{"id":24261,"date":"2026-07-25T10:58:30","date_gmt":"2026-07-25T07:58:30","guid":{"rendered":"https:\/\/www.kapa3.gr\/?p=24261"},"modified":"2026-07-25T10:59:01","modified_gmt":"2026-07-25T07:59:01","slug":"the-active-role-of-patient-organizations-in-shaping-public-policy-how-our-health-advocacy-ef-orts-are-put-into-action","status":"publish","type":"post","link":"https:\/\/www.kapa3.gr\/en\/the-active-role-of-patient-organizations-in-shaping-public-policy-how-our-health-advocacy-ef-orts-are-put-into-action\/","title":{"rendered":"The Active Role of Patient Organizations in Shaping Public Policy: How Our Health Advocacy Ef orts Are Put into Action"},"content":{"rendered":"<p>At the Cancer Patient Guidance Center, we believe that the voices of patients, their families, and the organizations that represent them must be heard loud and clear where decisions are made.<\/p>\n<p>Improving the quality of life for cancer patients, ensuring access to new treatments, and meeting the needs of caregivers are not just requests but rights that are asserted through organized advocacy. To make this a reality, the right tools are needed.<\/p>\n<p><strong>The new \u201cGuide to Mapping Public Consultation Tools\u201d<\/strong><\/p>\n<p>As part of the \u201cENERGO \u2013 Toward an Open State\u201d project, HIGGS has created a practical guide that maps the available mechanisms for participation at the local, national, and European levels.<\/p>\n<p>This guide serves as a roadmap for Civil Society Organizations (CSOs), providing a detailed overview of:<br \/>\n\u2022 How institutional consultation tools function<br \/>\n\u2022 The opportunities for organizations to actively participate in policy-making<br \/>\n\u2022 The requirements for accessing these mechanisms<br \/>\n\u2022 The challenges and limitations, so that our interventions are well-informed and effective<\/p>\n<p><strong>Why might this be of interest to the beneficiaries of our Center?<\/strong><\/p>\n<p>Participation in shaping public policy is not an abstract concept. In cancer care, it translates into very specific changes:<br \/>\n1. Equal access to care: advocating for better infrastructure, shorter wait times, and free access to innovative medications.<br \/>\n2. Support for caregivers: establishing leave policies, benefits, and support systems for the people who stand by their side<br \/>\n3. Rights in the workplace: protecting cancer patients from discrimination in the workplace during and after treatment.<\/p>\n<p><strong>Summary &amp; Structure of the Public Consultation Tools Guide<\/strong><\/p>\n<p>The \u201cPublic Consultation Tools Guide\u201d was developed as part of the project \u201cENERGO \u2013 Toward an Open State\u201d (implemented by HIGGS and co-funded by the European Union, the Bodossaki Foundation, and the NGO Support Centre). It is a practical reference tool designed to empower civil society organizations (CSOs) by strengthening their capacity for meaningful, evidence-based participation in public policy-making and strategic advocacy.<\/p>\n<p><strong>The guide is organized into the following sections:<\/strong><\/p>\n<p>1. Introduction &amp; Institutional Landscape: This section presents the framework for the guide\u2019s development, which was based on research and experiential tools involving dozens of civil society organizations. It analyzes the challenges of the institutional landscape, noting that the main obstacle for organizations is not the absence of tools, but rather the fragmentation, lack of visibility, and complexity of existing mechanisms,<\/p>\n<p>2. National Tools for Public Consultation &amp; Participation: maps and presents in detail the tools available in Greece, such as OpenGov, the KEDE &amp; LocalWatch consultation platform, Vouliwatch, the YPEN Participation Platform, the National Register of Procedures (\u201cMitos\u201d), Open Council &amp; Crowd Participation, as well as Diafania &amp; POTHEN.<\/p>\n<p>3. European Public Consultation &amp; Participation Tools: presents mechanisms for engagement at the European Union level, such as Have Your Say, the European Citizens\u2019 Initiative (ECI), Consul Democracy, Loomio &amp; Decidim, and others.<\/p>\n<p>4. Tool Selection Guide &amp; Conclusions: Provides consistent evaluation criteria (purpose, implementing body, prerequisites, limitations) so that each organization can select the most appropriate tool based on the objective of its engagement.<\/p>\n<p><strong>About the \u201cENERGO\u201d Project &amp; the PLATO Program<\/strong><\/p>\n<p>The \u201cENERGO: Toward an Open State \u2013 Participation, Advocacy, and Empowerment of Civil<br \/>\nSociety Organizations\u201d project is being implemented as part of the PLATO program, with HIGGS serving as the implementing partner. The PLATO program (\u201cProtecting democracy, human rights, and the rule of law through an open civic space\u201d) aims to strengthen the fundamental rights and values of the EU in both Greece and Cyprus. It is co-funded by the European Union through the Citizens, Equality, Rights and Values (CERV) program, the Bodossaki Foundation, and the NGO Support Center. The Bodossaki<br \/>\nFoundation serves as the coordinator in partnership with the NGO Support Center.<\/p>\n<p>View and download the guide<a href=\"https:\/\/www.kapa3.gr\/wp-content\/uploads\/2026\/07\/rZT9sW-\u039f\u03b4\u03b7\u03b3\u03cc\u03c2-\u0395\u03c1\u03b3\u03b1\u03bb\u03b5\u03af\u03c9\u03bd-\u0394\u03b7\u03bc\u03cc\u03c3\u03b9\u03b1\u03c2-\u0394\u03b9\u03b1\u03b2\u03bf\u03cd\u03bb\u03b5\u03c5\u03c3\u03b7\u03c2.pdf\">rZT9sW-\u039f\u03b4\u03b7\u03b3\u03bf\u0301\u03c2 \u0395\u03c1\u03b3\u03b1\u03bb\u03b5\u03b9\u0301\u03c9\u03bd \u0394\u03b7\u03bc\u03bf\u0301\u03c3\u03b9\u03b1\u03c2 \u0394\u03b9\u03b1\u03b2\u03bf\u03c5\u0301\u03bb\u03b5\u03c5\u03c3\u03b7\u03c2.<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>At the Cancer Patient Guidance Center, we believe that the voices of patients, their families, and the organizations that represent them must be heard loud and clear where decisions are &hellip; <a href=\"https:\/\/www.kapa3.gr\/en\/the-active-role-of-patient-organizations-in-shaping-public-policy-how-our-health-advocacy-ef-orts-are-put-into-action\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">The Active Role of Patient Organizations in Shaping Public Policy: How Our Health Advocacy Ef orts Are Put into Action<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":24262,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1899,199,1949,218,1411,704,1682,1693,1589,551,1558,1856,601,1266,765,1379,681,1666,1020,1684,1818,1187,1517,1372,754,521,1006,234,1998,637,2000],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.10 - 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