the Government Gazette, the following categories are not eligible for the air therapy allowance:

Recipients of other benefits: Those who have received or are set to receive a corresponding air therapy allowance from any other source (such as public entities, private entities, public benefit organizations, etc.).

Spa Therapy Beneficiaries: Those who have been deemed eligible for spa therapy for the year 2026 by the Directorate for Reserve Combatants, Veterans, War Victims, and War Disabled (DEPATHA).

New Pensioners: Citizens whose pension is payable after September 30, 2026, or whose order for registration in the Pensioner Registers is issued after October 31, 2026.

  1. What to Do in Case of Non-Payment

If you are eligible but the benefit does not appear in your account by the scheduled date of July 10, 2026, the law entitles you to file a retroactive claim.

You may submit a request by December 31, 2026, at the latest, to the following agencies (depending on your category):

To Section E of the Income Policy Directorate of the General Accounting Office (p. 2) .

To the General Directorate of Public Sector Pensions of e-EFKA (p. 2).

You can contact the Kapa3 team 

13 Kostis Palamas Street, 3rd floor (Hours: 9:00 a.m. – 5:00 p.m.).

Contact Numbers: 210 5221424 & 6906265170.

Email: info@kapa3.gr

Participation in CA21152 – Implementation Network Europe for Cancer Survivorship Care

Digital Health and Cancer Survivorship: Kapa3 at the INE-CSC 2026 Conference in Coimbra

The Cancer Guidance Center – Kapa3 participated in the INE-CSC 2026 Conference, part of CA21152 – Implementation Network Europe for Cancer Survivorship Care (INE-CSC), held on 25–26 May 2026 at the Faculty of Medicine (Polo III), University of Coimbra, in Coimbra, Portugal.

The conference was held under the theme “The Next Chapter – Empowering Individuals, Families, and Society for Cancer Survivorship & Supportive Care”, highlighting the need for new approaches to cancer survivorship, supportive care and the translation of innovation into real-world impact for people living with and beyond cancer, their families and society.

Kapa3’s presence in Coimbra represents another important step in its European engagement and in its ongoing effort to connect everyday experience in supporting cancer patients in Greece with European knowledge, research, digital innovation and health policy.

A key highlight was the participation in a round table discussion on facilitators and barriers to the implementation of digital health tools in oncology. The discussion was co-organised by Aristea Kyriaki Ladas and Christos Frantzidis and brought together voices from different European countries and organisations, including representatives from Kapa3, Acreditar Portugal, Liga Portuguesa Contra o Cancro, ORCO / Madrid Regional Ministry of Health, as well as participants from Poland, Latvia and the United Kingdom.

Among the participants in the round table were Yannis Kontogiorgis and Despoina Pistiolis from Kapa3, Greece, contributing to the European dialogue on digital health, oncology navigation and the participatory development of solutions that respond to the real needs of patients and caregivers.

One of the key messages of the discussion was that digital innovation in oncology is not only a technological challenge. It is also a matter of policy, implementation, equity, trust and accessibility.

For digital tools to make a meaningful difference in cancer care and survivorship, they cannot remain isolated applications or pilot projects. They need to become part of real care pathways, be supported by appropriate policy environments, connect with interdisciplinary practice and be evaluated in terms of effectiveness, implementation readiness, accessibility, equity, sustainability and value.

The discussion also highlighted that digital tools must be designed around the real needs of patients and survivors, not only around technical possibilities. Accessibility across countries, languages, healthcare systems and levels of digital and health literacy must be built in from the beginning.

The role of patient organisations and cancer support communities was also identified as essential. These organisations can act as a bridge between technological innovation and the everyday reality of people affected by cancer. They understand the questions, barriers, fears and needs that are often not fully captured by formal care systems.

For Kapa3, this participation is directly linked to the development of Myrto, its digital health and rights navigator, designed as a tool for empowerment, guidance and support for cancer patients and their caregivers.

Myrto is not approached as a simple information tool. It is being designed as a participatory intervention built around the real needs of people with lived experience of cancer. It is connected to access to rights, social benefits, services, practical guidance and human escalation whenever needed.

The Coimbra experience strengthened the view that digital health must be human-centred, accessible, trustworthy and integrated into a broader ecosystem of care. Technology can meaningfully support cancer care only when it is designed with participation, trust, clear purpose and an equity-oriented approach.

Cancer survivorship is not only about completing treatment. It is about quality of life, mental health, social reintegration, work, family, everyday life, access to services and the feeling that no person is left alone after diagnosis or treatment.

Through its participation in European networks such as INE-CSC, Kapa3 continues to contribute to the dialogue on more equitable, participatory and person-centred cancer care. Care that uses technology without losing sight of the human being at its centre.

The future of cancer support will not depend only on better digital tools, but on better collaboration between patients, caregivers, healthcare professionals, researchers, technology partners, patient organisations and policymakers.

For Kapa3, this is at the heart of its mission: transforming knowledge into action, technology into support, and the voice of patients into services that respond to their real needs.

More information: INE-CSC – Implementation Network Europe for Cancer Survivorship Care.More information:
https://inecancersurvivorship.com

Bladder Cancer Awareness Month: Awareness, prevention and early diagnosis

May is internationally recognized as Bladder Cancer Awareness Month, an important initiative led by health organizations and patient advocacy groups worldwide to promote public awareness, prevention, and early diagnosis.

Bladder cancer is among the most common types of cancer globally, with hundreds of thousands of new cases diagnosed each year. In Europe, it is considered one of the most common urological cancers, affecting men significantly more often than women.

In Greece, the data remains particularly concerning. The country records the highest incidence rate in Southern Europe, with approximately 39.7 new cases per 100,000 men annually. In terms of mortality, an estimated 7–8 men per 100,000 lose their lives to the disease every year, placing Greece among the countries with the highest mortality rates in the region. These figures highlight the importance of prevention, awareness, and timely medical intervention.

Behind every statistic are people — patients and families facing the emotional, physical, and practical challenges that accompany a cancer diagnosis. Raising awareness is therefore not only about numbers, but also about supporting individuals throughout their journey.

Smoking remains the most significant risk factor for bladder cancer and is linked to a large percentage of cases. Long-term exposure to certain chemicals, especially in specific occupational environments, as well as chronic inflammation of the urinary tract, may also increase the risk of developing the disease.

Recognizing the symptoms early can make a critical difference. The most common warning sign is blood in the urine (hematuria), even when no pain is present. Other symptoms may include frequent urination, burning during urination, or a sudden urge to urinate. Although these symptoms may also be associated with less serious conditions, they should never be ignored.

When bladder cancer is diagnosed at an early stage, survival rates are significantly higher, underlining the importance of early detection. However, the disease is also known for its high recurrence rates, making long-term follow-up and monitoring essential even after treatment.

Prevention remains a key pillar in reducing the burden of the disease. Quitting smoking, limiting exposure to harmful chemicals, and increasing awareness of the symptoms can all contribute to lowering the risk.

In Greece, awareness initiatives are also supported by scientific organizations such as the Hellenic Genito-Urinary Cancer Group (HGUCG), contributing to public education and the promotion of early symptom recognition.

Bladder Cancer Awareness Month is an important opportunity to encourage open discussion around the disease. Awareness is more than information — it is a tool that can lead to earlier diagnosis, improved treatment outcomes, and ultimately, more lives saved.

Sources:

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Mapping the efficiency of cancer care in Greece: findings from the All.Can Greece report

Cancer care efficiency in Greece remains one of the most complex and pressing challenges for the Greek health system — not only in terms of its clinical burden, but also in how care is organized around the patient.

With approximately 63,000 new cancer cases diagnosed annually and more than 32,000 cancer-related deaths each year, Greece faces a steadily increasing oncological burden. Projections suggest that cancer incidence will rise by around 23% by 2040, further intensifying pressure on health services.

Against this backdrop, All.Can Greece has published a landmark report titled “Mapping the Efficiency of Cancer Care in Greece”, based on the pilot implementation of the All.Can Action Guide for Efficient Cancer Care.

Rather than simply describing the current situation, the report aims to measure it — identifying where efficiency is lost across the cancer care pathway and where targeted reforms could make the greatest impact.

Cancer care efficiency in Greece: delays in care delivery

One of the most critical findings of the report relates to delays in the patient journey.

Despite the existence of modern infrastructure and highly specialized oncology centres, significant delays persist between initial suspicion, diagnosis, and the start of treatment.

These delays are not the result of a single bottleneck, but of systemic fragmentation:

  • fragmented referral pathways,
  • limited coordination between levels of care,
  • and the absence of standardized clinical protocols.

A key structural weakness is the lack of systematic monitoring of waiting times and time-to-treatment indicators. As a result, inefficiencies remain partially invisible to the system itself, limiting the ability to implement targeted improvements.

Fragmentation across the care continuum

The report highlights a broader issue of fragmentation in cancer care delivery.

The patient journey from primary care to specialist oncology services is often not clearly structured or consistently coordinated. Referral pathways depend heavily on individual practice rather than standardized national protocols.

A major gap is the absence of structured patient navigation services. In practice, this means that patients and families are often left to navigate a complex system on their own, increasing delays and adding unnecessary psychological burden.

At the same time, multidisciplinary tumor boards represent a positive development, supporting collaborative clinical decision-making across specialties. However, systematic monitoring of their performance remains limited.

The development of Comprehensive Cancer Centers is identified as a promising step forward, although further regulatory strengthening and clearer governance structures are still needed to maximize their impact.

Patient-centered care: progress with remaining gaps

Greece has made notable progress in collecting Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs), reflecting a growing commitment to integrating patient perspectives into care delivery.

However, patients’ access to their own clinical data remains limited, restricting their ability to actively participate in decision-making processes.

In addition, patient education and shared decision-making are not yet systematically embedded across the health system.

Another important gap concerns survivorship care. As cancer survival rates improve, the lack of structured long-term follow-up pathways leaves many patients without continuous support after active treatment ends.

Key policy directions

The report outlines several strategic priorities for improving cancer care efficiency in Greece:

  • Development of a comprehensive national cancer strategy with clear targets and governance mechanisms
  • Strengthening coordination across all levels of care
  • Implementation of standardized clinical pathways with defined time-to-treatment and quality indicators
  • Investment in oncology workforce capacity, particularly in shortage specialties
  • Establishment of structured patient navigation programmes
  • Acceleration of Comprehensive Cancer Center development
  • Systematic use of health data for monitoring performance and accountability
  • Greater patient engagement through PROMs, PREMs, and shared decision-making

Conclusion: a system with strong foundations but limited integration

Greece has many of the essential building blocks for a high-performing cancer care system — including infrastructure, clinical expertise, and emerging digital health capabilities.

However, the key challenge lies not in the existence of these components, but in their integration.

The All.Can Greece report highlights a system that is still operating in silos: strong individual elements that do not yet function as a fully connected care pathway.

In oncology, this lack of integration is not merely an organizational issue. It directly affects timeliness, patient experience, and ultimately outcomes.

The opportunity now lies in moving from fragmented capacity to coordinated care — where patients no longer have to bridge the gaps between system components themselves.

Source: Mapping-the-Efficiency-of-Cancer-Care-in-Greece-FINAL

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 in the second half of April: Information, collaborations and strengthening patient care

Kapa3 in April

Throughout April, Kapa3 continued to develop actions and initiatives aimed at improving access to care for oncology patients and their families, with a strong focus on information, prevention, and the development of innovative collaborations.

This period’s activities focused on raising awareness about key cancer types, improving patients’ daily lives through policy and systemic developments, and expanding partnerships that enhance the quality of care and services provided.

In an ever-evolving healthcare environment, the connection between reliable information, human support, and technology remains a key pillar for a more accessible and effective care system.

Below are the main initiatives and developments that marked the second half of the month.

Awareness

April is an awareness month for head and neck cancer as well as testicular cancer, highlighting the importance of prevention and early diagnosis. Although these types of cancer are often underrepresented in public discourse, awareness plays a crucial role in reducing late diagnoses and improving patients’ quality of life.

Patients’ rights

Important developments took place in the field of patients’ rights, including the establishment of the National Registry for Hospital-at-Home Care (NOSPI), aiming to better organise and ensure the safety of home-based care.

At the same time, the new framework for Public Administration introduces changes that directly affect citizens’ daily lives, enhancing transparency, reducing bureaucracy, and improving access to public services.

Collaborations

During April, Kapa3 further strengthened its network of collaborations through significant partnerships.

The collaboration with the PRAXI Network/FORTH, within the European smartHEALTH hub, enhances participation in innovation and health policy initiatives, opening new opportunities at European level.

In addition, the partnership with Karkinaki focuses on supporting children, adolescents, and families living with cancer, promoting a holistic approach to care.

Furthermore, the collaboration with SimasiaAI for the development of “Myrto”, an AI-powered digital assistant, highlights the importance of technology in empowering patients and improving access to reliable information and services.

Research & knowledge

A new international report on person-centred cancer care highlights the need for a holistic model that places the patient at the centre. This approach recognises not only clinical needs but also psychosocial dimensions, reinforcing the importance of patient involvement in decision-making.

Patients & society

On the occasion of European Patients’ Rights Day (18 April), Kapa3 highlighted the importance of equal access to quality care. Despite progress, challenges such as inequalities and delays remain, making the continued strengthening of support structures essential.

Supporting our work

Kapa3’s collection of handmade scarves continues to serve as a creative way of supporting the organisation’s mission, combining aesthetics with meaningful contribution to people living with cancer.

We continue to monitor developments and work towards improving patients’ daily lives — more news coming soon.

Text/adaptation: Ifigenia Anastasiou for Kapa3

MELODIC Online Symposium: completion of the pilot training phase and strengthening psychosocial cancer care

The European project MELODIC (Mental Health Support for Young Adults with Cancer), in which the Cancer Guidance Center – Kapa3 participates, is being implemented through distinct development phases. The pilot training programme for healthcare professionals is one of its core components, and within this framework, the MELODIC Online Symposium 2026, taking place on 24 April 2026, marks the completion of this educational phase.

The MELODIC project framework

MELODIC is a European project co-funded by the European Union, aiming to strengthen the mental health of young adults living with cancer, as well as to support their families. Through the collaboration of universities, research institutions and healthcare organizations across Europe, the project develops training and support tools for healthcare professionals.

More information about the project and its progress is available on the official Kapa3 website, in the dedicated project section.

The pilot training programme

The pilot training programme focused on enhancing the knowledge and skills of healthcare professionals in providing psychosocial support to young adults with cancer and their families.

As part of the programme, online sessions and contact lessons were delivered, aiming to strengthen interdisciplinary collaboration and support the practical application of tools in everyday clinical practice.

MELODIC Online Symposium 2026

The MELODIC Online Symposium 2026, a two-hour event, brings together participants from all partner countries and includes:

  • opening presentations from the European Cancer Organisation and Youth Cancer Europe
  • an “experts by experience” panel, where individuals share their lived experience
  • a networking panel with healthcare professionals from participating countries
  • discussion on how training can be applied in clinical practice
  • a closing session by the project coordination team

From training to clinical practice

A key objective of the MELODIC training programme is to strengthen the psychosocial dimension of cancer care, with particular focus on young adults.

The exchange of experiences among healthcare professionals contributes to more holistic approaches to care and supports the integration of psychosocial support into daily clinical practice.

The role of Kapa3

Kapa3 actively participates in the European MELODIC consortium, contributing to the implementation of the training activities and the dissemination of results in Greece. Through this involvement, the connection between scientific knowledge and the support of cancer patients is further strengthened, promoting the development of practical approaches to psychosocial care.

The MELODIC Online Symposium 2026 marks the transition from the pilot training phase to the next stage of utilizing its outcomes, reinforcing the link between education and real-world application in cancer care.

The Press Release here: PRESS-RELEASE-MELODIC SYMPOSIUM

Text/adaptation: Ifiyenia Anastasiou for Kapa3

New National Patient Registry for Hospital-at-Home Care (NOSPI)

Patient care at home in Greece is becoming more organized and secure with the establishment of the National Registry of Patients Receiving Hospital-at-Home Care (NOSPI), as published in Government Gazette 1995/07.04.2026. The NOSPI program is already in pilot implementation at selected hospitals nationwide, with the goal of full development and operation by the end of 2026, including a digital platform and patient registry.

The new registry aims to systematically record patients receiving NOSPI services, ensuring that care is tailored to individual therapeutic needs. Patient groups eligible for inclusion include, among others, those with tracheostomies, on non-invasive mechanical ventilation, receiving long-term oxygen therapy, on parenteral or gastrostomy feeding, as well as those requiring intensive physiotherapy or mobility rehabilitation. Currently, enrollment primarily focuses on children with severe health conditions and chronically ill patients needing pulmonary care, in collaboration with pilot Reference Centers.

While the NOSPI program is already operating in a pilot phase, universal access for all patients in the country has not yet been achieved. Its development is gradual, with full operation—including digital infrastructure and registry-based documentation—planned by the end of 2026. Strengthening Hospital-at-Home care enables better monitoring and improvement of home care services for patients with long-term needs.

Through the registry, authorities can collect accurate and essential health data, enhancing the quality of services and supporting the design of targeted health policies. Implementation respects personal data protection in line with the General Data Protection Regulation (GDPR), ensuring transparency and public trust.

For families and caregivers, patient enrollment in the NOSPI National Registry means access to more coordinated care, with support delivered directly to their homes. Furthermore, documentation helps evaluate and improve home nursing services, enhancing patient safety and quality of life.

This initiative, combined with the development of the digital platform and registry, aims not only to upgrade home care services but also to reduce hospital congestion and ensure high-quality services for all patients in the future.

Sources (text in Greek) : Government Gazette NOSPI, ODIPY

Text/adaptation: Ifiyenia Anastasiou for Kapa3