Kapa3 joins PERIFORMANCE: From Information to Trust in Cancer Care

Kapa3 – Cancer Guidance Centre is pleased to announce that its proposal, “From Information to Trust: MYRTO Patient & Citizen Lab for Equal Access in Cancer Care,” has been selected for funding under the PERIFORMANCE Open Call for Bottom-Up Stakeholder Engagement Initiatives in Cancer Research & Care.

The initiative places patients, caregivers, healthcare and social care professionals, civil society organisations and local communities at the heart of the process, creating a participatory framework for the ethical, trustworthy and inclusive use of AI-enabled cancer navigation.

Putting patients and citizens at the centre

The project is closely linked to MYRTO, Kapa3’s AI-enabled digital social assistant designed to support people affected by cancer in navigating health, social care, administrative procedures and rights-related information.

PERIFORMANCE funding will not support the core technical development of MYRTO. Instead, the project will focus on building the participatory, educational and ethical layer around the tool, ensuring that its future development is shaped by the real needs, experiences and expectations of the people who will use it.

This approach reflects a key principle for Kapa3: technology should not replace human care. When designed responsibly, however, it can become a powerful tool for improving access, empowerment and equality.

From local communities to a national dialogue

The engagement pathway will include regional listening activities, a thematic focus on vulnerable and underrepresented groups, and a central MYRTO Patient & Citizen Lab in Athens.

Particular attention will be given to caregivers, older patients, migrants, people with disabilities, people with low health or digital literacy, socially vulnerable groups and people living far from specialised oncology services.

The Athens Lab will be integrated into Kapa3’s national conference “Equality in Access”, creating a space for synthesising regional experiences, identifying trust criteria and collecting patient and caregiver perspectives on AI-supported navigation.

What does trust in AI-supported cancer navigation mean?

At the heart of the project lies a fundamental question:

What does a person need in order to trust a digital tool during one of the most sensitive periods of their life?

Through co-creation and stakeholder engagement, the initiative will explore issues such as:

  • reliability and clarity of information,
  • data protection and privacy,
  • accessibility and digital inclusion,
  • responsible use of Artificial Intelligence,
  • prevention of bias and exclusion,
  • human oversight,
  • and clear referral pathways to appropriate professionals when human support is needed.

Bringing together science, civil society and lived experience

Kapa3 will coordinate the initiative and lead its design, implementation, facilitation, patient and community outreach, dissemination and reporting.

The project will be supported by a multidisciplinary academic and scientific collaboration network involving the International Hellenic University – Department of Nursing, University of West Attica – Department of Occupational Therapy, Democritus University of Thrace – Department of Social Work, and University of the Peloponnese – Department of Nursing. simasiaAI will provide technical support for MYRTO-related digital materials and the AI navigation environment.

The project is expected to produce practical resources including a Patient Guidance Toolkit, a Trust & Human Escalation Checklist, a Training and Dissemination Package, and an Engagement & Trust Report.

From information to trust

For Kapa3, participation in PERIFORMANCE marks another step towards ensuring that the patient voice is present not only when new services and technologies are evaluated, but from the very beginning of their design.

With MYRTO, the question is no longer simply:

“How can we provide more information?”

It is increasingly:

“How can we turn information into understanding, trust, safety and real access?”

Because responsible digital health innovation begins with people.

MELODIC: Advancing Mental Health Support for Young Adults with Cancer

The MELODIC project, a European programme focused on the mental health of young adults with lived experience of cancer, launched in September 2024 with the aim of strengthening the mental wellbeing of people aged 18–35, as well as their families. Through collaboration among six European countries, MELODIC combines research, educational activities, and the development of future interventions, promoting a more supportive and personalised approach to care.

MELODIC has already delivered significant outcomes, including outputs related to project management, needs assessment, interview-based research, and the training of healthcare professionals, while preparing upcoming intervention actions and communication and policy strategies.

KEY DELIVERABLES – WHAT HAS BEEN COMPLETED SO FAR

WP1 – Project Management & Quality Assurance

Deliverable 1.1 – Project Implementation Manual:
A management and quality monitoring guide defining implementation requirements, organisational structures, and partner roles.

Deliverable 1.2 – Quality Report:
A quality assurance report outlining procedures to ensure clarity, consistency, and timely delivery of project outputs.

WP2 – Needs Assessment

Deliverable 2.1 – Data Management Plan:
Assessment of the mental health and educational needs of young adults and healthcare professionals, in full compliance with data protection requirements.

Deliverable 2.3 – Interview Study Report:
A comprehensive interview-based study involving young adults, family members, and healthcare professionals across six countries, conducted with ethical approval and presenting key findings.

WP3 – Co-design Guide & Training

Deliverable 3.1 – MELODIC Curriculum:
A training programme for healthcare professionals at EQF level 7, focusing on the identification and support of the psychosocial and mental health needs of young adults with cancer. The curriculum includes learning objectives, training materials, assessment methods, and certification.

WHAT’S NEXT – UPCOMING DELIVERABLES AND ACTIONS

WP4 – Intervention Study

Deliverable D4.1 – Ethical Review:
Ethical approval for the intervention study aiming to improve the mental health and wellbeing of young adults with cancer and their families. The intervention will combine physical activity in natural environments with psychoeducation and informational support.

WP5 – Communication & Policy

Deliverable 5.1 – Communication Strategy:
A communication strategy outlining channels, target audiences, and publication plans for the internal and external dissemination of project results.

Deliverable 5.2 – Policy Outreach Strategy:
A policy engagement strategy at European and national level, including policy and stakeholder mapping and three intervention pillars (European, National, and Project-specific). The aim is to integrate MELODIC training into curricula and to enhance the project’s visibility at European level.

OUR PARTICIPATION IN MELODIC

As part of our active involvement, we have contributed to the production of key deliverables, particularly in data collection through interviews and in the development of the training curriculum for healthcare professionals. Our engagement ensures that the voices of young adults with lived experience of cancer and their families are taken into account at every stage of the project.

For more information and full access to MELODIC deliverables, please visit the project’s official website here.

Text/adaptation: Ifiyenia Anastasiou for Kapa3