Promitheas launches MyPBCVoice, an innovative initiative aimed at empowering and supporting people with Primary Biliary Cholangitis (PBC) in Greece. PBC is a rare, chronic autoimmune liver disease with symptoms such as fatigue, itching, abdominal discomfort, and psychological challenges.
MyPBCVoice focuses on patient education, information, and mutual support to improve quality of life. Activities include:
- Questionnaires to assess patient needs (fill here)
- A PBC-focused microsite
- Interactive Facebook community for communication and support (join here)
- Short videos and vidcasts with patients and experts
- Online webinars
- Digital archive of complaints and reports to map access barriers
We encourage everyone to share and promote this initiative to reach more patients and health professionals.
Kapa3 is proud to support initiatives like MyPBCVoice, which empower patients and foster connection and knowledge within the community.
Text/adaptation: Ifiyenia Anastasiou for Kapa3
