Kapa3 at the 13th Panhellenic Oncology Nursing Symposium

apa3 – Cancer Guidance Centre actively participated in the 13th Panhellenic Oncology Nursing Symposium, held from 30 October to 1 November 2026 at the Montana Hotel in Karpenisi, Greece. Organised by the Oncology Nursing Section of the Hellenic Nurses Association (ESNE), the symposium brought together healthcare professionals under the theme “Leading Change, Creating Hope.”

Through presentations and a moderated discussion, Kapa3 contributed perspectives on the social and financial consequences of cancer, the role of patient navigation and the education healthcare professionals need to deliver accessible, person-centred care.

The financial burden of cancer on patients and families

Evangeli Bista, Co-founder of Kapa3 and PhD candidate in the Department of Nursing at the International Hellenic University, presented “The Financial Burden of Cancer on Patients and Their Families.” Her presentation formed part of the roundtable on access to healthcare services for people with cancer and the relationship between health, society and the economy.

The session was chaired by Ioanna Tsatsou and Maria Lavdaniti. Contributions from Georgios Manomenidis and Maria Lavdaniti addressed the social determinants of access and the role of nurses and multidisciplinary teams in reducing barriers to care.

Bista’s presentation explored the costs that accompany cancer beyond treatment itself: travel and accommodation, the need for an accompanying caregiver, absence from work, loss of income and additional care needs. It also examined how complex administrative procedures and fragmented information can make it harder to access rights and benefits, particularly for people living far from treatment centres.

Kapa3’s social navigation records and questions submitted to MYRTO illustrated practical support needs. The presentation emphasised the importance of recognising financial difficulties early and connecting patients and families with appropriate services.

Social navigation and MYRTO

Marilia Barka, a final-year psychology student and member of the Kapa3 team, presented the role of navigation in cancer care. Her contribution focused on connecting patients’ needs with available services, ensuring continuity of support and evaluating navigation interventions.

Kapa3 also presented MYRTO, its digital social assistant, developed with the support of the TIMA Charitable Foundation, MYRTO’s founding sponsor. The presentation generated positive interest in its potential to support navigation for healthcare professionals and people affected by cancer.

MYRTO helps people access understandable, source-based information about social rights, benefits and support services. Human oversight and referral to the Kapa3 team remain central to this approach.

The initiative forms part of Kapa3’s wider work on health literacy and barriers to support. Questions submitted to the assistant provide insight into information and navigation needs; assessing its effect on financial burden requires further evaluation.

Healthcare professionals’ educational needs: putting knowledge into practice

Evangeli Bista also moderated the discussion “Healthcare Professionals’ Educational Needs: A Critical Issue for Contemporary Cancer Care.”

Participants included Ourania Govina, Theocharis Konstantinidis, Giorgos Kapetanakis, Theodora Kappou, Maria Lavdaniti, Aikaterini Manousou, Aikaterini Papadimitriou and Dimitrios Papageorgiou, bringing different scientific and professional perspectives to the discussion.

The session explored how professionals move from acquiring knowledge to understanding, retaining and applying it in practice. Communication, patient experience, multidisciplinary collaboration and digital skills were considered alongside the organisational conditions that enable professionals to use what they learn.

The discussion also addressed critical appraisal in the age of artificial intelligence. Asking meaningful questions, evaluating answers and applying knowledge responsibly are essential capabilities in contemporary healthcare.

Across these contributions, Kapa3 highlighted a shared principle: information becomes valuable when people can understand it, access it and use it in everyday life.

Acknowledgements

Kapa3 thanks the Hellenic Nurses Association and its Oncology Nursing Section for the invitation and trust, the session chairs and speakers for their contributions, and everyone who enriched the discussions with questions and experiences.

We also thank the Kapa3 team and our partners, the TIMA Charitable Foundation for supporting MYRTO, and Anthi Moulianiti-Kontokosta for her valued personal contribution to connecting knowledge with a shared vision for care.

About Kapa3

Kapa3 – Cancer Guidance Centre is a Greek nonprofit organisation supporting people affected by cancer and their families through information, social navigation and connections to support services. Its work focuses on social rights, health literacy and equitable access to support.

Learn more: www.kapa3.gr

Breast Cancer in Greece: Statistics, Barriers to Screening and the Free “PROLAMVANO” Programme

Breast Cancer Awareness Month 2026: Understanding the evidence, overcoming barriers to early detection and making preventive healthcare accessible to every woman.

Early detection can save lives

Breast cancer remains the most frequently diagnosed cancer among women in Greece and one of the most significant public health challenges worldwide.

However, advances in early detection, diagnosis and treatment have substantially improved outcomes. When breast cancer is identified before it has spread beyond the breast, the chances of successful treatment are considerably higher.

According to the American Cancer Society, the five-year relative survival rate for women diagnosed with localised breast cancer in the United States exceeds 99%. This figure reflects population-level survival data rather than an individual prognosis, and it should not be interpreted as a guaranteed cure rate or as a Greece-specific statistic.

These findings highlight the importance of timely diagnosis, access to appropriate screening and high-quality treatment.

Early detection is not simply a medical recommendation. It is an opportunity to protect health, preserve quality of life and improve outcomes.

As October marks Breast Cancer Awareness Month, understanding the situation in Greece is particularly important: How common is breast cancer? What prevents women from participating in screening? And how can national prevention programmes help overcome these barriers?

1. Breast cancer statistics: Greece and the European Union

Breast cancer in Greece

According to the latest Greece country fact sheet from the International Agency for Research on Cancer (IARC), based on GLOBOCAN 2024 estimates, breast cancer was the most frequently diagnosed cancer among women in Greece.

The estimated figures for 2024 were:

  • 8,733 new breast cancer cases.
  • 2,398 deaths attributed to breast cancer.
  • 31.7% of all new cancer diagnoses among women were breast cancer cases.
  • 35,740 people were estimated to be living within five years of a breast cancer diagnosis.

These figures describe the substantial burden of breast cancer and the importance of sustained investment in prevention, early detection, treatment and comprehensive support.

It is important to recognise that GLOBOCAN figures are epidemiological estimates. They should not be confused with directly recorded cases from a fully comprehensive national cancer registry.

Breast cancer risk increases with age, although the disease can also affect younger women. Individual risk is influenced by several factors, including age, family history, inherited genetic variants, reproductive and hormonal factors, and lifestyle-related characteristics.

The importance of early diagnosis

Survival outcomes differ considerably depending on the extent of disease at diagnosis.

US population-based data show that five-year relative survival is higher than 99% for localised breast cancer, compared with approximately 87% for regional disease and 32% for distant disease.

These figures demonstrate the value of identifying breast cancer before it has spread, while also highlighting why treatment and supportive care remain essential at every stage.

Screening aims to detect cancer early, before symptoms develop. It does not prevent every cancer from occurring and cannot guarantee a particular outcome.

Greece has one of the highest concentrations of mammography equipment in the EU

According to Eurostat’s publication of 2 October 2026, Greece and Cyprus reported the highest availability of mammography units among EU countries with available data.

The reported figures were:

  • Greece: 7.6 mammography units per 100,000 inhabitants.
  • Cyprus: 6.9 units.
  • Italy: 3.7 units.
  • Sweden: 1.1 units.

The equipment figures refer to 2024.

These findings reveal an important distinction between the availability of medical technology and equitable access to preventive healthcare.

A relatively high number of mammography units does not automatically ensure that every woman can obtain timely screening.

Geographical distribution, appointment availability, accessibility, health literacy and socioeconomic circumstances can all influence actual access.

Eurostat’s October 2026 report does not provide a comparable 2024 screening participation rate for Greece. Therefore, the equipment data should not be interpreted as evidence of high or low participation in organised breast cancer screening.

Across the European Union, screening participation also varies substantially between countries, emphasising the importance of effective outreach, organised programmes and equitable access.

2. Why do women postpone breast cancer screening?

Access to equipment is only one component of effective prevention.

Women’s participation in screening is also influenced by personal beliefs, knowledge, previous experiences and practical circumstances.

A scientific study published in 2025 by Toska and colleagues, entitled “Translation and Validation of the Greek Version of the Breast Cancer Screening Beliefs Questionnaire”, examined the Greek version of the Breast Cancer Screening Beliefs Questionnaire (BCSBQ-12).

The methodological study involved 202 women in Greece aged between 21 and 69 years and confirmed the questionnaire’s three-factor structure.

The three dimensions are particularly relevant for understanding how women approach breast cancer screening.

Knowledge

Knowledge refers to women’s understanding of breast cancer, the purpose of screening, the available examinations and the importance of timely medical assessment.

Access to accurate and understandable information can help women distinguish between screening recommendations, symptoms requiring medical evaluation and misconceptions about breast cancer.

Health literacy is therefore essential. Information must be scientifically reliable, clearly communicated and accessible to women with different educational, linguistic and digital backgrounds.

Attitudes and beliefs

Personal attitudes can influence whether a woman considers screening necessary, beneficial or relevant to her circumstances.

Some women may feel healthy and therefore assume that screening is unnecessary. Others may associate mammography with fear, discomfort or anxiety about a possible diagnosis.

Addressing these concerns requires sensitive, respectful and evidence-based communication rather than messages that create guilt or fear.

Perceived and practical barriers

Barriers to breast cancer screening may include:

  • Fear of receiving an abnormal result.
  • Anxiety about the examination itself.
  • Limited time due to employment or family responsibilities.
  • Financial and transport difficulties.
  • Limited access to appropriate healthcare services.
  • Uncertainty about where or how to book an appointment.
  • Insufficient understanding of screening recommendations.

The Greek BCSBQ-12 validation study provides a reliable instrument for investigating screening beliefs; it does not, by itself, establish the national prevalence of each barrier.

Nevertheless, broader European research has documented inequalities in screening participation associated with education, income, geographical location and disability.

Effective prevention requires more than equipment and invitations. It requires understanding the needs and circumstances of the people screening programmes are designed to reach.

3. Greece’s National “PROLAMVANO” Programme: Free breast cancer screening

A major public health initiative supporting access to early detection in Greece is the National Prevention Programme “PROLAMVANO”, which includes the “Fofi Gennimata” Breast Cancer Screening Programme.

On 13 October 2026, the Greek Ministry of Health announced the gradual distribution of new SMS notifications and electronic referrals for free breast cancer screening.

According to the Ministry, the programme is now a permanent national public health policy, financed through national resources.

Who is eligible?

Under the screening cycle announced in October 2026, the programme covers:

Women aged 45–74, whether insured or uninsured, who meet the programme’s eligibility conditions.

The Ministry identified 2,385,935 women as eligible for the new cycle.

The programme seeks to reduce financial and administrative barriers by providing access to preventive examinations without direct charges to eligible beneficiaries.

How can women arrange their screening?

Step 1: Check for an SMS notification

Women who have activated Greece’s electronic paperless prescription service (ayli syntagografisi) receive an electronic referral by SMS.

The notification supports access to the examination without the need to obtain a conventional paper prescription.

Step 2: Use your AMKA if you have not activated paperless prescriptions

Women who have not activated the paperless prescription service can still access the programme.

They can visit the official screening platform:

https://proliptikes.gov.gr

The platform provides information about participating diagnostic centres, their locations and contact details.

Eligible women can contact a participating centre and arrange an appointment using their AMKA, the Greek Social Security Registration Number.

Step 3: Attend the screening appointment

The programme includes a free digital mammogram and, where clinically indicated, a supplementary breast ultrasound examination.

If a finding requires additional evaluation, women should follow the medical guidance provided by the relevant healthcare professionals.

Screening does not replace diagnostic assessment when a person already has symptoms.

The impact of the first screening cycle

According to the Greek Ministry of Health’s announcement of 13 October 2026:

  • 1,267,026 women underwent digital mammography during the first cycle of the breast screening programme.
  • 87,231 women were identified with findings requiring further medical attention or investigation.
  • More than 6,000 women were reported to have been diagnosed with early-stage breast cancer.

These figures demonstrate the scale of the initiative and the significant opportunity created by organised early detection.

An abnormal screening finding does not necessarily mean that cancer is present. Additional tests may be required to clarify the result.

The figures also underline the importance of ensuring that women with abnormal findings can access timely diagnostic follow-up and appropriate care.

4. What should women know about breast cancer prevention and screening?

Breast health involves a combination of awareness, appropriate screening, clinical assessment and attention to modifiable risk factors.

Mammography

Mammography is the principal imaging test used for breast cancer screening in women without symptoms.

The recommended age at which screening should begin and the frequency of examinations vary according to national guidelines, age and individual risk.

European guidance recommends mammography every two years for asymptomatic women aged 50–69 at average risk, with screening also considered for women aged 45–49 and 70–74 at different intervals.

For women at increased risk, including some women with a strong family history or inherited genetic variants, an individualised screening plan may be needed.

There is no universal requirement for every woman to have a baseline mammogram at 35–40 or annual screening after 40.

Women should discuss the most appropriate screening schedule with their healthcare professional.

Breast ultrasound

Breast ultrasound can provide supplementary information when clinically indicated, including in the investigation of a specific finding.

It may be useful in the assessment of certain breast abnormalities, but it does not automatically replace mammography as a routine screening examination.

Additional imaging decisions depend on individual circumstances and medical recommendations.

Breast awareness

Women are encouraged to become familiar with the normal appearance and feel of their breasts and to seek medical advice if they notice a new or unusual change.

Possible warning signs include:

  • A new lump in the breast or armpit.
  • Changes in breast size or shape.
  • Skin dimpling, thickening or unusual redness.
  • New nipple inversion or other nipple changes.
  • Spontaneous nipple discharge, particularly if bloody.
  • Persistent and unexplained breast changes.

Many breast changes are not caused by cancer. Nevertheless, concerning symptoms should be assessed by a healthcare professional without unnecessary delay.

Formal monthly breast self-examination is not a substitute for evidence-based screening, and it is not universally recommended as a screening method.

Knowing your body is important. So is knowing when to seek medical advice.

Healthy lifestyle and risk reduction

Although no lifestyle measure can completely eliminate the risk of developing breast cancer, certain behaviours can support long-term health and may reduce cancer risk.

These include maintaining a healthy body weight, engaging in regular physical activity, limiting alcohol consumption, avoiding tobacco use and following a balanced diet.

A Mediterranean-style dietary pattern can be part of a broader approach to health promotion.

Prevention messages should empower women without suggesting that cancer is the consequence of personal choices or that a healthy lifestyle guarantees protection.

5. From screening availability to meaningful access: The role of Kapa3

The development of national screening programmes is an important step towards improving public health.

However, their success also depends on whether women can understand the available information, navigate procedures and access services in practice.

At Kapa3 – Cancer Guidance Center, we believe that timely access to healthcare is closely connected with health literacy, social support and effective navigation within the health and welfare systems.

Our work focuses on addressing the informational, administrative and social challenges faced by people affected by cancer and their families.

Through free guidance and patient navigation services, Kapa3 supports individuals in understanding their rights, navigating administrative procedures and identifying relevant healthcare and social support resources.

Kapa3 does not replace medical professionals or provide diagnostic screening itself. Instead, it works to reduce informational and administrative barriers and to connect people with appropriate services.

The development of our digital social navigation assistant, MYRTO, further reflects our commitment to making reliable information about rights, benefits and support services more accessible.

This approach recognises that digital tools have the greatest value when they complement human support rather than replace it.

Health literacy as a foundation for prevention

Health literacy is not simply the ability to read medical information.

It includes the capacity to find, understand, evaluate and use information to make informed decisions about health.

For breast cancer screening, this can mean understanding an invitation, identifying the appropriate service, arranging an appointment and knowing what to do when further medical assessment is recommended.

Strengthening health literacy and digital inclusion can therefore contribute to more meaningful access to preventive healthcare.

Supporting equitable access

Women living in remote or underserved areas, people facing socioeconomic difficulties and those with limited digital skills may require additional guidance to access preventive services.

A person-centred approach must consider these differences rather than assume that a national programme automatically reaches everyone in the same way.

Patient navigation, community outreach, accessible communication and cooperation between healthcare providers and civil society organisations can help address such challenges.

At Kapa3, our broader mission is grounded in the belief that reliable information, guidance and practical support are essential components of equitable care.

6. Breast Cancer Awareness Month: Turning information into action

October is an opportunity to renew public discussion about breast cancer, but awareness must lead to sustained action throughout the year.

The available evidence demonstrates both the progress achieved in early detection and the challenges that remain.

Greece has substantial mammography infrastructure and an expanding national prevention programme. Ensuring that these resources translate into timely, appropriate and equitable access requires continuous communication, evaluation and support.

Women need more than information about the importance of screening. They need clear guidance on eligibility, available services and the steps required to access them.

Prevention is not an act of fear. It is an act of care, awareness and informed choice.

If you are eligible for the “PROLAMVANO” programme, check for your electronic referral or visit the official platform to find a participating diagnostic centre.

If you experience symptoms or have concerns about your breast health, seek medical advice even if you are younger than the programme’s eligibility age.

And if you need guidance in navigating cancer-related services, rights or support, Kapa3 is here to help.

Because access to health should not depend on how easily someone can navigate the system.


Useful information and contact details

National Prevention Programme “PROLAMVANO”
Official screening platform: https://proliptikes.gov.gr

Kapa3 – Cancer Guidance Center
Website: https://www.kapa3.gr
Telephone: +30 210 5221424
Email: info@kapa3.gr

MYRTO – Digital Social Navigation Assistant
https://kapa3-cag-rag-hybrid-deploy.onrender.com/

The information in this article is educational and does not replace individual medical assessment or professional healthcare advice. Screening eligibility and programme procedures may change; readers should consult the official programme platform for the latest information.

References

  1. International Agency for Research on Cancer (IARC). (2026). Global Cancer Observatory: GLOBOCAN 2024 – Greece Fact Sheet.
    https://gco.iarc.who.int/media/globocan/factsheets/populations/300-greece-fact-sheet.pdf
  2. Eurostat. (2026, October 2). Breast cancer screening in the EU: A snapshot. European Commission.
    https://ec.europa.eu/eurostat/web/products-eurostat-news/w/edn-20261002-1
  3. Toska, A., Georga, D., Christakis, A., Fradelos, E. C., Rouka, E., Sarafis, P., & Saridi, M. (2025). Translation and Validation of the Greek Version of the Breast Cancer Screening Beliefs Questionnaire. Asian Pacific Journal of Cancer Prevention, 26(2), 663–670.
    https://doi.org/10.31557/APJCP.2025.26.2.663
  4. Hellenic Republic, Ministry of Health. (2026, October 13). Συνεχίζεται το «ΠΡΟΛΑΜΒΑΝΩ»: Δωρεάν προληπτικές εξετάσεις μαστού με ένα απλό SMS. [Official press release, in Greek.]
    https://www.moh.gov.gr/articles/ministry/grafeio-typoy/press-releases/14839-synexizetai-to-laquo-prolambanw-raquo-dwrean-prolhptikes-eksetaseis-mastoy-me-ena-aplo-sms
  5. European Commission. Breast Cancer Prevention – Health Promotion and Disease Prevention Knowledge Gateway.
    https://knowledge-for-policy.ec.europa.eu/breast-cancer-prevention_en
  6. American Cancer Society. (2026). Survival Rates for Breast Cancer.
    https://www.cancer.org/cancer/types/breast-cancer/understanding-a-breast-cancer-diagnosis/breast-cancer-survival-rates.html
  7. American Cancer Society. Recommendations for the Early Detection of Breast Cancer.
    https://www.cancer.org/cancer/types/breast-cancer/screening-tests-and-early-detection/american-cancer-society-recommendations-for-the-early-detection-of-breast-cancer.html

Language in cancer care: why words are never neutral

Language used in cancer care is never neutral. The words chosen to describe a diagnosis can significantly shape how a person experiences illness, especially during a highly vulnerable period of life. Depending on how they are used, words may either reinforce fear and stigma or support dignity, psychological safety, and empowerment.

This perspective is highlighted in a recent interview with Evangeli Bista, co-founder of the Cancer Guidance Center (Kapa3), published on iatronet.gr, where she discusses the findings of a study exploring how patients themselves perceive the language used around cancer.

The study, conducted by Kapa3, examined how people living with cancer experience terms such as “cancer patient,” “oncology patient,” or simply “patient,” and how these labels influence their emotional response and sense of identity.

Findings suggest that many patients feel that labels directly linking them to their disease can increase emotional burden and reinforce the idea that cancer defines their entire identity. In contrast, more neutral or person-first expressions (“person with cancer”) appear to offer greater psychological comfort, allowing individuals to maintain a sense of self beyond the diagnosis.

The qualitative analysis also highlights the crucial role of healthcare professionals. Clear, honest, and compassionate communication—without exaggeration or dramatic framing—is consistently described by patients as a key element of trust and emotional support. Communication, in this sense, is not simply a soft skill but an essential part of clinical care.

The study further reinforces the importance of a person-first approach, where the individual comes before the illness. At the same time, participants expressed resistance both to stigma and to excessive heroisation, calling instead for balanced, respectful, and realistic communication.

Ultimately, language in oncology is not just descriptive—it actively shapes the patient experience and becomes part of the care process itself.

Read the full interview with Evangeli Bista on iatronet.gr:
https://www.iatronet.gr/article/139695/karkinopathhs-ogkologikos-asthenhs-h-apla-asthenhs-o-antiktypos-ton-lexeon-ston-karkino

Read the related scientific publication by the Cancer Guidance Center (Kapa3):
https://www.kapa3.gr/nea-epistimoniki-dimosieysi-gia-to-kapa3/

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

Bladder Cancer Awareness Month: Awareness, prevention and early diagnosis

May is internationally recognized as Bladder Cancer Awareness Month, an important initiative led by health organizations and patient advocacy groups worldwide to promote public awareness, prevention, and early diagnosis.

Bladder cancer is among the most common types of cancer globally, with hundreds of thousands of new cases diagnosed each year. In Europe, it is considered one of the most common urological cancers, affecting men significantly more often than women.

In Greece, the data remains particularly concerning. The country records the highest incidence rate in Southern Europe, with approximately 39.7 new cases per 100,000 men annually. In terms of mortality, an estimated 7–8 men per 100,000 lose their lives to the disease every year, placing Greece among the countries with the highest mortality rates in the region. These figures highlight the importance of prevention, awareness, and timely medical intervention.

Behind every statistic are people — patients and families facing the emotional, physical, and practical challenges that accompany a cancer diagnosis. Raising awareness is therefore not only about numbers, but also about supporting individuals throughout their journey.

Smoking remains the most significant risk factor for bladder cancer and is linked to a large percentage of cases. Long-term exposure to certain chemicals, especially in specific occupational environments, as well as chronic inflammation of the urinary tract, may also increase the risk of developing the disease.

Recognizing the symptoms early can make a critical difference. The most common warning sign is blood in the urine (hematuria), even when no pain is present. Other symptoms may include frequent urination, burning during urination, or a sudden urge to urinate. Although these symptoms may also be associated with less serious conditions, they should never be ignored.

When bladder cancer is diagnosed at an early stage, survival rates are significantly higher, underlining the importance of early detection. However, the disease is also known for its high recurrence rates, making long-term follow-up and monitoring essential even after treatment.

Prevention remains a key pillar in reducing the burden of the disease. Quitting smoking, limiting exposure to harmful chemicals, and increasing awareness of the symptoms can all contribute to lowering the risk.

In Greece, awareness initiatives are also supported by scientific organizations such as the Hellenic Genito-Urinary Cancer Group (HGUCG), contributing to public education and the promotion of early symptom recognition.

Bladder Cancer Awareness Month is an important opportunity to encourage open discussion around the disease. Awareness is more than information — it is a tool that can lead to earlier diagnosis, improved treatment outcomes, and ultimately, more lives saved.

Sources:

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 swims for life, hope and strength

On May 24, 2026, Kapa3 will participate in the 4th Vouliagmeni Summer Open Water Swim, organized by the Nautical Club of Vouliagmeni, inviting friends, athletes, and swimmers to join the team and swim together for an important cause.

In light of June being recognized worldwide as Cancer Survivors Month, and Cancer Survivors Day being observed every year on the first Sunday of June, we come together in an initiative dedicated to life, hope, remembrance, and support.

We swim for those who survived.
We swim for those currently facing cancer.
We swim in memory of those we have lost.
We swim to remind everyone that no one is alone in the cancer journey.

Cancer survivorship is not only a medical outcome. It is an ongoing journey closely connected to prevention, early diagnosis, equal access to oncology care, rehabilitation, psychosocial support, and quality of life.

Recognizing the positive impact of physical activity on wellbeing, empowerment, and the smooth reintegration of people with cancer experience into social, family, and professional life, Kapa3 proudly takes part in a celebration of sports, the sea, and community participation.

Participants may choose one of the following swimming routes:

  • 1,000 m
  • 2,500 m
  • 5,000 m

We invite you to become part of our team.
To swim together.
To turn every meter in the sea into a message of strength, care, and hope.

On May 24, we swim with Kapa3 for life.

INFORMATION – REGISTRATIONS

Katerina Georgiopoulou
Social Worker

CANCER GUIDANCE CENTER, KAPA 3,
13 Kosti Palama Street, Athens 11141, Greece – 3rd Floor
Tel: +30 210 52 21 424 & +30 6906265170 (09:00–17:00)
Email: info@kapa3.gr

April 18: European Patients’ Rights Day

European Patients’ Rights Day is celebrated every year on April 18 and serves as an important occasion to raise awareness about the fundamental rights of all patients in Europe. The day was established by the Active Citizenship Network, aiming to promote equal access to quality healthcare services and safeguard patients’ dignity.

At the European level, patients’ rights do not stem from a single binding legal framework, but from a combination of principles, European directives, and national legislation. A milestone was the European Charter of Patients’ Rights (2002), which established 14 core rights and has become a reference point for many countries.

Key rights include:

  • The right to access healthcare services
  • The right to prevention
  • The right to timely and accurate diagnosis
  • The right to information and informed consent
  • The right to choose treatment
  • The right to privacy and confidentiality
  • The right to safe and high-quality care
  • The right to respect for the patient’s dignity

Despite legislative progress, the full implementation of these rights remains a challenge. According to international reports, in certain vulnerable groups, unmet healthcare needs can reach particularly high levels due to cost, long waiting times, or geographic barriers. Data from the European Commission also highlight delays in diagnoses and treatments, as well as limited patient awareness of available options.

In Greece, patients’ rights are legally protected through, among others, Law 2071/1992 and subsequent regulations. Furthermore, Patient Rights Protection Offices (Γ.Π.Δ.Λ.Υ.Υ.) implement specific regulations for managing complaints, grievances, and positive feedback, as outlined in a Ministry of Health circular (2024). In recent years, significant steps have been taken to strengthen patients’ position in the healthcare system, including:

  • Strengthening the role of Patient Rights Protection Offices in public hospitals
  • Updating the Charter of Rights, with emphasis on modern needs such as digital health and rare diseases
  • Enhancing cooperation between the State, local authorities, academic community, and patient associations
  • Advancing digital transformation, including electronic prescriptions and applications such as MyHealth app

Despite this progress, major challenges remain, such as ensuring equal access to innovative treatments, reducing inequalities, protecting personal data, and guaranteeing high-quality care for all patients.

If a patient feels that their rights have been violated, they can turn to:

  • The hospital administration or the relevant patient rights office
  • The Greek Ombudsman
  • Patient associations or support organizations
  • Relevant health supervisory authorities

In this context, patient organizations and broader civil society organizations, such as Kapa3, play a crucial role—not only in supporting and guiding patients but also in highlighting issues, promoting policy changes, and shaping a fairer and more accessible healthcare system.

Awareness of one’s rights is the first and most essential step toward protecting them. An informed patient can actively participate in decisions concerning their health, advocate for better care, and contribute to improving the healthcare system itself.

This day reminds us that healthcare is not a privilege but a fundamental human right—and that a fair and patient-centered healthcare system is built every day, with respect, information, and active participation from all.

Sources:

  1. European Charter of Patients’ Rights (2002): https://www.activecitizenship.net/charter-of-rights.html
  2. European Commission data: https://health.ec.europa.eu/publications/patients-rights_en
  3. Ministry of Health – Regulations for managing complaints and grievances through Patient Rights Protection Offices (Γ.Π.Δ.Λ.Υ.Υ.) -greek text

Text/adaptation: Ifiyenia Anastasiou for Kapa3

Kapa3 and Karkinaki join forces to support children, adolescents, and families living with cancer

The Cancer Guidance Center – Kapa3 announces its new collaboration with the non-profit organization “Karkinaki”, aiming to strengthen information, psychosocial support, and awareness around childhood and adolescent cancer, as well as to support families experiencing the disease.

Karkinaki is a specialized organization working in the field of childhood and adolescent cancer, focusing on reliable information, empowering parents and caregivers, and fostering a supportive environment around children and teenagers affected by cancer. Through community-based actions and awareness initiatives, it seeks to reduce the sense of isolation that often accompanies diagnosis, while also enhancing understanding, social awareness, and access to available support resources for families.

Within the framework of this collaboration, the two organizations will develop joint initiatives focused on information and awareness-raising, with an emphasis on actions addressing both families and healthcare and support professionals. The partnership will also include the co-organization of informational events, the exchange of good practices, and the exploration of participation in national and European programs that promote a holistic approach to patient care, with an emphasis on continuity of support across all stages of the disease experience.

The Cancer Guidance Center – Kapa3 is dedicated to informing, guiding, and empowering people affected by cancer, providing practical support and access to reliable information and services. At the same time, it develops initiatives that strengthen patients’ active participation in managing their health and promotes a more accessible and human-centered model of care.

In this context, Kapa3 is also involved in European collaborations focusing on the psychosocial dimension of cancer across different stages of life, such as the MELODIC project, which addresses the mental health of young adults with lived experience of cancer. This work further enhances the organization’s ability to recognize needs that emerge throughout the cancer journey, from childhood to adulthood.

This collaboration with Karkinaki reflects the shared vision of both organizations to strengthen a support network that goes beyond medical treatment, extending into families’ daily lives, information access, and psychosocial empowerment, with the aim of providing a more stable and meaningful presence for those who need it most.

Our Press Release here: KARKINAKI PRESS RELEASE

Text: Ifiyenia Anastasiou for Kapa3

Patients’ Rights in Public Administration: Less Bureaucracy and More Transparency

With Law 5293/2026 (Government Gazette A’57), a new framework is introduced for the operation of Public Administration in Greece, directly linked to patients’ rights in public administration, aiming to create a more citizen-friendly, efficient and transparent system.

These changes affect everyday interactions with public services, improving the way citizens are served, informed and supported.

The main provisions of the law can be grouped into three key pillars:

1. Simplification of procedures and reduction of bureaucracy

A central element of the reform is the simplification of administrative processes.

Article 3 – Replacement of supporting documents

According to Article 3, citizens may, in several cases, replace official supporting documents with a solemn declaration, when these documents cannot be directly retrieved by public services.

In practice, this means:

  • fewer documents need to be submitted
  • public authorities are responsible for retrieving the required information
  • procedures can start immediately without delays

At the same time, verification mechanisms are in place, including checks and sanctions in cases of false declarations.

Article 5 – Faster processing of requests

Article 5 strengthens the obligation of public services to process requests within specific deadlines, reducing delays in administrative procedures.

2. Transparency and digital access to information

The second pillar focuses on improving transparency and access to information.

Article 5 – Case tracking

Citizens are given the ability to digitally monitor the progress of their requests.

They can access information such as:

  • the current stage of the process
  • the estimated completion time
  • the responsible department
  • contact details for further communication

Article 6 – Mandatory publication of circulars

All administrative circulars:

  • must be published online
  • are valid only after publication

This ensures that citizens have access to up-to-date and valid information.

Article 7 – Online publication of public service hours

Public authorities are required to publish and regularly update:

  • their operating hours
  • public service hours

This helps reduce unnecessary visits and waiting times.

3. A new way of operating public administration

The law also introduces a new approach to administrative procedures, aiming to increase efficiency.

Article 4 – Certified professionals

Public administration may collaborate with certified professionals who:

  • are registered in official registries
  • meet specific qualification and certification criteria
  • can prepare reports, certificates or draft decisions used in administrative processes

These professionals are subject to:

  • random checks
  • penalties and fines in case of errors
  • removal from the registry if necessary

At the same time, accountability mechanisms (particularly under Article 3) ensure the reliability of the system.

What this means for patients

While these measures apply to all citizens, they are particularly important in relation to patients’ rights in public administration.

Reducing bureaucracy, enabling digital access to information and speeding up procedures can significantly ease the burden for patients, especially in processes related to:

  • healthcare services
  • benefits and allowances
  • administrative approvals

Towards a more accessible public administration

Law 5293/2026 represents an important step towards a more efficient, transparent and accessible public administration.

For patients and their families, every improvement that reduces complexity and uncertainty is not just an administrative change, but a meaningful support in their daily lives.

You can find the Government Gazette A’57 here (Greek Text): ΦΕΚ Α 57 Ν 5293_2026

Text/adaptation: Ifiyenia Anastasiou for Kapa3

April: Awareness Month for Head & Neck Cancer and Testicular Cancer

April has been internationally recognized as an awareness month for two important types of cancer: head and neck cancer and testicular cancer. Education and prevention are critical, as early diagnosis can save lives and significantly improve patients’ quality of life. Although these cancers are often overlooked in public discussions, raising awareness helps reduce delayed diagnoses and strengthens preventive measures. Society is encouraged to participate actively in awareness campaigns, speak openly about risks, and promote prevention across all age groups.

Head and Neck Cancer

Head and neck cancer includes tumors that occur in the oral cavity, pharynx, larynx, nasal cavities, and paranasal sinuses. According to the European Society for Medical Oncology (ESMO), approximately 150,000 new cases are diagnosed annually in Europe, with 70% affecting men. In Greece, it is estimated that over 3,500 new cases occur each year, primarily in people aged 50+, while incidence among younger patients is increasing due to HPV infection.

Risk factors include smoking, excessive alcohol consumption, sun exposure for certain skin cancers of the face, and HPV. Symptoms that should not be ignored include persistent sore throat, voice changes, non-healing sores, neck lumps, and difficulty swallowing. Early recognition of these symptoms and regular check-ups with a specialist significantly improve survival chances, exceeding 80% when diagnosed early. Additionally, regular dental exams and HPV vaccination are recommended preventive measures.

Testicular Cancer

Testicular cancer is rare but primarily affects young men aged 20 to 40. Awareness is critical, as early detection is associated with survival rates of up to 95% in early stages. In Greece, approximately 300–400 new cases are reported annually. Risk factors include history of undescended testicles (cryptorchidism), family history of testicular cancer, and certain genetic conditions.

Self-examination is the most effective method for early detection: men are encouraged to regularly check their testicles for lumps, changes in size, or texture. Education about self-examination reduces fear and promotes early consultation with a physician. Early medical intervention and imaging tests contribute to complete treatment, often without requiring radical surgery, allowing patients to return quickly to normal activities.

The prevention and education are our strongest weapons against cancer. Through awareness initiatives, like those organized by Kapa3, people learn to recognize early symptoms, seek timely medical advice, and rely on professionals and organizations offering counseling and support. Knowledge saves lives, and active participation can make a difference, strengthening a culture of prevention and personal responsibility for health.

Sources / Learn More:

• April is Testicular Cancer Awareness Month — Testicular Cancer Foundation
https://www.testicularcancer.org/april-testicular-cancer-awareness-month/

• Testicular Cancer Statistics — Johns Hopkins Medicine
https://www.hopkinsmedicine.org/health/conditions-and-diseases/testicular-cancer/testicular-cancer-statistics

• Head and Neck Cancer Awareness Month — AwarenessDays.com
https://www.awarenessdays.com/awareness-days-calendar/head-and-neck-cancer-awareness-month/

• Head and Neck Cancers Epidemiology — World Cancer Report (NCBI)
https://www.ncbi.nlm.nih.gov/books/NBK606499/

Text/Adaptation: Ifiyenia Anastasiou for Kapa3

New National Patient Registry for Hospital-at-Home Care (NOSPI)

Patient care at home in Greece is becoming more organized and secure with the establishment of the National Registry of Patients Receiving Hospital-at-Home Care (NOSPI), as published in Government Gazette 1995/07.04.2026. The NOSPI program is already in pilot implementation at selected hospitals nationwide, with the goal of full development and operation by the end of 2026, including a digital platform and patient registry.

The new registry aims to systematically record patients receiving NOSPI services, ensuring that care is tailored to individual therapeutic needs. Patient groups eligible for inclusion include, among others, those with tracheostomies, on non-invasive mechanical ventilation, receiving long-term oxygen therapy, on parenteral or gastrostomy feeding, as well as those requiring intensive physiotherapy or mobility rehabilitation. Currently, enrollment primarily focuses on children with severe health conditions and chronically ill patients needing pulmonary care, in collaboration with pilot Reference Centers.

While the NOSPI program is already operating in a pilot phase, universal access for all patients in the country has not yet been achieved. Its development is gradual, with full operation—including digital infrastructure and registry-based documentation—planned by the end of 2026. Strengthening Hospital-at-Home care enables better monitoring and improvement of home care services for patients with long-term needs.

Through the registry, authorities can collect accurate and essential health data, enhancing the quality of services and supporting the design of targeted health policies. Implementation respects personal data protection in line with the General Data Protection Regulation (GDPR), ensuring transparency and public trust.

For families and caregivers, patient enrollment in the NOSPI National Registry means access to more coordinated care, with support delivered directly to their homes. Furthermore, documentation helps evaluate and improve home nursing services, enhancing patient safety and quality of life.

This initiative, combined with the development of the digital platform and registry, aims not only to upgrade home care services but also to reduce hospital congestion and ensure high-quality services for all patients in the future.

Sources (text in Greek) : Government Gazette NOSPI, ODIPY

Text/adaptation: Ifiyenia Anastasiou for Kapa3